Browse Items (72 total)
- Tags: Reproducibility of Results
Genome Sequencing as a Diagnostic Test in Children With Unexplained Medical Complexity
Tags: 2020, Arje D, Buera J, Canada, Child, Child Preschool, Chitayat D, Cohen E, Cohn RD, Costain G, Curtis M, Female, Genetic Testing/statistics & numerical data, Hayeems RZ, Humans, JAMA Network Open, Luca S, Male, Marano M, March 2021 List, Marshall CR, Mendoza-Londono R, Meyn MS, Orkin J, Predictive Value of Tests, Prospective Studies, Reproducibility of Results, Reuter MS, Scherer SW, Snell M, Somatoform Disorders/diagnosis, Stavropoulos DJ, Sung WWL, Thiruvahindrapuram B, Trost B, Veenma D, Walker S, Whole Genome Sequencing/statistics & numerical data, Yuen RKC
Quantifying physical decline in juvenile neuronal ceroid lipofuscinosis (Batten disease)
Tags: 2011, Adams H, Adolescent, Adult, Analysis of Variance, Augustine E F, Beck C A, Child, Child Preschool, Cialone J, Cross-sectional Studies, Deblieck E A, Disabled Persons, Disease Progression, Dure L S, Genotype, Homozygote, Humans, Kwon J M, Levy E, Marshall F J, Membrane Glycoproteins, Mink J W, Molecular Chaperones, Mutation, NCL3, Neurology, Neuronal Ceroid-Lipofuscinoses, Neuropsychological Tests, Newhouse N J, Prospective Studies, Ramirez-Montealegre D, Regression Analysis, Reproducibility of Results, Rose K R, Rothberg P G, scale development, tone and motor problems, tool development, UBDRS, Vierhile A, Young Adult
Evaluating the validity, reliability and clinical utility of the Music therapy Sensory Instrument for Cognition, Consciousness and Awareness (MuSICCA): protocol of a validation study
Tags: 2020, Adolescent, Bmj Open, Child, Consciousness, developmental neurology & neurodisability, Dunford C, Ireland, July 2021 List, Magee W, Music Therapy, neurological injury, paediatric neurology, paediatric palliative care, Pool JW, rehabilitation medicine, Reproducibility of Results, Siegert RJ, State Medicine, Taylor S
Parental Perceptions of the Impact of a Child’s Complex Chronic Condition: A Validation Study of the Impact on Family Scale
Tags: 2024, Adolescent, Adult, Alves SP, Article, August List 2024, Braz AC, Cerebral Palsy, Child, Child Health, Childhood Disease, Chronic Disease, cohesion, confirmatory factor analysis, construct validity, Disease, Educational Status, Emotional Stress, Family Life, family relation, Family Relations, Female, Fontaine AM, Graça L, Human, Humans, impact on family, Impact on Family Scale, International Journal of Environmental Research and Public Health, life satisfaction, Likert scale, Male, Middle Aged, Parent, parental care, Parents, pediatric complex chronic illness, Perception, Personal Satisfaction, Portugal, Psychology, psychometry, Questionnaire, Reproducibility, Reproducibility of Results, Satisfaction, satisfaction with life, scoring system, social cohesion, sociodemographics, Surveys And Questionnaires, test retest reliability, validation study
Quality of life in childhood advanced cancer: from conceptualization to assessment with the Advance QoL tool
Tags: 2022, 2022 Special Edition 3 - Oncology List, Adolescent, Adult, Advanced Cancer, Avoine-Blondin J, BMC Palliative Care, Child, Concept Formation, Dumont É, Duval M, Female, Humans, Male, Marquis MA, Mixed-method, Neoplasms, Palliative Care, Pediatrics, psychology/therapy, Quality Of Life, Reproducibility of Results, Sultan S, Surveys And Questionnaires
Diagnostic evaluation using whole-body technetium bone scan in children with cerebral palsy and pain.
Tags: 2008, Adolescent, Adult, Backlog, Bajelidze G, Belthur MV, Bone and Bones/radionuclide imaging, Cerebral Palsy/complications/radionuclide imaging, Child, Dabney Kirk W, Diagnosis, Differential, Emission-Computed, Female, Humans, Journal Article, Journal Of Pediatric Orthopedics, Littleton AG, Male, Miller F, Pain Measurement, Pain/etiology/radionuclide imaging, Preschool, Reproducibility of Results, Retrospective Studies, Severity Of Illness Index, Single-Photon/methods, Technetium/diagnostic use, Tomography, Whole Body Imaging/methods
Development and validation of the Communicating with Family about Brain Death Scale
Tags: 2016, Adolescent, Adult, Attitudes, Brain Death/ diagnosis, brain-dead organ donation, Bresnahan M, communicating with family about brain death, Communication, Cross-sectional Studies, Decision Making, End-of-life Decision Making, Factor Analysis, Family, Female, first-person organ donation consent laws, Health Knowledge, Humans, Journal Of Health Psychology, Male, March 2018 List, Middle Aged, misconceptions about brain death, Practice, Reproducibility of Results, statistical, Tissue and Organ Procurement, Young Adult, Zhuang J
On the mathematical modelling of pain
Using a treatment-tradeoff method to elicit preferences for the treatment of locally advanced non-small-cell lung cancer
Tags: 1998, Adjuvant, Aged, Antineoplastic Agents/adverse effects/therapeutic use, Attitude To Health, Backlog, Brundage MD, Carcinoma, Chemotherapy, Choice Behavior, Comparative Study, Davidson JR, Decision Support Techniques, Feasibility Studies, Feldman-Stewart D, Female, Groome P, Humans, Journal Article, Lung Neoplasms/psychology/radiotherapy, Mackillop WJ, Male, Medical Decision Making, Non-Small-Cell Lung/psychology/radiotherapy, Non-U.S. Gov't, Prostatic Neoplasms/psychology/radiotherapy, Questionnaires/standards, Radiotherapy/adverse effects/methods, Reproducibility of Results, Research Support, Survival Analysis, Treatment Outcome
Assessing the impact of pediatric epilepsy and concomitant behavioral, cognitive, and physical/neurologic disability: Impact of Childhood Neurologic Disability Scale
Tags: 2003, Adolescent, Backlog, Breau L, Camfield C, Camfield P, Child, Child Behavior Disorders/diagnosis/etiology, Chronic Disease, Cognition Disorders/diagnosis/etiology, Developmental Medicine and Child Neurology, Diagnostic and Statistical Manual of Mental Disorders, Disability Evaluation, Epilepsy/complications/diagnosis, Female, Follow-up Studies, Humans, Journal Article, Longitudinal Studies, Male, Preschool, Questionnaires, Reproducibility of Results
A short form of the Posttraumatic Growth Inventory
Tags: 2010, 80 And Over, Adaptation, Adolescent, Adult, Aged, Anxiety, Stress, And Coping, Backlog, Bereavement, Calhoun LG, Cann A, Danhauer SC, Domestic Violence/psychology, Factor Analysis, Female, Humans, Journal Article, Leukemia/psychology, Life Change Events, Male, Middle Aged, Psychological, Psychological Tests, Psychometrics, Reproducibility of Results, statistical, Taku K, Tedeschi RG, Triplett KN, Vishnevsky T, Young Adult
Ethical considerations in end-of-life care and research
Tags: 2005, Backlog, Beneficence, Casarett D, Decision Making/ethics, Empirical Research, Ethics, Human Experimentation/ethics, Humans, Journal Article, Journal of Palliative Medicine, Mental Competency, Multi-site Ethics, Palliative Care/ethics, Psychological, Quality Of Life, Reproducibility of Results, Research, Research Subjects, Stress, Terminal Care/ethics
The sorcerer's broom: medicine's rampant technology
Tags: 1993, Attitude Of Health Personnel, Attitude To Health, Backlog, Cassell EJ, Dehumanization, Diffusion of Innovation, Ethics, Health Care and Public Health, Humans, Journal Article, Medical, Physicians/psychology, Power (psychology), Reproducibility of Results, Risk Assessment, Science, Social Values, Technology, The Hastings Center Report, Uncertainty
Validity of the McGill Quality of Life Questionnaire in the palliative care setting: a multi-centre Canadian study demonstrating the importance of the existential domain
Tags: 1997, Backlog, Bruera E, Cohen SR, Humans, Journal Article, Longitudinal Studies, Mental Health, Mental Status Schedule, Mount BM, Multicenter Studies as Topic, Neoplasms/psychology, Palliative Care, Palliative Medicine, Provost M, Quality Of Life, Questionnaires, Reproducibility of Results, Rowe J, Sensitivity and Specificity, Tong K
The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability
Tags: 1995, 80 And Over, Adult, Aged, Backlog, Bui F, Cohen SR, Comparative Study, Female, Human, Journal Article, Karnofsky Performance Status, Male, Middle Age, Mount BM, Neoplasms/psychology/therapy, Non-U.S. Gov't, Palliative Care, Palliative Medicine, Predictive Value of Tests, Quality Of Life, Questionnaires, Reproducibility of Results, Strobel MG, Support
Exploring consumer views of care provided by the Macmillan nurse using the critical incident technique
Tags: 1993, Attitude Of Health Personnel, Backlog, Bergen A, Cox K, Human, Journal Article, Journal Of Advanced Nursing, London, Norman IJ, Nurse Clinicians/standards, Nursing Evaluation Research/methods/standards, Oncologic Nursing/methods/standards, Patient Satisfaction, Reproducibility of Results, Research Design/standards, Role
The Delphi method?
Tags: 1997, Adams A, Backlog, Crisp J, Data Collection, Decision Making, Delphi Technique, Duffield C, Humans, Journal Article, Nagy S, Non-U.S. Gov't, Nursing Research, Nursing Research/methods/organization & administration, Organizational, Organizational Objectives, Organizational Policy, Pelletier D, Reproducibility of Results, Research Design, Research Support
Clinical rating scale for pantothenate kinase-associated neurodegeneration: A pilot study
Tags: 2017, Adolescent, Adult, Aged, Aguilera-Albesa S, Behavior, Castro C A, Child, Coelho M, Cognitive Dysfunction/di [Diagnosis], Cognitive Dysfunction/et [Etiology], Correia G L, Costa C, Cross-sectional Studies, Cuadras P D, Darling A, Disabled Persons, dystonia/di [Diagnosis], Dystonia/et [Etiology], Espinos C, Ferreira J, Garcia P J, Garrido C, Gaston I, Gavilan I T, Gonzalez G L, Gutierrez F, Hernandez L C, Humans, IND, Lin J P, Lorenzo S G, Lupo V, Madruga M, Magalhaes M, Marti M J, Marti S L, Martinez-Martin P, Martorell L, Mental Disorders/di [Diagnosis], Mental Disorders/et [Etiology], Middle Aged, Moreira F, Movement Disorders, Nardocci N, Ocular Motility Disorders/di [Diagnosis], Ocular Motility Disorders/et [Etiology], Ortigoza E J D, Pantothenate Kinase-Associated Neurodegeneration/co [Complications], Pantothenate Kinase-Associated Neurodegeneration/di [Diagnosis], Pantothenate Kinase-Associated Neurodegeneration/ge [Genetics], Parkinsonian Disorders/di [Diagnosis], Parkinsonian Disorders/et [Etiology], Perez D B, Pilot Projects, Pires P, PKANDRS, Pons R, Pujol M, Ramos L J, Rego P, Reproducibility of Results, Rodriguez-Blazquez C, scale development, Severity Of Illness Index, Stamelou M, Stefanis L, Tello C, Temudo T, Tomas V M, tone and motor problems, tool development, Tustin K, Vela L, Young Adult, Zorzi G
Individual responder analyses for pain: does one pain scale fit all?
Tags: 2005, Backlog, Bartoshuk L, Clinical Trials/methods/trends, Comparative Study, Dionne RA, Humans, Journal Article, Mogil J, P.H.S., Pain Measurement/drug effects/methods/standards, Pain/drug therapy/physiopathology, Reproducibility of Results, Research Support, Trends In Pharmacological Sciences, U.S. Gov't, Witter J
Can the needs of the critically ill child be identified using scenarios? Experiences of a modified Delphi study
Tags: 1999, Backlog, Child, Clifford CM, Critical Illness/nursing, Delphi Technique, Endacott R, Evaluation Studies, Health Services Needs and Demand/statistics & numerical data, Humans, Intensive Care/statistics & numerical data, Journal Article, Journal Of Advanced Nursing, Pilot Projects, Questionnaires, Reproducibility of Results, Tripp JH
A systematic review of physicians' survival predictions in terminally ill cancer patients.
Tags: 2003, Analysis of Variance, Backlog, Bmj (clinical Research Ed.), Christakis NA, Clinical Competence/standards, Death and Euthanasia, Decision Making, Empirical Approach, Eychmuller S, Glare P, Hudson M, Humans, Jones M, Journal Article, Longitudinal Studies, Neoplasms/mortality, Physicians/standards, Regression Analysis, Reproducibility of Results, Simes J, Survival Analysis, Terminally Ill, Virik K
Parents' evaluation of developmental status: how well do parents' concerns identify children with behavioral and emotional problems?
Tags: 2003, Affective Symptoms/diagnosis/etiology, Age Factors, Backlog, Child, Child Behavior Disorders/diagnosis/etiology, Clinical Pediatrics, Developmental Disabilities/diagnosis/etiology, Female, Glascoe FP, Humans, Infant, Journal Article, Male, Parents, Predictive Value of Tests, Preschool, Reproducibility of Results, Risk Factors, Socioeconomic Factors
Posttraumatic growth in treatment-seeking female assault victims
Tags: 2007, Adaptation, Adult, Backlog, Depressive Disorder/diagnosis/psychology, Diagnostic and Statistical Manual of Mental Disorders, Educational Status, Female, Grubaugh AL, Health Status, Humans, Journal Article, Life Change Events, Models, Outcome Assessment (health Care), Parent caregivers, Patient Acceptance of Health Care/psychology, Personality Inventory, Post-Traumatic/diagnosis/psychology, Psychiatric Status Rating Scales, Psychological, Rape/psychology, Reproducibility of Results, Resick PA, Stress Disorders, The Psychiatric Quarterly, Violence/psychology
Reliability and predictive validity of the Standardized Infant NeuroDevelopmental Assessment neurological scale
Tags: 2019, Developmental Medicine and Child Neurology, Diagnostic Techniques, Female, Hadders-Algra M, Humans, Infant, Longitudinal Studies, Male, Neurodevelopmental Disorders/diagnosis, Neurological/standards, November 2019 List, Philippi H, Pietz J, Reproducibility of Results, Rupp A, Severity Of Illness Index, Tacke U
Subjective health complaints in adolescence--reliability and validity of survey methods
The Faces Pain Scale-Revised: toward a common metric in pediatric pain measurement
Tags: 2001, Adult, Backlog, Biomarkers of Pain, Biomarkers Reference List, Child, Child Psychology, Communication, Face, Goodenough B, Hicks CL, Humans, Journal Article, Pain, Pain Measurement/standards, Pain/diagnosis/psychology, Preschool, Reproducibility of Results, Spafford PA, van Korlaar I, von Baeyer CL
Conducting End-of-Life Studies in Pediatric Oncology
Tags: 2007, Backlog, Burghen E, Clinical Nursing Research, dying children and adolescents, end-of-life research, Hinds PS, Humans, Journal Article, Longitudinal Studies, Oncologic Nursing/ethics, Oncology at EOL, Pediatric Nursing, Pediatric Oncology, Pediatrics, Pritchard M, Reproducibility of Results, Terminal Care, Western Journal of Nursing Research
Clinical validation of the paediatric pain profile
Tags: 2004, Adolescent, Analgesia, Backlog, Brady M, Child, Communication Disorders, Crichton N, Developmental Medicine and Child Neurology, Disabled Children, Female, Goldman A, Humans, Hunt A, Infant, Journal Article, Male, Mastroyannopoulou K, Moffat V, Nervous System Diseases/complications, Non-U.S. Gov't, Operative, Oulton K, Pain Measurement/methods, Preschool, Q3 Scoping Review Results, Reproducibility of Results, Research Support, Seers K, Sensitivity and Specificity, Surgical Procedures
Development of the paediatric pain profile: role of video analysis and saliva cortisol in validating a tool to assess pain in children with severe neurological disability
Tags: 2007, Adolescent, Backlog, Biomarkers of Pain, Child, Child Behavior, Crichton N, Female, Goldman A, Humans, Hunt A, Hydrocortisone/metabolism, Journal Article, Journal of Pain and Symptom Management, Male, Mastroyannopoulou K, Nervous System Diseases/complications/metabolism/psychology, Pain Measurement/methods, Pain/etiology/metabolism/psychology, Perry L, Preschool, Reproducibility of Results, Saliva/metabolism, Seers K, Videotape Recording, Wisbeach A
An evaluation of the Faces Pain Scale with young children
Psychometric properties of the Dutch version of the posttraumatic growth inventory among cancer patients
Tags: 2006, 80 And Over, Adaptation, Adult, Aged, Backlog, Emotions, Factor Analysis, Female, Human Development, Humans, Jaarsma TA, Journal Article, Male, Middle Aged, Neoplasms/psychology, Netherlands, Parent caregivers, Pool G, Post-Traumatic/diagnosis/psychology, Psycho-Oncology, Psychological, Psychological Tests, Ranchor AV, Reproducibility of Results, Sanderman R, statistical, Stress Disorders
A systematic review of activities of daily living measures for children and adolescents with cerebral palsy
Behavioral problems in relation to intelligence in children with 22q11.2 deletion syndrome: a matched control study
Tags: 2007, 22q11.2 Deletion Syndrome, Abnormalities Multiple/genetics/pathology/psychology, American Journal of Medical Genetics Part A, Beemer F A, behavioral problems, Case-Control Studies, characteristics, Child, Child Behavior Disorders/psychology, Chromosome Deletion, Chromosomes Human Pair 22, Craniofacial Abnormalities/psychology, Duijff S N, Female, Heineman-de B J A, Humans, Intelligence, Jansen P W, Klaassen P W, Male, Morcus M E, Psychometrics/methods, Reproducibility of Results, Syndrome, Trajectory, Vorstman J A
Consulting the oracle: ten lessons from using the Delphi technique in nursing research
A critical review of the Delphi technique as a research methodology for nursing
Tags: 2001, Backlog, Communication, Data Collection/methods/standards, Decision Making, Delphi Technique, Group Processes, Hasson F, Humans, International Journal Of Nursing Studies, Journal Article, Keeney S, McKenna HP, Nursing Research/methods/standards, Organizational, Questionnaires/standards, Reproducibility of Results, Research Design/standards
The effectiveness of a self-reporting bedside pain assessment tool for oncology inpatients
Tags: 2012, 80 And Over, Adult, Aged, Backlog, Chung JH, Female, Han Hye-Suk, Humans, Journal Article, Journal of Palliative Medicine, Kim EB, Kim ST, Kim Wun-Jae, Lee KH, Lim Sung-Nam, Male, Middle Aged, Neoplasms, Pain Measurement, Park BR, Patient Satisfaction, Prospective Studies, Reproducibility of Results, Republic of Korea, Self Report, Shin YD, Yim KH
The quality of the evidence base for clinical pathway effectiveness: room for improvement in the design of evaluation trials.
Tags: 2012, Backlog, Bias (Epidemiology), Bmc Medical Research Methodology, Clinical Trials as Topic, Critical Pathways/st [Standards], Evidence-based Medicine, Guidelines As Topic, Humans, James E, Journal Article, Kinsman L, Length Of Stay, Machotta A, Meta-Analysis as Topic, Outcome And Process Assessment (health Care), Randomized Controlled Trials as Topic, Reproducibility of Results, Research Design/st [Standards], Risk Assessment, Selection Bias, Steyerberg EW
A modified Hammersmith functional motor scale for use in multi-center research on spinal muscular atrophy
Tags: 2006, Child Preschool, Contracture/di [Diagnosis], Contracture/pp [Physiopathology], Crawford T O, Disability Evaluation, HFMS, Humans, Infant, Krosschell K J, Maczulski J A, Male, Neuromuscular Disorders, Observer Variation, Reproducibility of Results, scale development, Scott C, Severity Of Illness Index, SMA1, Spinal Muscular Atrophies of Childhood/di [Diagnosis], Spinal Muscular Atrophies of Childhood/pp [Physiopathology], Swoboda K J, tone and motor problems, tool development, Videotape Recording
Reliability and Validity of the TIMPSI for Infants With Spinal Muscular Atrophy Type I
Tags: 2013, assessments, Case L E, Child Development, Childhood/diagnosis, childhood/physiopathology, Children, Female, functional motor scale, Hartman J T, Hecker E, Humans, Infant, Kienitz K, King W, Krosschell K J, Leveille M, Male, Mazulski J A, Meffert M, motor, Observer Variation, Pediatric Physical Therapy, Pediatrics, performance, Physical Therapy, physical therapy specialty/standards, Project Cure Spinal Muscular Atrophy Investigators, Rehabilitation, Reproducibility of Results, Roman C A, scale development, Scott C, skills/physiology, SMA1, specialty/instrumentation, spinal muscular atrophies of, Swoboda K J, TIMP, tone and motor problems, tool development, Viazzo-Trussell D, Video Recording, Wood J
Measurement of the validity of utility elicitations performed by computerized interview
Tags: 1997, Adolescent, Adult, Aged, Akathisia, Antipsychotic Agents/adverse effects, Backlog, Bergen MR, Choice Behavior, Drug-Induced/etiology, Dyskinesia, Faustman WO, Garber AM, Goldstein MK, Humans, Interviews/standards, Journal Article, Lenert LA, Medical Care, Middle Aged, Morss S, Multimedia/standards, Non-U.S. Gov't, Nonparametric, P.H.S., Parkinson Disease, Patient Satisfaction, Reproducibility of Results, Research Support, Schizophrenia/drug therapy, Schizophrenic Psychology, Secondary/chemically induced, Statistics, U.S. Gov't