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40
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/0269216307083032" target="_blank" rel="noreferrer">http://doi.org/10.1177/0269216307083032</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Supportive and palliative care needs of families of children with life-threatening illnesses in Western Australia: evidence to guide the development of a palliative care service
Publisher
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Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Child; Humans; Terminally Ill; Critical Illness; Family Health; Western Australia; patient care team; Q3 Literature Search; Parents/psychology; social support; Quality of Health Care/organization & administration/standards; Community Health Nursing/organization & administration/standards; Palliative Care/organization & administration/psychology/standards
Creator
An entity primarily responsible for making the resource
Monterosso L; Kristjanson LJ; Aoun S; Phillips MB
Description
An account of the resource
OBJECTIVE: To obtain feedback from families of children receiving palliative and supportive care about their care needs in hospital and in community settings. DESIGN: A two-phase combined quantitative and qualitative study. SETTING: Western Australia. PARTICIPANTS: 134 parents and 20 service providers. RESULTS: Analysis indicated the concept of palliative care is poorly understood by health professionals and by parents. Many families are affected emotionally, financially and physically by the burden of caring for children with life threatening or chronic conditions requiring complex care at home. Parents indicated the need for clear and honest information about their child's condition and prognosis throughout the trajectory of illness and perceived this had been lacking. Families required financial and practical assistance with providing care from their children at home. Parents also wanted more practical resources and information to assist with the management of their child's nutrition and pain, as well as support for their other children. The level of respite (in home and residential) was perceived to be insufficient and inequitable. Parents also required access to, and advice from, multidisciplinary health professionals when caring for their child at home. There was a perceived lack of coordination between community services and the hospital. CONCLUSION: Education of health professionals and parents regarding the concepts and introduction of palliative and supportive care is required. Care for children and their families should be coordinated by a multidisciplinary team in consultation with children and their families, and linked and integrated with the treating hospital in collaboration with community services. More inclusive criteria are required for community services including practical aids and respite care.
2007
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/0269216307083032" target="_blank" rel="noreferrer">10.1177/0269216307083032</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
Aoun S
Backlog
Child
Community Health Nursing/organization & administration/standards
Critical Illness
Family Health
Humans
Journal Article
Kristjanson LJ
Monterosso L
Palliative Care/organization & administration/psychology/standards
Palliative Medicine
Parents/psychology
Patient Care Team
Phillips MB
Q3 Scoping Review Results
Quality of Health Care/organization & administration/standards
Social Support
Terminally Ill
Western Australia
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1365-2214.2004.00440.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2214.2004.00440.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Good practices that address continuity during transition from child to adult care: synthesis of the evidence
Publisher
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Child: Care, Health And Development
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Child; Humans; Family; Adult; Research Design; adolescent; Models; Adolescent Transitions; PST - ppublish; Organizational; Adolescent Health Services/organization & administration/standards; AID - 10.1111/j.1365-2214.2004.00440.x [doi]; AID - CCH440 [pii]; Child Health Services/organization & administration/standards; Continuity of Patient Care/organization & administration/standards; CRDT- 2004/08/24 05:00; Delivery of Health Care/organization & administration/standards; EDAT- 2004/08/24 05:00; Health Services/standards; MHDA- 2005/02/04 09:00; Quality of Health Care/organization & administration/standards
Creator
An entity primarily responsible for making the resource
While A; Forbes A; Ullman R; Lewis S; Mathes L; Griffiths P
Description
An account of the resource
BACKGROUND: Effective transition to adult services is required by an increasing number of children with ongoing needs. AIM: To identify practices that promote continuity at transition between child and adult services. METHODS: Systematic examination of the evidence from two search strategies yielding 5319 items. RESULTS: Only three of the 126 appraised items had strong external validity. A large range of different practices, which focused on the service, the young person and the family, were identified. Practices within the service addressed structural, process and outcome components. CONCLUSION: Four transition models are proposed for testing.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1365-2214.2004.00440.x" target="_blank" rel="noreferrer">10.1111/j.1365-2214.2004.00440.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Adolescent
Adolescent Health Services/organization & administration/standards
Adolescent Transitions
Adult
AID - 10.1111/j.1365-2214.2004.00440.x [doi]
AID - CCH440 [pii]
Backlog
Child
Child Health Services/organization & administration/standards
Child: Care, Health and Development
Continuity of Patient Care/organization & administration/standards
CRDT- 2004/08/24 05:00
Delivery of Health Care/organization & administration/standards
EDAT- 2004/08/24 05:00
Family
Forbes A
Griffiths P
Health Services/standards
Humans
Journal Article
Lewis S
Mathes L
MHDA- 2005/02/04 09:00
Models
Organizational
PST - ppublish
Quality of Health Care/organization & administration/standards
Research Design
Ullman R
While A