Browse Items (209 total)
- Tags: Questionnaires
Sleep problems in children with Sanfilippo syndrome.
Tags: 1996, Bax M, Child, Child Preschool, Colville G A, Developmental Medicine and Child Neurology, Female, Humans, Longitudinal Studies, Male, MPS III, Mucopolysaccharidosis III/classification, Mucopolysaccharidosis III/complications, psychological intervention, Questionnaires, Sleep Disorders/etiology, Sleep Disorders/therapy, sleep disturbance/disorders, Time Factors, Watters J P, Yule W
Supporting Pediatric Patients and Their Families at the End of Life: Perspectives From Bereaved Parents
Tags: 2020, 2022 Special Edition 1 - Parent Perspectives, Academic Medical Centers, American Journal of Hospice & Palliative Medicine, Anticipatory Guidance, Bereavement, Chi Square Test, Child, Childhood Neoplasms, Communication, Cousino MK, Data Analysis Software, Decision Making, Descriptive Statistics, Family, Funding Source, Health Resource Utilization, Hutchinson R, McCaffery H, Midwestern United States, Parental Attitudes – Evaluation, Patient Preference, Paul TK, Pituch K, Professional-family Relations, Professional-patient Relations, psychosocial, Quality Of Life, Questionnaires, Record Review, Retrospective Design, Sedig LK, Shared, Spruit JL, Support, Terminal Care – In Infancy and Childhood
The need of patients living with cancer for palliative care
Tags: 2023, 2023 SE3 - Oncology, Abdalrahim MS, Adolescence, Adult, Aged, Aged 80 And Over, Alnajar MK, Amro K, anxiety, cancer patients, Chi Square Test, Convenience Sample, Cross Sectional Studies, Darawad MW, Data Analysis Software, Depression, Descriptive Research, Descriptive Statistics, Farhan M, Health Services Accessibility, Health Services Needs And Demand, Human, International Journal of Palliative Nursing, Jordan, Middle Age, Mosleh SM, Neoplasms, Nursing, Palliative Care, Palliative Care Nursing, Patient Attitudes, Psychological Distress, Psychometrics, Questionnaires, Self Report, Spiritual Care, Stress Psychological
Continuity of care: an approach to measurement
Tags: 1972, Ambulatory Care, Backlog, Bass RD, Communication, Community Mental Health Services, Community Psychiatry, Comprehensive Health Care, Day Care, Evaluation Studies as Topic, Follow-up Studies, Hospitalization, Humans, Journal Article, Medical Records, Mental Disorders/therapy, Models, Prospective Studies, Psychotherapy, Questionnaires, Referral And Consultation, The American Journal Of Psychiatry, Theoretical, Transfer Agreement, Windle C
Management of smooth-blunt gastric foreign bodies in asymptomatic patients
Health status of bereaved parents
Tags: 1996, Adolescent, Adult, Backlog, Bereavement, Birenbaum LK, Case-Control Studies, Child, Death, Female, Health Status, Humans, Infant, Journal Article, Longitudinal Studies, Male, Neoplasms/psychology, Nursing Research, Parent caregivers, Parents/psychology, Phillips DS, Preschool, Questionnaires, Stewart BJ, Time Factors
Do parents want to be present during invasive procedures performed on their children in the emergency department? A survey of 400 parents
Tags: 1999, Adolescent, Adult, Aged, Annals Of Emergency Medicine, Attitude To Health, Backlog, Boie ET, Brummett C, Cardiopulmonary Resuscitation/psychology, Child, Choice Behavior, Emergency Treatment/psychology, Female, Hospitalized/psychology, Humans, ICU Decision Making, Intratracheal/psychology, Intubation, Journal Article, Middle Aged, Moore GP, Nelson DR, Parents/psychology, Patients' Rooms, Penetrating/therapy, Phlebotomy/psychology, Questionnaires, Spinal Puncture/psychology, Wounds
Brief report: psychosocial functioning of fathers as primary caregivers of pediatric oncology patients
Tags: 2007, Adult, Backlog, Bonner MJ, Caregivers/statistics & numerical data, Child, Disabled Children/statistics & numerical data, father experience, Fathers/psychology/statistics & numerical data, Hardy KK, Humans, Hutchinson KC, Journal Article, Journal of Pediatric Psychology, Male, Neoplasms/epidemiology, Psychological/diagnosis/epidemiology/psychology, Psychology, Questionnaires, Social Adjustment, Social Behavior, Stress, Willard VW
Neonatologist training to guide family decision making for critically ill infants
Tags: 2009, Archives Of Pediatrics & Adolescent Medicine, Arnold RM, Attitude Of Health Personnel, Backlog, Boss RD, Clinical Competence, Communication, Critical Illness, Decision Making, Donohue PK, Education, Fellowships And Scholarships, Graduate, Humans, Hutton N, Infant, Internet, Journal Article, Linear Models, Medical, Neonatology/education, Newborn, Nonparametric, Premature, Professional-family Relations, Questionnaires, Statistics, United States
Facilitating day-to-day decision making in palliative care
Tags: 2000, 80 And Over, Adult, Aged, Backlog, Bottorff JL, Cancer Nursing, Davies B, Decision Making, Female, Garossino C, Humans, Journal Article, Male, Middle Aged, Non-U.S. Gov't, Nurse-patient Relations, Nursing Process, Oncologic Nursing, Palliative Care/psychology, Porterfield P, Questionnaires, Research Support, Shaw M, Steele R
Strategies for improving transition to adult cystic fibrosis care, based on patient and parent views
Tags: 2001, Adolescent, Adolescent Health Services/organization & administration, Adolescent Transitions, Adult, Backlog, Boyle MP, Continuity Of Patient Care, Cystic Fibrosis/therapy, Farukhi Z, Female, Health Care Surveys, Humans, Interviews As Topic, Journal Article, Male, Middle Aged, Nosky ML, Patient Satisfaction/statistics & Numerical Data, Pediatric Pulmonology, Questionnaires
A computerized school-based health assessment with rapid feedback to improve adolescent health
Tags: 1998, Adolescent, Adolescent Behavior, Adolescent Health Services, Adolescent Psychology, Adolescent Transitions, Backlog, Bracken AC, Clinical Pediatrics, Feedback, Female, Health Surveys, Hersh AL, Humans, Johnson DJ, Journal Article, Male, Primary Health Care, Questionnaires, School Health Services
Continuity Reexamined: Differential Impact on Satisfaction with Medical Care for Disabled and Normal Children
Tags: 1982, Adolescent, Backlog, Breslau N, Child, Consumer Satisfaction, Continuity Of Patient Care, Disabled Persons, Humans, Journal Article, Medical Care, Miller 2009 BMC HSR Refs, Ohio, Physician-patient Relations, Preschool, Primary Health Care/standards, Process Mapping, Questionnaires, Regression Analysis
The attitude of young adults with chronic disease or handicaps towards enforced treatment and euthanasia
Tags: 1999, Adolescent, Adolescent Psychology, Attitude To Death, Attitude To Health, Backlog, Brook U, Case-Control Studies, Chronic Disease/psychology, Decision Making, Disabled Persons/psychology, Euthanasia/psychology, Family/psychology, Female, Humans, Informed Consent, Israel, Journal Article, Male, Medical Futility, Patient Education and Counseling, Physician's Role, Prognosis, Quality Of Life, Questionnaires, Terminal Care/psychology, Treatment Refusal/psychology
Pediatric pain practices: a national survey of health professionals
Gender differences in parenting a child with cancer
Tags: 1996, Adaptation, Adolescent, Adult, Attitude To Health, Backlog, Barbarin OA, Brown KA, Child, Female, Gender Identity, Humans, Journal Article, Male, Models, Neoplasms/psychology, Parent caregivers, Parent-child Relations, Parenting/psychology, Parents/psychology, Preschool, Psychological, Questionnaires, Social Work in Health Care, Socialization
Survey of primary care pediatricians on the transition and transfer of adolescents to adult health care
Tags: 2008, Adolescent, Adolescent Health Services/organization & administration/statistics & numerical data, Adolescent Transitions, Adult, Backlog, Burke R, Cardosi AM, Clinical Pediatrics, Flanagan P, Health Care Surveys/methods/statistics & numerical data, Health Services Accessibility/statistics & numerical data, Health Services Needs and Demand/statistics & numerical data, Humans, Journal Article, Patient Transfer/statistics & numerical data, Pediatrics/organization & administration/statistics & numerical data, Price A, Primary Health Care/organization & administration/statistics & numerical data, Questionnaires, Rhode Island, Spoerri M, Transfer Agreement/organization & administration/statistics & numerical data
Parental assessment of pain coping in individuals with intellectual and developmental disabilities
Tags: 2011, Adaptation, Adolescent, Adult, Backlog, Breau LM, Burkitt CC, Child, Developmental Disabilities/complications/psychology, Female, Humans, Intellectual Disability/complications/psychology, Journal Article, Male, Pain Measurement, Pain/complications/psychology, Parents/psychology, Preschool, Psychological, Questionnaires, Research in Developmental Disabilities, Social Support, Young Adult, Zabalia M
End-of-life care in the pediatric intensive care unit: attitudes and practices of pediatric critical care physicians and nurses
Tags: 2001, Adult, Analysis of Variance, Attitude Of Health Personnel, Attitude To Death, Attitudes, Backlog, Burns JP, Child, Child Advocacy, Critical Care Medicine, Critical Care/organization & administration/psychology, Cross-sectional Studies, Death and Euthanasia, Decision Making, Empirical Approach, Ethics, Griffith JL, Health Knowledge, Hospital/education/psychology, Hospitals, Humans, ICU Decision Making, Intensive Care Units, Journal Article, Medical, Medical Staff, Middle Aged, Mitchell C, Multivariate Analysis, Nursing, Nursing Staff, Pediatric, Pediatrics/methods, Physician's Practice Patterns/organization & administration, Practice, Questionnaires, Terminal Care/organization & administration/psychology, Truog RD, United States
Transition process of patients with type 1 diabetes (T1DM) from paediatric to the adult health care service: a hospital-based approach
Tags: 2009, Adolescent, Adolescent Transitions, Aimaretti G, Allochis G, Backlog, Baldelli R, Bellone S, Binotti M, Bona G, Cadario F, Clinical Endocrinology, Diabetes Mellitus, Esposito S, Female, Glycosylated/metabolism, Hemoglobin A, Humans, Journal Article, Patient Satisfaction, Patient Transfer/methods, Pediatrics, Prodam F, Questionnaires, Retrospective Studies, Trada M, Type 1/metabolism/therapy, Young Adult
Trauma and growth in Canadian carers
Tags: 2003, Acquired Immunodeficiency Syndrome/psychology, Adult, Aged, AIDS care, Attitude, Backlog, Bereavement, Cadell S, Canada, Caregivers/psychology, Depression/psychology, Family, Female, Humans, Internal-External Control, Journal Article, Male, Middle Aged, Non-U.S. Gov't, Psychological, Questionnaires, Research Support, Sociology, Stress
Assessing the impact of pediatric epilepsy and concomitant behavioral, cognitive, and physical/neurologic disability: Impact of Childhood Neurologic Disability Scale
Tags: 2003, Adolescent, Backlog, Breau L, Camfield C, Camfield P, Child, Child Behavior Disorders/diagnosis/etiology, Chronic Disease, Cognition Disorders/diagnosis/etiology, Developmental Medicine and Child Neurology, Diagnostic and Statistical Manual of Mental Disorders, Disability Evaluation, Epilepsy/complications/diagnosis, Female, Follow-up Studies, Humans, Journal Article, Longitudinal Studies, Male, Preschool, Questionnaires, Reproducibility of Results
Evaluation of health status and health-related quality of life in a cohort of Italian children following treatment for a primary brain tumor
Tags: 2006, Adolescent, Adult, Backlog, Bisogno G, Brain Neoplasms/psychology/therapy, Cardarelli C, Cereda C, Child, Faggin R, Female, Health Status, Humans, Italy, Journal Article, Laverda A, Male, Masiero L, Non-U.S. Gov't, Pediatric Blood & Cancer, PedPal Lit, Perilongo G, Quality Of Life, Questionnaires, Research Support, Survivors, Viscardi E
The moral experience of parents regarding life-support decisions for their critically-ill children: a preliminary study in France
Tags: 2006, Adaptation, Attitude to Health/ethnology, Backlog, Canoui P, Carnevale FA, Child, Clinical Competence, Communication, Decision Making, Doussau A, Farrell C, Grief, Guilt, Health Services Needs And Demand, Hospitalized/psychology, Hospitals, Hubert P, Humans, ICU Decision Making, Infant, Intensive Care Units, Intensive Care/psychology, Journal Article, Journal Of Child Health Care, Lacroix J, Leclerc F, Life Support Care/psychology, Morals, Nursing Methodology Research, Parental Consent/psychology, Parents/education/psychology, Paris, Pediatric, Physician's Role/psychology, Professional-family Relations, Psychological, Qualitative Research, Questionnaires, Seguin MJ, Social Support
Creation of a neonatal end-of-life palliative care protocol
Tags: 2002, Backlog, Carter B, Catlin A, Clinical Protocols, Counseling, Culture, Delphi Technique, Empathy, Euthanasia, Family/ethnology/psychology, Humans, Infant, Internet, Journal Article, Journal Of Perinatology, Neonatology/standards, Newborn, Non-U.S. Gov't, Palliative Care/standards, Passive/psychology, Professional-family Relations, Questionnaires, Research Support, Social Support, Terminal Care/standards, Tissue and Organ Procurement, United States, Ventilator Weaning
Sleep quality moderates the association between family bereavement and heart rate variability
Tags: 2023, Almeida DM, Bereavement, Cardiovascular Diseases, Chai HW, Comparative Studies, Death, Descriptive Statistics, Family, Family Attitudes, Family Relations, Funding Source, Health Behavior, Heart Rate Variability, Human, insomnia, Jester DJ, Joo S, Journal Of Behavioral Medicine, Lee S, Psychological Distress, Psychological Well-being, Psychosocial Factors, Questionnaires, September List 2031, Sleep, Sleep Quality, surveys, Umberson DJ, United States, VULNERABILITY
Physician-assisted deaths under the euthanasia law in Belgium: a population-based survey
Tags: 2010, 80 And Over, Active, Age Factors, Aged, Assisted/legislation & jurisprudence/statistics & numerical data, Backlog, Belgium/epidemiology, Bilsen J, Canadian Medical Association Journal, Cause Of Death, Chambaere K, Cohen J, Deliens L, Euthanasia, Euthanasia/legislation & jurisprudence/statistics & numerical data, Female, Home Care Services/statistics & Numerical Data, Humans, Journal Article, Male, Middle Aged, Mortier F, Neoplasms/therapy, Onwuteaka-Philipsen BD, Prevalence, Questionnaires, Sex Factors, Suicide, Terminal Care/statistics & Numerical Data, Time Factors, Voluntary/statistics & numerical data
Family function in families of children with Duchenne muscular dystrophy
Tags: 2007, Adaptation, Adult, Age Factors, Backlog, Caregivers/psychology, Chen JY, Child, Clark MJ, Cost Of Illness, Cross-sectional Studies, Disabled Children, Duchenne/economics/physiopathology, Family & Community Health, Family Health, Family Relations, Female, Humans, Journal Article, Male, Middle Aged, Muscular Dystrophy, Parents/psychology, Preschool, Psychological, Questionnaires, Sickness Impact Profile, Social Support, Socioeconomic Factors, Stress, Taiwan
Assessing mothers' attitudes about the physician's role in child health promotion
Tags: 1996, Adolescent Transitions, Adult, American Journal Of Public Health, Attitude To Health, Backlog, Bigelow C, Charney E, Cheng TL, Child, Child welfare, DeWitt TG, Female, Health Promotion, Humans, Journal Article, Kumar S, Massachusetts, Mothers/psychology/statistics & numerical data, Physician's Role, Preschool, Questionnaires, Savageau JA
Confidentiality in health care. A survey of knowledge, perceptions, and attitudes among high school students
Tags: 1993, Adolescent, Adolescent Health Services/utilization, Adolescent Transitions, Attitudes, Backlog, Cheng TL, Community Health Centers/utilization, Confidentiality, DeWitt TG, Emergency Service, Empirical Approach, Female, Health Behavior, Health Knowledge, Hospital/utilization, Humans, JAMA, Journal Article, Male, Massachusetts, Patient Acceptance Of Health Care/statistics & Numerical Data, Physicians' Offices/utilization, Practice, Professional Patient Relationship, Questionnaires, Sattler AL, Savageau JA, School Health Services/utilization, Students
Validity of the McGill Quality of Life Questionnaire in the palliative care setting: a multi-centre Canadian study demonstrating the importance of the existential domain
Tags: 1997, Backlog, Bruera E, Cohen SR, Humans, Journal Article, Longitudinal Studies, Mental Health, Mental Status Schedule, Mount BM, Multicenter Studies as Topic, Neoplasms/psychology, Palliative Care, Palliative Medicine, Provost M, Quality Of Life, Questionnaires, Reproducibility of Results, Rowe J, Sensitivity and Specificity, Tong K
The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability
Tags: 1995, 80 And Over, Adult, Aged, Backlog, Bui F, Cohen SR, Comparative Study, Female, Human, Journal Article, Karnofsky Performance Status, Male, Middle Age, Mount BM, Neoplasms/psychology/therapy, Non-U.S. Gov't, Palliative Care, Palliative Medicine, Predictive Value of Tests, Quality Of Life, Questionnaires, Reproducibility of Results, Strobel MG, Support
Mothers' recollections of the Paediatric Intensive Care Unit: associations with psychopathology and views on follow up
Tags: 2006, Acute/diagnosis/prevention & control/psychology, Adult, Aftercare/organization & administration/psychology, Attitude To Health, Backlog, Child, Colville GA, Communication, Cross-sectional Studies, Female, Gracey D, Health Services Needs And Demand, Hospitalized, Humans, ICU Decision Making, Infant, Intensive and Critical Care Nursing, Intensive Care Units, Journal Article, Male, Mass Screening, Mothers/psychology, Nursing Methodology Research, Pediatric/organization & Administration, Preschool, Professional-family Relations, Psychiatric Status Rating Scales, Questionnaires, Retrospective Studies, Risk Factors, Severity Of Illness Index, Social Support, Stress Disorders, Traumatic
Sleep problems in children with Sanfilippo syndrome.
Tags: 1996, Backlog, Bax M, Child, Colville GA, Developmental Medicine and Child Neurology, Female, Humans, Journal Article, Longitudinal Studies, Male, Mucopolysaccharidosis III/classification, Mucopolysaccharidosis III/complications, Preschool, Questionnaires, Sleep Disorders/etiology, Sleep Disorders/therapy, Time Factors, Watters JP, Yule W
African American and Latino bereaved parent health outcomes after receiving perinatal palliative care: A comparative mixed methods case study
Tags: 2019, Adult, Anticipatory Grieving, anxiety, Applied Nursing Research, Bereavement, Blacks -- Psychosocial Factors, Comparative Studies, Côté-Arsenault D, Denney-Koelsch E M, Depression, Descriptive Statistics, February 2020 List, Female, Fetal Abnormalities -- Diagnosis, Funding Source, Health Status, Hispanics -- Psychosocial Factors, Human, Interviews, Kavanaugh K, Male, McCoy T P, Multimethod Studies, Palliative Care, Parental Attitudes, Patient Satisfaction, Perinatal Care, Perinatal Death -- Psychosocial Factors, Psychological Well-being, Qualitative Studies, Quantitative Studies, Questionnaires, scales, Self Report, Summated Rating Scaling, surveys, Treatment Outcomes
Consultation with children in hospital: children, parents' and nurses' perspectives
Tags: 2006, Attitude Of Health Personnel, Backlog, Child, Communication, Comprehension, Coyne I, Decision Making, England, Hospital/psychology, Hospitalized/psychology, Hospitals, Humans, Interviews, Journal Article, Journal of Clinical Nursing, Nurse-patient Relations, Nurse's Role, Nursing Staff, Parent-child Relations, Parents/psychology, Patient Participation, Pediatric, PedPal Lit, Questionnaires
Moving on from paediatric to adult health care: an initial evaluation of a transition program for young people with cystic fibrosis
Tags: 2007, Adolescent, Adolescent Health Services, Adolescent Transitions, Adult, Age Factors, Backlog, Bibby H, Chronic Disease, Continuity Of Patient Care/organization & Administration, Craig SL, Cross-sectional Studies, Cystic Fibrosis/psychology/therapy, Female, Humans, International Journal Of Adolescent Medicine And Health, Journal Article, Male, Middle Aged, Patient Satisfaction, Program Development, Program Evaluation, Quality Of Life, Questionnaires, Sickness Impact Profile, Time Factors, Towns S
Feeding and nutritional characteristics in children with moderate or severe cerebral palsy
Tags: 1996, Acta Paediatrica, Activities of Daily Living, Age Distribution, Anthropometry, Backlog, Case-Control Studies, Cerebral Palsy/complications, Child, Child Nutrition Disorders/etiology, Dahl M, Disabled Persons, Eating Disorders/etiology, Female, Humans, Journal Article, Male, Non-U.S. Gov't, Nutrition Assessment, Nutritional Status, Prevalence, Questionnaires, Rasmussen M, Research Support, Risk Factors, Selberg T, Thommessen M
Impact of a chronic illness in childhood: siblings' perceptions
Tags: 1996, Adolescent, Attitude To Health, Backlog, Child, Chronic Disease, Cystic Fibrosis, Derouin D, Female, Humans, Issues In Comprehensive Pediatric Nursing, Jessee PO, Journal Article, Male, Nursing Methodology Research, Pediatric Nursing, Questionnaires, sibling bereavement, Sibling Relations