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Dublin Core
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Title
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October 2019 List
Text
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Citation List Month
October 2019 List
URL Address
<a href="http://doi.org/10.23736/S1973-9087.19.05474-1" target="_blank" rel="noreferrer noopener">http://doi.org/10.23736/S1973-9087.19.05474-1</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The impact of home-based physical rehabilitation program on parents' experience with children in palliative care: a qualitative study
Publisher
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European journal of physical and rehabilitation medicine
Date
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2019
Subject
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adult; article; child; human; palliative therapy; genetic transcription; qualitative research; thematic analysis; home environment; pain; quality of life; education; young adult; semi structured interview; practice guideline; Spain
Creator
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Rico-Mena P; Palacios-Cena D; Martino-Alba R; Chocarro-Gonzalez L; Gueita-Rodriguez J
Description
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BACKGROUND: Pediatric palliative care programs aim to improve the quality of life of children with severe life-threatening illnesses, and that of their families. Although rehabilitation and physical therapy provides a valuable tool for the control of symptoms, it has been poorly researched to date. Since the family represents such a fundamental support in these cases, it is important to deepen our understanding regarding the value of implementing rehabilitation programs from the parents' perspective. AIM: The aim of this paper was to explore parents' experiences regarding the implementation of a physical rehabilitation program in pediatric palliative care. DESIGN: A qualitative methodology was chosen. SETTING: The unit of pediatric palliative care at the Hospital Nino Jesus (Madrid, Spain). POPULATION: The inclusion criteria were: 1) parents of children, irrespective of their diagnosis; 2) integrated within the program of palliative care at the time of study; 3) aged between 0-18 years; 4) must be receiving Home-Based Rehabilitation Program by the Pediatric Palliative Care team. Fourteen parents were included. METHOD(S): Purposeful sampling method was implemented. Data collection consisted of unstructured and semi-structured interviews. A thematic analysis was performed to interpret transcripts. Guidelines for conducting qualitative studies established by the Consolidated Criteria for Reporting Qualitative Research were followed. RESULT(S): Three main themes were identified: 1) the meaning of physical rehabilitation to parents; 2) physical rehabilitation as an opportunity for patients to stay in their home environment; and 3) home-based physical rehabilitation as part of the families' social environment. CONCLUSION(S): The main needs of a home physical rehabilitation program are to decrease pain and suffering, together with improving family education and training. CLINICAL REHABILITATION IMPACT: The experience of rehabilitation programs at home is essential in order to improve both the quality of life and the quality of care of affected children and parents.
Identifier
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<a href="http://doi.org/10.23736/S1973-9087.19.05474-1" target="_blank" rel="noreferrer noopener">10.23736/S1973-9087.19.05474-1</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Adult
Article
Child
Chocarro-Gonzalez L
Education
European journal of physical and rehabilitation medicine
genetic transcription
Gueita-Rodriguez J
home environment
Human
Martino-Alba R
October 2019 List
Pain
Palacios-Cena D
Palliative Therapy
Practice Guideline
Qualitative Research
Quality Of Life
Rico-Mena P
Semi Structured Interview
Spain
Thematic Analysis
Young Adult