Caring for the Infant With Trisomy 18: The Bioethical Implications of Treatment Decisions on Nurses
2014-10
Santucci G; Battista V; Kang TI
Journal Of Hospice & Palliative Nursing
2014
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1097/NJH.0000000000000095" target="_blank" rel="noreferrer">10.1097/NJH.0000000000000095</a>
Common gastrointestinal symptoms in pediatric palliative care: nausea, vomiting, constipation, anorexia, cachexia
Child; Humans; Palliative Care; Neoplasms/complications; Anorexia/etiology/therapy; Cachexia/etiology/therapy; Constipation/drug therapy/etiology; Medulla Oblongata/physiology; Nausea/etiology/therapy; Vomiting/etiology/prevention & control
Gastrointestinal symptoms are suffered commonly by children at the end of life. Diagnosis and management of these common symptoms include careful history and physical examination to assess for possible causes
treatment - pharmacologic and nonpharmacologic
Santucci G; Mack JW
Pediatric Clinics Of North America
2007
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1016/j.pcl.2007.06.001" target="_blank" rel="noreferrer">10.1016/j.pcl.2007.06.001</a>
Hopeful thinking and level of comfort regarding providing pediatric palliative care: A survey of hospital nurses
Nurses
2007
Feudtner C; Santucci G; Feinstein J; Snyder CR; Rourke MT; Kang T
Pediatrics
2007
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1542/peds.2006-1048" target="_blank" rel="noreferrer">10.1542/peds.2006-1048</a>
Pediatric palliative, end-of-life, and bereavement care
bereavement
2005
Kang TI; Hoehn Sarah; Licht DJ; Henry MO; Santucci G; Marie CJ; Long CM; Ann HM; Lemisch J; Rourke MT; Feudtner C
Pediatric Clinics Of North America
2005
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1016/j.pcl.2005.04.004" target="_blank" rel="noreferrer">10.1016/j.pcl.2005.04.004</a>
Pediatric nurses' individual and group assessments of palliative, end-of-life, and bereavement care
Cross-Sectional Studies; Female; Humans; Male; Palliative Care; Terminal Care; Attitude of Health Personnel; Hospitals; Nursing Staff; Pediatric; bereavement; Nurses/psychology; Hospital/psychology
BACKGROUND: Although pediatric nurses working in children's hospitals often provide care to dying children, little is known about their palliative care beliefs and experiences as individuals or members of groups within the hospital. OBJECTIVE: To describe pediatric nurses' ratings of palliative care goals and problems, as individuals and members of clusters of nurses with similar views, and nurses' degree of collaboration with an inpatient palliative care team across hospital units. METHOD: A cross-sectional survey of nurses at a freestanding children's hospital in 2005. RESULTS: Nurses rated the most important goals as managing pain, maintaining the child's quality of life, and improving communication. Commonly cited problems were lack of opportunity to debrief after a patient's death, uncertainty about the goals of care, and the health care team's reluctance to discuss hospice with family. Based on individual views about goals and problems, nurses clustered into 5 groups that differed in terms of the adamancy of their views and the scope of the goals and problems they considered important or significant. The hospital unit was the most important factor in predicting nurses' degree of collaboration with the palliative care team even after accounting for individual characteristics. CONCLUSIONS: Pediatric nurses broadly endorse both the importance of palliative care goals and the presence of problems yet perceive the importance of these goals and problems differently. Further, they vary in their level of collaborative practice with a palliative care team in ways that should be accounted for when planning and implementing palliative care programs.
Tubbs-Cooley HL; Santucci G; Kang T; Feinstein JA; Hexem KR; Feudtner C
Journal Of Palliative Medicine
2011
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1089/jpm.2010.0409" target="_blank" rel="noreferrer">10.1089/jpm.2010.0409</a>