1
40
5
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
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URL Address
<a href="http://doi.org/10.1186/1472-6963-7-38" target="_blank" rel="noreferrer">http://doi.org/10.1186/1472-6963-7-38</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Investigating the cost-effectiveness of videotelephone based support for newly diagnosed paediatric oncology patients and their families: design of a randomised controlled trial
Publisher
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Bmc Health Services Research
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Child; Humans; Adult; Parent-Child Relations; Research Design; Australia; Cost-Benefit Analysis; Patient Satisfaction; Cost of Illness; Oncology Service; quality of life; adolescent; Preschool; Study Design; Randomized Controlled Trials/methods; Health Services Accessibility/economics; Rural Health Services/economics; Ambulatory Care/economics; Child Health Services/economics; Hospital/economics; Neoplasms/economics/therapy; Telemedicine/economics/instrumentation; Videoconferencing/economics
Creator
An entity primarily responsible for making the resource
Bensink M; Wootton R; Irving H; Hallahan A; Theodoros D; Russell T; Scuffham P; Barnett AG
Description
An account of the resource
BACKGROUND: Providing ongoing family centred support is an integral part of childhood cancer care. For families living in regional and remote areas, opportunities to receive specialist support are limited by the availability of health care professionals and accessibility, which is often reduced due to distance, time, cost and transport. The primary aim of this work is to investigate the cost-effectiveness of videotelephony to support regional and remote families returning home for the first time with a child newly diagnosed with cancer METHODS/DESIGN: We will recruit 162 paediatric oncology patients and their families to a single centre randomised controlled trial. Patients from regional and remote areas, classified by Accessibility/Remoteness Index of Australia (ARIA+) greater than 0.2, will be randomised to a videotelephone support intervention or a usual support control group. Metropolitan families (ARIA+ < or = 0.2) will be recruited as an additional usual support control group. Families allocated to the videotelephone support intervention will have access to usual support plus education, communication, counselling and monitoring with specialist multidisciplinary team members via a videotelephone service for a 12-week period following first discharge home. Families in the usual support control group will receive standard care i.e., specialist multidisciplinary team members provide support either face-to-face during inpatient stays, outpatient clinic visits or home visits, or via telephone for families who live far away from the hospital. The primary outcome measure is parental health related quality of life as measured using the Medical Outcome Survey (MOS) Short Form SF-12 measured at baseline, 4 weeks, 8 weeks and 12 weeks. The secondary outcome measures are: parental informational and emotional support; parental perceived stress, parent reported patient quality of life and parent reported sibling quality of life, parental satisfaction with care, cost of providing improved support, health care utilisation and financial burden for families. DISCUSSION: This investigation will establish the feasibility, acceptability and cost-effectiveness of using videotelephony to improve the clinical and psychosocial support provided to regional and remote paediatric oncology patients and their families.
2007
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/1472-6963-7-38" target="_blank" rel="noreferrer">10.1186/1472-6963-7-38</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
Adolescent
Adult
Ambulatory Care/economics
Australia
Backlog
Barnett AG
Bensink M
BMC Health Services Research
Child
Child Health Services/economics
Cost Of Illness
Cost-Benefit Analysis
Hallahan A
Health Services Accessibility/economics
Hospital/economics
Humans
Irving H
Journal Article
Neoplasms/economics/therapy
Oncology Service
Parent-child Relations
Patient Satisfaction
Preschool
Quality Of Life
Randomized Controlled Trials/methods
Research Design
Rural Health Services/economics
Russell T
Scuffham P
Study Design
Telemedicine/economics/instrumentation
Theodoros D
Videoconferencing/economics
Wootton R
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1191/0269216305pm1057oa" target="_blank" rel="noreferrer">http://doi.org/10.1191/0269216305pm1057oa</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Challenging the framework for evidence in palliative care research
Publisher
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Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Humans; Palliative Care; Health Services Research; Research Design/standards; Randomized Controlled Trials/methods; Evidence-Based Medicine/standards
Creator
An entity primarily responsible for making the resource
Aoun S; Kristjanson LJ
Description
An account of the resource
This paper examines the debate about best evidence within the public health literature and proposes that similar arguments and concerns exist with respect to use of current evidence-based approaches to implementing research and evaluating the literature in palliative care. Whilst randomized controlled trials (RCTs) remain the gold standard and are appropriate in many instances of palliative care research, there is a need for an alternate research design framework that incorporates contextual and compositional effects pertinent to palliative care research. A framework, entitled Equity-Based Evidence, is discussed as an approach to evidence-based knowledge development in palliative care.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1191/0269216305pm1057oa" target="_blank" rel="noreferrer">10.1191/0269216305pm1057oa</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Aoun S
Backlog
Evidence-Based Medicine/standards
Health Services Research
Humans
Journal Article
Kristjanson LJ
Palliative Care
Palliative Medicine
Randomized Controlled Trials/methods
Research Design/standards
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.pain.2004.09.019" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.pain.2004.09.019</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Opioids in chronic non-cancer pain: systematic review of efficacy and safety
Publisher
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Pain
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Humans; Pain Measurement; Analgesics; Treatment Outcome; Methadone; Time Factors; Double-Blind Method; Non-U.S. Gov't; Research Support; Comparative Study; Chronic disease; Pain/drug therapy; Opioid/adverse effects/therapeutic use; Drug Evaluation; Drug Utilization Review; Randomized Controlled Trials/methods
Creator
An entity primarily responsible for making the resource
Kalso E; Edwards JE; Moore RA; McQuay HJ
Description
An account of the resource
Opioids are used increasingly for chronic non-cancer pain. Controversy exists about their effectiveness and safety with long-term use. We analysed available randomised, placebo-controlled trials of WHO step 3 opioids for efficacy and safety in chronic non-cancer pain. The Oxford Pain Relief Database (1950-1994) and Medline, EMBASE and the Cochrane Library were searched until September 2003. Inclusion criteria were randomised comparisons of WHO step 3 opioids with placebo in chronic non-cancer pain. Double-blind studies reporting on pain intensity outcomes using validated pain scales were included. Fifteen randomised placebo-controlled trials were included. Four investigations with 120 patients studied intravenous opioid testing. Eleven studies (1025 patients) compared oral opioids with placebo for four days to eight weeks. Six of the 15 included trials had an open label follow-up of 6-24 months. The mean decrease in pain intensity in most studies was at least 30% with opioids and was comparable in neuropathic and musculoskeletal pain. About 80% of patients experienced at least one adverse event, with constipation (41%), nausea (32%) and somnolence (29%) being most common. Only 44% of 388 patients on open label treatments were still on opioids after therapy for between 7 and 24 months. The short-term efficacy of opioids was good in both neuropathic and musculoskeletal pain conditions. However, only a minority of patients in these studies went on to long-term management with opioids. The small number of selected patients and the short follow-ups do not allow conclusions concerning problems such as tolerance and addiction.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.pain.2004.09.019" target="_blank" rel="noreferrer">10.1016/j.pain.2004.09.019</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Analgesics
Backlog
Chronic Disease
Comparative Study
Double-Blind Method
Drug Evaluation
Drug Utilization Review
Edwards JE
Humans
Journal Article
Kalso E
McQuay HJ
Methadone
Moore RA
Non-U.S. Gov't
Opioid/adverse effects/therapeutic use
Pain
Pain Measurement
Pain/drug Therapy
Randomized Controlled Trials/methods
Research Support
Time Factors
Treatment Outcome
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/1096621041349509" target="_blank" rel="noreferrer">http://doi.org/10.1089/1096621041349509</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Mixed methods: in search of truth in palliative care medicine
Publisher
An entity responsible for making the resource available
Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Humans; Palliative Care; Qualitative Research; Research Design; Randomized Controlled Trials/methods
Creator
An entity primarily responsible for making the resource
Wallen GR; Berger A
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/1096621041349509" target="_blank" rel="noreferrer">10.1089/1096621041349509</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2004
2004
Backlog
Berger A
Humans
Journal Article
Journal of Palliative Medicine
Palliative Care
Qualitative Research
Randomized Controlled Trials/methods
Research Design
Wallen GR
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.7326/0003-4819-112-4-293" target="_blank" rel="noreferrer">http://doi.org/10.7326/0003-4819-112-4-293</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The n-of-1 randomized controlled trial: clinical usefulness. Our three-year experience
Publisher
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Annals Of Internal Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
1990
Subject
The topic of the resource
Female; Humans; Adult; Physician's Role; Research Design; Double-Blind Method; Patient Compliance; Clodronate; Randomized Controlled Trials/methods; Amitriptyline/therapeutic use; Propranolol/therapeutic use; Syncope/drug therapy
Creator
An entity primarily responsible for making the resource
Guyatt GH; Keller JL; Jaeschke R; Rosenbloom D; Adachi JD; Newhouse MT
Description
An account of the resource
OBJECTIVE: To review the feasibility and effectiveness of n-of-1 randomized controlled trials (n-of-1 trials) in clinical practice. DESIGN: Individual trials were double-blind, randomized, multiple crossover trials. The impact of n-of-1 trials was determined by eliciting physicians' plans of management and confidence in those plans before and after each trial. SETTING: Referral service doing n-of-1 trials at the requests of community and academic physicians. OBJECT of ANALYSIS: All trials were planned, started, and completed by the n-of-1 service. MEASURES of OUTCOME: The proportion of planned n-of-1 trials that were completed and the proportion that provided a definite clinical or statistical answer. A definite clinical answer was achieved if an n-of-1 trial resulted in a high level of physician's confidence in the management plan. Specific criteria were developed for classifying an n-of-1 trial as providing a definite statistical answer. MAIN RESULTS: Seventy-three n-of-1 trials were planned in various clinical situations. Of 70 n-of-1 trials begun, 57 were completed. The reasons for not completing n-of-1 trials were patients' or physicians' noncompliance or patients' concurrent illness. Of 57 n-of-1 trials completed, 50 provided a definite clinical or statistical answer. In 15 trials (39% of trials in which appropriate data were available), the results prompted physicians to change their "prior to the trial" plan of management (in 11 trials, the physicians stopped the drug therapy that they had planned to continue indefinitely). CONCLUSION: We interpret the results as supporting the feasibility and usefulness of n-of-1 trials in clinical practice.
1990
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.7326/0003-4819-112-4-293" target="_blank" rel="noreferrer">10.7326/0003-4819-112-4-293</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1990
Adachi JD
Adult
Amitriptyline/therapeutic use
Annals Of Internal Medicine
Backlog
Clodronate
Double-Blind Method
Female
Guyatt GH
Humans
Jaeschke R
Journal Article
Keller JL
Newhouse MT
Patient Compliance
Physician's Role
Propranolol/therapeutic use
Randomized Controlled Trials/methods
Research Design
Rosenbloom D
Syncope/drug therapy