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Tags: 2006, Adaptation, Backlog, Extramural Research Support, Journal Article, Journal of Pediatric Psychology, Larson S, Long A, N.I.H., Non-U.S. Gov't Stress Disorders, PedPal Lit, Phipps S, Post-Traumatic/epidemiology/psychology Survivors/psychology United States/epidemiology, Psychological Adolescent Adult Analysis of Variance Child Cross-Sectional Studies Defense Mechanisms Female Humans Male Neoplasms/psychology Parents/psychologyPersonality Research Support, Rai SN
Tags: 2005, Adolescent ChildClinical Trials Female Health Status Humans Leukemia/drug therapy/physiopathology/psychology MalePediatricsProxy Quality of Life/psychology Research Support, Backlog, Burghen E, Cox CL, domains specific and sensitive to both disease and treatment, Extramural Research Support, Hinds P, Journal Article, Lensing S, N.I.H., Non-U.S. Gov't Research Support, P.H.S.Sickness Impact Profile%X BACKGROUND: With increased cure rates, pediatric oncology protocols increasingly seek to document the impact of treatment on patients' disease, PedPal Lit, Pui CH, Quality of Life Research, Rai SN, Symptoms, the proxy respondents evaluated the ease of use of the instrument and the data quality. RESULTS: As patients' health status declined, U.S. Gov't
Tags: 2004, Adolescent, Adolescent Psychology Cancer Care Facilities Child, Backlog, Baker E, Child Psychology Female Humans Interviews Male Neoplasms/physiopathology/, Coleman B, Fletcher A, Gattuso JS, Hinds PS, Jackson T, Jacobs-Levine A, Journal Article, June D, Lensing S, methods Quality of Life/, Non-U.S. Gov't Research Support, P.H.S. Self Assessment (Psychology), PedPal Lit, psychology Questionnaires Research Support, psychology/therapy Pediatrics Pilot Projects Psychometrics/instrumentation/, Pui CH, Quality of Life Research, Rai SN, Sickness Impact Profile Tennessee, the domain most frequently missing was the meaning of being ill domain. Here we present a new definition of the quality of life of pediatric oncology patients that is based on six domains, this definition may ensure the completeness and sensitivity of these important instruments., U.S. Gov't