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<a href="http://www.rmu.org.uy/revista/33/1/2/en/4/abstract/" target="_blank" rel="noreferrer">http://www.rmu.org.uy/revista/33/1/2/en/4/abstract/</a>
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Title
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Directives of adequacy of the therapeutic effort in children. Experience of the Pediatric Palliative Care Unit of Pereira Rossell Hospital Center (2009-2015)
Publisher
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Revista Medica Del Uruguay
Date
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2017
Subject
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America; Animals; Children; Choice; Chordata; Decision Making; Developing Countries; Eukaryotes; Health Care; Hominidae; Homo; Human Diseases; Latin America; Mammals; Man; Paediatrics; Palliative Care; Pediatrics; Primates; South America; Threshold Countries; Uruguay; Vertebrates
Creator
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Pereira I; Koziol S; Mauvezin J; Notejane M; Bernadá M
Description
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Introduction: In certain patients, "directives on the adequacy of therapeutic effort" (DAET) known as advanced care planning are important tools to align medical care to patient's and family's objectives of care. Purpose: To describe characteristics of patients assisted by a paediatric palliative care unit (PPCU) with DAET and the degree in which they were respected in children who died. Methods: Descriptive, retrospective study. Period: 1/January/2009-31/December/2015. Population: children assisted by the UCPP with DAET. Variables: age, pathology, prosthesis carried, primary caregiver, participants in decision-making process, form of registration, measures "TO PERFORM" and "NOT TO PERFORM", time between recruitment by PPCU/DAET, death, time between DAET/death, place of death, DAET accomplished. Results: DAET was found in 11.8% (73/618) of patients; median age: 3.8 years old; 75.3% had severe neurological impairment; 84.9% carried at least one prosthesis; primary caregiver: mother 72.6%. Participants in decision-making process: healthcare team and primary caregiver 94.5%. Registration in specific document: 60.3%. DAET included: "TO PERFORM": analgesia and comfort care: 100%, admission to moderate care: 86.3% and "NOT TO PERFORM": cardiopulmonary resuscitation: 100%, admission to intensive care: 86.3%, mechanical ventilator assistance 83.5%. Time between recruitment by PPCU/DAET: median: 13 months. 53.4% (39/73) died, in the hospital 76.9%. Time between DAET/death, median: 7 months. DAET were followed in 97.4%. Discussion and conclusions: 11.8% of children assisted by PPCU had DAET. Decision-making was shared between health providers and caregivers in most cases. DAET were respected in almost all children who had them and died.
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<a href="http://www.rmu.org.uy/revista/33/1/2/en/4/abstract/" target="_blank" rel="noreferrer">[direct link; no identifier]</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
America
Animals
Bernadá M
Children
Choice
Chordata
Decision Making
Developing Countries
Eukaryotes
Health Care
Hominidae
Homo
Human Diseases
Koziol S
Latin America
Mammals
Man
Mauvezin J
Notejane M
Paediatrics
Palliative Care
Pediatrics
Pereira I
Primates
Revista Medica Del Uruguay
South America
Threshold Countries
Uruguay
Vertebrates