Browse Items (52 total)
- Tags: School Child
Trends in the aggressiveness of pediatric cancer near the end-of-life
Tags: 2018, Adult, aggressiveness, Artificial Ventilation, Cancer Patient, Child, Childhood Cancer, conference abstract, Controlled Study, Death, Diagnosis, Female, Fushimi K, Hematologic Malignancy, Human, Intubation, Japan, Major Clinical Study, Male, Matsumoto K, Oncology 2019 List, Pediatric Blood and Cancer, Resuscitation, School Child, Shinjo D, Terminal Care, Yotani N, Young Adult
Facebook Advertisements Recruit Parents of Children With Cancer for an Online Survey of Web-Based Research Preferences
Tags: 2014, Adolescent, advertizing, Akard TF, Article, Backlog, Cancer Nursing, Cancer Palliative Therapy, Cancer Patient, Cancer Recurrence, Cancer Research, Caregiver, Child, Childhood Cancer, click, computer, Diseases, Facebook, Female, Gilmer Mary Jo, Health Survey, Human, Income, Information Processing, Internet, Interpersonal Communication, Journal Article, legal guardian, Major Clinical Study, Male, mobile phone, Neoplasm, Nurse, Oncology, Only Child, Palliative Therapy, Parent, Parental Attitude, participant recruitment, Patient, Population, Priority Journal, Sample Size, School Child, social media, social network, Video Recording, Wray S
Musculoskeletal Injections for Palliative Treatment of Neuromuscular Hip Dysplasia patients: How I Do It
Tags: 2024, Adolescent, Amaral JZ, April List 2024, Article, Cerebral Palsy, Child, Diagnosis, Drug Administration, Drug Therapy, hip dysplasia, hip joint, Human, Kan JH, Male, oral drug administration, Palliative Care, Palliative Therapy, Pediatric Radiology, Quality Of Life, Rosenfeld SB, School Child, Schultz RJ, steroid, Surgery
Efficacy and safety of endoscopic dilation of esophageal strictures in epidermolysis bullosa
Tags: 2004, Adolescent, Adult, Anderson S H C, Article, Balloon dilatation, barium, Body Weight, Chappiti U, contrast enhancement, Doig L, Dysphagia, Eady R A J, endoscopic balloon dilatation, endoscopic therapy, epidermolysis bullosa, epidermolysis bullosa/th [Therapy], esophagus dilatation, esophagus stricture/th [Therapy], feeding difficulties, Female, Follow Up, Gastrointestinal Endoscopy, Human, Major Clinical Study, Male, Meenan J, Morbidity, Nutritional Status, Prinja H, Priority Journal, Propofol, School Child, scoring system, surgical intervention, Thompson R P H, Treatment Outcome, Williams K N
The Landscape of Outpatient Pediatric Palliative Care: A National Cross-Sectional Assessment
Tags: 2023, Advance Care Planning, Analgesia, Article, Autrey AK, Cesarean Section, Child, Controlled Study, Demographics, Funding, Hospital Patient, Human, James C, Journal of Pain and Symptom Management, Kaye EC, May List 2023, Miller EG, Morvant A, Mothi SS, Outpatient, Palliative Care, Palliative Therapy, Patient Referral, Program Development, School Child, Stafford C, United States, workflow
Problematic Symptoms In Children Attending For Short Breaks At A Children's Hospice; Are We Missing An Opportunity For Symptom Assessment And Management?
Tags: 2017, Archives of Disease in Childhood, Balfe J M, Booth A, Child, Clinical Article, Clinical Nurse Specialist, Diagnosis, Family Study, Female, Health Care Delivery, Hospice, Human, Information Processing, Irritability, Male, Nursing, Pain Assessment, Pediatrician, Ritchie B, School Child, Seizure, September 2017 List, Sleep, Symptom Assessment
Deep Brain Stimulation in Rare Inherited Dystonias
Tags: 2016, Adolescent, Adult, Aged, Aquino C C, Article, ataxia telangiectasia, ataxia telangiectasia/di [Diagnosis], ataxia telangiectasia/dt [Drug Therapy], atypical dopa responsive dystonia/di [Diagnosis], atypical dopa responsive dystonia/dt [Drug Therapy], Baclofen/dt [drug Therapy], Beaulieu-Boire I, benzodiazepine derivative/dt [Drug Therapy], Brain Depth Stimulation, Brain Stimulation, Burke Fahn Marsden Dystonia Rating Scale, cerebellar ataxia/di [Diagnosis], cerebellar ataxia/dt [Drug Therapy], Child, chorea/di [Diagnosis], chorea/dt [Drug Therapy], Clinical Article, clinical assessment, Clinical Effectiveness, clobazam/dt [Drug Therapy], clonazepam/dt [Drug Therapy], deep brain stimulation, diazepam/dt [Drug Therapy], disease duration, Disease Severity, Dystonia, dystonia/di [Diagnosis], dystonia/dt [Drug Therapy], Dystonic Disorder/su [surgery], dystonic disorder/th [Therapy], entacapone/cb [Drug Combination], entacapone/dt [Drug Therapy], escitalopram/dt [Drug Therapy], extrapyramidal syndrome/di [Diagnosis], extrapyramidal syndrome/dt [Drug Therapy], Fallis M, Fasano A, Follow Up, gabapentin/dt [Drug Therapy], haloperidol/dt [Drug Therapy], Hodaie M, Human, Inherited dystonia, Kalia S K, Lang A E, levodopa/dt [Drug Therapy], lorazepam/dt [Drug Therapy], Lozano A, MCM deficiency, methylmalonic aciduria/di [Diagnosis], methylmalonic aciduria/dt [Drug Therapy], Middle Aged, mirtazapine/dt [Drug Therapy], Moro E, motor dysfunction assessment, NCL, Nemaline myopathy, nemaline myopathy/di [Diagnosis], nemaline myopathy/dt [Drug Therapy], neuronal ceroid lipofuscinosis/di [Diagnosis], neuronal ceroid lipofuscinosis/dt [Drug Therapy], olanzapine/dt [Drug Therapy], outcome assessment, Phenotype, Poon Y Y, pramipexole/cb [Drug Combination], pramipexole/dt [Drug Therapy], Preoperative Care, Priority Journal, Rating Scale, risperidone/dt [Drug Therapy], School Child, selegiline/cb [Drug Combination], selegiline/dt [Drug Therapy], Surgery, surgical intervention, tetrabenazine/dt [Drug Therapy], therapy effect, time to treatment, tizanidine/dt [Drug Therapy], tone and motor problems, trazodone/dt [Drug Therapy], Treatment, trihexyphenidyl/cb [Drug Combination], trihexyphenidyl/dt [Drug Therapy], Trisomy/di [diagnosis], trisomy/dt [Drug Therapy], Wilson disease/di [Diagnosis], Wilson disease/dt [Drug Therapy], woodhouse sakati syndrome/di [Diagnosis], woodhouse sakati syndrome/dt [Drug Therapy], x trisomy/di [Diagnosis], x trisomy/dt [Drug Therapy]
Paediatric long-term home ventilation: Should we rethink social inclusion for these children?
Tags: 2019, Adolescent, Agosto C, April 2020 List, Artificial Ventilation, assisted ventilation, Attention, Benedetti F, Benini F, Child, conference abstract, Divisic A, European Respiratory Journal, Female, Grigolon E, Human, Lazzarin P, Major Clinical Study, Male, Medical Record Review, Moro N, Neuromuscular Disease, Noninvasive Ventilation, Ometto M, Palliative Therapy, Pellizzon M, Retrospective Study, Rusalen F, School Child, school dropout, secondary health care, social exclusion, social needs, Tracheostomy
Specialist perinatal palliative care: a retrospective review of antenatal referrals to a children's palliative care service over 14 years
Tags: 2023, Article, Bertaud S, BMC Palliative Care, Brightley G, Child, Craig F, Crowley N, February List 2024, Female, Fetus, Heart, Hospice, Hospital Mortality, Human, Infant, Major Clinical Study, Male, Medical Record Review, Palliative Therapy, prenatal period, Retrospective Study, School Child, Trisomy 18, Uncertainty, Wilkinson D
Mitochondrial capacity, muscle endurance, and low energy in friedreich ataxia
Tags: 2017, Adolescent, Adult, alertness, Article, Bossie H M, cellular subcellular and molecular biological phenomena and functions, characteristics, Child, Clinical Article, Comparative Study, Controlled Study, Cross-sectional Study, Disease Severity, electrostimulation, endurance, energy, Fatigue, Female, Friedreich ataxia, Godin Leisure Time Physical Activity Score, Human, Male, McCully K K, mechanomyography, mitochondrial capacity, Muscle and Nerve, muscle endurance, muscle exercise, myography, near infrared spectroscopy, O'Connor P J, oxygen consumption, physical energy, Priority Journal, Schoick R A V, School Child, scoring system, skeletal muscle, Trajectory, Willingham T B
Effect of selective dorsal rhizotomy on daily care and comfort in non-walking children and adolescents with severe spasticity
Tags: 2017, Adolescent, Attention, Becher J G, Bolster E A M, Buizer A I, Cerebral Palsy, Child, Clinical Article, Comfort, Congenital Malformation, Controlled Study, dorsal rhizotomy, Dystonia, European Journal of Paediatric Neurology, Follow Up, Human, leg muscle, lipidoses, Medical History, Pain, risk factor, Satisfaction, School Child, scoliosis, selective dorsal rhizotomy, Spasticity, Stadhouder A, Strijers R L, surgical intervention, tone and motor problems, van de Pol L A, van Ouwerkerk W J, van Schie P E M, Vermeulen R J
Aggressiveness of care at the end of life in children with cancer: A nationwide cohort study
Tags: 2017, Aggression, aggressiveness, Annals of Oncology, Cancer Staging, Cardoso A, Cause Of Death, Child, Cohort Analysis, Cohort Studies, developmental stage, Female, Gomes B, Hospitalization, Human, Icd-9, immunotherapy, Intensive Care Unit, Lacerda A, Lopes S, Major Clinical Study, Male, Martins BD, Morbidity, Multicenter Study, Oncology 2018 List, Only Child, Palliative Care, Palliative Therapy, Portugal, Prevalence, Quality Of Life, Resuscitation, School Child, total parenteral nutrition, vascular access
Medical and end-of-life decision making in adolescents' pre-heart transplant: A descriptive pilot study
Tags: 2020, Adolescent, Adult, Advance Care Planning, Article, Attention, Blume E D, Child, Clinical Article, Cousino M K, Cross-sectional Study, Decision Making, Female, heart graft, Human, Lowery R, Male, May 2020 List, Miller V A, Palliative Medicine, Patient Participation, Pilot Study, Prognosis, Rottach N, School Child, Schumacher K R, Smith C, Uzark K, Young Adult
At the End of Life: Pediatric Palliative Care Can Make a Difference in Caring for the Child and Family
Tags: 2022, Agitation, Alvarez T, anxiety, Bolanos J, Cancer Patient, care behavior, Child, Claros A, Cleves D, conference abstract, Controlled Study, Cuervo M, December List 2022, Demography, Dyspnea, Fear, Female, Garcia X, Hospital Mortality, Human, Intensive Care Unit, Irritability, Leukemia, Major Clinical Study, Male, middle income country, Molina K, Pain, Palliative Therapy, Pediatric Blood and Cancer, pediatric patient, quasi experimental study, Retrospective Study, School Child, Seizure, Skill, social needs, Terminal Care, ward
Palliative care in 9 children with neurodegeneration with brain iron accumulation
Tags: 2020, April 2020 List, Article, body mass, Bone Density, bone strength, botulinum toxin, Child, Clinical Article, contracture, Controlled Study, Dangel T, Densitometry, Dystonia, facilitation, Female, femur, Home Care, Hospice And Palliative Care Nursing, Human, hypersalivation, iron, Januszaniec A, ketogenic diet, Kmiec T, Male, Multidisciplinary team, neurodegeneration with brain iron accumulation, Neurological Sciences, Pain, Palliative Therapy, pathologic fracture, Prevention, Questionnaire, School Child, skeleton, Spasticity, Spine, Thorax, Wazny B
Development of an Institution-Wide Pediatric End-of-Life Summit
Use of opioids in palliative care of children with advanced cancer
Tags: 2016, 52-26-6 (morphine), 53663-61-9 (opiate), 57-27-2 (morphine), 8002-76-4 (opiate), 8008-60-4 (opiate), Adjuvant, Advanced Cancer, Analgesia, Article, Child, Childhood Cancer, Cid Barria L, Constipation, Diagnosis, Drug Efficacy, Drug Safety, Female, Fernandez Urtubia B, Human, Major Clinical Study, Male, Medical Record, Morphine, Morphine/dt [drug Therapy], Nonsteroid Antiinflammatory Agent, Nonsteroid Antiinflammatory Agent/dt [drug Therapy], Oncology 2017 List, Opiate/dt [drug Therapy], Pain Intensity, Pain/dt [drug Therapy], Palliative Therapy, Palma Torres C, Retrospective Study, Revista Chilena De Pediatria, Rodriguez Zamora N, School Child, Sedation, Trevigno Bravo A, Visual Analog Scale
Assessing the suitability of the Carer Support Needs Assessment Tool (CSNAT-Paediatric) for use with parents of children with a life-limiting condition: A qualitative secondary analysis
Tags: 2023, Article, Atkin K, care behavior, Caregiver, Child, Clinical Article, Content Analysis, Diagnosis, Ewing G, Father, February List 2024, Female, Fisher V, Fraser LK, Grande G, Human, Male, Needs Assessment, Palliative Medicine, Palliative Therapy, Parent, School Child, Secondary Analysis, social media, special situation for pharmacovigilance
Balloon dilatation in esophageal strictures in epidermolysis bullosa and the role of anesthesia
Tags: 2017, Adolescent, Adult, Anesthesia, Article, Ates U, Balloon dilatation, Can O S, Child, Clinical Article, Clinical Effectiveness, colon interposition, digestive endoscope, Dindar H, Diseases of the Esophagus, Dysphagia, endoscopic balloon dilatation, epidermolysis bullosa, Ergun E, esophagus balloon, esophagus perforation, esophagus stenosis/co [Complication], esophagus stenosis/th [Therapy], feeding difficulties, Female, Gastrostomy, Gollu G, Human, Male, Patient Safety, Preschool Child, Priority Journal, Retrospective Study, School Child, surgical intervention, Young Adult
Optimizing resource utilization: Palliative care consultations in critically ill pediatric trauma patients
Tags: 2023, Adolescent, Arteaga GM, Article, Baxter J, Child, Child Abuse, childhood trauma, Clinical Feature, Consultation, Controlled Study, Critically Ill Patient, electronic medical record, Elsbernd TA, February List 2024, Female, Goswami J, Human, Infant, injury, Intensive Care Unit, Klinkner DB, Major Clinical Study, Male, Palliative Therapy, Pediatric Intensive Care Unit, Practice Guideline, Retrospective Study, Schiltz BM, School Child, special situation for pharmacovigilance, Surgery, toddler, Total Quality Management, Trauma Surgery and Acute Care Open, traumatic brain injury
When a child becomes terminal: Discrepant adolescent and parent perspectives on discussing a terminal prognosis with adolescents with cardiomyopathy, heart failure, and heart transplant
Tags: 2018, Adolescent, Advance Care Planning, Cancer Prognosis, Cardiomyopathy, Child, Circulation. Conference, Cohen H, conference abstract, Controlled Study, Conversation, Death, Edwards L A, Halpern-Felsher B, Hansen K, Heart Failure, heart graft, Human, June 2019 List, Kaufman B, Luong R, Malignant Neoplasm, Outpatient, Perception, Prognosis, School Child, Yohannes K
Intrathecal baclofen treatment an option in X-linked adrenoleukodystrophy
Tags: 1134-47-0 (baclofen), 1309378-01-5 (botulinum toxin A), 1638949-86-6 (botulinum toxin A), 1800016-51-6 (botulinum toxin A), 2018, 93384-43-1 (botulinum toxin A), Addison disease, adrenoleukodystrophy/dt [Drug Therapy], adrenoleukodystrophy/su [Surgery], Article, baclofen, Baclofen/dt [drug Therapy], baclofen/po [Oral Drug Administration], baclofen/tl [Intrathecal Drug Administration], balance disorder, behavior change, bladder dysfunction, botulinum toxin A, Case Report, Child, Clinical Article, clinical examination, clonus, diplopia, drug dose increase, Dystonia, Ehrstedt C, European Journal of Paediatric Neurology, Fatigue, hearing disorder, Hjartarson H T, Human, hyperpigmentation, intrathecal baclofen, intrathecal pump, Leukodystrophy, limited mobility, Male, Pain, pharmacologic interventions, Priority Journal, Quality Of Life, Range of Motion, School Child, Spasticity, strabismus, Tedroff K, tone and motor problems, urinary catheter, visual disorder, X chromosome linked disorder/dt [Drug Therapy], X chromosome linked disorder/su [Surgery], X-linked adrenoleukodystrophy
End of life care in children with neurodisability and concurrent palliative care needs: An audit of local Paediatric palliative services
Tags: 2019, Archives of Disease in Childhood, August 2019 List, Awareness, Canavan disease, Cerebral Palsy, Child, Clinical Article, conference abstract, Decision Making, disorders of mitochondrial functions, Documentation, Female, Hqli F, Human, Male, Medical Specialist, Monitoring, Nutrition, Pain, Palliative Therapy, Rett syndrome, Santhanam G, School Child, secondary health care, Seizure, Social Care, Spinal Muscular Atrophy, Terminal Care
Parents' needs for physician-parent communication in the face of life-threatening illness: Qualitative analysis
Tags: 2017, Adolescent, Article, Child, Child Death, child hospitalization, Childhood Disease, Clinical Article, Female, Health Care System, Hospice, Human, Infant, Interpersonal Communication, Janusz B, June 2018 List, Knowledge, law suit, Life Threatening illness, Male, malpractice, Palliative Medicine in Practice, Parent, Personal Experience, personal needs, physical disease, Physician, Preschool Child, Qualitative Analysis, School Child, Semi Structured Interview, Walkiewicz M
Intractable Feeding Intolerance in Children With Severe Neurological Impairment: A Retrospective Case Review of Nine Children Known to a Pediatric Palliative Care Service
Tags: 2023, Adolescent, American Journal Of Hospice And Palliative Care, Antolovich G, Article, Case Study, Child, Clinical Article, Conversation, Cooper MS, Deterioration, digestive system function disorder, Documentation, drug combination, enteric feeding, Ethics, feeding difficulty, Female, Hospice, Human, Infant, Intensive Care, June 2022 List, Katz NT, Kularatne A, Male, McCallum Z, McGrath KH, Neurodisability, Neurologic Disease, Nomenclature, Only Child, Palliative Care, Palliative Therapy, Parenteral Nutrition, Patient Referral, Prebble A, Preschool Child, Retrospective Study, Sacks BH, School Child, stomach tube, Sutherland I
Palliative care referral patterns for children with cancer: A three-year retrospective study
Tags: 2018, Cancer Patient, Central Nervous System, Child, conference abstract, Diagnosis, Emergency Ward, Female, Hospice, Hospital Patient, Human, Infant, Intensive Care Unit, Kim CH, Kim MS, Korea, Leukemia, Lymphoma, Major Clinical Study, Male, Moon YJ, Oncology, Oncology 2018 List, outpatient department, Palliative Therapy, Patient Referral, Pediatric Blood and Cancer, pediatric ward, Quality Of Life, Resuscitation, Retrospective Study, School Child, Shin HY, solid malignant neoplasm, Song IG, statistical analysis, Terminal Care, time of death
Navigating parental requests: considering the relational potential standard in paediatric end-of-life care in the paediatric intensive care unit
Tags: 2023, Adolescent, Article, Child, Clark J, Clinical Article, Clinician, Diekema D, Drug Therapy, Dudzinski DM, Ethical dilemma, February List 2024, Human, Intensive Care, Journal of Medical Ethics, Kingsley J, Lewis-Newby M, Medical Decision Making, Medical Ethics, Palliative Therapy, Pediatric Intensive Care Unit, Pediatrics, Physician, School Child, special situation for pharmacovigilance, Terminal Care
Comparison of actigraphy with a sleep protocol maintained by professional caregivers and questionnaire-based parental judgment in children and adolescents with life-limiting conditions
Tags: 2024, actigraph, actimetry, Adolescent, April List 2024, Article, BMC Palliative Care, Caregiver, Child, Chronic Disease, Claus B, Clinical Article, Controlled Study, Decision Making, diagnostic procedure, Drug Therapy, Female, Human, Human Experiment, Kubek LA, Male, Palliative Therapy, Prospective Study, protocol, Questionnaire, Questionnaires, School Child, Sleep, sleep efficiency, sleep time, special situation for pharmacovigilance, stage 1 sleep, Therapy, Wager J, wake after sleep onset, Wakefulness, Zernikow B
Examining key sociodemographic characteristics of adolescents and young adults with cancer: A post hoc analysis of the Promoting Resilience in Stress Management randomized clinical trial
Tags: 2020, Adolescent, Article, Bona K, Bradford M C, cancer center, cancer specific quality of life, Child, Connor-Davidson Resilience Scale, Controlled Study, Coping Behavior, environmental resilience, Female, Hope Scale, Human, Lau N, Major Clinical Study, Male, McCauley E, Oncology 2020 List, outcome assessment, Palliative Medicine, Palliative Therapy, patient-reported outcome, Pediatric Quality of Life Inventory, Post Hoc Analysis, Psychological Distress Scale, psychosocial development, Quality Of Life, Randomized Controlled Trial, Rosenberg A R, School Child, Scott S, Socioeconomics, Steineck A, stress management, Total Quality Management, Treatment Outcome, Yi-Frazier J P, Young Adult
Families Are Not The Barrier: Evaluating Attitudes Toward Early Integration Of Palliative Care In Pediatric Hematopoietic Stem Cell Transplant
Tags: 2017, anxiety, Attention, Baker J, Child, Constipation, Diarrhea, Family, Female, Graft Recipient, Hematopoietic Stem Cell, Human, Levine D, Loss Of Appetite, Major Clinical Study, Male, Mandrell B, Nausea, October 2017 List, Pain, Palliative Therapy, Parental Attitude, Pediatric Blood and Cancer, Quality Of Life, School Child, Speech, Sykes A, Symptom
Advanced care planning in cystic fibrosis
Tags: 2017, 7782-44-7 (oxygen), Altstein L, Bach K, chest tube, Child, Clinical Article, Comfort, Cystic Fibrosis, durable power of attorney, Female, Forced Expiratory Volume, Friedman D, Georgiopoulos A, hemoptysis, Hospitalization, Human, Islam S, January 2018 List, Lifespan, Linnemann RW, living will, Male, Moskowitz SM, Outpatient, oxygen, Palliative Therapy, Pediatric Pulmonology, Pilot Study, pneumothorax, Practice Guideline, School Child, St John A, thinking, Yonker LM
Autonomic breathing abnormalities in Rett syndrome: Caregiver perspectives in an international database study
Tags: 2017, abdominal bloating, Adult, Article, autonomic dysfunction, bloating, breath holding, breath-holding, breathing difficulties, breathing disorder, Breathing disorders, breathing pattern, Caregiver, characteristics, Child, Data Base, Developmental Disability, Downs J, Epstein A, Female, Genotype, Heyworth J, Human, hyperventilation, International database, Journal of Neurodevelopmental Disorders, Leonard H, MacKay J, Male, mecp2, Mutation, Noninvasive Ventilation, onset age, oxygen, Priority Journal, Questionnaire, Rare disorder, rebreathing, Rett syndrome, School Child, Trajectory, Wong K
Feed-induced Dystonias in Children with Severe Central Nervous System Disorders
Tags: 1134-47-0 (baclofen), 2017, acquired brain injury, Adolescent, Article, Baclofen/dt [drug Therapy], baclofen/tl [Intrathecal Drug Administration], Campbell D I, Case Study, central nervous system disease, Cerebral Palsy, Child, Clinical Article, Constipation, Dystonia, dystonia/dt [Drug Therapy], feed induced dystonia, feed induced dystonia/dt [Drug Therapy], feeding difficulties, Female, Gastroesophageal Reflux, Gastroscopy, GERD, Human, Hydrocephalus, Hyperglycinemia, Infant, infantile spasm, intestinal dysmotility, intestine motility, Intestine Obstruction, Journal Of Pediatric Gastroenterology And Nutrition, Male, microcephaly, Mordekar S R, motor dysfunction, MPSIII, onset age, Parenteral Nutrition, Percutaneous Endoscopic Gastrostomy, peristalsis, pharmacologic intervention, Practice Guideline, Preschool Child, Priority Journal, reflux esophagitis, Retrospective Study, Rett syndrome, Sanfilippo syndrome, School Child, tone and motor problems, total parenteral nutrition, Velayudhan M, West syndrome
Supplementation with carnitine reduces the severity of constipation: A retrospective study of patients with severe motor and intellectual disabilities
Tags: 102767-28-2 (levetiracetam), 1069-66-5 (valproic acid), 1309-48-4 (magnesium oxide), 1317-74-4 (magnesium oxide), 14093-02-8 (iron), 14378-32-6 (zinc), 146-22-5 (nitrazepam), 1622-61-3 (clonazepam), 2017, 22316-47-8 (clobazam), 298-46-4 (carbamazepine), 461-06-3 (carnitine), 50-06-6 (phenobarbital), 53858-86-9 (iron), 541-15-1 (carnitine), 56-99-5 (carnitine), 57-30-7 (phenobarbital), 57-88-5 (cholesterol), 59-30-3 (folic acid), 6484-89-5 (folic acid), 68291-97-4 (zonisamide), 7439-89-6 (iron), 7440-66-6 (zinc), 7782-49-2 (selenium), 8028-68-0 (phenobarbital), 8047-84-5 (carbamazepine), 84057-84-1 (lamotrigine), 99-66-1 (valproic acid), acute brain disease, Adult, albumin, albumin blood level, anticonvulsant therapy, Aomatsu T, Article, bacterial meningitis, bed rest, body mass, brain infarction, carbamazepine/dt [Drug Therapy], carnitine, carnitine deficiency, carnitine deficiency/dt [Drug Therapy], carnitine/dt [Drug Therapy], Cerebral Palsy, Child, cholesterol blood level, cholesterol/ec [Endogenous Compound], Clinical Article, Clinical Trial, clobazam/dt [Drug Therapy], clonazepam/dt [Drug Therapy], Constipation, constipation/dt [Drug Therapy], constipation/pc [Prevention], Controlled Study, copper blood level, cupric ion/ec [Endogenous Compound], diet supplementation, Disease Severity, Endogenous Compound, enema/dt [Drug Therapy], enteric feeding, epilepsy/dt [Drug Therapy], Female, folic acid, folic acid blood level, folic acid/ec [Endogenous Compound], Gene Expression, groups by age, Hospital, Human, Human Tissue, infantile spasm, Inoue K, Intellectual Impairment, iron blood level, iron/ec [Endogenous Compound], Journal of Clinical Biochemistry and Nutrition, lamotrigine/dt [Drug Therapy], levetiracetam/dt [Drug Therapy], magnesium oxide/dt [Drug Therapy], Male, Medical Record Review, Middle Aged, motor dysfunction, Murata S, NCL3, neuronal ceroid lipofuscinosis, nitrazepam/dt [Drug Therapy], Pelizaeus Merzbacher disease, Pelizaeus- Merzbacher disease, periventricular leukomalacia, pharmacologic intervention, phenobarbital/dt [Drug Therapy], prealbumin, prealbumin/ec [Endogenous Compound], Preschool Child, Retrospective Study, School Child, selenium blood level, selenium/ec [Endogenous Compound], sex difference, Tamai H, trace element, Tuberous Sclerosis, valproic acid, valproic acid/dt [Drug Therapy], West syndrome, Yoden A, Young Adult, zinc/ec [Endogenous Compound], zonisamide/dt [Drug Therapy]
What do parents think about the quality and safety of care provided by hospitals to children and young people with an intellectual disability? A qualitative study using thematic analysis
Tags: 2023, Adolescent, Adverse Drug Reaction, Aged, Article, Burgess A, Child, Child Parent Relation, Controlled Study, Disability, Drug Therapy, February List 2024, Female, Health Care System, Health Expectations, Hospital care, Human, Intellectual Impairment, Interpersonal Communication, Interview, kindness, Long J, Lucien A, Male, Ong N, Palliative Therapy, Parent, Patient Safety, Pediatric Hospital, Preschool Child, Qualitative Research, School Child, Semi Structured Interview, Side Effect, special situation for pharmacovigilance, Thematic Analysis, Walton M, Weise J
Fatigue and depression in children with demyelinating disorders
Tags: 2013, acquired demyelinating syndromes, acute disseminated encephalomyelitis, Adolescent, alertness, Article, Benedict R H B, Canada, characteristics, Child, Child Behavior, Childhood Disease, Clinical Article, Cohort Analysis, Comorbidity, Controlled Study, Cross-sectional Study, demyelinating disease, demyelinating disorders, Depression, disease duration, Epidemiology, Fatigue, Female, Health Survey, Human, Journal of Child Neurology, Male, Mood, Multiple Sclerosis, Parrish J B, Priority Journal, psychological aspect, School Child, Self Report, Sleep, Smerbeck A, Therapy, Trajectory, Weinstock-Guttman B, Yeh E A
Integrating Palliative Care Into School Communities
Tags: 2016, Bereavement, Child, Controlled Study, Cree V, Curriculum, Hospice, Hospices, Human, Human Experiment, Information Processing, Interview, May 2017 List, Model, Murray S, Only Child, Palliative Care, Palliative Medicine, Palliative Therapy, Paul S, Primary School, School Child, Scotland, Skill, Staff, Terminal Care
Palliative Care in Children with Inherited Metabolic Diseases: Why does it matter?
Tags: 2023, Article, Bereavement Support, Cancelinha C, Child, Cohort Analysis, communication disorder, Diogo L, drug combination, Emergency Ward, emotional support, Endocrine, Metabolic and Immune Disorders - Drug Targets, enteric feeding, February List 2024, Female, Ferreira S, Follow Up, Grilo E, Home Care, Hospital Admission, Hospitalization, Human, Intensive Care, Male, medical device, Metabolic Disorder, motor dysfunction, Neurologic Disease, Nogueira A, Noninvasive Ventilation, Palliative Therapy, Patient Referral, Pereira MJ, Place Of Death, respiratory equipment, Retrospective Study, School Child, Symptom Assessment
Palliative care for children with central nervous system tumors: results of a Spanish multicenter study
Tags: 2023, 2023 SE3 - Oncology, antiemetic agent, Article, asthenia, Cancer Patient, Central Nervous System, Central Nervous System Neoplasms, Central Nervous System Tumor, Child, Childhood Cancer, Clinical and Translational Oncology, communication disorder, Controlled Study, Cruz MO, de Noriega Í, dexamethasone, Female, Garcia AM, Garrido CC, Gros SL, Hospital Mortality, Huidobro LB, Human, Lassaletta A, Llort SA, Lopez IB, Major Clinical Study, Male, Marquez VC, Medulloblastoma, Moreno L, Morey OM, Morgenstern IA, motor dysfunction, Multicenter Study, Navarro-Marchena L, Opiate, Palliative Care, Palliative Therapy, Perez-Torres LM, Place Of Death, pontine glioma, Portugal RR, Preschool Child, Quiroga-Cantero E, Retrospective Study, Rubio PE, School Child, Sedation, Solano-Paez P, Surgery, Tallon GM, Valero AL
Pediatric palliative care (PPC) access in Chile: Private practice health insurance law implementation
Tags: 2017, Analgesia, Araya E, Central Nervous System Tumor, Child, Chile, Clinical Article, Counseling, Diagnosis, Doctor Patient Relation, Female, Gallastegui A, health Insurance, Home Visit, Human, Leukemia, Lopez P, Nurse, Outpatient, Overall Survival, Palliative Therapy, Pediatric Blood and Cancer, private Practice, Psychologist, Rojas N, Rosas A, School Child, Telephone, Varela J