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Dublin Core
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Title
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2020 Oncology List
Text
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Citation List Month
Oncology 2020 List
URL Address
<a href="http://doi.org/10.1016/j.ctim.2019.102263" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.ctim.2019.102263</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Massage therapy for symptom reduction and improved quality of life in children with cancer in palliative care: A pilot study
Publisher
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Complementary Therapies in Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
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child; human; palliative therapy; controlled study; female; male; article; Quality of Life; adolescent; clinical article; pain; Massage; follow up; quantitative study; pilot study; expectation; leukemia; lymphoma; sarcoma; carcinoma; pain measurement; patient worry
Creator
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Genik L M; McMurtry C M; Marshall S; Rapoport A; Stinson J
Description
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Background: For children with cancer in palliative care, pain and worry are common and frequently under-managed, which negatively impacts quality of life (QOL). Massage therapy (MT) can lead to reduced pain in children with chronic illnesses. Children with cancer have experienced lower anxiety after MT. No studies have examined the effects of MT in pediatric oncology patients receiving palliative care.
Identifier
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<a href="http://doi.org/10.1016/j.ctim.2019.102263" target="_blank" rel="noreferrer noopener">10.1016/j.ctim.2019.102263</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Adolescent
Article
Carcinoma
Child
Clinical Article
Complementary Therapies in Medicine
Controlled Study
Expectation
Female
Follow Up
Genik L M
Human
Leukemia
Lymphoma
Male
Marshall S
Massage
McMurtry C M
Oncology 2020 List
Pain
Pain Measurement
Palliative Therapy
patient worry
Pilot Study
Quality Of Life
Quantitative Study
Rapoport A
Sarcoma
Stinson J
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
July 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
July 2020 List
URL Address
<a href="http://doi.org/10.1016/j.cjca.2020.04.041" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.cjca.2020.04.041</a>
Dublin Core
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Title
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Palliative care?! But this child's not dying: The burgeoning partnership between pediatric cardiology and palliative care
Publisher
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The Canadian journal of cardiology
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
cardiology; pediatric cardiology; pediatric palliative care
Creator
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Wan A; Weingarten K; Rapoport A
Description
An account of the resource
The field of pediatric cardiology has witnessed major changes over the past few decades that have considerably altered patient outcomes, including decreasing mortality rates for many previously untreatable conditions. Despite this, some pediatric cardiology programs are increasingly choosing to partner with their institutional palliative care teams. Why is this? The field of palliative care has also experienced significant shifts over a similar period of time. Today's palliative care is focused on improving quality of life, for any patient with a serious or life-threatening condition, regardless of where they might be on their disease trajectory. Research has clearly demonstrated that improved outcomes can be achieved for a variety of patient cohorts through early integration of palliative care; recent evidence suggests that the same may be true in pediatric cardiology. All pediatric cardiologists need to be aware of what pediatric palliative care has to offer their patients, especially those who are not actively dying. This manuscript reviews the evolution of palliative care and provides a rationale for its integration into the care of children with advanced heart disease. Readers will gain a sense of how and when to introduce palliative care to their families, as well as insight into what pediatric palliative care teams have to offer. Additional research is required to better delineate optimal partnership between palliative care and pediatric cardiology so that we may promote maximal quality of life of patients concurrently with continued efforts to push the boundaries of quantity of life. Copyright © 2020. Published by Elsevier Inc.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.cjca.2020.04.041" target="_blank" rel="noreferrer noopener">10.1016/j.cjca.2020.04.041</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Cardiology
July 2020 List
Pediatric Cardiology
Pediatric Palliative Care
Rapoport A
The Canadian Journal Of Cardiology
Wan A
Weingarten K
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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April 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April 2020 List
URL Address
<a href="http://doi.org/10.1542/peds.2019-2241" target="_blank" rel="noreferrer noopener">http://doi.org/10.1542/peds.2019-2241</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Toward an Understanding of Advance Care Planning in Children With Medical Complexity
Publisher
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Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
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advance care planning; children; children with medical complexity; healthcare professional perspectives; healthcare professionals; healthcare provider perspectives; healthcare providers; parent perspectives; parental perspectives
Creator
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Orkin J; Beaune L; Moore C; Weiser N; Arje D; Rapoport A; Netten K; Adams S; Cohen E; Amin R
Description
An account of the resource
BACKGROUND AND OBJECTIVES: Children with medical complexity (CMC) often have multiple life-limiting conditions with no unifying diagnosis and an unclear prognosis and are at high risk for morbidity and mortality. Advance care planning (ACP) conversations need to be uniquely tailored to this population. Our primary objective for this study was to develop an in-depth understanding of the ACP experiences from the perspectives of both parents and health care providers (HCPs) of CMC. METHODS: We conducted 25 semistructured interviews with parents of CMC and HCPs of various disciplines from a tertiary pediatric hospital. Interview guide questions were focused on ACP, including understanding of the definition, positive and negative experiences, and suggestions for improvement. Interviews were conducted until thematic saturation was reached. Interviews were audio recorded, transcribed verbatim, coded, and analyzed using content analysis. RESULTS: Fourteen mothers and 11 HCPs participated in individual interviews. Interviews revealed 4 major themes and several associated subthemes (in parentheses): (1) holistic mind-set, (2) discussion content (beliefs and values, hopes and goals, and quality of life), (3) communication enhancers (partnerships in shared decision-making, supportive setting, early and ongoing conversations, consistent language and practice, family readiness, provider expertise in ACP discussions, and provider comfort in ACP discussions), and (4) the ACP definition. CONCLUSIONS: Family and HCP perspectives revealed a need for family-centered ACP for CMC and their families. Our results aided the development of a family-centered framework to enhance the delivery of ACP through a holistic mind-set, thoughtful discussion content, and promoting of conversation enhancers.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2019-2241" target="_blank" rel="noreferrer noopener">10.1542/peds.2019-2241</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Adams S
Advance Care Planning
Amin R
April 2020 List
Arje D
Beaune L
Children
Children With Medical Complexity
Cohen E
healthcare professional perspectives
Healthcare Professionals
healthcare provider perspectives
Healthcare Providers
Moore C
Netten K
Orkin J
parent perspectives
Parental Perspectives
Pediatrics
Rapoport A
Weiser N
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2018 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2018 List
URL Address
<a href="http://doi.org/10.1200/jco.2017.75.6312" target="_blank" rel="noreferrer noopener">http://doi.o
rg/10.1200/jco.2017.75.6312</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Predictors of Specialized Pediatric Palliative Care Involvement and Impact on Patterns of End-of-Life Care in Children With Cancer
Publisher
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Journal of Clinical Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Creator
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Widger K; Sutradhar R; Rapoport A; Vadeboncoeur C; Zelcer S; Kassam A; Nelson K; Liu Y; Wolfe J; Earle CC; Pole JD; Gupta S
Description
An account of the resource
Purpose The impact of specialized pediatric palliative care (SPPC) teams on patterns of end-of-life care is unknown. We sought to determine (1) which children with cancer access SPPC and (2) the impact of accessing SPPC on the risk of experiencing high-intensity end-of-life care (intensive care unit admission, mechanical ventilation, or in-hospital death). Methods Using a provincial childhood cancer registry, we assembled a retrospective cohort of Ontario children with cancer who died between 2000 and 2012 and received care through pediatric institutions with an SPPC team. Patients were linked to population-based administrative data capturing inpatient, outpatient, and emergency visits. Children were classified as having SPPC, general palliative care, or no palliative care on the basis of SPPC clinical databases, physician billing codes, or inpatient diagnosis codes. Results Of the 572 children, 166 (29%) received care from an SPPC team for at least 30 days before death, and 100 (17.5%) received general palliative care. SPPC involvement was significantly less likely for children with hematologic cancers (OR, 0.3; 95% CI, 0.3 to 0.4), living in the lowest income areas (OR, 0.4; 95% CI, 0.2 to 0.8), and living further from the treatment center (OR, 0.5; 95% CI, 0.4 to 0.5). SPPC was associated with a five-fold decrease in odds of intensive care unit admission (OR, 0.2; 95% CI, 0.1 to 0.4), whereas general palliative care had no impact. Similar associations were seen with all secondary indicators. Conclusion When available, SPPC, but not general palliative care, is associated with lower intensity care at the end of life for children with cancer. However, access remains uneven. These results provide the strongest evidence to date supporting the creation of SPPC teams.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/%2010.1200/jco.2017.75.6312" target="_blank" rel="noreferrer noopener">10.1200/jco.2017.75.6312</a>
2018
Earle CC
Gupta S
Journal Of Clinical Oncology
Kassam A
Liu Y
Nelson K
Oncology 2018 List
Pole JD
Rapoport A
Sutradhar R
Vadeboncoeur C
Widger K
Wolfe J
Zelcer S