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Discussion of Spirituality in Family Conferences of Infants with Neurologic Conditions

INTRODUCTION: Spirituality serves as a mechanism to understand and cope with serious illness, yet little is known about how families and clinicians incorporate spirituality in pediatric family conferences. OBJECTIVES: We sought to characterize the…

Tags: 2024, Bansal S, Brandon D, Communication, Disclose., family conferences, Family-centered Care, Journal of Pain and Symptom Management, Lemmon ME, Nanduri N, Neonatal Palliative Care, November List 2024, Peralta D, Pollak KI, Rent S, Spirituality

Perinatal palliative care in sub-Saharan Africa: recommendations for practice, future research, and guideline development

Worldwide, sub-Saharan Africa has the highest burden of global neonatal mortality (43%) and neonatal mortality rate (NMR): 27 deaths per 1,000 live births. The WHO recognizes palliative care (PC) as an integral, yet underutilized, component of…

Tags: 2023, 2023 SE5 - Low Resource Setting, Abayneh M, Africa South of the Sahara, Carter BS, Deribessa SJ, Frontiers in Pediatrics, Kassa BB, Kukora SK, low-middle-income-countries, neonatal end-of-life care, neonatal intensive care, newborn bereavement, Palliative Care, Perinatal Palliative Care, Rent S, Sub-Saharan Africa, Tekleab AM, Ubuane PO

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