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40
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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URL Address
<a href="http://doi.org/10.1007/s11136-004-4714-y" target="_blank" rel="noreferrer">http://doi.org/10.1007/s11136-004-4714-y</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Proxy assessment of quality of life in pediatric clinical trials: application of the Health Utilities Index 3
Publisher
An entity responsible for making the resource available
Quality of Life Research
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
symptoms; U.S. Gov't; PedPal Lit; Extramural Research Support; N.I.H.; Non-U.S. Gov't Research Support; Adolescent ChildClinical Trials Female Health Status Humans Leukemia/drug therapy/physiopathology/psychology MalePediatricsProxy Quality of Life/psychology Research Support; domains specific and sensitive to both disease and treatment; P.H.S.Sickness Impact Profile%X BACKGROUND: With increased cure rates; pediatric oncology protocols increasingly seek to document the impact of treatment on patients' disease; the proxy respondents evaluated the ease of use of the instrument and the data quality. RESULTS: As patients' health status declined
Creator
An entity primarily responsible for making the resource
Cox CL; Lensing S; Rai SN; Hinds P; Burghen E; Pui CH
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1007/s11136-004-4714-y" target="_blank" rel="noreferrer">10.1007/s11136-004-4714-y</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2005
2005
Adolescent ChildClinical Trials Female Health Status Humans Leukemia/drug therapy/physiopathology/psychology MalePediatricsProxy Quality of Life/psychology Research Support
Backlog
Burghen E
Cox CL
domains specific and sensitive to both disease and treatment
Extramural Research Support
Hinds P
Journal Article
Lensing S
N.I.H.
Non-U.S. Gov't Research Support
P.H.S.Sickness Impact Profile%X BACKGROUND: With increased cure rates
pediatric oncology protocols increasingly seek to document the impact of treatment on patients' disease
PedPal Lit
Pui CH
Quality of Life Research
Rai SN
Symptoms
the proxy respondents evaluated the ease of use of the instrument and the data quality. RESULTS: As patients' health status declined
U.S. Gov't
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1023/b:qure.0000021697.43165.87" target="_blank" rel="noreferrer">http://doi.org/10.1023/b:qure.0000021697.43165.87</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Quality of life as conveyed by pediatric patients with cancer
Publisher
An entity responsible for making the resource available
Quality of Life Research
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
adolescent; U.S. Gov't; PedPal Lit; Non-U.S. Gov't Research Support; psychology Questionnaires Research Support; Adolescent Psychology Cancer Care Facilities Child; Child Psychology Female Humans Interviews Male Neoplasms/physiopathology/; methods Quality of Life/; P.H.S. Self Assessment (Psychology); psychology/therapy Pediatrics Pilot Projects Psychometrics/instrumentation/; Sickness Impact Profile Tennessee; the domain most frequently missing was the meaning of being ill domain. Here we present a new definition of the quality of life of pediatric oncology patients that is based on six domains; this definition may ensure the completeness and sensitivity of these important instruments.
Creator
An entity primarily responsible for making the resource
Hinds PS; Gattuso JS; Fletcher A; Baker E; Coleman B; Jackson T; Jacobs-Levine A; June D; Rai SN; Lensing S; Pui CH
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1023/b:qure.0000021697.43165.87" target="_blank" rel="noreferrer">10.1023/b:qure.0000021697.43165.87</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2004
2004
Adolescent
Adolescent Psychology Cancer Care Facilities Child
Backlog
Baker E
Child Psychology Female Humans Interviews Male Neoplasms/physiopathology/
Coleman B
Fletcher A
Gattuso JS
Hinds PS
Jackson T
Jacobs-Levine A
Journal Article
June D
Lensing S
methods Quality of Life/
Non-U.S. Gov't Research Support
P.H.S. Self Assessment (Psychology)
PedPal Lit
psychology Questionnaires Research Support
psychology/therapy Pediatrics Pilot Projects Psychometrics/instrumentation/
Pui CH
Quality of Life Research
Rai SN
Sickness Impact Profile Tennessee
the domain most frequently missing was the meaning of being ill domain. Here we present a new definition of the quality of life of pediatric oncology patients that is based on six domains
this definition may ensure the completeness and sensitivity of these important instruments.
U.S. Gov't
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1093/jpepsy/jsj033" target="_blank" rel="noreferrer">http://doi.org/10.1093/jpepsy/jsj033</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Adaptive style and symptoms of posttraumatic stress in children with cancer and their parents
Publisher
An entity responsible for making the resource available
Journal of Pediatric Psychology
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
PedPal Lit; Extramural Research Support; N.I.H.; Adaptation; Non-U.S. Gov't Stress Disorders; Post-Traumatic/epidemiology/psychology Survivors/psychology United States/epidemiology; Psychological Adolescent Adult Analysis of Variance Child Cross-Sectional Studies Defense Mechanisms Female Humans Male Neoplasms/psychology Parents/psychologyPersonality Research Support
Creator
An entity primarily responsible for making the resource
Phipps S; Larson S; Long A; Rai SN
Description
An account of the resource
OBJECTIVE: To examine symptom levels of posttraumatic stress (PTS) in children with cancer and their parents as a function of patient and parent adaptive style. METHOD: Participants included 162 pediatric cancer patients and their parents. Patients completed self-report measures of PTS and adaptive style. Parents reported on their own adaptive style and PTS, as well as levels of PTS in their child. RESULTS: Adaptive style was a significant correlate of PTS. Children identified as low anxious (LA) or repressors (REP) obtained lower levels of PTS than did high anxious (HA) children, both by self-report and parent report. Parents identified as LA or REP self-reported lower levels of PTS than HA and also reported lower levels of PTS in their children. CONCLUSIONS: Patient and parent adaptive style are significant determinants of PTS in the pediatric oncology setting. These findings, in combination with the generally low levels of PTS in the pediatric oncology population, raise questions about the utility of the posttraumatic stress model for understanding the experiences of children with cancer, although such a model may be more applicable to parental response.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1093/jpepsy/jsj033" target="_blank" rel="noreferrer">10.1093/jpepsy/jsj033</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adaptation
Backlog
Extramural Research Support
Journal Article
Journal of Pediatric Psychology
Larson S
Long A
N.I.H.
Non-U.S. Gov't Stress Disorders
PedPal Lit
Phipps S
Post-Traumatic/epidemiology/psychology Survivors/psychology United States/epidemiology
Psychological Adolescent Adult Analysis of Variance Child Cross-Sectional Studies Defense Mechanisms Female Humans Male Neoplasms/psychology Parents/psychologyPersonality Research Support
Rai SN