1
40
4
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
March 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March 2020 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2019.12.120" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2019.12.120</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Pediatric Resident's Knowledge and Attitudes Towards Spiritual Assessment and Care: An Educational Intervention. (FR408C)
Publisher
An entity responsible for making the resource available
Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
attitude; Caucasian; child; clinical article; comfort; conference abstract; controlled study; female; human; Likert scale; palliative therapy; pediatric patient; resident; role playing; Wilcoxon signed ranks test
Creator
An entity primarily responsible for making the resource
Delaney C; Moehling K; Maurer S
Description
An account of the resource
Objectives: * Recognize the importance of religious/spiritual assessment and care in pediatric patients with serious illness. * Identify the elements of a spiritual assessment. * Assess the needs of pediatric residents in religious and spiritual assessment in children with serious illness.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jpainsymman.2019.12.120" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2019.12.120</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Attitude
Caucasian
Child
Clinical Article
Comfort
conference abstract
Controlled Study
Delaney C
Female
Human
Journal of Pain and Symptom Management
Likert scale
March 2020 List
Maurer S
Moehling K
Palliative Therapy
pediatric patient
Resident
Role Playing
Wilcoxon signed ranks test
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
July 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
July 2018 List
URL Address
<a href="http://doi.org/10.1080/15325024.2018.1446271" target="_blank" rel="noreferrer noopener">http://doi.org/10.1080/15325024.2018.1446271</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Child’s Play: The Role of Play in Mitigating the Fear of Death Among Pediatric Palliative Care Team Patients, Families, and Caregivers
Publisher
An entity responsible for making the resource available
Journal of Loss & Trauma
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Creator
An entity primarily responsible for making the resource
Crane JL; Davis CS
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/15325024.2018.1446271" target="_blank" rel="noreferrer noopener">10.1080/15325024.2018.1446271</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Description
An account of the resource
Terror Management Theory (TMT), derived from Ernest Becker’s The Denial of Death (1974), maintains that humans are motivated by the desire to overcome our fear of death by constructing meaning and significance in our lives in various ways, including making light of our mortality. In this paper, we examine the role of play as seriously ill children involved with a hospital-based palliative care team live out what may be the remainder of their lives. We question the function that play has, if any, in mitigating the fear of death among dying children and their caregivers. We explore formal and informal manners of therapeutic play among children and adults occurring in moments of terrible stress, pain, and the looming threat of death. We draw on playful representations of death from popular culture and from extended field research conducted with a pediatric palliative care team in a large regional children’s hospital caring for seriously ill children and their families, as patients, families, and caretakers struggle to make sense of their suffering, fear and loss.
2018
Attitude To Death
Caregivers -- Psychosocial Factors
Child
Crane JL
Critically Ill Patients -- Psychosocial Factors -- In Infancy and
Davis CS
Family Attitudes
Fear
Human
Journal of Loss & Trauma
July 2018 List
Pain
Palliative Care -- In Infancy and Childhood
Role Playing
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
March 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March 2018 List
URL Address
<a href="http://doi.org/10.1097/01.ccm.0000528417.25863.42" target="_blank" rel="noreferrer">http://doi.org/10.1097/01.ccm.0000528417.25863.42</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Pccm fellows' palliative care knowledge and attitudes surrounding a pilot educational initiative
Publisher
An entity responsible for making the resource available
Critical Care Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
palliative therapy; Child; Clinical Article; cohort analysis; comfort; communication skill; Curriculum; Death; Human; Intensive Care; legal aspect; Likert scale; maturation; prospective study; role playing; simulation; spike
Creator
An entity primarily responsible for making the resource
Short SR; Poynter-Wong S; Flint H
Description
An account of the resource
Learning Objectives: The importance of Palliative and End of Life Care (PC, EOL) for children in the PICU with life-limiting, chronic conditions is increasingly recognized (1). Robust PC improves outcomes by symptom score, cost, and length of life (2-4). Pediatric Critical Care fellows (PCCF) report deficiencies in PC education and knowledge (5-7). This study measured PC knowledge, attitudes, and skills of PCCF at one center assessing how maturation impacts those indices. Methods: Prospective cohort study of PCCF surrounded a series of PC workshops. Two validated adapted tools evaluated endpoints; a survey of PCCFs' comfort, knowledge and experience (8) and a Communication Assessment (CA) using SPIKES methodology (9). Graduating fellows (GF, n = 4) and a current fellow cohort (CF, n = 11) completed the survey. In a simulation workshop, faculty (n = 2) used the CA to rate fellows' communication skills (n = 15). A CF cohort (n = 11) completed the post-curriculum survey. Results: Assessed PCCF's knowledge, attitudes and skills show maturation alone inadequately instructs PC, reflecting national data (5-9). Maturation did not alter self-appraised comfort providing PC in 6 (Likert scale 1-5)(composite scores by year; 1st 3.6, 2nd 3.3; 3rd; 3.5). With training, comfort managing conflict and emotion (1st 3.2; 3rd 3), symptoms at EOL (1st 3.7; 2nd 3.6; 3rd 4.1), and legal aspects of PC (1st 3.6; 3rd 3.7) did not change. Nor, did it improve objective knowledge scores (by year; 1st 54%; 2nd 46%; 3rd 51%; GF 65% p> 0.05) or communication skills by CA (scale 0-4)(1st 2.2; 2nd 2.6; 3rd 2). PC exposure, gauged by care conferences (cc) led and recalled deaths on clinical duty (cc 1-25; M= 8.5; deaths 5-36; M 13.5), did not correlate with comfort, communication skills, or knowledge. Post-workshop, more PCCF found PC education helpful (90 v 60%) with new openness to workshops, online modules, and role-play versus didactics and observation pre-workshop. Conclusions: This study demonstrates knowledge gaps and a lack of communication skills commiserate with self-reported comfort in PC among PCCF. Maturation did not improve these endpoints. Fellows are also open to and request more PC education after exposure to a multi-modal educational intervention. Findings indicate that PCCF want and need specific curricula to affect PC knowledge and skills.
2018
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/01.ccm.0000528417.25863.42" target="_blank" rel="noreferrer">10.1097/01.ccm.0000528417.25863.42</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Child
Clinical Article
Cohort Analysis
Comfort
Communication Skill
Critical Care Medicine
Curriculum
Death
Flint H
Human
Intensive Care
Legal Aspect
Likert scale
March 2018 List
maturation
Palliative Therapy
Poynter-Wong S
Prospective Study
Role Playing
Short SR
Simulation
Spike
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Oncology
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2017 List
URL Address
<a href="http://doi.org/10.1002/pon.4353" target="_blank" rel="noreferrer">http://doi.org/10.1002/pon.4353</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Palliative communication skills training for pediatric nurse practitioners: A novel program with booster sessions
Publisher
An entity responsible for making the resource available
Psycho-oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Communication Skill; Pediatric Nurse Practitioner; Child; Childhood Cancer; Clinical Article; Consensus; Family; Funding; Human; Needs Assessment; Palliative Therapy; Patient Assessment; Pediatrics; Role Playing; Self Evaluation; Training
Creator
An entity primarily responsible for making the resource
Kearney J
Description
An account of the resource
Communication between pediatric providers, patients, and their families is a key component of for children with serious illness, with broad implications for patient and family outcomes. Recommendations for effective and compassionate palliative communication in pediatrics are unique because of the 3-way relationship between providers, parents, and growing children, whose emerging autonomy requires special consideration. Memorial Sloan Kettering (MSK) has over 40 pediatric nurse practitioners (PNPs) providing primary oncologic care across outpatient and inpatient oncology settings. MSK's Comskil training program had a decade of experience training pediatric oncology MD fellows, but no program yet existed for the NPs so a needs assessment survey was conducted and a program was developed from 2012 to 2016. Methods: An anonymous, online survey was conducted of the MSK NPs (n = 42) that indicated high interest in training and low-overall confidence in particular targeted palliative care skills in pediatrics. A full training day including didactics, small group role play with feedback from expert facilitator, and peers was developed and conducted for all 42 NPs in 2013. A booster training was developed using novel role play methods to increase engagement, training relevance, and skills uptake based on course evaluations from this training. Results: Booster trainings have been recommended to improve uptake of skills through practice; however, little consensus exists on how and when to do boosters. On the basis of the theory of "active engagement," we designed boosters with custom role play scenarios based on PNP's clinical experiences, then used these in small group role play, after reviewing skills taught at the initial training. Standardized patient assessments, course evaluations and self-assessments pretraining, 2 weeks posttraining, and 6 months posttraining were conducted. Conclusions: Pediatric NPs working with children with serious illness benefit from palliative communication focused, pediatric-specific communication skills training. Nurse practitioner preferences, selfassessment, and skills' uptake outcomes will be discussed. Funding: Kanarek Family Foundation.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/pon.4353" target="_blank" rel="noreferrer">10.1002/pon.4353</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Child
Childhood Cancer
Clinical Article
Communication Skill
Consensus
Family
Funding
Human
Kearney J
Needs Assessment
Oncology 2017 List
Palliative Therapy
Patient Assessment
Pediatric Nurse Practitioner
Pediatrics
Psycho-Oncology
Role Playing
Self Evaluation
Training