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Dublin Core
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Title
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January 2023 List
Text
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Citation List Month
January List 2023
URL Address
<a href="http://doi.org/%2010.1016/j.jpainsymman.2022.11.028" target="_blank" rel="noreferrer noopener"> http://doi.org/ 10.1016/j.jpainsymman.2022.11.028</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Congruent Communication: Addressing culture and care for a seriously ill Rohingya infant
Publisher
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Journal of Pain and Symptom Management
Date
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2022
Subject
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Pediatric Palliative Care (PPC); Pediatric Ethics; Cross-Cultural Communication; Rohingya; Culture; Rohingya culture; Cross-Cultural Communication; Pediatric Ethics; Pediatric Palliative Care (PPC)
Creator
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Treat L; Macauley R
Description
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Pediatric palliative care teams seek to collaboratively promote the quality of life for children with serious medical illness in the context of the values expressed by the patient and family. Especially for infants with high medical fragility, shared decision making can be a complex task that often requires flexibility to respond to the clinical circumstances at hand, as well as contextualization within the family culture. In this paper, we present the case of an infant with a severe congenital brain malformation who was born in an American hospital to a Rohingya-speaking, Burmese family whose care preferences seemed to oscillate between comfort-focused and life-prolonging without clear acknowledgement of the consequences of shifting between treatment plans. Discussion of this case helps to illustrate the cultural factors, ethical challenges, and systems-level issues that can arise for medical teams in seeking to promote patient-centered care that respects family values while also honoring the principle of nonmaleficience.
Identifier
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<a href="http://doi.org/%2010.1016/j.jpainsymman.2022.11.028" target="_blank" rel="noreferrer noopener"> 10.1016/j.jpainsymman.2022.11.028</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Pediatric Palliative Care (PPC)
2022
Cross-Cultural Communication
Culture
January List 2023
Journal of Pain and Symptom Management
Macauley R
Pediatric Ethics
Rohingya
Rohingya culture
Treat L