The use of playing by the nursing staff on palliative care for children with cancer
This study aimed to describe ways of using play by the nursing staff on palliative care of children with cancer and analyze the facilitators and barriers of the use of playing on this type of care. Qualitative, descriptive research developed on November 2012 with 11 health professionals, in a public hospital of the state of Rio de Janeiro. Semi-structured interviews and thematic analysis of the information were conducted. The use of playing before procedures was highlighted as a facilitator on palliative care. The child's physical condition, one's restriction, resistance of some professionals and the lack of time for developing this activity, made the use of play harder. We concluded that playing enables the child with cancer, in palliative care, a humanized assistance, being fundamental to integrate it on the care for these children.Key words: Palliative care; Pediatric nursing; Play and playthings; Neoplasms
2014-09
Soares Vanessa Albuquerque; da Silva LF; Cursino EG; Goes Fernanda Garcia Bezerra; Soares Vanessa Albuquerque; da Silva LF; Cursino EG; Goes Fernanda Garcia Bezerra
Revista Gaúcha De Enfermagem
2014
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1590/1983-1447.2014.03.43224" target="_blank" rel="noreferrer">10.1590/1983-1447.2014.03.43224</a>
Perceptions of adolescents with cancer undergoing palliative care about their illness process
palliative care; adolescent; neoplasms; oncology nursing
OBJECTIVE: To understand the perception of adolescents with cancer undergoing palliative cares about their illness process. METHOD: An exploratory and qualitative study, per formed at a federal public hospital specialized in oncology disease in Rio de Janeiro, through interviews with nine adolescents aged 12 to 20 years old, from July to August 2017. Data was submitted to thematic analysis and the theoretical framework was Hildegard Peplau's Theory of Interpersonal Relationships. RESULTS: Three categories emerged: Living the difficult moment of the trajectory of the disease; Feeling the social isolation and that life has stopped; and Overcoming the difficult stage of the disease. They addressed the trajectory of the disease since the diagnosis, with the awakening of feelings of isolation and stagnation of life. Moreover, they highlighted the overcoming power of these adolescents. FINAL CONSIDERATIONS: The study made it possible to know the difficulties experienced during the course of the disease, providing subsidies for the practice of nurses to happen in a sensitive, individualized manner and focused on the individual's need thus enhancing comfort and quality of life.
Guimaraes T M; Pacheco S T A; Nunes M D R; Silva L F D
Revista Gaucha de Enfermagem
2020
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1590/1983-1447.2020.20190223" target="_blank" rel="noreferrer noopener">10.1590/1983-1447.2020.20190223</a>
Communication of bad news in the context of neonatal palliative care: experience of intensivist nurses
communication; Neonatal Intensive Care Unit; Newborns; nurse perspectives
OBJECTIVES: To know the experiences of nurses in neonatal intensive care units in the face of the process of communicating bad news to the family of newborns in palliative care. METHODS: Study with a descriptive qualitative approach, in which 17 professionals participated. Data were collected through a semi-structured interview script, from December/2018 to February/2019, and submitted to content analysis. RESULTS: Four theoretical categories emerged, with 11 subcategories inserted: meanings attributed to bad news; nursing as a support for the family; difficulties in dealing with the process of communicating bad news; nursing and involvement with the family's suffering. FINAL CONSIDERATIONS: The challenges to deal with the situation are related to lack of preparation, impotence, and subjectivities. The results broaden knowledge on the subject and enable the improvement of nursing care in this context.
Camilo BHN; Serafim TC; Salim NR; Andreato AMO; Roveri JR; Misko MD
Revista Gaucha de Enfermagem
2022
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1590/1983-1447.2022.20210040" target="_blank" rel="noreferrer noopener">10.1590/1983-1447.2022.20210040</a>
The experience of families in face of the finiteness of their children in the process of adopting palliative care
Family; Palliative Care; Adaptation Psychological; Child; Communication; Existentialism; Humans; Only Child; Palliative Care; Qualitative Research
OBJECTIVE: To reveal the experience of family members after learning their child would adopt palliative care., METHOD: Phenomenological research on Heidegger's perspective. The participants were eleven family members of children who were recommended palliative care in the Pediatric Intensive Care Unit from a university hospital in southern Brazil. The statements were obtained in a semi-structured interview, from January to November/2017, and submitted to Heidegger's theoretical-philosophical analysis. Research approved by the institution's Ethical Committee., RESULTS: The communication of palliative care triggers the perception of the child's existencial facticity in the Family, revealing reactions explained in the thematic dimensions: "Coping with the finiteness of the child when confronted with the proposal of adopting palliative care" and "The need for compassionate and attentive care"., FINAL CONSIDERATIONS: Phenomenology allows us to understand the parent's existential purpose. An understanding perspective can help interdisciplinary teams to communicate the adoption of palliative care in a sensitive and ethical way, focusing on the best interest of the child.
Neis M; Issi HB; da Motta Mda G.; Rocha CMF; Carvalho PRA
Revista Gaúcha de Enfermagem
2023
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1590/1983-1447.2022.20220174.en" target="_blank" rel="noreferrer noopener">10.1590/1983-1447.2022.20220174.en</a>
“He is normal”: phenomenological considerations of child/adolescent’s perception of the disabled sibling
Adolescent; Child; Disabled Persons; Female; Humans; Learning; Male; Perception; Qualitative Research; Siblings
Freitag VL; Motta MdGC; Milbrath VM; Bazzan JS; Debatin G; Gabatz RIB
Revista Gaúcha de Enfermagem
2022
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1590/1983-1447.2022.20220129.en" target="_blank" rel="noreferrer noopener">10.1590/1983-1447.2022.20220129.en</a>