Browse Items · Pediatric Palliative Care Library

Because statistics don't tell the whole story: a call for comprehensive care for children with cancer

2014-04

Death of adolescents: parental grief and coping strategies

The death of an adolescent is a particularly complex issue. The process of grieving and coping can be complicated by the tension that may have existed in the parent/child relationship because of the conflict in terms of personal ideology at this…

Tags: 2001, Adaptation, Adolescent, Adult, Attitude To Death, Backlog, British Journal Of Nursing, Child, Davies AM, Grief, Humans, Journal Article, Parent caregivers, Parent-child Relations, Parents/psychology, Psychological

A typology of fatigue in children with cancer

Fatigue in adults with cancer has received considerable attention as a troublesome symptom that requires nursing intervention. Fatigue in children with cancer, however, has received considerably less focus. The first phase of the present study used…

The art of healing and knowing in cancer and palliative care

This article examines the role of artwork in cancer and palliative care. The literature review focuses on both children and adults. One case scenario focuses on a child's reaction to his mother's illness showing his distress through painting. Artwork…

Patterns of children's coping with life stress: implications for clinicians

In a study of children's patterns of coping with daily stressors, boys and girls 9-17 years old were asked to complete a coping checklist in response to one of four types of stressors--school, parents/family, siblings, or peer/interpersonal. Patterns…

Tags: 2000, Adaptation, Adolescent, Backlog, Child, Danovsky M, Defense Mechanisms, Donaldson D, Female, Humans, Journal Article, Male, Personality Inventory, Prinstein MJ, Psychological, Psychological/psychology, Spirito A, Stress, The American Journal Of Orthopsychiatry

Spirituality among parents of children with cancer in a Middle Eastern country

PURPOSE: Family caregivers of children with cancer face emotional, psychological, and spiritual challenges coping with their child's illness. For ensuring comprehensive multidisciplinary pediatric care, there is a need to understand and define what…

Tags: 2019, Adaptation, Cancer, Caregivers, Children, Developing World 2019 List, Doumit M A A, European Journal Of Oncology Nursing, Hermeneutics, Lebanon, Majdalani M, Palliative Care, Psychological, Qualitative Study, Rahi A C, Saab R, Spirituality

Bereaved parents' experience of research participation.

Despite the ethical codes guiding bereavement research, few studies have been conducted to evaluate the perceived stress experienced by the bereaved, and to explore which methodologies cause least distress. This article investigates how bereaved and…

Coping with chronic pain

Many models of pain give coping an important role in understanding adaptation to chronic pain. Among these, Lazarus and Folkman's cognitive-phenomenological model of stress and coping provides a theoretical framework to conceptualise stress phenomena…

Communication with parents of children with cancer

The purpose of this study was to assess the receptiveness of parents to information given about their child's life threatening illness. Three months after the child's diagnosis, an independent interviewer, using a structured questionnaire,…

Psychological health in siblings who lost a brother or sister to cancer 2 to 9 years earlier: Psychological health in siblings who lost a brother or sister to cancer

Combat experience and emotional health: impairment and resilience in later life

War's influence on emotional health includes potential psychological gains as well as losses. In a sample of 149 veterans from longitudinal samples at the Institute of Human Development, University of California, Berkeley, this study explores two…

The consultant and the patient-physician relationship. A trilateral deliberative model

The interaction of physical function and emotional well-being in rheumatoid arthritis--what is the impact on disease activity and coping?

OBJECTIVE: To evaluate the impact of the interaction of physical function and emotional well-being on disease-related parameters and coping with rheumatoid arthritis. METHODS: A cross-sectional survey among 177 RA patients included demographic and…

Accelerated telomere shortening in response to life stress

Numerous studies demonstrate links between chronic stress and indices of poor health, including risk factors for cardiovascular disease and poorer immune function. Nevertheless, the exact mechanisms of how stress gets "under the skin" remain elusive.…

Adjustment to chronic pain: the role of pain acceptance, coping strategies, and pain-related cognitions

BACKGROUND: Previous research has found that acceptance of pain is more successful than coping variables in predicting adjustment to pain. PURPOSE: To compare the influence of acceptance, pain-related cognitions and coping in adjustment to chronic…

Good-parent beliefs of parents of seriously ill children

IMPORTANCE: Parents' beliefs about what they need to do to be a good parent when their children are seriously ill influence their medical decisions, and better understanding of these beliefs may improve decision support. OBJECTIVE: To assess parents'…

Sense of coherence, life stress, and psychological distress: a prospective methodological inquiry

Antonovsky (1987) has proposed the Sense of Coherence (SOC) as a global perceptual predisposition in responding to life stress. Composed of comprehensibility, manageability, and meaningfulness, this construct has been associated with more adaptive…

The concept of suffering in children and adolescents with cancer

Survival rates for childhood cancer have increased over the past 2 decades, due in large part to the increase in the intensity and complexity of the treatment modalities used. We can presume that this increase in intensity has produced increased…

Tags: 2006, Adaptation, Backlog, Fochtman D, Journal Article, Journal Of Pediatric Oncology Nursing, PedPal Lit, Psychological, Psychological Adolescent Child Humans Neoplasms/nursing/psychologyStress

Positive psychological states and coping with severe stress

Providing care to a spouse or partner who is dying and then losing that person are among the most stressful of human experiences. A longitudinal study of the caregiving partners of men with AIDS showed that in addition to intense negative…

Tags: 1997, Acquired Immunodeficiency Syndrome/psychology/therapy, Adaptation, Backlog, Bereavement, Caregivers/psychology, Death, Folkman S, Humans, Journal Article, Male, Models, P.H.S., Psychological, Research Support, Social science & medicine, Stress, U.S. Gov't

Stress, coping, and hope

Hope is discussed in many literatures and from many perspectives. In this essay hope is discussed from the vantage of psychology and stress and coping theory. Hope and psychological stress share a number of formal properties: both are contextual,…

Tags: 2010, Adaptation, Attitude To Health, Backlog, Folkman S, Humans, Journal Article, Neoplasms/psychology, Psycho-Oncology, Psychological, Psychological/psychology, Stress, Uncertainty

Postbereavement depressive mood and its prebereavement predictors in HIV+ and HIV- gay men

Prebereavement predictors of the course of postbereavement depressive mood were examined in 110 gay men who were their partner's caregiver until the partner's death of AIDS. In all, 37 HIV+ and 73 HIV- bereaved caregiving partners were assessed…

Coping: pitfalls and promise

Coping, defined as the thoughts and behaviors used to manage the internal and external demands of situations that are appraised as stressful, has been a focus of research in the social sciences for more than three decades. The dramatic proliferation…

Tags: 2004, Adaptation, Affect, Annual Review Of Psychology, Backlog, Folkman S, Humans, Informal, Journal Article, Moskowitz JT, Psychological, Religion and Psychology, Social Control, Terminology as Topic

Developing a process to support perinatal nurses after a critical event

The work of perinatal nurses sometimes includes emergencies involving death, or near death, which can leave health care providers with feelings of stress and grief. After experiencing a particularly stressful period, nurses at our organization…

Bereaved Parents’ and Siblings’ Reports of Legacies Created by Children With Cancer

This qualitative study explored bereaved parents’ and siblings’ reports of legacies created by children with advanced cancer. Participants included 40 families of children who died from cancer, with 36 mothers, 27 fathers, and 40 siblings (ages 8-18…

Changes in siblings after the death of a child from cancer.

IMPLICATIONS FOR PRACTICE: Our findings offer guidance to improve aftercare for bereaved siblings and their families. Additional research is needed to further delineate the needs of bereaved siblings and to develop strategies to promote adaptation to…

Attachment to God as a Mediator of the Relationship Between Religious Affiliation and Adjustment to Child Loss

Objectives: The loss of a child is a traumatic life event. While bereavement research has examined the roles of both interpersonal attachment and religiosity in coping with loss, only a handful of studies have addressed the concept of attachment to…

Posttraumatic stress and general distress among parents of children surviving a brain tumor.

In this preliminary study we examined both posttraumatic stress and general distress among parents of children diagnosed with a brain tumor. Participants included 28 parents of children diagnosed with a brain rumor who completed self-report measures…

Tags: 2001, Backlog, Children, Children's Health Care, Disorders, Fuemeller B, Journal Article, Longitudinal Studies, Marx B, Mullins L, Parents, Post-traumatic, Psychological, Stress

Siblings Caring for and about Pediatric Palliative Care Patients

Abstract Background: The experiences of young people who have siblings with life-limiting illnesses are not well understood. Aim: The study proposed to identify the concerns of siblings of pediatric palliative care (PPC) patients. Design and…

Maternal Grief: A Qualitative Investigation of Mothers' Responses to the Death of a Child From Cancer

This study explored bereaved mothers' responses to the death of a child from cancer, with a focus on identifying adaptive and complicated grief reactions. To understand the unique meaning of their loss, in-depth interviews were conducted with 13…

The impact of care-giving on care-givers: factors associated with the psychological well-being of people supporting a dementing relative in the community

The aim of this paper is to present findings concerning a variety of factors expected to influence, either directly or indirectly as mediators, the psychological well-being of persons caring for a dementing relative in the community. The sample…

Tags: 1984, Adaptation, Aged, Backlog, Dementia/therapy, Family, Female, Gilhooly ML, Home Nursing/psychology, Humans, Journal Article, Male, Morale, Psychological, Social Environment, Social Support, The British Journal Of Medical Psychology

Rethinking the role of tube feeding in patients with advanced dementia

Hospital care for parents after perinatal death

OBJECTIVE: To systematically review parent experiences with hospital care after perinatal death. DATA SOURCES: An evaluation of more than 1,100 articles from 1966 to 2006 was performed to identify studies of fetal death in the second or third…

Bereavement outcomes for parents who lose a child to cancer: are place of death and sex of parent associated with differences in psychological functioning?

Despite increasing cure rates, cancer is a leading cause of non-accidental death in childhood. Models of psychosocial care in pediatric cancer may therefore need to address bereavement planning for a 'minority group' of parents (approximately 25%)…

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