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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2022 Special Edition 3 - Oncology List
Text
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Citation List Month
2022 Special Edition 3 - Oncology List
URL Address
<a href="http://doi.org/10.3390/children9020274" target="_blank" rel="noreferrer noopener"> http://doi.org/10.3390/children9020274</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Bereaved Parent Perspectives on End-of-Life Conversations in Pediatric Oncology
Publisher
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Children (Basel)
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Creator
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Robert R; Razvi S; Triche LL; Bruera E; Moody KM
Description
An account of the resource
BACKGROUND: Professional education pertaining to end-of-life care with pediatric oncology patients is limited. Pediatric trainees learn about end-of-life conversations largely from the provider's perspective. Bereaved parents can inform the education of oncologists and the interdisciplinary team by sharing their perceptions and preferences through personal narratives. METHODS: The aim of this project was to enhance the healthcare teams' understanding of bereaved parents' end-of-life care preferences through narratives. Bereaved parents were recruited from our institution's Pediatric Supportive Care Committee membership. Parents were tasked with identifying elements of care that were of the greatest importance to them, based upon their personal experiences during their child's end-of-life care. Narratives were analyzed using standard qualitative methods. RESULTS: Parents of five patients participated, including four mothers and three fathers. Ten themes summarizing essential elements of end-of-life care were identified, including early ongoing and stepwise prognostic disclosure, honoring the child's voice, support of hope and realism, anticipatory guidance on dying, and continued contact with the bereaved. CONCLUSION: Bereaved parents emphasize the need for providers to have ongoing honest conversations that support realism and hope that can help them to best prepare for their child's end of life and to remain in contact with them after death.
Identifier
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<a href="http://doi.org/10.3390/children9020274" target="_blank" rel="noreferrer noopener">10.3390/children9020274</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
2022 Special Edition 3 - Oncology List
Bruera E
Cancer
Caregiver experience
Child
Children (Basel)
End Of Life
Moody KM
Palliative Care
Patient experience
Pediatrics
Razvi S
Robert R
Triche LL
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/pbc.22272" target="_blank" rel="noreferrer">http://doi.org/10.1002/pbc.22272</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Impact of a pediatric palliative care program
Publisher
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Pediatric Blood & Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Creator
An entity primarily responsible for making the resource
Wolfe J; Robert R; Sommerer A; Volz-Fleckenstein M
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/pbc.22272" target="_blank" rel="noreferrer">10.1002/pbc.22272</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2010
2010
Backlog
Journal Article
Pediatric Blood & Cancer
Robert R
Sommerer A
Volz-Fleckenstein M
Wolfe J