1
40
12
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
August 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2019 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2019.03.010" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2019.03.010</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The Limits of "Life-Limiting"
Publisher
An entity responsible for making the resource available
Journal of Pain & Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
pediatrics; hospice; life-limiting; life-threatening; terminal; risk
Creator
An entity primarily responsible for making the resource
Macauley R C
Description
An account of the resource
The field of hospice and palliative medicine has struggled to define the conditions that are appropriate for palliative care. "Life-threatening" appropriately encompasses lethal conditions and helpfully incorporates the concept of probability, which is a necessary variable in any risk calculation. Yet it leaves one important group of patients unaccounted for: those whose primary need for palliative care is not expected abbreviation of life but rather the quality of that life. In an attempt to include these patients, the term "life-limiting" has come to be used more frequently. Although attractive in its breadth-and at first glance appearing to be a less threatening way to introduce palliative care-the term is inherently flawed. It denotes a certain outcome, without any consideration of the likelihood of that outcome. Rather than "softening the blow" of introducing palliative care, the term seems to condemn a patient to the very outcome that palliative care is tasked to ameliorate, namely, the limitation of life. As such, it may provide a distorted view of what palliative care is, especially in pediatrics where the term is used with disproportionate frequency. The inherent misplaced certainty of "life-limiting" and the self-defeating message it sends to patients should be acknowledged.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jpainsymman.2019.03.010" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2019.03.010</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
August 2019 List
Hospice
Journal Of Pain & Symptom Management
Life-limiting
Life-threatening
Macauley R C
Pediatrics
Risk
terminal
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
May 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2019 List
URL Address
<a href="http://doi.org/10.1080/17518423.2018.1461946" target="_blank" rel="noreferrer noopener">http://doi.org/10.1080/17518423.2018.1461946</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Physicians' attitudes when faced with life-threatening events in children with severe neurological disabilities
Publisher
An entity responsible for making the resource available
Developmental Neurorehabilitation
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
human; terminal care; female; male; palliative therapy; emergency ward; major clinical study; resuscitation; article; adult; patient care; intensive care; health care access; priority journal; follow up; risk factor; physician attitude; personal experience; cross-sectional study; tracheostomy; disability; spinal muscular atrophy; Likert scale; clinical decision making; childhood disease/ep [Epidemiology]; neurologic disease/ep [Epidemiology]; noninvasive ventilation; patient comfort; pediatric rehabilitation; profound intellectual and multiple disability; rehabilitation center; risk; Swiss
Creator
An entity primarily responsible for making the resource
Wosinski B; Newman C J
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/17518423.2018.1461946" target="_blank" rel="noreferrer noopener">10.1080/17518423.2018.1461946</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Description
An account of the resource
Purpose: Children with severe neurological disabilities are at an increased risk of acute, life-threatening events. We assessed physicians' attitudes when making decisions in these situations.
2019
Adult
Article
childhood disease/ep [Epidemiology]
Clinical Decision Making
Cross-sectional Study
Developmental Neurorehabilitation
Disability
Emergency Ward
Female
Follow Up
Health Care Access
Human
Intensive Care
Likert scale
Major Clinical Study
Male
May 2019 List
neurologic disease/ep [Epidemiology]
Newman C J
Noninvasive Ventilation
Palliative Therapy
Patient Care
Patient Comfort
Pediatric Rehabilitation
Personal Experience
Physician Attitude
Priority Journal
profound intellectual and multiple disability
rehabilitation center
Resuscitation
Risk
risk factor
Spinal Muscular Atrophy
Swiss
Terminal Care
Tracheostomy
Wosinski B
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1056/NEJMoa033160" target="_blank" rel="noreferrer">http://doi.org/10.1056/NEJMoa033160</a>
Dublin Core
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Title
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Hospitalization for mental illness among parents after the death of a child.
Publisher
An entity responsible for making the resource available
The New England Journal Of Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Child; Female; Humans; Male; Adult; Follow-Up Studies; Middle Aged; Death; Longitudinal Studies; Sex Factors; Life Change Events; Hospitals; Risk; Regression Analysis; Registries; Preschool; Non-U.S. Gov't; Research Support; bereavement; infant; Comparative Study; Parents/psychology; Substance-Related Disorders/epidemiology; Hospitalization/statistics & numerical data; Mental Disorders/epidemiology; Mood Disorders/epidemiology; Psychiatric; Schizophrenia/epidemiology
Creator
An entity primarily responsible for making the resource
Li J; Laursen TM; Precht DH; Olsen J; Mortensen PB
Description
An account of the resource
BACKGROUND: The loss of a child is considered one of the most stressful events in the life of a parent. We hypothesized that parental bereavement increases the risk of hospital admission for a psychiatric disorder, especially for affective disorders. METHODS: We studied a cohort of 1,082,503 persons identified from national registers in Denmark who were born between 1952 and 1999 and had at least one child under 18 years of age during the follow-up period, from 1970 to 1999. Parents who lost a child during follow-up were categorized as "bereaved" from the date of death of the child. RESULTS: As compared with parents who did not lose a child, parents who lost a child had an overall relative risk of a first psychiatric hospitalization for any disorder of 1.67 (95 percent confidence interval, 1.53 to 1.83). Bereaved mothers had a higher relative risk of being hospitalized for any psychiatric disorder than bereaved fathers (relative risks, 1.78 [95 percent confidence interval, 1.60 to 1.98] and 1.38 [95 percent confidence interval, 1.17 to 1.63], respectively; P value for interaction, 0.01). The relative risks of hospitalization specifically for affective disorders were 1.91 (95 percent confidence interval, 1.59 to 2.30) and 1.61 (95 percent confidence interval, 1.15 to 2.27) for bereaved mothers and fathers, respectively. Among mothers, the relative risk of being hospitalized for any psychiatric disorder was highest during the first year after the death of the child but remained significantly elevated five years or more after the death. CONCLUSIONS: The risk of psychiatric hospitalization was increased among parents, especially mothers, who lost a child.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1056/NEJMoa033160" target="_blank" rel="noreferrer">10.1056/NEJMoa033160</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Adult
Backlog
Bereavement
Child
Comparative Study
Death
Female
Follow-up Studies
Hospitalization/statistics & numerical data
Hospitals
Humans
Infant
Journal Article
Laursen TM
Li J
Life Change Events
Longitudinal Studies
Male
Mental Disorders/epidemiology
Middle Aged
Mood Disorders/epidemiology
Mortensen PB
Non-U.S. Gov't
Olsen J
Parents/psychology
Precht DH
Preschool
Psychiatric
Registries
Regression Analysis
Research Support
Risk
Schizophrenia/epidemiology
Sex Factors
Substance-Related Disorders/epidemiology
The New England Journal Of Medicine
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1046/j.1525-1497.2003.21102.x" target="_blank" rel="noreferrer">http://doi.org/10.1046/j.1525-1497.2003.21102.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
A randomized comparison of patients' understanding of number needed to treat and other common risk reduction formats
Publisher
An entity responsible for making the resource available
Journal Of General Internal Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Cross-Sectional Studies; Female; Humans; Male; Aged; Middle Aged; Treatment Outcome; Comprehension; Risk; 80 and over; Statistical; Data Interpretation
Creator
An entity primarily responsible for making the resource
Sheridan SL; Pignone MP; Lewis CL
Description
An account of the resource
BACKGROUND: Commentators have suggested that patients may understand quantitative information about treatment benefits better when they are presented as numbers needed to treat (NNT) rather than as absolute or relative risk reductions. OBJECTIVE: To determine whether NNT helps patients interpret treatment benefits better than absolute risk reduction (ARR), relative risk reduction (RRR), or a combination of all three of these risk reduction presentations (COMBO). DESIGN: Randomized cross-sectional survey. SETTING: University internal medicine clinic. PATIENTS: Three hundred fifty-seven men and women, ages 50 to 80, who presented for health care. INTERVENTIONS: Subjects were given written information about the baseline risk of a hypothetical "disease Y" and were asked (1) to compare the benefits of two drug treatments for disease Y, stating which provided more benefit; and (2) to calculate the effect of one of those drug treatments on a given baseline risk of disease. Risk information was presented to each subject in one of four randomly allocated risk formats: NNT, ARR, RRR, or COMBO. MAIN RESULTS: When asked to state which of two treatments provided more benefit, subjects who received the RRR format responded correctly most often (60% correct vs 43% for COMBO, 42% for ARR, and 30% for NNT, P =.001). Most subjects were unable to calculate the effect of drug treatment on the given baseline risk of disease, although subjects receiving the RRR and ARR formats responded correctly more often (21% and 17% compared to 7% for COMBO and 6% for NNT, P =.004). CONCLUSION: Patients are best able to interpret the benefits of treatment when they are presented in an RRR format with a given baseline risk of disease. ARR also is easily interpreted. NNT is often misinterpreted by patients and should not be used alone to communicate risk to patients.
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1046/j.1525-1497.2003.21102.x" target="_blank" rel="noreferrer">10.1046/j.1525-1497.2003.21102.x</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
80 And Over
Aged
Backlog
Comprehension
Cross-sectional Studies
Data Interpretation
Female
Humans
Journal Article
Journal Of General Internal Medicine
Lewis CL
Male
Middle Aged
Pignone MP
Risk
Sheridan SL
statistical
Treatment Outcome
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/00003246-200203000-00002" target="_blank" rel="noreferrer">http://doi.org/10.1097/00003246-200203000-00002</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Intensive care unit admission has minimal impact on long-term mortality
Publisher
An entity responsible for making the resource available
Critical Care Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Female; Humans; Male; Survival Rate; Adult; Hospital Mortality; Aged; Middle Aged; Outcome Assessment (Health Care); Survival Analysis; Analysis of Variance; Risk; Regression Analysis; Non-U.S. Gov't; Research Support; Comparative Study; retrospective studies; Intensive Care Units/utilization; British Columbia/epidemiology; Risk Adjustment
Creator
An entity primarily responsible for making the resource
Keenan SP; Dodek P; Chan K; Hogg RS; Craib KJ; Anis AH; Spinelli JJ
Description
An account of the resource
OBJECTIVE: To measure the association between intensive care unit (ICU) admission and both hospital and long-term mortality, separate from the effect of hospital admission alone. DESIGN: Retrospective cohort study. SETTING: All hospitals in British Columbia, Canada, during 3 fiscal years, 1994 to 1996. PATIENTS: A total of 27,103 patients admitted to ICU and 41,308 (5% random sample) patients admitted to hospital but not to ICU. INTERVENTION: None. MEASUREMENTS AND MAIN RESULTS: Although ICU admission was an important factor associated with hospital mortality (odds ratio: 9.12; 95% confidence interval: 8.34-9.96), the association between ICU admission and mortality after discharge was relatively minimal (hazard ratio: 1.21; 95% confidence interval: 1.17-1.27) and was completely overshadowed by the effect of age, gender, and diagnosis. CONCLUSIONS: After controlling for the effect of hospital admission, admission to ICU has minimal independent effect on mortality after discharge.
2002
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/00003246-200203000-00002" target="_blank" rel="noreferrer">10.1097/00003246-200203000-00002</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
Adult
Aged
Analysis of Variance
Anis AH
Backlog
British Columbia/epidemiology
Chan K
Comparative Study
Craib KJ
Critical Care Medicine
Dodek P
Female
Hogg RS
Hospital Mortality
Humans
Intensive Care Units/utilization
Journal Article
Keenan SP
Male
Middle Aged
Non-U.S. Gov't
Outcome Assessment (health Care)
Regression Analysis
Research Support
Retrospective Studies
Risk
Risk Adjustment
Spinelli JJ
Survival Analysis
Survival Rate
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archsurg.1981.01380140023005" target="_blank" rel="noreferrer">http://doi.org/10.1001/archsurg.1981.01380140023005</a>
Dublin Core
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Title
A name given to the resource
Feeding jejunostomy in patients with neurologic disorders
Publisher
An entity responsible for making the resource available
Archives Of Surgery (chicago, Ill. : 1960)
Date
A point or period of time associated with an event in the lifecycle of the resource
1981
Subject
The topic of the resource
Female; Humans; Male; Adult; Prognosis; Aged; Middle Aged; Risk; adolescent; retrospective studies; Anesthesia; Deglutition Disorders/etiology/therapy; Enteral Nutrition/methods; General/adverse effects; Jejunum/surgery; methods; Nervous System Diseases/complications; Postoperative Complications/mortality
Creator
An entity primarily responsible for making the resource
Matino JJ
Description
An account of the resource
A retrospective study of 54 patients who underwent feeding jejunostomy because of dysphagia on a neurologic basis was performed to determine risk factors affecting a postoperative mortality of 33% and six-month mortality of 67%. Advanced patient age, depressed preoperative level of consciousness, general anesthesia, and the technique of Witzel's jejunostomy were associated with increased postoperative level of consciousness carried an especially poor six month prognosis. It is concluded that a Roux-en-Y jejunostomy should be considered in patients with a hopelessly irreversible neurologic deficit. In all other situations, Stamm's jejunostomy is the feeding procedure of choice.
1981
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archsurg.1981.01380140023005" target="_blank" rel="noreferrer">10.1001/archsurg.1981.01380140023005</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1981
Adolescent
Adult
Aged
Anesthesia
Archives Of Surgery (chicago, Ill. : 1960)
Backlog
Deglutition Disorders/etiology/therapy
Enteral Nutrition/methods
Female
General/adverse effects
Humans
Jejunum/surgery
Journal Article
Male
Matino JJ
Methods
Middle Aged
Nervous System Diseases/complications
Postoperative Complications/mortality
Prognosis
Retrospective Studies
Risk
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archinte.1996.00440150095011" target="_blank" rel="noreferrer">http://doi.org/10.1001/archinte.1996.00440150095011</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Warfarin for atrial fibrillation. The patient's perspective
Publisher
An entity responsible for making the resource available
Archives Of Internal Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
1996
Subject
The topic of the resource
Humans; Aged; Middle Aged; Severity of Illness Index; Risk; Non-U.S. Gov't; Research Support; Anticoagulants/therapeutic use; Atrial Fibrillation/complications/drug therapy; Cerebrovascular Disorders/etiology/prevention & control; Warfarin/therapeutic use
Creator
An entity primarily responsible for making the resource
Man-Son-Hing M; Laupacis A; O'Connor A; Wells G; Lemelin J; Wood W; Dermer M
Description
An account of the resource
OBJECTIVE: To determine the minimal clinically important difference (MCID) of warfarin therapy for the treatment of nonvalvular atrial fibrillation from the perspective of patients using 2 different elicitation methods. DESIGN: All patients completed 2 face-to-face interviews, which were 2 weeks apart. For each interview, they were randomized to receive 1 of 2 elicitation methods: ping-ponging or starting at the known efficacy. SETTING: The practices of 2 university-affiliated family medicine centers (8 physicians each), 14 community-based family physicians, and 2 cardiologists. PATIENTS: Sixty-four patients with nonvalvular atrial fibrillation who were initiated with warfarin therapy at least 3 months before the study. INTERVENTION: During each interview, the patients' MCIDs were determined by using (1) a pictorial flip chart to describe atrial fibrillation; the consequences of a minor stroke, a major stroke, and a major bleeding episode; the chance of stroke if not taking warfarin; the chance of a major bleeding episode if taking warfarin; examples of the inconvenience, minor side effects, and costs of warfarin therapy; and then (2) 1 of the 2 elicitation methods to determine their MCIDs (the smallest reduction in stroke risk at which the patients were willing to take warfarin). Patients' knowledge of their stroke risk, acceptability of the interview process, and factors determining their preferences were also assessed. MAIN RESULTS: Given a baseline risk of having a stroke in the next 2 years, if not taking warfarin, of 10 of 100, the mean MCID was 2.01 of 100 (95% confidence interval, 1.60-2.42). Fifty-two percent of the patients would take warfarin for an absolute decrease in stroke risk of 1% over 2 years. Before eliciting their MCIDs, patients showed poor knowledge of their stroke risk, which improved afterward. The interview process was well accepted by the patients. The MCID using the ping-ponging elicitation method was 1.015 of 100 smaller compared with use of the starting at the known efficacy method (P = .01). CONCLUSIONS: We were able to determine the MCID of warfarin therapy for the prevention of stroke from the perspective of patients with nonvalvular atrial fibrillation. Their MCIDs were much smaller than those that have been implied by some experts and clinicians. The interview process, using the flip chart approach, appeared to improve the patients' knowledge of their disease and its consequences and treatment. The method used to elicit the patients' MCIDs can have a clinically important effect on patient responses. The method used in our study can be generalized to other conditions and, thus, could be helpful in 3 ways: (1) from a clinical decision-making perspective, it could facilitate patient-physician communication; (2) it could clarify the patient perspective when interpreting the results of previously completed trials; and (3) it could be used to derive more clinically relevant sample sizes for randomized treatment trials.
1996
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archinte.1996.00440150095011" target="_blank" rel="noreferrer">10.1001/archinte.1996.00440150095011</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1996
Aged
Anticoagulants/therapeutic use
Archives Of Internal Medicine
Atrial Fibrillation/complications/drug therapy
Backlog
Cerebrovascular Disorders/etiology/prevention & control
Dermer M
Humans
Journal Article
Laupacis A
Lemelin J
Man-Son-Hing M
Middle Aged
Non-U.S. Gov't
O'Connor A
Research Support
Risk
Severity Of Illness Index
Warfarin/therapeutic use
Wells G
Wood W
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/s0140-6736(99)90253-2" target="_blank" rel="noreferrer">http://doi.org/10.1016/s0140-6736(99)90253-2</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Research in children: ethical and scientific aspects
Publisher
An entity responsible for making the resource available
Lancet
Date
A point or period of time associated with an event in the lifecycle of the resource
1999
Subject
The topic of the resource
Child; infant; Parental Consent; Risk Assessment; Research; Informed Consent; Risk; Medical; Newborn; Ethics Committees; Human; Developing Countries; Pediatrics; Clinical Trials/st [Standards]; Ethics; Research/st [Standards]; Nontherapeutic Human Experimentation
Creator
An entity primarily responsible for making the resource
Smyth RL; Weindling AM
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/s0140-6736(99)90253-2" target="_blank" rel="noreferrer">10.1016/s0140-6736(99)90253-2</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
1999
1999
Backlog
Child
Clinical Trials/st [Standards]
Developing Countries
Ethics
Ethics Committees
Human
Infant
Informed Consent
Journal Article
Lancet
Medical
Newborn
Nontherapeutic Human Experimentation
Parental Consent
Pediatrics
Research
Research/st [Standards]
Risk
Risk Assessment
Smyth RL
Weindling AM
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/00003246-199104000-00004" target="_blank" rel="noreferrer">http://doi.org/10.1097/00003246-199104000-00004</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Objective assessment of changing mortality risks in pediatric intensive care unit patients.
Publisher
An entity responsible for making the resource available
Critical Care Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
1991
Subject
The topic of the resource
Child; Humans; Intensive Care Units; Logistic Models; Prognosis; Severity of Illness Index; Probability; Risk; Statistical; Models; mortality; Forecasting/methods; Outcome and Process Assessment (Health Care)/methods; Pediatric/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Ruttimann UE; Pollack MM
Description
An account of the resource
OBJECTIVE: To develop and validate a mortality risk predictor based on physiologic data that estimates daily the probability of a patient dying within the next 24 hrs as that probability changes with disease and recovery. SETTING: Nine pediatric ICUs in tertiary care centers. PATIENTS: Data from 1,401 patients (116 deaths, 5,521 days of care) were used for predictor development, and 1,227 patients (105 deaths, 4,597 days of care) provided data for predictor validation. METHODS: The predictor was developed by logistic regression analysis using the Pediatric Risk of Mortality scores of all previous days as potential predictor variables. Performance was measured by the area under the receiver operating characteristic curve (Az), and by the comparison of the daily predicted vs. observed patient status in five mortality risk groups (less than 0.01, 0.01 to 0.05, 0.05 to 0.15, 0.15 to 0.3, greater than 0.3) using chi-square goodness-of-fit tests. MEASUREMENTS AND MAIN RESULTS: Only the most recent and the admission day Pediatric Risk of Mortality scores (with a weighting ratio of 3:1) contributed significantly (p less than .05) to the prediction. The overall prediction attained an accuracy of Az = 0.904. The daily number and distribution of survivors and nonsurvivors in the five mortality risk groups were well predicted in the total sample (chi 2 [5 degrees of freedom] = 2.51; p greater than .75), and each ICU separately (chi 2 [5 degrees of freedom] range 2.41 to 7.96; all p greater than .15). This dynamic predictor improved (p less than .01) ICU outcome prediction over an admission-day predictor and, in the opinion of the authors, is essential for pediatric ICU efficiency analysis. CONCLUSIONS: The predictor is valid for assessing the 24-hr mortality risk in pediatric ICU patients hospitalized in other tertiary care institutions, different from those used for predictor development. The predicted mortality risks allow prospective patient stratification into risk groups. The ability of this predictor to follow risk changes over time expands its applicability over static predictors by enabling the charting of patient courses, and permitting ICU efficiency analysis.
1991-04
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/00003246-199104000-00004" target="_blank" rel="noreferrer">10.1097/00003246-199104000-00004</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1991
Backlog
Child
Critical Care Medicine
Forecasting/methods
Humans
Intensive Care Units
Journal Article
Logistic Models
Models
Mortality
Outcome and Process Assessment (Health Care)/methods
Pediatric/statistics & Numerical Data
Pollack MM
Probability
Prognosis
Risk
Ruttimann UE
Severity Of Illness Index
statistical
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.7326/0003-4819-117-11-916" target="_blank" rel="noreferrer">http://doi.org/10.7326/0003-4819-117-11-916</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Measured enthusiasm: does the method of reporting trial results alter perceptions of therapeutic effectiveness?
Publisher
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Annals Of Internal Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
1992
Subject
The topic of the resource
Humans; Male; Adult; Attitude of Health Personnel; Questionnaires; Middle Aged; Treatment Outcome; Ontario; Outcome Assessment (Health Care); Hospitals; Risk; Teaching; Non-U.S. Gov't; Research Support; Statistical; Data Interpretation; Clinical Trials; Gemfibrozil/therapeutic use; Hyperlipidemia/complications/drug therapy/mortality; Myocardial Infarction/etiology/mortality/prevention & control
Creator
An entity primarily responsible for making the resource
Naylor CD; Chen E; Strauss B
Description
An account of the resource
OBJECTIVE: To compare clinicians' ratings of therapeutic effectiveness when different trial end points were presented as percent reductions in relative compared with absolute risk and as numbers of patients treated to avoid one adverse outcome. DESIGN: Survey, with random allocation of two questionnaires. SETTING: Toronto teaching hospitals. RESPONDENTS: Convenience sample of 100 faculty and housestaff in internal medicine and family medicine. INTERVENTION: One questionnaire presented results for three end points of the Helsinki Heart Study as separate drug trials using only absolute differences in events; the other showed the same end points as relative differences. Both questionnaires included a fourth "trial," showing person-years of treatment needed to prevent one myocardial infarction. MAIN OUTCOME MEASURE: The "trials" were each rated on an 11-point scale, from treatment "harmful" to "very effective." RESULTS: Respondents' ratings of effectiveness varied with the end point. Controlling for end point, ratings of effectiveness by the 50 participants receiving absolute event data were lower than those by 50 participants responding to relative risk reductions (P < 0.001); however, no end-point difference was more than 0.6 scale points. For a "trial" reporting that 77 persons were treated for 5 years to prevent one myocardial infarction, mean ratings were 2.3 or 1.8 scale points lower, respectively (both P < 0.001), than when the same data were shown as relative or absolute risk reductions. CONCLUSIONS: Clinicians' views of drug therapies are affected by the common use of relative risk reductions in both trial reports and advertisements, by end-point emphasis, and, above all, by underuse of summary measures that relate treatment burden to therapeutic yields in a clinically relevant manner.
1992
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.7326/0003-4819-117-11-916" target="_blank" rel="noreferrer">10.7326/0003-4819-117-11-916</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1992
Adult
Annals Of Internal Medicine
Attitude Of Health Personnel
Backlog
Chen E
Clinical Trials
Data Interpretation
Gemfibrozil/therapeutic use
Hospitals
Humans
Hyperlipidemia/complications/drug therapy/mortality
Journal Article
Male
Middle Aged
Myocardial Infarction/etiology/mortality/prevention & control
Naylor CD
Non-U.S. Gov't
Ontario
Outcome Assessment (health Care)
Questionnaires
Research Support
Risk
statistical
Strauss B
Teaching
Treatment Outcome
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/jama.2011.370" target="_blank" rel="noreferrer">http://doi.org/10.1001/jama.2011.370</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Association between opioid prescribing patterns and opioid overdose-related deaths
Publisher
An entity responsible for making the resource available
Jama
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Female; Humans; Male; Young Adult; Cohort Studies; Adult; Analgesics; Aged; Middle Aged; Risk; Acute Disease; Case-Control Studies; adolescent; Physician's Practice Patterns/statistics & numerical data; Chronic disease; United States/epidemiology; Drug Prescriptions/statistics & numerical data; Opioid/administration & dosage/poisoning; Overdose/epidemiology; Pain/drug therapy; Veterans/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Bohnert AS; Valenstein M; Bair MJ; Ganoczy D; McCarthy JF; Ilgen MA; Blow FC
Description
An account of the resource
CONTEXT: The rate of prescription opioid-related overdose death increased substantially in the United States over the past decade. Patterns of opioid prescribing may be related to risk of overdose mortality. OBJECTIVE: To examine the association of maximum prescribed daily opioid dose and dosing schedule ("as needed," regularly scheduled, or both) with risk of opioid overdose death among patients with cancer, chronic pain, acute pain, and substance use disorders. DESIGN: Case-cohort study. SETTING: Veterans Health Administration (VHA), 2004 through 2008. PARTICIPANTS: All unintentional prescription opioid overdose decedents (n = 750) and a random sample of patients (n = 154,684) among those individuals who used medical services in 2004 or 2005 and received opioid therapy for pain. Main Outcome Measure Associations of opioid regimens (dose and schedule) with death by unintentional prescription opioid overdose in subgroups defined by clinical diagnoses, adjusting for age group, sex, race, ethnicity, and comorbid conditions. RESULTS: The frequency of fatal overdose over the study period among individuals treated with opioids was estimated to be 0.04%.The risk of overdose death was directly related to the maximum prescribed daily dose of opioid medication. The adjusted hazard ratios (HRs) associated with a maximum prescribed dose of 100 mg/d or more, compared with the dose category 1 mg/d to less than 20 mg/d, were as follows: among those with substance use disorders, adjusted HR = 4.54 (95% confidence interval [CI], 2.46-8.37; absolute risk difference approximation [ARDA] = 0.14%); among those with chronic pain, adjusted HR = 7.18 (95% CI, 4.85-10.65; ARDA = 0.25%); among those with acute pain, adjusted HR = 6.64 (95% CI, 3.31-13.31; ARDA = 0.23%); and among those with cancer, adjusted HR = 11.99 (95% CI, 4.42-32.56; ARDA = 0.45%). Receiving both as-needed and regularly scheduled doses was not associated with overdose risk after adjustment. CONCLUSION: Among patients receiving opioid prescriptions for pain, higher opioid doses were associated with increased risk of opioid overdose death.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/jama.2011.370" target="_blank" rel="noreferrer">10.1001/jama.2011.370</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Acute Disease
Adolescent
Adult
Aged
Analgesics
Backlog
Bair MJ
Blow FC
Bohnert AS
Case-Control Studies
Chronic Disease
Cohort Studies
Drug Prescriptions/statistics & numerical data
Female
Ganoczy D
Humans
Ilgen MA
JAMA
Journal Article
Male
McCarthy JF
Middle Aged
Opioid/administration & dosage/poisoning
Overdose/epidemiology
Pain/drug Therapy
Physician's Practice Patterns/statistics & numerical data
Risk
United States/epidemiology
Valenstein M
Veterans/statistics & numerical data
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2016 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Cause Of Death Of Infants And Children In The Intensive Care Unit: Parents’ Recall Vs Chart Review.
Publisher
An entity responsible for making the resource available
American Journal Of Critical Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Risk; Information; Family-members; Of-life Care; Communication; Nursing Perspectives; Complicated Grief; Critical Care Medicine
Creator
An entity primarily responsible for making the resource
Brooten D; Youngblut JM; Caicedo C; Seagrave L; Cantwell GP; Totapally B
Description
An account of the resource
BACKGROUND:
More than 55 000 children die annually in the United States, most in neonatal and pediatric intensive care units. Because of the stress and emotional turmoil of the deaths, the children's parents have difficulty comprehending information.
OBJECTIVES:
To compare parents' reports and hospital chart data on cause of death and examine agreement on cause of death according to parents' sex, race, participation in end-of-life decisions, and discussion with physicians; deceased child's age; unit of care (neonatal or pediatric); and hospital and intensive care unit lengths of stay.
METHODS:
A descriptive, correlational design was used with a structured interview of parents 1 month after the death and review of hospital chart data. Parents whose children died in intensive care were recruited from 4 South Florida hospitals and from Florida Department of Health death records.
RESULTS:
Among 230 parents, 54% of mothers and 40% of fathers agreed with the chart cause of death. Agreement did not differ significantly for mothers or fathers by race/ethnicity, participation in end-of-life decisions, discussions with physicians, or mean length of hospital stay. Agreement was better for mothers when the stay in the intensive care unit was the shortest. Fathers' agreement with chart data was best when the deceased was an infant and death was in the pediatric intensive care unit.
CONCLUSIONS:
Death of a child is a time of high stress when parents' concentration, hearing, and information processing are diminished. Many parents have misconceptions about the cause of the death 1 month after the death.
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
American Journal of Critical Care
Brooten D
Caicedo C
Cantwell GP
Communication
Complicated Grief
Critical Care Medicine
Family-members
Information
May 2016 List
Nursing Perspectives
Of-life Care
Risk
Seagrave L
Totapally B
Youngblut JM