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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
September 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2022 List
URL Address
<a href="http://doi.org/10.1177/02692163221093145" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/02692163221093145</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Challenges and Incentives for Integrating Person-Centred Outcome Measures Into Routine Paediatric Palliative Care: Health, Social Care and Commissioner Perspectives
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
Child; Palliative therapy; Conference abstract; Semi-structured interview; Outcome assessment; Care behavior; Genetic transcription; Social care
Creator
An entity primarily responsible for making the resource
Scott H; Coombes L; Braybrook D; Roach A; Harardottir D; Bristowe K; Ellis-Smith C; Chambers L; Bluebond-Langner M; Farsides B; Murtagh F; Harding R
Description
An account of the resource
Background/aims: To successfully integrate a newly developed measure into clinical practice, the challenges and incentives for implementation must be understood, and these are specific to each measure. Previous research has focused on disease-specific measures, or the use of outcome measures in adult palliative care. Evidence is needed to ensure successful integration of new person-centred outcome measures (PCOMs) in the paediatric palliative care context.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/02692163221093145" target="_blank" rel="noreferrer noopener">10.1177/02692163221093145</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
Bluebond-Langner M
Braybrook D
Bristowe K
care behavior
Chambers L
Child
conference abstract
Coombes L
Ellis-Smith C
Farsides B
genetic transcription
Harardottir D
Harding R
Murtagh F
outcome assessment
Palliative Medicine
Palliative Therapy
Roach A
Scott H
Semi-Structured Interview
September 2022 List
Social Care
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
September 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2022 List
URL Address
<a href="http://doi.org/10.1177/02692163221093145" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/02692163221093145</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Enabling Children and Young People to Take Patient and Public Involvement Roles in Paediatric Palliative Care Research
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
Child; Adolescent; Female; Male; Clinical; Palliative therapy; Conference abstract; Outcome assessment
Creator
An entity primarily responsible for making the resource
Coombes L; Roach A; Leyden D; Scott H; Braybrook D; Harardottir D; Ellis-Smith C; Bristowe K; Harding R
Description
An account of the resource
Background/aims: Patient and public involvement (PPI) is essential to design and deliver meaningful research, but evidence on how to involve children and young people (CYP) in palliative care studies is limited. We aim to develop strategies to engage CYP PPI in paediatric palliative care (PPC) research.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/02692163221093145" target="_blank" rel="noreferrer noopener">10.1177/02692163221093145</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
Adolescent
Braybrook D
Bristowe K
Child
Clinical
conference abstract
Coombes L
Ellis-Smith C
Female
Harardottir D
Harding R
Leyden D
Male
outcome assessment
Palliative Medicine
Palliative Therapy
Roach A
Scott H
September 2022 List