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40
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2019 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2019 List
URL Address
<a href="http://doi.org/10.1111/ecc.12879" target="_blank" rel="noreferrer noopener">http://doi.org/10.1111/ecc.12879</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Burden of treatment in the face of childhood cancer: A quantitative study using medical records of deceased children
Publisher
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European Journal of Cancer Care (Engl)
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
Adaptation; Adolescent; burden of treatment; Central Nervous System Neoplasms/therapy; Child; Death; family; Female; Hospitalization; Humans; Infant; inpatient stays; Length of Stay; leukaemia; Leukemia/therapy; Male; Medical Records; Neoplasms/*therapy; Newborn; paediatric oncology; place of death; Preschool; Psychological; Retrospective Studies; Switzerland; Terminal Care
Creator
An entity primarily responsible for making the resource
Rost M; Wangmo T; Rakic M; Acheson E; Rischewski J; Hengartner H; Kuhne T; Elger B S
Description
An account of the resource
Lived experiences of childhood cancer patients and their families have been described as interrupted and as a loss of normal life. Apart from symptoms due to the cancer disease, families continuously experience burden of treatment. Since coping capacities are unique to each individual, we captured variables that offer objective measures of treatment burden, with a particular focus on the disruptive effects of treatment on families' lives. Our sample was comprised by 193 children that died of cancer. Medical records were extracted retrospectively. Quantitative data were statistically analysed with respect to variables related to treatment burden. Deceased children with cancer and their families faced a significant burden of treatment. Results revealed that deceased leukaemia patients had a higher number of inpatient stays, spent more time in the hospital both during their illness and during the last month of their life, and were more likely to die in the hospital when compared to deceased patients with CNS neoplasms and with other diagnoses. Our findings highlight the disruptive effects of treatment that are likely to have a great impact on families' daily life, that go beyond exclusively focusing on side effects, and that needs to be taken into account by the treating staff.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/ecc.12879" target="_blank" rel="noreferrer noopener">10.1111/ecc.12879</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Acheson E
Adaptation
Adolescent
burden of treatment
Central Nervous System Neoplasms/therapy
Child
Death
Elger B S
European Journal of Cancer Care (Engl)
Family
Female
Hengartner H
Hospitalization
Humans
Infant
inpatient stays
Kuhne T
Length Of Stay
leukaemia
Leukemia/therapy
Male
Medical Records
Neoplasms/*therapy
Newborn
Oncology 2019 List
Paediatric oncology
Place Of Death
Preschool
Psychological
Rakic M
Retrospective Studies
Rischewski J
Rost M
Switzerland
Terminal Care
Wangmo T
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2019 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2019 List
URL Address
<a href="http://doi.org/10.1177/1043454219871082" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/1043454219871082</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Barriers to Palliative Care in Pediatric Oncology in Switzerland: A Focus Group Study
Publisher
An entity responsible for making the resource available
Journal of Pediatric Oncology Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
adult; article; awareness; child; childhood cancer; clinical article; controlled study; education; female; human; male; nurse; oncologist; outpatient care; palliative therapy; personnel shortage; politics; qualitative research; reimbursement; social worker; Switzerland; thematic analysis
Creator
An entity primarily responsible for making the resource
Rost M; De Clercq E; Rakic M; Wangmo T; Elger B
Description
An account of the resource
Introduction: For children with cancer, early integration of pediatric palliative care in conjunction with curative treatments is recommended. In Switzerland, pediatric palliative care is mostly provided by an interdisciplinary primary oncology team that is mainly composed of nurses. However, only a small fraction of children receive pediatric palliative care and only a minority of them in a timely manner. The main aim was to identify barriers to the provision of pediatric palliative care in Swiss pediatric oncology.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/1043454219871082" target="_blank" rel="noreferrer noopener">10.1177/1043454219871082</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Adult
Article
Awareness
Child
Childhood Cancer
Clinical Article
Controlled Study
De Clercq E
Education
Elger B
Female
Human
Journal Of Pediatric Oncology Nursing
Male
Nurse
Oncologist
Oncology 2019 List
outpatient care
Palliative Therapy
personnel shortage
Politics
Qualitative Research
Rakic M
Reimbursement
Rost M
Social Worker
Switzerland
Thematic Analysis
Wangmo T
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2019 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2019 List
URL Address
<a href="http://doi.org/10.1186/s12904-019-0438-1" target="_blank" rel="noreferrer noopener">http://doi.org/10.1186/s12904-019-0438-1</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The conceptual understanding of pediatric palliative care: A Swiss healthcare perspective
Publisher
An entity responsible for making the resource available
BMC Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
article; child; childhood cancer; comfort; death; human; interview; nurse; oncologist; palliative therapy; pediatrics; psychologist; social worker; stigma; Switzerland
Creator
An entity primarily responsible for making the resource
De Clercq E;Rost M; Rakic M; Ansari M; Brazzola P; Wangmo T; Elger B S
Description
An account of the resource
Background: Health care providers' perception of pediatric palliative care might negatively influence timely implementation. The aim of the study was to examine understanding of and attitudes towards pediatric palliative care from the perspective of health care providers working in pediatric oncology in Switzerland to promote the timely implementation of pediatric palliative care.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/s12904-019-0438-1" target="_blank" rel="noreferrer noopener">10.1186/s12904-019-0438-1</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Ansari M
Article
BMC Palliative Care
Brazzola P
Child
Childhood Cancer
Comfort
De Clercq E
Death
Elger B S
Human
Interview
Nurse
Oncologist
Oncology 2019 List
Palliative Therapy
Pediatrics
Psychologist
Rakic M
Rost M
Social Worker
Stigma
Switzerland
Wangmo T