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Dublin Core
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Title
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February 2020 List
Text
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Citation List Month
February 2020 List
URL Address
<a href="http://doi.org/10.2196/12442" target="_blank" rel="noreferrer noopener">http://doi.org/10.2196/12442</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Assessment of a Mobile App by Adolescents and Young Adults With Cystic Fibrosis: Pilot Evaluation
Publisher
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JMIR mHealth and uHealth
Date
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2019
Subject
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Adolescence; adolescent; adult; anthropometry; article; breathing; child; chronic lung disease; clinical article; controlled study; cystic fibrosis; disability; female; human; life expectancy; life satisfaction; lung function; male; mobile application; mobile phone; quality of life; questionnaire; responsibility; self care; young adult
Creator
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Rudolf I; Pieper K; Nolte H; Junge S; Dopfer C; Sauer-Heilborn A; Ringshausen F C; Tummler B; von Jan U; Albrecht U V; Fuge J; Hansen G; Dittrich A M
Description
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BACKGROUND: Cystic fibrosis (CF) continues to be the most common life-limiting chronic pulmonary disease in adolescents and young adults. Treatment of CF demands a high treatment time investment to slow the progression of lung function decline, the most important contributor to morbidity and mortality. Adherence is challenging in CF due to the high treatment burden and the lack of immediate health consequences in case of nonadherence. Lung function decline is particularly pronounced in the transition phase between 12 and 24 years of age. The improvement of self-management and self-responsibility and independence from parents and desire for normalcy are conflicting aspects for many adolescents with CF, which influence adherence to the time-consuming pulmonary therapy. Mobile health (mHealth) care apps could help to support self-management and independence and thereby reconcile seemingly conflicting goals to improve adherence, quality of life, and ultimately CF life expectancy.
Identifier
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<a href="http://doi.org/10.2196/12442" target="_blank" rel="noreferrer noopener">10.2196/12442</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Adolescence
Adolescent
Adult
Albrecht U V
Anthropometry
Article
Breathing
Child
chronic lung disease
Clinical Article
Controlled Study
Cystic Fibrosis
Disability
Dittrich A M
Dopfer C
February 2020 List
Female
Fuge J
Hansen G
Human
JMIR mHealth and uHealth
Junge S
Life Expectancy
life satisfaction
lung function
Male
mobile application
mobile phone
Nolte H
Pieper K
Quality Of Life
Questionnaire
responsibility
Ringshausen F C
Rudolf I
Sauer-Heilborn A
Self Care
Tummler B
von Jan U
Young Adult