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40
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/0269216308100251" target="_blank" rel="noreferrer">http://doi.org/10.1177/0269216308100251</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Using videotelephony to support paediatric oncology-related palliative care in the home: from abandoned RCT to acceptability study
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Child; Female; Humans; Male; Palliative Care; Adult; Patient Acceptance of Health Care; Australia; Computer Security; Continuity of Patient Care; Cost-Benefit Analysis; Early Termination of Clinical Trials; Patient Satisfaction; PPC Book Chapter 2011 (Kim Widger); adolescent; Preschool; Parents/psychology; Neoplasms/therapy; Computer Communication Networks/economics; Health Services Accessibility/economics; Home Care Services/economics; Rural Health Services/economics; Telemedicine/economics/instrumentation/methods; Videoconferencing/economics/instrumentation
Creator
An entity primarily responsible for making the resource
Bensink ME; Armfield NR; Pinkerton R; Irving H; Hallahan A; Theodoros DG; Russell T; Barnett AG; Scuffham P; Wootton R
Description
An account of the resource
Videotelephony (real-time audio-visual communication) has been used successfully in adult palliative home care. This paper describes two attempts to complete an RCT (both of which were abandoned following difficulties with family recruitment), designed to investigate the use of videotelephony with families receiving palliative care from a tertiary paediatric oncology service in Brisbane, Australia. To investigate whether providing videotelephone-based support was acceptable to these families, a 12-month non-randomised acceptability trial was completed. Seventeen palliative care families were offered access to a videotelephone support service in addition to the 24 hours 'on-call' service already offered. A 92% participation rate in this study provided some reassurance that the use of videotelephones themselves was not a factor in poor RCT participation rates. The next phase of research is to investigate the integration of videotelephone-based support from the time of diagnosis, through outpatient care and support, and for palliative care rather than for palliative care in isolation. Trial registration ACTRN 12606000311550.
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/0269216308100251" target="_blank" rel="noreferrer">10.1177/0269216308100251</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Adolescent
Adult
Armfield NR
Australia
Backlog
Barnett AG
Bensink ME
Child
Computer Communication Networks/economics
Computer Security
Continuity Of Patient Care
Cost-Benefit Analysis
Early Termination of Clinical Trials
Female
Hallahan A
Health Services Accessibility/economics
Home Care Services/economics
Humans
Irving H
Journal Article
Male
Neoplasms/therapy
Palliative Care
Palliative Medicine
Parents/psychology
Patient Acceptance of Health Care
Patient Satisfaction
Pinkerton R
PPC Book Chapter 2011 (Kim Widger)
Preschool
Rural Health Services/economics
Russell T
Scuffham P
Telemedicine/economics/instrumentation/methods
Theodoros DG
Videoconferencing/economics/instrumentation
Wootton R
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1186/1472-6963-7-38" target="_blank" rel="noreferrer">http://doi.org/10.1186/1472-6963-7-38</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Investigating the cost-effectiveness of videotelephone based support for newly diagnosed paediatric oncology patients and their families: design of a randomised controlled trial
Publisher
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Bmc Health Services Research
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Child; Humans; Adult; Parent-Child Relations; Research Design; Australia; Cost-Benefit Analysis; Patient Satisfaction; Cost of Illness; Oncology Service; quality of life; adolescent; Preschool; Study Design; Randomized Controlled Trials/methods; Health Services Accessibility/economics; Rural Health Services/economics; Ambulatory Care/economics; Child Health Services/economics; Hospital/economics; Neoplasms/economics/therapy; Telemedicine/economics/instrumentation; Videoconferencing/economics
Creator
An entity primarily responsible for making the resource
Bensink M; Wootton R; Irving H; Hallahan A; Theodoros D; Russell T; Scuffham P; Barnett AG
Description
An account of the resource
BACKGROUND: Providing ongoing family centred support is an integral part of childhood cancer care. For families living in regional and remote areas, opportunities to receive specialist support are limited by the availability of health care professionals and accessibility, which is often reduced due to distance, time, cost and transport. The primary aim of this work is to investigate the cost-effectiveness of videotelephony to support regional and remote families returning home for the first time with a child newly diagnosed with cancer METHODS/DESIGN: We will recruit 162 paediatric oncology patients and their families to a single centre randomised controlled trial. Patients from regional and remote areas, classified by Accessibility/Remoteness Index of Australia (ARIA+) greater than 0.2, will be randomised to a videotelephone support intervention or a usual support control group. Metropolitan families (ARIA+ < or = 0.2) will be recruited as an additional usual support control group. Families allocated to the videotelephone support intervention will have access to usual support plus education, communication, counselling and monitoring with specialist multidisciplinary team members via a videotelephone service for a 12-week period following first discharge home. Families in the usual support control group will receive standard care i.e., specialist multidisciplinary team members provide support either face-to-face during inpatient stays, outpatient clinic visits or home visits, or via telephone for families who live far away from the hospital. The primary outcome measure is parental health related quality of life as measured using the Medical Outcome Survey (MOS) Short Form SF-12 measured at baseline, 4 weeks, 8 weeks and 12 weeks. The secondary outcome measures are: parental informational and emotional support; parental perceived stress, parent reported patient quality of life and parent reported sibling quality of life, parental satisfaction with care, cost of providing improved support, health care utilisation and financial burden for families. DISCUSSION: This investigation will establish the feasibility, acceptability and cost-effectiveness of using videotelephony to improve the clinical and psychosocial support provided to regional and remote paediatric oncology patients and their families.
2007
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/1472-6963-7-38" target="_blank" rel="noreferrer">10.1186/1472-6963-7-38</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
Adolescent
Adult
Ambulatory Care/economics
Australia
Backlog
Barnett AG
Bensink M
BMC Health Services Research
Child
Child Health Services/economics
Cost Of Illness
Cost-Benefit Analysis
Hallahan A
Health Services Accessibility/economics
Hospital/economics
Humans
Irving H
Journal Article
Neoplasms/economics/therapy
Oncology Service
Parent-child Relations
Patient Satisfaction
Preschool
Quality Of Life
Randomized Controlled Trials/methods
Research Design
Rural Health Services/economics
Russell T
Scuffham P
Study Design
Telemedicine/economics/instrumentation
Theodoros D
Videoconferencing/economics
Wootton R