1 40 1 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource September 2022 List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month September 2022 List URL Address <a href="http://doi.org/10.1136/bmjspcare-2021-003457" target="_blank" rel="noreferrer noopener">http://doi.org/10.1136/bmjspcare-2021-003457</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Family Experiences with Palliative Care in Freestanding Paediatric Hospices: A Scoping Review Publisher An entity responsible for making the resource available BMJ Supportive and Palliative Care Date A point or period of time associated with an event in the lifecycle of the resource 2022 Subject The topic of the resource Bereavement; Pediatrics; Family; Scoping review; Hospice care; Terminal care Creator An entity primarily responsible for making the resource Dorman J; Raffin BS; daSilva CK; Miller M Description An account of the resource BACKGROUND: Paediatric palliative care provides supportive care to children with life-threatening or life-limiting illnesses throughout the disease trajectory. Up to 42% of children receiving palliative care in Canada will die within a freestanding paediatric hospice or designated end-of-life care bed. Few studies have assessed families' experiences of this care within freestanding paediatric hospices. OBJECTIVES: To find and describe literature relating to family experiences in paediatric hospice palliative care throughout the end-of-life care journey including grief and bereavement. CRITERIA: Inclusion criteria: Children antepartum to 18 years or older if on paediatric palliative care service. Research conducted in freestanding paediatric hospices that focused on families' experiences and perceptions of end-of-life and grief and bereavement care. Full-text articles available in English. EXCLUSION CRITERIA: Adult palliative and end-of-life care, respite care, palliative care provided in acute or community settings, professional perspectives, unexpected or sudden child death, pregnancy after loss. SOURCES OF EVIDENCE: Academic Search Complete, CINAHL, Cochrane Database of Systematic Reviews, Embase, PsycINFO, PubMed and Web of Science databases were searched from database inception until the present. Grey literature was also searched for relevant results. CHARTING METHODS: The scoping review was guided by recommendations from Arksey and O'Malley and Levac et al. RESULTS: A total of 4250 papers were retrieved, of which 10 met the scoping review criteria. The majority of studies were conducted in the UK. Three major themes emerged: more supportive care for families including grief and bereavement support, the hospice experience itself and future research areas. CONCLUSIONS: There is little literature that focuses specifically on the needs of families within freestanding paediatric hospices. Further examination of the themes identified above provides an opportunity for future research. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1136/bmjspcare-2021-003457" target="_blank" rel="noreferrer noopener">10.1136/bmjspcare-2021-003457</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2022 Bereavement BMJ Supportive and Palliative Care daSilva CK Dorman J Family Hospice Care Miller M Pediatrics Raffin BS Scoping review September 2022 List Terminal Care -- California