A comparative longitudinal study of gastrostomy devices in children
Child; Female; Humans; Male; Home Nursing; Consumer Satisfaction; adolescent; Preschool; infant; Nutritional Failure; Nutrition Physiology; Postoperative Complications; Enteral Nutrition/adverse effects/instrumentation/nursing; Gastrostomy/nursing/rehabilitation
Long-term gastrostomy is a predictable intervention to ameliorate the effects of feeding and swallowing difficulties among children with severe spastic cerebral palsy. The evidence evaluating the efficacy and implications of the available gastrostomy devices in common use has focused primarily on the operative phase, ignoring the long-term effects that may be critical from a nurse's or family caregiver's point of view. In this study, the authors describe a sample of children with gastrostomy, comparing skin-level and tube devices on measures of nutritional outcome, complications, and caregiver satisfaction. In contrast to manufacturer's claims about the superiority of skin-level devices, the results presented here reveal few differences between the devices. The authors conclude, therefore, that device selection should be determined by individualized comprehensive assessment of the child and family circumstances.
1998
Thorne SE; Radford MJ
Western Journal Of Nursing Research
1998
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1177/019394599802000202" target="_blank" rel="noreferrer">10.1177/019394599802000202</a>
ACC/AHA 2008 guidelines for the management of adults with congenital heart disease: a report of the American College of Cardiology/American Heart Association Task Force on Practice Guidelines (Writing Committee to Develop Guidelines on the Management of Adults With Congenital Heart Disease). Developed in Collaboration With the American Society of Echocardiography, Heart Rhythm Society, International Society for Adult Congenital Heart Disease, Society for Cardiovascular Angiography and Interventions, and Society of Thoracic Surgeons
Humans; United States; Adult; Adolescent Transitions; Heart Defects; Congenital/therapy; Heart Diseases/congenital/therapy; American Heart Association; Cardiology/methods/standards
2008
Warnes CA; Williams RG; Bashore TM; Child JS; Connolly HM; Dearani JA; del Nido P; Fasules JW; Graham TP; Hijazi ZM; Hunt SA; King ME; Landzberg MJ; Miner PD; Radford MJ; Walsh EP; Webb GD; Smith SC; Jacobs AK; Adams CD; Anderson JL; Antman EM; Buller CE; Creager MA; Ettinger SM; Halperin JL; Hunt SA; Krumholz HM; Kushner FG; Lytle BW; Nishimura RA; Page RL; Riegel B; Tarkington LG; Yancy CW; American College of Cardiology; American Heart Association Task Force on Practice Guidelines (Writing Committee to Develop Guidelines on the Management of Adults With Congenital Heart Disease); American Society of Echocardiography; Heart Rhythm Society; International Society for Adult Congenital Heart Disease; Society for Cardiovascular Angiography; Interventions; Society of Thoracic Surgeons
Journal Of The American College Of Cardiology
2008
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1016/j.jacc.2008.10.001" target="_blank" rel="noreferrer">10.1016/j.jacc.2008.10.001</a>
The multiple meanings of long-term gastrostomy in children with severe disability
Child; Humans; United States; Canada; Attitude to Health; Attitude of Health Personnel; Time Factors; Caregivers/psychology; Interviews; Mothers/psychology; Nutritional Failure; Gastrostomy/nursing/psychology; Nurses/psychology
Although the physiological implications of long-term gastrostomy for children with severe disability are well documented in the nursing literature, little is known about the psychosocial effect of this technological intervention. This study documents and interprets the perspective of expert nurses and parents to reveal conflictual social processes associated with gastrostomy decision-making and the intense moral dilemma that these processes create. The findings suggest that gastrostomy denotes multiple meanings for parents and health care providers, and that an appreciation for these meanings can have a significant positive impact on nursing care for these children and their families.
1997
Thorne SE; Radford MJ; McCormick J
Journal Of Pediatric Nursing
1997
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1016/s0882-5963(97)80029-2" target="_blank" rel="noreferrer">10.1016/s0882-5963(97)80029-2</a>