Browse Items (209 total)
- Tags: Questionnaires
Your child is dead
Tags: 1991, Attitude Of Health Personnel, Attitude To Death, Backlog, Bereavement, Bmj (clinical Research Ed.), Cause Of Death, Child, Communication, Dallimore D, Female, Finlay I, France, Great Britain, Humans, Infant, Interviews As Topic, Journal Article, Male, Newborn, Nurses, Parents/psychology, Physicians, Police, Preschool, Professional-family Relations, Questionnaires, Tissue and Organ Procurement, Tissue Donors
Young people's satisfaction of transitional care in adolescent rheumatology in the UK
Tags: 2007, Adolescent, Adolescent Health Services/organization & administration, Adolescent Rheumatology, Adolescent Transitions, Adult, Arthritis, Backlog, British Society of Paediatric, Child, Child: Care, Health and Development, Chronic Disease, Cohort Studies, Continuity Of Patient Care/organization & Administration, Female, Great Britain, Humans, Journal Article, Juvenile Rheumatoid/psychology/rehabilitation, Male, McDonagh JE, Parents, Patient Satisfaction, Program Development, Quality Of Life, Questionnaires, Self Care/methods, Shaw KL, Sickness Impact Profile, Southwood TR
What's Missing in Missing Data? Omissions in Survey Responses among Parents of Children with Advanced Cancer
Tags: 2014, Adolescent, Adult, Backlog, Disease Progression, Dussel V, Female, Feudtner C, Geyer JR, Humans, Journal Article, Journal of Palliative Medicine, Kang TI, Life Expectancy, Male, Neoplasms, Orellana L, Parents, prog, Prognosis, Quality Of Life, Questionnaires, Research, Rosenberg AR, surveys, Wolfe J
Views of adolescents and parents on pediatric research without the potential for clinical benefit
Tags: 2012, Abdoler E, Adolescent, Adolescent Psychology, Adult, Altruism, Attitude To Health, Backlog, Benefits of PPC, Female, Grady C, Humans, Journal Article, Male, Motivation, Nontherapeutic Human Experimentation, Parents/psychology, Pediatrics, Questionnaires, Research Subjects/psychology, Risk-Taking, Wendler D, Wiener L
Variability in physician opinion on limiting pediatric life support
Tags: 1999, Backlog, Child, Cross-sectional Studies, Death and Euthanasia, Decision Making, Egger MJ, Empirical Approach, Euthanasia, Fellowships And Scholarships, Female, Guyatt GH, Hospital/psychology/statistics & numerical data, Humans, ICU Decision Making, Intensive Care Units, Intensive Care/psychology, Journal Article, Male, Medical Oncology/statistics & numerical data, Medical Staff, Nelson RM, Neoplasms/therapy, Passive/psychology, Pediatric, Pediatrics, Pediatrics/statistics & numerical data, Prognosis, Questionnaires, Randolph AG, Regression Analysis, Stidham GL, Terminal Care/psychology, Zollo MB
Variability among institutional review boards' decisions within the context of a multicenter trial
Tags: 2001, Adult/therapy, Artificial/methods, Backlog, Biomedical and Behavioral Research, Clinical Protocols/standards, Critical Care Medicine, Decision Making, Educational Status, Empirical Approach, Hull SC, Humans, Informed Consent, Journal Article, Multi-site Ethics, Multicenter Studies as Topic/standards, National Institutes of Health (U.S.), Organizational, Organizational Policy, Professional Staff Committees/organization & administration, Questionnaires, Randomized Controlled Trials as Topic/standards, Research/standards, Respiration, Respiratory Distress Syndrome, Silverman H, Sugarman J, Tidal Volume, United States
Validity of the McGill Quality of Life Questionnaire in the palliative care setting: a multi-centre Canadian study demonstrating the importance of the existential domain
Tags: 1997, Backlog, Bruera E, Cohen SR, Humans, Journal Article, Longitudinal Studies, Mental Health, Mental Status Schedule, Mount BM, Multicenter Studies as Topic, Neoplasms/psychology, Palliative Care, Palliative Medicine, Provost M, Quality Of Life, Questionnaires, Reproducibility of Results, Rowe J, Sensitivity and Specificity, Tong K
Using drugs to end life without an explicit request of the patient
Tags: 2007, 80 And Over, Adolescent, Adult, Aged, Assisted/ethics/legislation & jurisprudence/psychology, Backlog, Belgium, Bilsen J, Death studies, Decision Making, Denmark, Ethics, Euthanasia/ethics/legislation & jurisprudence/psychology, Female, Fischer S, Humans, Informed Consent, Intention, Journal Article, Male, Medical, Mental Competency/legislation & jurisprudence, Miccinessi G, Middle Aged, Netherlands, Norup M, Onwuteaka-Philipsen BD, Patient Participation/legislation & jurisprudence/psychology, Physician's Practice Patterns/ethics, Questionnaires, Rietjens JA, Suicide, Switzerland, Terminal Care/ethics/legislation & jurisprudence/psychology, van der Heide A, van der Maas PJ, van der Wal G, Vrakking AM
Understanding uncertainty and minimizing families' anxiety at the time of transfer from intensive care
Tags: 2003, anxiety, Backlog, Communication, Courtney M, Coyer F, Critical Illness/psychology, Emotions, Family/psychology, Humans, ICU Decision Making, Intensive Care Units, Intensive Care/psychology, Journal Article, Mitchell ML, Nursing & Health Sciences, Patient Transfer, Professional-family Relations, Questionnaires, Stress (Psychology), Uncertainty
Uncertainty and Perinatal Post?Traumatic Stress Disorder in the Neonatal Intensive Care Unit
Tags: 2022, After Care, April List 2023, Brown RL, Coefficient Alpha, Comparative Studies, Data Analysis Software, Descriptive Statistics, Female, Hospitalization, Human, Hypothesis, Infant, Infant Newborn, Intensive Care Units, Intensive Care Units Neonatal, Johnson TS, Lagatta J, Leuthner J, Male, Malin KJ, Malnory M, Mental Disorders, Palliative Care, Parent-Infant Relations, Parents, Patient Discharge, Perinatal Care, Prospective Studies, Psychologists, Psychosocial Factors, Questionnaires, reliability and validity, Research in Nursing and Health, Rholl E, scales, Stress Disorders Post-Traumatic, Summated Rating Scaling, Uncertainty, White?Traut R
Trends in transition from pediatric to adult health care services for young adults with chronic conditions
Tags: 1999, Adolescent, Adolescent Health Services/classification, Adolescent Transitions, Adult, AID - S1054-139X(98)00127-X [pii], Backlog, Blozis S, Blum R, Chronic Disease/therapy, Continuity of Patient Care/classification/economics/statistics & numerical data, Counseling, CRDT- 1999/05/05 00:00, EDAT- 1999/05/05, Evans T, Health Services/classification, Humans, Journal Article, MHDA- 1999/05/05 00:01, Okinow N, Pilot Projects, PST - ppublish, Questionnaires, Scal P, The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine Jid - 9102136, United States
Trends in the use of opioids at the end of life and the expected effects on hastening death
Tags: 2009, Active/statistics & numerical data/trends, Administration, Analgesics, Attitude Of Health Personnel, Backlog, Borgsteede SD, Decision Making, Euthanasia, Humans, Journal Article, Journal of Pain and Symptom Management, Netherlands/epidemiology, Onwuteaka-Philipsen BD, Opioid/administration & dosage, Oral, Pain/mortality/prevention & control, Physician's Practice Patterns/statistics & numerical data/trends, Physicians/statistics & numerical data, Questionnaires, Risk Assessment, Risk Factors, Rurup ML, Survival Analysis, Survival Rate, Terminal Care/statistics & Numerical Data, van der Heide A, van der Maas PJ
Treatment of pain in pediatric oncology: a Swedish nationwide survey
Tags: 1996, Adolescence, Antineoplastic Agents/adverse effects, Backlog, Berg T, Child, Combined Modality Therapy, Continuing, Drug Administration Routes, Education, Female, Gordh T, Hospital Departments, Human, Infant, Journal Article, Kreuger A, Ljungman G, Male, Medical, Morphine/adverse effects, Neoplasms/complications, Newborn, Non-U.S. Gov't, Nursing, Pain, Pain Measurement, Pain/etiology/therapy, Physician's Practice Patterns, Preschool, Questionnaires, Radiotherapy/adverse effects, Rawal N, Sorensen S, Support, Sweden
Treatment adherence of youth and young adults with and without a chronic illness
Tags: 2003, Acute Disease/psychology, Adaptation, Adolescent, Adolescent Behavior/psychology, Adolescent Psychology, Adult, Age Factors, Attitudes, Backlog, Case-Control Studies, Child, Chronic Disease/psychology, Crisp J, Female, Health Knowledge, Humans, Internal-External Control, Journal Article, Male, Mental Health, Needs Assessment, Nursing & Health Sciences, Patient Compliance/psychology, Patient Education, Practice, Predictive Value of Tests, Psychological, Questionnaires, Rosina R, Self Care/psychology, Steinbeck K
Trauma and growth in Canadian carers
Tags: 2003, Acquired Immunodeficiency Syndrome/psychology, Adult, Aged, AIDS care, Attitude, Backlog, Bereavement, Cadell S, Canada, Caregivers/psychology, Depression/psychology, Family, Female, Humans, Internal-External Control, Journal Article, Male, Middle Aged, Non-U.S. Gov't, Psychological, Questionnaires, Research Support, Sociology, Stress
Transition process of patients with type 1 diabetes (T1DM) from paediatric to the adult health care service: a hospital-based approach
Tags: 2009, Adolescent, Adolescent Transitions, Aimaretti G, Allochis G, Backlog, Baldelli R, Bellone S, Binotti M, Bona G, Cadario F, Clinical Endocrinology, Diabetes Mellitus, Esposito S, Female, Glycosylated/metabolism, Hemoglobin A, Humans, Journal Article, Patient Satisfaction, Patient Transfer/methods, Pediatrics, Prodam F, Questionnaires, Retrospective Studies, Trada M, Type 1/metabolism/therapy, Young Adult
Transition planning for youth with special health care needs: results from the National Survey of Children with Special Health Care Needs
Tags: 2005, Adolescent, Adolescent Transitions, African Americans/statistics & numerical data, Aging, Backlog, California, Case Management, Child, Continuity Of Patient Care/organization & Administration, European Continental Ancestry Group/statistics & numerical data, Exceptional, Family Characteristics, Female, Health Services Needs and Demand/trends, Health Surveys, Hispanic Americans/sn [Statistics & Numerical Data], Humans, Insurance Coverage/statistics & numerical data, Journal Article, Lotstein DS, Male, McPherson M, Needs Assessment/statistics & numerical data, Newacheck P, Pediatrics, Questionnaires, Sampling Studies, Socioeconomic Factors, Strickland B
Transition of care: health care professionals' view
Tags: 2004, Adolescent, Adolescent Health Services/standards, Adolescent Medicine/standards, Adolescent Transitions, Adult, Attitude Of Health Personnel, Backlog, Barrow J, Burr P, Child, Child Health Services/standards, Chronic Disease/psychology/therapy, Continuity of Patient Care/standards, Dennard L, Focus Groups, Golberg B, Hospital/psychology, Hospitals, Humans, Journal Article, Journal Of Nursing Management, Lennox V, London, Needs Assessment, Nursing Methodology Research, Patient Transfer/standards, Pediatrics/standards, Personnel, Por J, Questionnaires, Teaching
Transition from paediatric to adult care for persons with cystic fibrosis: patient and parent perspectives
Tags: 1999, Adolescent, Adolescent Transitions, Adult, Backlog, Child, Child Health Services/organization & administration, Cross-sectional Studies, Cystic Fibrosis/rehabilitation, Female, Health Promotion, Health Transition, Henley L, Humans, Journal Article, Journal of Paediatrics and Child Health, Male, Parents, Patient Satisfaction, Preschool, Questionnaires, Westwood A, Willcox P
Training health professionals in caring for dying children and grieving families
Things that help and hinder adolescent sibling bereavement
Tags: 1994, Adaptation, Adolescent, Adolescent Psychology, Backlog, Bereavement, Classification, Death, DeSantis L, Family, Female, Hogan NS, Humans, Interpersonal Relations, Journal Article, Male, Nursing Methodology Research, Psychological, Questionnaires, Sampling Studies, sibling bereavement, Sibling Relations, Social Support, Western Journal of Nursing Research
The Seattle Pediatric Palliative Care Project: effects on family satisfaction and health-related quality of life
Tags: 2006, Adolescent, Adult, Backlog, Child, Churchill SS, Communication, Decision Making, Family, Female, Geyer JR, Haynes G, Hays RM, Humans, Journal Article, Journal of Palliative Medicine, Male, McKinstry B, Neoplasms/therapy, Nervous System Diseases/therapy, Palliative Care/organization & Administration, Personal Satisfaction, Physician-patient Relations, Preschool, Program Development, Quality Of Life, Questionnaires, Valentine J, Varni JW, Villareale N, Washington
The Role of Social Support in Coping with Daily Pain among Patients with Rheumatoid Arthritis
Tags: 2004, 80 And Over, Adaptation, Adult, Aged, Arthritis, Backlog, Chronic Pain, Coping, DeLongis A, Female, Holtzman S, Humans, Journal Article, Journal Of Health Psychology, Male, Middle Aged, Newth S, Non-U.S. Gov't, Pain/etiology/psychology/therapy, Psychological, Questionnaires, Research Support, Rheumatoid/complications, Social Support, Social Support and Chronic Pain
The role of partner relationships in the young person's adherence to the diabetes self-care regime
Tags: 2007, Adolescent, Adolescent Transitions, Adult, Backlog, Cross-sectional Studies, Diabetes Mellitus, Female, Gillibrand R, Humans, International Journal Of Behavioral Medicine, Interpersonal Relations, Journal Article, Male, Patient Compliance/statistics & numerical data, Questionnaires, Self Care, Sexual Partners, Stevenson J, Type 1/drug therapy/psychology
The role of nurses in physician-assisted deaths in Belgium
Tags: 2010, Active, Active/statistics & numerical data, Adult, Assisted/statistics & numerical data, Backlog, Belgium, Bilsen J, Canadian Medical Association Journal, Confidence Intervals, Data Collection, Decision Making, Deliens L, Euthanasia, Female, home care services, Humans, Inghelbrecht E, Journal Article, Logistic Models, Male, Middle Aged, Mortier F, Nurse's Role, Odds Ratio, Questionnaires, Suicide, Terminal Care/methods/statistics & numerical data, Voluntary/statistics & numerical data, Young Adult
The relationship between grief adjustment and continuing bonds for parents who have lost a child
Tags: 2009, Adaptation, Adolescent, Adult, Attitude To Death, Backlog, Davies B, Female, Field NP, Grief, Humans, Infant, Interpersonal Relations, Journal Article, Kramer R, Life Change Events, Long JK, Male, Newborn, Object Attachment, Omega, Packman W, Parent-child Relations, Parents/psychology, Psychological, Quality Of Life, Questionnaires, Ronen R
The reflections you get': an exploration of body image and cachexia.
Tags: 2007, 80 And Over, Adaptation, Aged, Attitude To Health, Backlog, Body Image, Cachexia/et [Etiology], Cachexia/px [Psychology], England, Female, Health Services Needs And Demand, Hinsley R, Holistic Health, Hughes R, Humans, International Journal of Palliative Nursing, Interpersonal Relations, Journal Article, Male, Middle Aged, N, Narration, Neoplasms/co [complications], Nursing Methodology Research, Palliative Care/mt [methods], Palliative Care/px [psychology], Prognosis, Psychological, Qualitative Research, Quality Of Life/px [psychology], Questionnaires, Social Behavior, Social Isolation, Social Support, Spirituality, Terminally Ill/px [Psychology]
The Photographs of Meaning Program for Pediatric Palliative Caregivers: Feasibility of a Novel Meaning-Making Intervention
Tags: 2019, Action Research, Adaptation, Adult, American Journal of Hospice & Palliative Medicine, August 2019 List, Beaupin L K, Breier J M, Byrwa D J, Caregiver, Caregiver Support, Caregivers -- Psychosocial Factors, Coefficient Alpha, Criterion-Related Validity, Data Analysis Software, Depner R M, Descriptive Statistics, Discriminant Validity, Female, Grant P C, Health Facilities, Human, Internal Consistency, Levy K, Life Purpose, Married Women, meaning-centered psychotherapy, Middle Age, Mothers, Multimethod Studies, Narratives, New York, Pailler M E, Paired T-Tests, Palliative Care -- Psychosocial Factors, Pediatric, Pediatric Care, pediatric caregiver, Pediatric Palliative Care, Personal Satisfaction, Photography, photovoice, Pilot Studies, Pretest-Posttest Design, Program Development, Program Evaluation, Program Implementation, Psychological, Psychotherapy -- Methods, Questionnaires, Reliability, Research Subject Recruitment, Semi-Structured Interview, social media, surveys, Tenzek K E, Whites
The need of patients living with cancer for palliative care
Tags: 2023, 2023 SE3 - Oncology, Abdalrahim MS, Adolescence, Adult, Aged, Aged 80 And Over, Alnajar MK, Amro K, anxiety, cancer patients, Chi Square Test, Convenience Sample, Cross Sectional Studies, Darawad MW, Data Analysis Software, Depression, Descriptive Research, Descriptive Statistics, Farhan M, Health Services Accessibility, Health Services Needs And Demand, Human, International Journal of Palliative Nursing, Jordan, Middle Age, Mosleh SM, Neoplasms, Nursing, Palliative Care, Palliative Care Nursing, Patient Attitudes, Psychological Distress, Psychometrics, Questionnaires, Self Report, Spiritual Care, Stress Psychological
The moral experience of parents regarding life-support decisions for their critically-ill children: a preliminary study in France
Tags: 2006, Adaptation, Attitude to Health/ethnology, Backlog, Canoui P, Carnevale FA, Child, Clinical Competence, Communication, Decision Making, Doussau A, Farrell C, Grief, Guilt, Health Services Needs And Demand, Hospitalized/psychology, Hospitals, Hubert P, Humans, ICU Decision Making, Infant, Intensive Care Units, Intensive Care/psychology, Journal Article, Journal Of Child Health Care, Lacroix J, Leclerc F, Life Support Care/psychology, Morals, Nursing Methodology Research, Parental Consent/psychology, Parents/education/psychology, Paris, Pediatric, Physician's Role/psychology, Professional-family Relations, Psychological, Qualitative Research, Questionnaires, Seguin MJ, Social Support
The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability
Tags: 1995, 80 And Over, Adult, Aged, Backlog, Bui F, Cohen SR, Comparative Study, Female, Human, Journal Article, Karnofsky Performance Status, Male, Middle Age, Mount BM, Neoplasms/psychology/therapy, Non-U.S. Gov't, Palliative Care, Palliative Medicine, Predictive Value of Tests, Quality Of Life, Questionnaires, Reproducibility of Results, Strobel MG, Support
The importance of 'knowing the patient': community nurses' constructions of quality in providing palliative care
Tags: 2000, Austin L, Backlog, Caress A, Community Health Nursing, Death and Euthanasia, Empirical Approach, England, Hallett CE, Health Care Reform, Humans, Journal Article, Journal Of Advanced Nursing, Luker KA, Nurse-patient Relations, Palliative Care/standards, Quality Of Health Care, Questionnaires
The impact of consent on observational research: a comparison of outcomes from consenters and non consenters to an observational study
The impact of a palliative care team on residents' experiences and comfort levels with pediatric palliative care
Tags: 2014, Adult, Attitude Of Health Personnel, Attitudes, Backlog, Child, Female, Friderici J, Goff Sarah L, Health Knowledge, Humans, Internship And Residency, Journal Article, Journal of Palliative Medicine, Male, Palliative Care, Patient Care Team, Pediatrics, Practice, Questionnaires, United States, Wu KL
The health-line--a method for collecting data on self-rated health over time: a pilot study
Tags: 2001, Adolescent Transitions, Adult, Alexanderson KA, Attitude To Health, Backlog, Borg KE, Chi-Square Distribution, Female, Health Status, Hensing GK, Humans, Journal Article, Male, Pilot Projects, Questionnaires, Ringsberg KC, Scandinavian Journal Of Public Health, Self-Assessment, Sick Leave/statistics & numerical data, Sweden/epidemiology
The health and well-being of caregivers of children with cerebral palsy.
Tags: 2005, Adaptation, Adult, Backlog, Brehaut J, Caregivers/psychology, Cerebral Palsy/psychology, Child, Child Behavior Disorders/etiology, Cohort Studies, Disabled Children, Family Health, Female, Foster Home Care, Humans, Journal Article, Longitudinal Studies, Male, Middle Aged, Models, O'Donnell M, Ontario, Parent-child Relations, Parents, Pediatrics, Professional-patient Relations, Psychological, Psychological/epidemiology/etiology, Questionnaires, Raina P, Rosenbaum P, Russell D, Self Concept, Severity Of Illness Index, Social Support, Stress, Swinton M, Theoretical, Walter SD, Wood E, Zhu Bin
The experiences of Chinese family members of terminally ill patients - a qualitative study
Tags: 2007, 80 And Over, Adaptation, Adolescent, Adult, Aged, Anger, Attitude To Death/ethnology, Attitude to Health/ethnology, Attitudes, Backlog, Chan SW, Family/ethnology, Female, Grief, Health Education, Health Knowledge, Health Services Needs And Demand, Hong Kong, Hospital/psychology, Humans, Journal Article, Journal of Clinical Nursing, Male, Middle Aged, Nurse's Role/psychology, Nursing Methodology Research, Nursing Staff, Palliative Care/organization & administration/psychology, Practice, Professional-family Relations, Psychological, Qualitative Research, Questionnaires, Social Support, Wong MS
The development of an interdisciplinary outpatient clinic in specialist palliative care
Tags: 2004, Backlog, England, Hospital/organization & administration, Humans, International Journal of Palliative Nursing, Journal Article, Models, Needs Assessment/organization & administration, Nursing, Nursing Assessment, Nursing Audit, Nursing Evaluation Research, Oliver D, Outpatient Clinics, Palliative Care/organization & Administration, Patient Care Team/organization & administration, Patient Satisfaction, Practice Guidelines as Topic/standards, Program Development/methods, Program Evaluation, Questionnaires
The Delphi technique: a critique
The comprehensive care team: a controlled trial of outpatient palliative medicine consultation
Tags: 2004, Advance Care Planning/statistics & Numerical Data, Aged, Archives Of Internal Medicine, Backlog, California, Chronic Obstructive/complications/psychology/therapy, Dibble SL, Female, Heart Failure/complications/psychology/therapy, Hospital/organization & administration/utilization, Humans, Journal Article, Male, McPhee SJ, Neoplasms/complications/psychology/therapy, Office Visits/statistics & numerical data, Outcome And Process Assessment (health Care), Outpatient Clinics, Palliative Care/organization & Administration, Pantilat SZ, Patient Care Team, Primary Health Care/organization & administration/utilization, Pulmonary Disease, Quality Of Life, Questionnaires, Rabow MW