Browse Items (74 total)
- Tags: Questionnaire
Listening To Parents: The Role Of Symptom Perception In Pediatric Palliative Home Care
Tags: 2016, Adult, Borasio GD, Brandstatter M, Cross Sectional Study, Death, Duroux A, Dyspnea/di [diagnosis], Female, Führer M, Grasser M, Home Care, Human, January 2017 List, Male, Pain/di [diagnosis], Palliative & Supportive Care, Palliative Therapy, Parent, Pediatrics, Perception, Procedures, Psychology, Quality Of Life, Questionnaire, Retrospective Study, Standards, Symptom Assessment, Vollenbroich R
Quality Of Care Collaborative For Paediatric Palliative Care In Australia (quocca)
Tags: 2017, anxiety, Australia, Baggio S, Burr C, Child, Clinical Trial, Delaney A, Diagnosis, Donovan L, Duc J, Duffield J, Dyspnea, Education, Family Study, Female, Fleming S, Herbert A, Heywood M, Human, Hynson J, Irving H, Johnson S, Major Clinical Study, Male, McLarty A, Momber S, Nausea, Nurse, October 2017 List, Pain, Palliative Therapy, Patient Referral, Pedersen LA, Pediatric Blood and Cancer, Phillips M, Questionnaire, Ryan S, Seizure, Slater P, Staff, Symptom, Telehealth, Terminal Care, Trethewie S
A Prospective Study On The Characteristics And Subjects Of Pediatric Palliative Care Case Management Provided By A Hospital Based Palliative Care Team
Tags: 2017, BMC Palliative Care, Bosman DK, Caron HN, Case Management, Child, Clergy, Colenbrander DA, Controlled Study, Grootenhuis MA, Hospital, Human, Jagt Van Kampen CT, Kars MC, Major Clinical Study, March 2017 List, Nurse, Palliative Therapy, Prospective Study, Psychologist, Questionnaire, Schouten-Van Meeteren AYN, Social Worker
Volunteer Activity In Specialist Paediatric Palliative Care: A National Survey
Tags: 2015, Adolescent, Adult, BMJ Supportive & Palliative Care, Bravery R, Burbeck R, Candy B, Cross-sectional Study, England, Female, Health Care Survey, Home Care, Hospice, Hospice Care, Hospital Volunteer, Human, Internet, Low J, Male, Organization And Management, Palliative Therapy, Pediatrics, Procedures, Questionnaire, Sampson E L, Scott R, September 2017 List, Specialization, Statistics And Numerical Data, Young Adult
Assessing the quality of bereavement care after perinatal death: development and piloting of a questionnaire to assess parents' experiences
Late Effects of Treatment and Palliative Care
Tags: 147-94-4 (cytarabine), 154-93-8 (carmustine), 15475-56-6 (methotrexate), 15663-27-1 (cisplatin), 2017, 26035-31-4 (cisplatin), 59-05-2 (methotrexate), 69-74-9 (cytarabine), 7413-34-5 (methotrexate), 96081-74-2 (cisplatin), Advance Care Planning, Appetite Disorder, Banerjee A, Bone Density, Brain Tumor, Carmustine, Central Nervous System Tumor, Chang E, Childhood Cancer Survivor, Cisplatin, Constipation, Corticosteroid, Cytarabine, Diarrhea, Dyspnea, Endocrine Disease, Fatigue, Genetic Polymorphism, Goldsby R, Health Care Quality, Human, Incidence, Medical Decision Making, Medulloblastoma, Methotrexate, Morbidity, Mortality Rate, Mueller S, Nausea And Vomiting, Neuroectoderm Tumor, Neuropathic Pain, Neuropsychological Test, November 2017 List, Pain Assessment, Palliative Therapy, Patient Care, Pediatric Oncology, Phase 1 Clinical Trial (topic), Priority Journal, Psychosocial Disorder, Quality Of Life, Questionnaire, Radiation Injury, Respiration Depression, Seizure, Signal Transduction, Spasticity
Palliative radiation therapy for pediatric patients: Parental perceptions
Tags: 2017, Analgesia, Apkon D, Brain, Breathing, Cancer Staging, Child, Comfort, December 2017 List, Disease Course, Expectation, Female, Human, Institutional Review, International Journal Of Radiation Oncology Biology Physics, Lee BKY, Male, Marcus KJ, Palliative Therapy, Perception, Prevention, Prospective Study, Quality Of Life, Questionnaire, Radiotherapy, Spinal Cord Compression, Statistics, Wolfe J
Home-Based Palliative Care for Children With Incurable Cancer: Long-term Perspectives of and Impact on General Practitioners
Tags: 2017, Bindels PJE, Cancer Epidemiology, Child, Controlled Study, Cross-sectional Study, Darlington ASE, Death, Distress Syndrome, Doctor Patient Relation, Fatigue, General Practitioner, Human, Human Versus Animal Comparison, Journal of Pain and Symptom Management, Major Clinical Study, Michiels EMC, Nonhuman, Oncology 2017 List, Pain, Palliative Therapy, Panic, Pieters R, Pluijm SMF, Powerlessness, Questionnaire, Sadness, Symptom, Thermometer, van den Heuvel-Eibrink MM, van der Geest IMM, van der Heide A
Attitudes on pain and opioid prescription practices in cystic fibrosis centers
Tags: 2017, 53663-61-9 (opiate), 8002-76-4 (opiate), 8008-60-4 (opiate), Adult, Analgesia, anxiety, Child, Chronic Pain, cyst, Cystic Fibrosis, drug combination, Female, Hollatz T, Human, January 2018 List, Laxova A, Life Expectancy, Male, Meyer KC, Mood, Mukadam Z, Nurse, Opiate, opiate addiction, Palliative Therapy, Pediatric Pulmonology, prescription, Prevalence, Quality Of Life, Questionnaire, sinus headache, thorax wall, Yang Y
Moral distress in PICU and neonatal ICU practitioners: A cross-sectional evaluation
Tags: 2017, Adult, Article, Burnout, Correlation Analysis, Cross-sectional Study, Demography, Distress Syndrome, Dryden-Palmer KD, Female, Gibbons C, health practitioner, Hospital care, Human, Intensive Care, January 2018 List, Larson CP, linear regression analysis, Major Clinical Study, Male, Maslach Burnout Inventory Depersonalization Subscale, Middle Aged, Mishel Parent Perception of Uncertainty Scale, Morality, Neonatal Intensive Care Unit, Nurse, outcome assessment, Parshuram CS, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Physician, Priority Journal, Prognosis, Questionnaire, Rating Scale, Revised Moral Distress Scale, Terminal Care, tertiary care center, Uncertainty, Work, Young Adult
Challenges to code status discussions for pediatric patients
Undergraduate nursing students' attitudes and preparedness toward caring for dying persons - A longitudinal study
Tags: 2017, Adolescent, Adult, Attitude To Death, Bergh I, Browall M, Ek K, Female, Hammarlund K, Health Personnel Attitude, Henoch I, Human, January 2018 List, longitudinal study, Lundh Hagelin C, Male, Melin-Johansson C, Middle Aged, Nurse Education In Practice, nursing education, nursing student, Osterlind J, Procedures, Psychology, Questionnaire, Strang S, Sweden, Terminal Care, Westin L
Perinatal palliative care after a stillbirth - Midwives experiences of using Cubitus baby
Tags: 2017, Bmc Pregnancy And Childbirth, Cold, Cold Temperature, Content Analysis, cooling, February 2018 List, Female, Human, Human Dignity, Infant, Listermar KH, Major Clinical Study, Male, midwife, Midwifery, Palliative Care, Palliative Therapy, Parents, Questionnaire, Rådestad I, Refrigeration, Stillbirth, Sweden
What do transplant physicians think about palliative care? A national survey study
Tags: 2017, Adult, Blood, bone marrow, Burns LJ, Caregiver, Child, conference abstract, Denzen E, El-Jawahri A, Female, friend, Graft Recipient, graft versus host reaction, hematologic disease, Hematopoietic stem cell transplantation, Hispanic, Hospice, Human, Human Tissue, LeBlanc TW, Male, March 2018 List, Mau LW, medical oncologist, Meyer CL, outpatient care, Palliative Therapy, Patient Referral, Perception, Petersdorf E, Questionnaire, Roeland EJ, Trust, United States, Wood WA
Physician perspectives on end-of-life care and pediatric palliative care for children in the Republic of Korea
Tags: 2017, Adult, Advance Care Planning, Child, Cogent Medicine, conference abstract, Death, Deterioration, Diagnosis, Female, financial management, Human, Interview, June 2018 List, Kim C H, Kim M S, Life Sustaining Treatment, Male, Organization, Palliative Therapy, Perception, psychosocial care, Questionnaire, Song IG, South Korea, tertiary care center, Yu J
Moral distress, trauma and burnout in staff in relation to changes in picu outcomes, challenging cases and media involvement in disagreements about end-of-life care
Tags: 2018, Adult, Archives of Disease in Childhood, Awareness, Berger Z, Brierley J, Burnout, Child, Colville G, conference abstract, Controlled Study, court, Death, depersonalization, Disability, Emotional Stress, Human, June 2018 List, Life Sustaining Treatment, Morality, Nurse, PostTraumatic Stress Disorder, Questionnaire, Rutt M, Staff, Terminal Care, Titman P, Wellbeing
End-of-life decisions and practices for very preterm infants in the Wallonia-Brussels Federation of Belgium
Tags: 2018, Article, Aujoulat I, Bmc Pediatrics, Broux I, Brussels Capital Region, Cavatorta E, Charon A, Clinical Practice, Debauche C, Dussart A, Female, Flausch M, Gestational Age, Haumont D, Henrard S, Henrion E, Human, Infant, Johansson AB, Kalenga M, Langhendries JP, Lecart C, Major Clinical Study, Male, Marechal Y, Maton P, Mostaert A, Muller MF, Neonatologist, Neonatology, Newborn, Palliative Therapy, perinatal period, Prematurity, Qualitative Research, Questionnaire, September 2018 List, Sepulchre B, Terminal Care, Uncertainty, Van Herreweghe I, Van Overmeire B, Vanden ES, Verellen G, Vermeylen D, Vlieghe V, Wallonia
Parents' perspectives on losing a child due to life-limiting diagnoses: A population-based study
Tags: 2018, Adult, August 2018 List, Cause Of Death, Child, conference abstract, Denmark, Diagnosis, directory, Distress Syndrome, Ekholm O, Female, Human, Lykke C, Major Clinical Study, Male, Malignant Neoplasm, Olsen M, Palliative Medicine, Palliative Therapy, Quality Of Life, Questionnaire, Schmiegelow K, Sjogren P, Wales, Young Adult
Beyond mortality: Assessing pediatric palliative needs
Tags: 2018, August 2018 List, Bone Marrow Transplantation, Child, conference abstract, Controlled Study, Diagnosis, Female, General Practitioner, Gielissen K, Hematology, heme, Hospital Patient, Human, Journal of Palliative Medicine, Major Clinical Study, Male, Marquez A, Massaro S, Morbidity, Mortality, Murtha TD, Nausea, Needs Assessment, Neonatal Intensive Care Unit, Oncology, Pain, Palliative Therapy, Patient Referral, Pediatric Intensive Care Unit, Prozora S, Questionnaire, Resident, Surgery, tertiary health care
Pediatric palliative care and resident education
Tags: 2018, August 2018 List, Child, Comfort, conference abstract, Curriculum, Decision Making, Dietzen D, Exercise, Hospice, Hospital Patient, Human, Internal Medicine, Journal of Palliative Medicine, Kim G, Outpatient, Pain, Palliative Therapy, Pediatrician, Pediatrics, Penney J, primary medical care, Questionnaire, Resident, Simulation, Survival, terminal disease
Qualitative evaluation of the impact of a paediatric palliative care family support volunteering project
Tags: 2018, August 2018 List, Chambers L, Child, conference abstract, Controlled Study, Female, gardening, housekeeping, Human, Human Experiment, Leadership, Major Clinical Study, Male, McNamara K, Palliative Medicine, Palliative Therapy, Qualitative Analysis, Quality Of Life, Questionnaire, Scott R, Semi Structured Interview, shopping, Sibling, Skill, Staff, Volunteer
Awareness of pediatric palliative care among health care workers
Decision-making at the limit of viability: Differing perceptions and opinions between neonatal physicians and nurses
Tags: 2018, Adult, Article, assisted ventilation, Barbara D, Baumann-Hölzle R, Berger TM, Bmc Pediatrics, Brigitte S, Bucher HU, Controlled Study, enteric feeding, Fauchère JC, Female, Gudrun J, Hendriks MJ, hospital policy, Human, Infant Mortality, Jean-Claude F, Kai R, Klein SD, Legal Aspect, Liliane S, Magali C, Male, Mathias N, Matthias R, Medical Decision Making, Medical Practice, Neonatal Intensive Care Unit, Neonatal Nurse, Neonatologist, nurse attitude, October 2018 List, Patient Participation, Philipp M, Physician Attitude, Prematurity, Questionnaire, Religion, Renate I, Riccardo P, Roland N, Ruth D, September 2018 List, Streuli JC, Switzerland, Terminal Care, Ulrike S, work experience
Opinions of Israeli neonatologists about life and death decisions in neonates
Tags: 2018, Adult, Age, Article, Bin-nun A, Demography, disabled person, Disease Severity, Dying, Ethnicity, Family Attitude, Female, Health Care Cost, Human, Israel, Israeli, Journal Of Perinatology, Kasirer MY, Male, Medical Decision Making, Medical Ethics, medicolegal aspect, Middle Aged, Mimouni FB, Neonatal Intensive Care Unit, Neonatologist, Normal Human, November 2018 List, Personal Experience, Physician Attitude, Prospective Study, psychological well being, Questionnaire, Religion, Schimmel MS, sex difference, Simulation, Terminal Care
Attitudes of the four groups of population toward end-of-life care of their child: A nationwide survey
Tags: 2018, Adult, Cancer Patient, Caregiver, Child, Choi YH, conference abstract, Controlled Study, Female, Health Care System, Hospice, Human, Kim YS, Lee B, Life Sustaining Treatment, Lifespan, Major Clinical Study, Male, Multicenter Study, November 2018 List, Palliative Therapy, Park JD, Pediatric Critical Care Medicine, pediatric patient, Physician, population group, Questionnaire, Terminal Care, Yun YH
Specialist palliative care service for children with life-threatening conditions in Japan: A nationwide survey of resources and utilization
Japanese physicians' attitudes toward end-of-life discussion with pediatric patients with cancer
Tags: 2018, Adolescent, Adult, anxiety, Article, Cancer Patient, Child, Controlled Study, Death, Dotani C, Human, Inoguchi H, Kato M, Kobayashi M, Malignant Neoplasm, Multicenter Study, Nakahara R, Ogawa C, Oncology 2018 List, Oshima Y, Palliative Therapy, pediatric patient, Pediatrician, Questionnaire, Shimizu K, Supportive Care In Cancer : Official Journal Of The Multinational Association Of Supportive Care In Cancer, Yoshida S
The utilization of palliative care units by children with cancer: A nationwide survey
The use of a theatre workshop in developing effective communication in paediatric end of life care
Tags: 2019, Article, Bereavement Support, Child, Clinical Practice, Communication Skill, Convenience Sample, Human, Human Experiment, Learning, May 2019 List, Neilson S J, Nurse Education In Practice, nursing student, Perception, quantitative analysis, Questionnaire, Reeves A, Registration, Statistics, Teaching, Terminal Care
Building trust and improving communication with parents of children with Trisomy 13 and 18: A mixed-methods study
Tags: 2019, adverse event, Article, Barrington KJ, Bourque CJ, Brazg T, Child, Clinician, Death, Decision Making, Disability, Ethics, Farlow B, Female, Human, Janvier A, Major Clinical Study, Male, Palliative Medicine, Palliative Therapy, Questionnaire, September 2019 List, Social Support, Thematic Analysis, Trisomy 13, Trisomy 18, Trust, Wilfond B
A cross-sectional survey of services for young adults with life-limiting conditions making the transition from children's to adult services in Ireland
Anxiety and depression in bereaved parents after losing a child due to life-limiting diagnoses: A Danish nationwide questionnaire survey
Tags: 2019, Adult, anxiety, Article, Bereavement, Center for Epidemiological Studies Depression Scale, Child, Controlled Study, Denmark, Depression, Education, Ekholm O, Father, Female, Human, Journal of Pain and Symptom Management., Lykke C, Major Clinical Study, Male, Mother, Olsen M, Palliative Therapy, Questionnaire, Schmiegelow K, September 2019 List, single (marital status), Sjogren P, Young Adult
The chameleon project: A children's end of life care quality improvement project: Preliminary results
Tags: 2019, Archives of Disease in Childhood, August 2019 List, Bereavement, Brown J, Child, Child Death, conference abstract, Connolly A, Controlled Study, Cost Control, Documentation, Dorsett C, England, Griffin H, Haynes S, Hospital Admission, Human, Kelly N, Newborn, Palliative Therapy, Pediatric Intensive Care Unit, preliminary data, Questionnaire, Teaching, Terminal Care, Total Quality Management, Turnbull J, Wolff A
Challenges experienced by paediatricians providing palliative care to children; A thematic analysis
Tags: 2019, Archives of Disease in Childhood, Australia, Balfe J, Child, conference abstract, Controlled Study, Death, Devins M, E-mail, Expectation, Female, Health Care System, Holistic Care, Human, Human Experiment, Learning, Major Clinical Study, Male, Molloy E, Needs Assessment, O'Reilly M, October 2019 List, Palliative Therapy, Pediatrician, Pediatrics, Questionnaire, Social Welfare, specialist registrar, Thematic Analysis, Twomey M, Whitla L
Efficacy of the Paediatrics Palliative Care Team of Murcia according to the experience of the parents
Tags: 2019, Anales de Pediatria., Article, Barbieri G, Bellavia N, Bereavement Support, Bermudez Cortes M D M, Child, Controlled Study, Death, End-of-life Care, Female, Galera Minarro A M, Garcia-Marcos B P, Human, Human Experiment, Improvements, Male, Navarro M A, Newborn, Observational Study, October 2019 List, Paediatric, Palliative Care, Palliative Therapy, Parental Perspectives, Pediatrician, Pediatrics, Plaza Fornieles M, Questionnaire, Retrospective Study, Satisfaction, shared decision making, Survey, Terminal Care
Approaches to community-based palliative care provision by children's hospices in the UK
Tags: 2019, Advance Care Planning, Article, Child, Child Health, Controlled Study, Female, Human, Human Experiment, Internet, Major Clinical Study, Male, November 2019 List, Nursing children and young people., out-of-hours care, palliative nursing, prescription, Questionnaire, registered nurse, Tatterton MJ, Telephone, workforce
Perceptions of Pediatric Palliative Care among Physicians Who Care for Pediatric Patients in South Korea
Tags: 2019, Article, care behavior, Caregiver, Child, Controlled Study, December 2019 List, Decision Making, Education, Human, Journal of Palliative Medicine, Kim CH, Kim MS, Moon YJ, Multicenter Study, Oncologist, Palliative Therapy, pediatric patient, Perception, Prognosis, Quality Of Life, Questionnaire, Shin HY, Song IG, South Korea, Terminal Care, tertiary care center, workforce, Yu J
Pediatric leukodystrophies: The role of the otolaryngologist
Tags: 1309378-01-5 (botulinum toxin A), 1638949-86-6 (botulinum toxin A), 1800016-51-6 (botulinum toxin A), 2017, 93384-43-1 (botulinum toxin A), Adolescent, Adult, Aicardi-Goutières syndrome, anamnesis, Article, aspiration pneumonia, Assessment, Bernard G, botulinum toxin A/dt [Drug Therapy], breathing difficulties, characteristics, Child, Clinical Article, Cohort Analysis, Comorbidity, Daniel S J, Drool, drooling, Dysphagia, feeding difficulties, head and neck disease, hearing impairment, Human, hypersalivation/su [Surgery], International Journal of Pediatric Otorhinolaryngology, Kay-Rivest E, Khendek L, Krabbe disease, Leukodystrophy, leukodystrophy/dt [Drug Therapy], nose feeding, otolaryngologist, Pelizaeus-Merzbacher disease, physical examination, Physician Attitude, Priority Journal, Quality Of Life, quality of life assessment, Questionnaire, sleep disturbance, stomach tube, Trajectory, x-linked adreno-leukodystrophy
Sleep problems in individuals with 11q terminal deletion disorder (Jacobsen syndrome)
Tags: 11q terminal deletion disorder, 2008, Behavior, Biotechnology & Applied Microbiology, Braam W J, characteristics, Children, Curfs L M G, Didden R, Disabilities, disturbance, Ethics, Genetic Counseling, Genetics & Heredity, Grossfeld P D, Jacobsen syndrome, Korzilius H, Maas A, Medical, Questionnaire, Research & Experimental Medicine, Sleep, sleep disturbance/disorders, sleep problems, Smits M G, Trajectory
Autonomic breathing abnormalities in Rett syndrome: Caregiver perspectives in an international database study
Tags: 2017, abdominal bloating, Adult, Article, autonomic dysfunction, bloating, breath holding, breath-holding, breathing difficulties, breathing disorder, Breathing disorders, breathing pattern, Caregiver, characteristics, Child, Data Base, Developmental Disability, Downs J, Epstein A, Female, Genotype, Heyworth J, Human, hyperventilation, International database, Journal of Neurodevelopmental Disorders, Leonard H, MacKay J, Male, mecp2, Mutation, Noninvasive Ventilation, onset age, oxygen, Priority Journal, Questionnaire, Rare disorder, rebreathing, Rett syndrome, School Child, Trajectory, Wong K