<?xml version="1.0" encoding="UTF-8"?>
<itemContainer xmlns="http://omeka.org/schemas/omeka-xml/v5" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance" xsi:schemaLocation="http://omeka.org/schemas/omeka-xml/v5 http://omeka.org/schemas/omeka-xml/v5/omeka-xml-5-0.xsd" uri="https://pedpalascnetlibrary.omeka.net/items/browse?tags=SMA+type+I&amp;output=omeka-xml" accessDate="2026-08-12T02:26:55-04:00">
  <miscellaneousContainer>
    <pagination>
      <pageNumber>1</pageNumber>
      <perPage>40</perPage>
      <totalResults>1</totalResults>
    </pagination>
  </miscellaneousContainer>
  <item itemId="16803" public="1" featured="1">
    <collection collectionId="51">
      <elementSetContainer>
        <elementSet elementSetId="1">
          <name>Dublin Core</name>
          <description>The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.</description>
          <elementContainer>
            <element elementId="50">
              <name>Title</name>
              <description>A name given to the resource</description>
              <elementTextContainer>
                <elementText elementTextId="122661">
                  <text>Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results</text>
                </elementText>
              </elementTextContainer>
            </element>
          </elementContainer>
        </elementSet>
      </elementSetContainer>
    </collection>
    <itemType itemTypeId="1">
      <name>Text</name>
      <description>A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.</description>
      <elementContainer>
        <element elementId="56">
          <name>URL Address</name>
          <description/>
          <elementTextContainer>
            <elementText elementTextId="124840">
              <text>&lt;a href="http://doi.org/10.1177/0148607102026005298" target="_blank" rel="noreferrer noopener"&gt;http://doi.org/​10.1177/0148607102026005298&lt;/a&gt;</text>
            </elementText>
          </elementTextContainer>
        </element>
      </elementContainer>
    </itemType>
    <elementSetContainer>
      <elementSet elementSetId="1">
        <name>Dublin Core</name>
        <description>The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.</description>
        <elementContainer>
          <element elementId="50">
            <name>Title</name>
            <description>A name given to the resource</description>
            <elementTextContainer>
              <elementText elementTextId="124833">
                <text>Efficacy and tolerance of gastrostomy feeding in pediatric forms of neuromuscular diseases</text>
              </elementText>
            </elementTextContainer>
          </element>
          <element elementId="45">
            <name>Publisher</name>
            <description>An entity responsible for making the resource available</description>
            <elementTextContainer>
              <elementText elementTextId="124834">
                <text>Journal of Parenteral and Enteral Nutrition</text>
              </elementText>
            </elementTextContainer>
          </element>
          <element elementId="40">
            <name>Date</name>
            <description>A point or period of time associated with an event in the lifecycle of the resource</description>
            <elementTextContainer>
              <elementText elementTextId="124835">
                <text>2002</text>
              </elementText>
            </elementTextContainer>
          </element>
          <element elementId="49">
            <name>Subject</name>
            <description>The topic of the resource</description>
            <elementTextContainer>
              <elementText elementTextId="124836">
                <text>Male; Treatment Outcome; Infant  Newborn; Follow-Up Studies; Child; Humans; Adult; Adolescent; Female; Child  Preschool; Infant; Nutritional Status; Weight Gain; Gastrostomy; Gastroesophageal Reflux/complications; Enteral Nutrition; Neuromuscular Diseases/complications/therapy; feeding difficulties; SMA type I; surgical intervention; percutaneous endoscopic gastrostomy; gastroesophageal reflux; GERD</text>
              </elementText>
            </elementTextContainer>
          </element>
          <element elementId="39">
            <name>Creator</name>
            <description>An entity primarily responsible for making the resource</description>
            <elementTextContainer>
              <elementText elementTextId="124837">
                <text>Seguy  D; Michaud  L; Guimber  D; Cuisset  J; Devos  P; Turck  D; Gottrand  F</text>
              </elementText>
            </elementTextContainer>
          </element>
          <element elementId="41">
            <name>Description</name>
            <description>An account of the resource</description>
            <elementTextContainer>
              <elementText elementTextId="124838">
                <text>BACKGROUND: Percutaneous endoscopic gastrostomy (PEG) is a simple and reliable method, but there are few data about its use in pediatric forms of neuromuscular diseases (NMD). The aim of this study was to evaluate the nutritional effects and tolerance of gastrostomy feeding in NMD patients. METHODS: Twelve patients with NMD, ranging in age from 1 month to 25.5 years, underwent a gastrostomy placement (PEG, n = 11; surgical gastrostomy, n = 1) between January 1990 and December 2000. Diseases were muscular dystrophies (n = 5), infantile spinal muscular atrophies (n = 3), congenital myopathies (n = 3), and polyradiculoneuritis (n = 1). Height-for-age (Z(H/A)), weight-for-age (Z(W/A)), and weight-for-height (Z(W/H)) z scores were assessed at birth, at the time of gastrostomy placement, after a 6-month and 1-year follow-up, and at the end of follow-up. Complications that occurred during the gastrostomy feeding period were recorded. Comparisons of z scores at the different times were performed with repeated-measures analyses of variance. RESULTS: Z(W/A) (p &lt; .05) and Z(W/H) (p &lt; .001) improved in the whole group after gastrostomy. For the 10 patients for whom follow-up was more than 1 year, Z(W/A) (p &lt; .03) and Z(W/H) (p &lt; .001) increased from the time of gastrostomy to the end of follow-up. Among 5 patients who had a gastroesophageal reflux diagnosed before gastrostomy placement, 3 had at least 1 episode of pneumonia and 2 died of respiratory distress caused by the worsening of NMD. No other major complication was encountered. CONCLUSIONS: Gastrostomy feeding is well tolerated and results in an improvement of nutritional indices in NMD patients. Special care should be taken in patients with preexisting gastroesophageal reflux.</text>
              </elementText>
            </elementTextContainer>
          </element>
          <element elementId="43">
            <name>Identifier</name>
            <description>An unambiguous reference to the resource within a given context</description>
            <elementTextContainer>
              <elementText elementTextId="124839">
                <text>&lt;a href="http://doi.org/10.1177/0148607102026005298" target="_blank" rel="noreferrer noopener"&gt;10.1177/0148607102026005298&lt;/a&gt;</text>
              </elementText>
            </elementTextContainer>
          </element>
          <element elementId="47">
            <name>Rights</name>
            <description>Information about rights held in and over the resource</description>
            <elementTextContainer>
              <elementText elementTextId="124841">
                <text>Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).</text>
              </elementText>
            </elementTextContainer>
          </element>
        </elementContainer>
      </elementSet>
    </elementSetContainer>
    <tagContainer>
      <tag tagId="6525">
        <name>2002</name>
      </tag>
      <tag tagId="150">
        <name>Adolescent</name>
      </tag>
      <tag tagId="617">
        <name>Adult</name>
      </tag>
      <tag tagId="162">
        <name>Child</name>
      </tag>
      <tag tagId="28042">
        <name>Child  Preschool</name>
      </tag>
      <tag tagId="32357">
        <name>Cuisset  J</name>
      </tag>
      <tag tagId="32358">
        <name>Devos  P</name>
      </tag>
      <tag tagId="9013">
        <name>Enteral Nutrition</name>
      </tag>
      <tag tagId="29928">
        <name>feeding difficulties</name>
      </tag>
      <tag tagId="606">
        <name>Female</name>
      </tag>
      <tag tagId="799">
        <name>Follow-up Studies</name>
      </tag>
      <tag tagId="15628">
        <name>Gastroesophageal Reflux</name>
      </tag>
      <tag tagId="13054">
        <name>Gastroesophageal Reflux/complications</name>
      </tag>
      <tag tagId="3591">
        <name>Gastrostomy</name>
      </tag>
      <tag tagId="30398">
        <name>GERD</name>
      </tag>
      <tag tagId="32360">
        <name>Gottrand  F</name>
      </tag>
      <tag tagId="32356">
        <name>Guimber  D</name>
      </tag>
      <tag tagId="608">
        <name>Humans</name>
      </tag>
      <tag tagId="609">
        <name>Infant</name>
      </tag>
      <tag tagId="28041">
        <name>Infant  Newborn</name>
      </tag>
      <tag tagId="13549">
        <name>Journal Of Parenteral And Enteral Nutrition</name>
      </tag>
      <tag tagId="612">
        <name>Male</name>
      </tag>
      <tag tagId="32355">
        <name>Michaud  L</name>
      </tag>
      <tag tagId="32352">
        <name>Neuromuscular Diseases/complications/therapy</name>
      </tag>
      <tag tagId="9659">
        <name>Nutritional Status</name>
      </tag>
      <tag tagId="782">
        <name>Percutaneous Endoscopic Gastrostomy</name>
      </tag>
      <tag tagId="32354">
        <name>Seguy  D</name>
      </tag>
      <tag tagId="32353">
        <name>SMA type I</name>
      </tag>
      <tag tagId="30036">
        <name>surgical intervention</name>
      </tag>
      <tag tagId="1140">
        <name>Treatment Outcome</name>
      </tag>
      <tag tagId="32359">
        <name>Turck  D</name>
      </tag>
      <tag tagId="14854">
        <name>Weight Gain</name>
      </tag>
    </tagContainer>
  </item>
</itemContainer>
