Browse Items (346 total)

Tags: 2016, August 2016 List, Children & Youth, Epilepsy, L Chong, Pediatrics, Qualitative Research, Quality Of Life, Systematic Review

Tags: 2016, Astrid Guttmann, Brain-damaged Children, Child, Chrinna Balasingham, Clinical-trials, Eyal Cohen, Gastroesophageal-reflux, Health Aspects, Home Enteral Nutrition, Jonathon L Maguire, July 2016 List, Kariym C Joachim, Katherine Nelson, Mahant Sanjay, Martin Offringa, Mufiza Z Kapadia, Neurologic Manifestations Of General Diseases, Pediatrics, Percutaneous Endoscopic Gastrostomy, Quality Of Life, Randomized Controlled-trials, Research, Severe Cerebral-palsy, Single-center Experience, Video-assisted Gastrostomy

Tags: 2016, Adolescent, Archives of Disease in Childhood, Beringer A, Child, Child Preschool, Disabled Children/psychology, Family, Female, Fletcher M, Harris N, Hospice, Humans, Infant, Internet, July 2016 List, Longitudinal Studies, Male, Outcome, Palliative Care, Parents, Parents/psychology, Power (psychology), Quality Of Life, Quality Of Life/psychology, Social Support, Surveys And Questionnaires, United Kingdom, Young Adult

Tags: 2016, Altstein

LL, Attitude Of Health Personnel, Buxton D, Curriculum, Cystic Fibrosis, Cystic Fibrosis/psychology, Cystic Fibrosis/therapy, Disease Management, Education, End-of-life Care, Female, Friedman D, Georgiopoulos AM, Health Personnel/education, Health Personnel/psychology, Humans, Journal of Cystic Fibrosis, Linnemann RW, Male, March 2016 List, Middle Aged, Needs Assessment, O’Malley PJ, Palliative Care, Palliative Care/methods, Palliative Care/psychology, Quality Of Life, Surveys And Questionnaires, Terminal Care/methods, Terminal Care/psychology, United States

Tags: 2016, Cancer-patients, Health Care Sciences & Services Associations, Journal of Palliative Medicine, Kelly JA, Maurer SH, May 2016 List, May CS, Pediatric Palliative Care, Quality Of Life, Religion

Tags: 2016, Advanced Heart-disease, Axelrod DM, Bernstein D, Cardiac & Cardiovascular Systems, Cohen H, Destination Therapy, End Of Life Care, Expert Consensus Statement, Hollander SA, Implantable Electronic Devices, Kaufman BD, Magnus D, May 2016 List, Mechanical Circulatory Support, Mechanical Support, Palliative Care, Patients Nearing End, Pediatrics, Quality Of Life, Reddy S, Requesting Withdrawal, Respiratory System, Rosenthal DN, Sourkes B, Surgery, Sustaining Treatment, The Journal of Heart and Lung Transplantation, Transplantation, United States, Ventricular Assist

Tags: 2016, Cambridge Quarterly of Healthcare Ethics, Children, Decision Making/ethics, Ethics Medical, Female, Humans, Hydrocephalus, Hydrocephalus/diagnosis, Hydrocephalus/therapy, Infant, Infant Premature, Intensive Care Neonatal/ethics, Male, May 2016 List, Medical Ethics, Medical Futility, Medical Futility/ethics, Neonatal Intensive Care Unit, Postnatal Care/ethics, Quality Of Life, Severity Of Illness Index, Ventriculoperitoneal Shunt/ethics, Wilkinson D, Withdrawing Treatment, Withholding Treatment/ethics

Tags: 2016, Adjustment, Childhood-cancer, Cohen SR, Dumont S, Families, Health Policy & Services, Instrument Scni, May 2016 List, Needs, Olivier d’avignon M, Palliative & Supportive Care, Palliative Care, Pediatric Palliative Care, Pediatrics, Quality Of Life, Questionnaire Development, Siblings., Support, Unmet Needs, Valois P, Young-people

Tags: 2016, Adjustment, Behaviour Problems, Child: Care, Health and Development, Emotional Disorders, Families & Family Life, Fullerton JM, Hain R, Hastings RP, Impact On Siblings, Life-limiting, November 2016 List, Quality Of Life, Siblings, Totsika V

Tags: 2016, Child, Coombes LH, Journal of Palliative Medicine, Lucas G, Murtagh FE, November 2016 List, Outcome Assessment (healthcare), Palliative Care, Pediatrics, Psychometrics, Quality Of Life, Sangha A, Wiseman T

Tags: 2016, Chronic Illness, Davis KG, Hospice, Life-limiting, Life-threatening, November 2016 List, Pediatric Clinics of North America, Pediatric Palliative Care, Quality Of Life, School, Transition

Tags: 2016, Critical Treatment Decision, de Vos MA, Decision Making, Decision-making, Developmental-disabilities, End Of Life, Ewals FV, Humans, Integrative Review, October 2016 List, Parents, Quality Of Life, Research in Developmental Disabilities, Severe Developmental Disorder, Severity Of Illness Index, Terminal Care, To Advocate, van Goudoever JB, Willems DL, Zaal-Schuller IH

Tags: 2016, Baker J, Broniscer A, Clinical Neurology, Diffuse Intrinsic Pontine Glioma, Gajjar A, Gattuso J, Impact, Journal of Neuro-Oncology, Levine D, Mandrell B, Module, Oncology, Palliative Care, Pediatric Brain Tumor, Pediatric Cancer, Pedsql(tm), Quality Of Life, Reliability, September 2016 List, Sykes A, Validity, West N

Tags: 2016, Adult, Artificial Ventilation, Cancer Epidemiology, Cantero EQ, Carro CC, Cerebral Palsy, Child, Chromosome Disorder, Cognitive Defect, Controlled Study, Cross-sectional Studies, Cross-sectional Study, Death, European Respiratory Journal, Follow Up, Gaboli M, Garrido MM, Human, Lung Disease, Major Clinical Study, May 2017 List, Mucopolysaccharidosis, Neuromuscular Disease, Only Child, Palliative Care, Palliative Therapy, Pecellin ID, Quality Of Life, Respiration Artificial, Respiratory Insufficiency, Rodriguez LMR, Spain, University Hospital, Valencia JPG, Ventilators Mechanical, Young Adult

Tags: 2016, Adult, Borasio GD, Brandstatter M, Cross Sectional Study, Death, Duroux A, Dyspnea/di [diagnosis], Female, Führer M, Grasser M, Home Care, Human, January 2017 List, Male, Pain/di [diagnosis], Palliative & Supportive Care, Palliative Therapy, Parent, Pediatrics, Perception, Procedures, Psychology, Quality Of Life, Questionnaire, Retrospective Study, Standards, Symptom Assessment, Vollenbroich R

Tags: 2016, Brain Damage, Child, Chromosome Disorder, Chromosome Disorders, Complication, Controlled Study, Dyspnea, Family Study, Gene Deletion, Hospice, Hospital, Human, June 2017 List, Length Of Stay, Life Expectancy, Medical Service, Metabolic Disorder, Neuromuscular Disease, Neuropediatrics, Only Child, Pain, Palliative Care, Palliative Therapy, Pietz J, Quality Of Life, Seizure, Spasticity, Spiritual Care, Symptom

Tags: 2016, Bereavement Counseling, Central Nervous System Tumor, Child, Child Care, Chromosome Aberration, Controlled Study, Coordination, Diagnosis, Family Study, Germany, Human, Human Experiment, June 2017 List, Metabolic Disorder, Neurologic Disease, Neurology, Neuropediatrics, Nolte-Buchholtz S, Only Child, Pain, Palliative Care, Palliative Therapy, Quality Of Life, Spiritual Care, Terminal Care, Von Der Hagen M

Tags: 2016, Behaviour Problems, Child: Care, Health and Development, Fullerton JM, Hain R, Hastings RP, Impact On Siblings, June 2017 List, Life-limiting, Quality Of Life, Totsika V

Tags: 103-90-2 (paracetamol), 1095-90-5 (methadone), 1134-47-0 (baclofen), 124-90-3 (oxycodone), 125-56-4 (methadone), 133-16-4 (chloroprocaine), 1333-08-0 (benzocaine), 136-47-0 (tetracaine), 137-58-6 (lidocaine), 15307-79-6 (diclofenac), 15307-86-5 (diclofenac), 15687-27-1 (ibuprofen), 18010-40-7 (bupivacaine), 2017, 2180-92-9 (bupivacaine), 23142-53-2 (methadone), 24847-67-4 (lidocaine), 297-88-1 (methadone), 31121-93-4 (ibuprofen), 38396-39-3 (bupivacaine), 3858-89-7 (chloroprocaine), 40391-99-9 (pamidronic Acid), 437-38-7 (fentanyl), 52-26-6 (morphine), 52485-79-7 (buprenorphine), 527688-20-6 (ibuprofen), 53152-21-9 (buprenorphine), 55750-21-5 (bupivacaine), 56934-02-2 (lidocaine), 57-27-2 (morphine), 57248-88-1 (pamidronic Acid), 66376-36-1 (alendronic Acid), 73-78-9 (lidocaine), 74103-06-3 (ketorolac), 76-42-6 (oxycodone), 76-57-3 (codeine), 76-99-3 (methadone), 79261-49-7 (ibuprofen), 94-09-7 (benzocaine), 94-24-6 (tetracaine), Alendronic Acid/ct [clinical Trial], Alendronic Acid/dt [drug Therapy], Analgesia, Baclofen/ct [clinical Trial], Baclofen/dt [drug Therapy], Beecham E, Benzocaine/ct [clinical Trial], Benzocaine/dt [drug Therapy], Bluebond-Langner M, Bupivacaine/ct [clinical Trial], Bupivacaine/dt [drug Therapy], Buprenorphine/ct [clinical Trial], Buprenorphine/dt [drug Therapy], Candy B, Cerebral Palsy, Chloroprocaine/ct [clinical Trial], Chloroprocaine/dt [drug Therapy], Cochrane Database of Systematic Reviews, Codeine/ct [clinical Trial], Codeine/dt [drug Therapy], Diclofenac/ct [clinical Trial], Diclofenac/dt [drug Therapy], Drug Clearance, Drug Efficacy, Drug Safety, Fentanyl/ct [clinical Trial], Fentanyl/dt [drug Therapy], Functional Status, Howard R, Human, Ibuprofen/ct [clinical Trial], Ibuprofen/dt [drug Therapy], Jones L, Ketorolac/ct [clinical Trial], Ketorolac/dt [drug Therapy], Laddie J, Length Of Stay, Lidocaine/ct [clinical Trial], Lidocaine/dt [drug Therapy], McCulloch R, Methadone/ct [clinical Trial], Methadone/dt [drug Therapy], Morphine/ct [clinical Trial], Morphine/dt [drug Therapy], Neuropathic Pain/dt [drug Therapy], Nociceptive Pain/dt [drug Therapy], Osteogenesis Imperfecta, Oxycodone/ct [clinical Trial], Oxycodone/dt [drug Therapy], Pain Intensity, Pain Severity, Pamidronic Acid/ct [clinical Trial], Pamidronic Acid/dt [drug Therapy], Paracetamol/ct [clinical Trial], Paracetamol/dt [drug Therapy], Priority Journal, Psychological Well-being, Quality Of Life, Randomized Controlled Trial (topic), Rees H, Review, Risk Benefit Analysis, September 2017 List, Tetracaine/ct [clinical Trial], Tetracaine/dt [drug Therapy], Treatment Outcome, Vickerstaff V

Tags: 2017, Bace S, Children (Basel), Darnall C, Macfadyen A, October 2017 List, Patient Reported Outcomes, Pediatric Palliative Care, Quality Of Life, Vail C, Weaver M, Wichman C

Tags: 2017, anxiety, Attention, Baker J, Child, Constipation, Diarrhea, Family, Female, Graft Recipient, Hematopoietic Stem Cell, Human, Levine D, Loss Of Appetite, Major Clinical Study, Male, Mandrell B, Nausea, October 2017 List, Pain, Palliative Therapy, Parental Attitude, Pediatric Blood and Cancer, Quality Of Life, School Child, Speech, Sykes A, Symptom

Tags: 2017, Duc J K, Family-centred Care, Herbert A, Heussler H S, Intellectual Disability, Journal Of Applied Research In Intellectual Disabilities, October 2017 List, Paediatrics, Palliative Care, Quality Of Life

Tags: 2017, April 2017 List, Archives de Pediatrie, Artificial Feeding, Astruc D, Brain Damage, Climate, Clinical Practice, Clinical Study, Cojean N, Decision Making, Dillenseger L, Drug Withdrawal, Dying, Emotion, Escande B, Ethics, Health Promotion, Human, Human Dignity, Hydration, Kuhn P, Life Sustaining Treatment, Medical Decision Making, Medical Ethics, Medical Practice, Neonatology, Newborn, Newborn Intensive Care, Palliative Therapy, Patient Right, Perinatal Care, Perinatal Nursing, Quality Of Life, Short Survey, Survival, Terminal Care, Treatment Withdrawal, Zores C

Tags: 2017, Acta Paediatrica, April 2017 List, Artificial Ventilation, Bührer C, Editorial, Education, Ethical Decision Making, Female, France, Gender, Germany, Human, Human Experiment, Infant, Italy, Language, Male, Physician Attitude, Prematurity, Prematurity/dm [disease Management], Priority Journal, Quality Of Life, Shared Decision-making, Switzerland, Terminal Care

Tags: 2015, Adolescent, Carroll K W, Child, Decision Making, Faerber J A, Father, Female, Feudtner C, Health Expectations, Hexem K R, Hill D L, Hope, Human, Human Relation, Infant, Kang T, Male, Miller V A, Mother, Newborn, Palliative Therapy, Physician, Preschool Child, Problem Solving, Psychology, Quality Of Life, September 2017 List, Young Adult

Tags: 2005, Attitude Of Health Personnel, Child, Child Advocacy, Cluster Analysis, Decision Making, Donnelly James P, Family/psychology, Feasibility Studies, Health Services Accessibility/organization & administration, Health Services Needs And Demand/organization & Administration, Huff Susan M, Humans, Lindsey Michael L, May 2017 List, McMahon Kathy A, Medical Futility, Models Organizational, New York, Pain/prevention & control, Patient Care Team/organization & administration, Patient-Centered Care/organization & administration, Pediatrics/organization & Administration, Psychology Child, Qualitative Research, Quality Assurance Health Care, Quality Of Life, Right to Die, Schumacher JDonald, Spirituality, Terminal Care/organization & Administration, The American Journal of Hospice & Palliative Care

Tags: 2012, Adult, Armfield NR, Bensink ME, Bradford N, Caregivers, Caregivers/px [psychology], Cohort Studies, Female, Health Services Accessibility, Herbert A, Humans, Journal of Telemedicine & Telecare, Male, May 2017 List, Middle Aged, Outcome And Process Assessment (health Care), Palliative Care, Palliative Care/mt [methods], Palliative Care/st [standards], Patient Satisfaction, Pedersen LA, Pediatrics/mt [methods], Pediatrics/st [standards], Pilot Projects, Prospective Studies, Quality Of Life, Referral And Consultation, Remote Consultation/ut [utilization], Rural Population, Smith AC, Young J

Tags: 2015, Bartlett G, BMC Palliative Care, Crimi L, Ells C, Humans, Jabado N, July 2017 List, Longo C, Macdonald ME, Palliative Care/methods, Patient Participation/methods, Pediatric Nursing/methods, Quality Of Life, Rahimzadeh V, Research

Tags: 2017, August 2017 List, Children, Databases Factual, Delphi Study, Delphi Technique, Devins M, Health Services Needs And Demand, Hospice Care, Humans, International Journal of Palliative Nursing, Ireland, Life-limiting Conditions, Ling J, McCarthy S, O'Reilly M, Palliative Care, Parents, Pediatrics, Quality Of Life, Quinn C, Research, Research Priorities, Siblings, Terminal Care, Twomey M

Tags: 2016, Adolescent, August 2017 List, Child Health, Cystic Fibrosis, Cystic Fibrosis/ Nursing/psychology, Family/psychology, Female, Holistic Nursing/ Methods, Humans, Hunt J, life-limiting illness, Nursing Children and Young People, Paediatrics, Quality Of Life, Respiratory System, Siblings/psychology, Tointon K, Well-being

Tags: 147-94-4 (cytarabine), 154-93-8 (carmustine), 15475-56-6 (methotrexate), 15663-27-1 (cisplatin), 2017, 26035-31-4 (cisplatin), 59-05-2 (methotrexate), 69-74-9 (cytarabine), 7413-34-5 (methotrexate), 96081-74-2 (cisplatin), Advance Care Planning, Appetite Disorder, Banerjee A, Bone Density, Brain Tumor, Carmustine, Central Nervous System Tumor, Chang E, Childhood Cancer Survivor, Cisplatin, Constipation, Corticosteroid, Cytarabine, Diarrhea, Dyspnea, Endocrine Disease, Fatigue, Genetic Polymorphism, Goldsby R, Health Care Quality, Human, Incidence, Medical Decision Making, Medulloblastoma, Methotrexate, Morbidity, Mortality Rate, Mueller S, Nausea And Vomiting, Neuroectoderm Tumor, Neuropathic Pain, Neuropsychological Test, November 2017 List, Pain Assessment, Palliative Therapy, Patient Care, Pediatric Oncology, Phase 1 Clinical Trial (topic), Priority Journal, Psychosocial Disorder, Quality Of Life, Questionnaire, Radiation Injury, Respiration Depression, Seizure, Signal Transduction, Spasticity

Tags: 2017, Child, Child Health Care, Health Care Cost, Health Care Policy, Hospice Care, Human, Keim-Malpass J, Lindley LC, Medicaid, November 2017 List, Pediatrics, Priority Journal, Quality Of Life, Review, United States

Tags: 103-90-2 (paracetamol), 1095-90-5 (methadone), 125-56-4 (methadone), 12794-10-4 (benzodiazepine), 137-58-6 (lidocaine), 2017, 23142-53-2 (methadone), 24847-67-4 (lidocaine), 297-88-1 (methadone), 437-38-7 (fentanyl), 53663-61-9 (opiate), 56934-02-2 (lidocaine), 60142-96-3 (gabapentin), 73-78-9 (lidocaine), 76-99-3 (methadone), 8002-76-4 (opiate), 8008-60-4 (opiate), Acute Stress Disorder, Alcohol Consumption, Anticonvulsive Agent, Appetite, Benzodiazepine, Brill P, Connelly E, Corticosteroid, Distress Syndrome, Dyspnea, Fentanyl, Gabapentin, Hair Loss, Health Care Personnel, Health Care System, Hospital, Howk T, Human, Intensive Care Unit, Lidocaine, Major Depression, Medical Staff, Methadone, Mortality, Nausea And Vomiting, Neoplasm, November 2017 List, Obesity, Opiate, Palliative Therapy, Paracetamol, Paralysis, Patient Care Planning, Pediatric Oncology, Pillai R, Postovsky S, Priority Journal, Prostaglandin/ec [endogenous Compound], Quality Of Life, Tracheostomy, Wasilewski-Masker K, Wrammert KC

Tags: 2017, Apparent Life Threatening Event/th [therapy], Article, Awareness, Boss RD, Caregiver, Carter BS, Child Abuse, Child Care, Christian CW, Clinical Decision Making, Comatose Patient, Consensus, Consultation, Critical Illness/th [therapy], Davies D, Death, Death By Neurologic Criteria, Dell ML, Developmental Disorder/th [therapy], Diekema DS, Disease Burden, Disease Course, Elster N, Ethical Decision Making, Extremely Low Gestational Age, Family Decision Making, Family Stress, Feudtner C, Flaherty EG, Fortson BL, Foster Care, Gavril AR, Gestational Age, Goal Attainment, Guinn-Jones M, Hauer JM, Health Belief, High Risk Population, Human, Humphrey LM, Hurley TP, Hydration, Idzerda SM, Imaizumi S, Imminent Death, Informed Consent, Intensive Care, Interpersonal Communication, Katz AL, Klick J, Klipstein S, Laskey A, Laventhal N, Legal Aspect, Legano LA, Leventhal JM, Life-sustaining Medical Treatment, Linebarger JS, Lord B, MacAuley RC, MacMillan H, Medical Ethics, Medical Expert, Medical Information, Medical Procedures, Medical Specialist, Medically Administered Nutrition And Hydration, Moon MR, Neglect, Neurologic Disease/di [diagnosis], November 2017 List, Nutrition, Okun AL, Opel DJ, Oxygenation, Pain/th [therapy], Palliative Therapy, Parker S, Patient Care Planning, Pediatrician, Pediatrics, Practice Guideline, Priority Journal, Prognosis, Quality Of Life, Resuscitation, Rivera F, shared decision making, Social Support, Spiritual Care, Statter MB, Stedt E, Survival, Teamwork, Terminal Care, Tissue Perfusion, Uncertain Prognosis, Weise KL

Tags: 2017, Analgesia, Apkon D, Brain, Breathing, Cancer Staging, Child, Comfort, December 2017 List, Disease Course, Expectation, Female, Human, Institutional Review, International Journal Of Radiation Oncology Biology Physics, Lee BKY, Male, Marcus KJ, Palliative Therapy, Perception, Prevention, Prospective Study, Quality Of Life, Questionnaire, Radiotherapy, Spinal Cord Compression, Statistics, Wolfe J

Tags: 2016, Adolescent, Adult, Aged, Australia, Badger S, December 2017 List, Female, Honey A, Human, Macleod R, Male, Middle Aged, Occupational Therapy, Palliative & Supportive Care, Palliative Therapy, Procedures, Professional-patient Relationship, Psychology, Qualitative Research, Quality Of Life, Standards, Very Elderly

Tags: 2017, December 2017 List, Dussel V, Journal of Pain and Symptom Management, Orellana L, Patient- Centered Care, Patient-reported Outcomes, Pediatric Palliative Care, Quality Of Life, Rosenberg AR, Symptom Assessment, Wolfe J

Tags: 2016, Adult, American Cancer Society/organization & Administration, And Medicine (u.S.) Health And, Ca: A Cancer Journal For Clinicians, Child, Education/ Organization & Administration, Engineering, Family, Feudtner C, Humans, Kirch R, Medical Oncology, Medicine Division/organization & Administration, National Academies Of Science, Neoplasms/rehabilitation/ Therapy, Oncology 2017 List, Palliative Care, Psychosocial Support Systems, Quality Of Life, Reaman G, Schwartz LA, Sung L, United States, Wiener L, Wolfe J

Tags: 2017, Bereavement, Cancer Prognosis, Child, Childhood Cancer, Controlled Study, Ethnic Group, Human, Oncology 2017 List, Palliative Therapy, Personal Experience, Prevalence, Prognosis, Quality Of Life, Randomized Controlled Trial(topic), Rosenberg AR, Sibling, The Lancet Child And Adolescent Health, Voice, Wolfe J

Tags: 2004, Adaptation, Child, Coldsmith A, Health Services Needs And Demand, Hellsten MB, Humans, Interpersonal Relations, Journal Of Pediatric Oncology Nursing, Kane JR, Neoplasms/co [complications], Nursing Research/og [organization & Administration], Oncology 2017 List, Oncology Nursing/og [organization & Administration], Pediatric Nursing/og [organization & Administration], Psychological, Psychological/et [etiology], Psychological/nu [nursing], Psychological/px [psychology], Psychology, Quality Of Life, Sick Role, Social Support, Spirituality, Stress, Terminal Care, Terminal Care/og [organization & Administration], Terminal Care/px [psychology]