1 40 1 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource 2018 Oncology List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month Oncology 2018 List URL Address <a href="http://doi.org/10.1111/ecc.12651" target="_blank" rel="noreferrer noopener">http://doi.o rg/10.1111/ecc.12651</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Missing life stories. The narratives of palliative patients, parents and physicians in paediatric oncology Publisher An entity responsible for making the resource available European Journal of Cancer Care Date A point or period of time associated with an event in the lifecycle of the resource 2017 Subject The topic of the resource Neoplasms/psychology; Medical Oncology; Middle Aged; Male; Disease Progression; dying; Child; Humans; Adult; Qualitative Research; Pediatrics; Adolescent; Parents; palliative care; Female; Attitude to Death; Attitude to Health; Narration; Switzerland; narrative; Leukemia/psychology; paediatric oncology; stories; lived experience; Oncologists; Bone Neoplasms/psychology; Sarcoma/psychology; Soft Tissue Neoplasms/psychology Creator An entity primarily responsible for making the resource De CE; Elger BS; Wangmo T Description An account of the resource Illness narratives have become very popular. The stories of children, however, are rarely ever studied. This paper aims to provide insight into how children, parents and physicians make sense of progressive childhood cancer. It also explores how this meaning-giving process interacts with cultural dominant stories on cancer and dying. The presented data come from 16 open-ended face-to-face interviews with palliative paediatric patients, their parents and physicians. The interviews were carried out in eight paediatric oncology centres in Switzerland. Data analysis followed Arthur Frank's dialogical narrative analysis. Quest narratives were relatively rare compared to both chaos and restitution stories. All participants welcomed chaos stories as a liminal haven between quest and restitution. The possibility that the child could die was either ignored or briefly contemplated, but then immediately pushed away. Except for one patient, children never directly addressed the topic of death. The way in which death was presented raises important questions about how the social discourse on dying is framed in terms of choice, autonomy and individuality. This discourse not only determines the way in which children and adults relate to the minor's death, it also constitutes an obstacle to children's participation in decision-making. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/%2010.1111/ecc.12651" target="_blank" rel="noreferrer noopener">10.1111/ecc.12651</a> 2017 Adolescent Adult Attitude To Death Attitude To Health Bone Neoplasms/psychology Child De CE Disease Progression Dying Elger BS European Journal Of Cancer Care Female Humans Leukemia/psychology lived experience Male Medical Oncology Middle Aged Narration Narrative Neoplasms/psychology oncologists Oncology 2018 List Paediatric oncology Palliative Care Parents Pediatrics Qualitative Research Sarcoma/psychology Soft Tissue Neoplasms/psychology Stories Switzerland Wangmo T