2
40
237
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/pon.3053" target="_blank" rel="noreferrer">http://doi.org/10.1002/pon.3053</a>
<a href="http://ovidsp.tx.ovid.com.ezproxy.library.ubc.ca/sp-3.12.0b/ovidweb.cgi?&S=JEGHFPHFGCDDCKFGNCMKKEOBCHJNAA00&Complete+Reference=FL.S.sh.75.6%7C3%7C1" target="_blank" rel="noreferrer">http://ovidsp.tx.ovid.com.ezproxy.library.ubc.ca/sp-3.12.0b/ovidweb.cgi?&S=JEGHFPHFGCDDCKFGNCMKKEOBCHJNAA00&Complete+Reference=FL.S.sh.75.6%7c3%7c1</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Psychological health in siblings who lost a brother or sister to cancer 2 to 9 years earlier: Psychological health in siblings who lost a brother or sister to cancer
Publisher
An entity responsible for making the resource available
Psycho-oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2013
Subject
The topic of the resource
Child; Female; Humans; Male; Young Adult; bereavement; Neoplasms; Cohort Studies; Adult; Questionnaires; Follow-Up Studies; Self Concept; Siblings; Health Status; Mental Health; Sweden; Case-Control Studies; Adaptation; Psychological; sibling bereavement; Sleep Initiation and Maintenance Disorders
Creator
An entity primarily responsible for making the resource
Eilegård A; Steineck G; Nyberg T; Kreicbergs U
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/pon.3053" target="_blank" rel="noreferrer">10.1002/pon.3053</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2013-03
2013
Adaptation
Adult
Backlog
Bereavement
Case-Control Studies
Child
Cohort Studies
Eilegård A
Female
Follow-up Studies
Health Status
Humans
Journal Article
Kreicbergs U
Male
Mental Health
Neoplasms
Nyberg T
Psycho-Oncology
Psychological
Questionnaires
Self Concept
sibling bereavement
Siblings
Sleep Initiation and Maintenance Disorders
Steineck G
Sweden
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/jamapediatrics.2014.2341" target="_blank" rel="noreferrer">http://doi.org/10.1001/jamapediatrics.2014.2341</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Good-parent beliefs of parents of seriously ill children
Publisher
An entity responsible for making the resource available
Jama Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2015
Subject
The topic of the resource
adolescent; Child; Cross-Sectional Studies; Female; Humans; infant; Male; Parent-Child Relations; Parents; Questionnaires; Chronic disease; Child welfare; Acute Disease; Stress; Practice; Preschool; Adaptation; Psychological; Attitudes; Newborn; Health Knowledge; Philadelphia
Creator
An entity primarily responsible for making the resource
Feudtner C; Walter JK; Faerber JA; Hill DL; Carroll KW; Mollen CJ; Miller VA; Morrison WE; Munson DA; Kang T; Hinds PS
Description
An account of the resource
IMPORTANCE: Parents' beliefs about what they need to do to be a good parent when their children are seriously ill influence their medical decisions, and better understanding of these beliefs may improve decision support. OBJECTIVE: To assess parents' perceptions regarding the relative importance of 12 good-parent attributes. DESIGN, SETTING, AND PARTICIPANTS: A cross-sectional, discrete-choice experiment was conducted at a children's hospital. Participants included 200 parents of children with serious illness. MAIN OUTCOMES AND MEASURES: Ratings of 12 good-parent attributes, with subsequent use of latent class analysis to identify groups of parents with similar ratings of attributes, and ascertainment of whether membership in a particular group was associated with demographic or clinical characteristics. RESULTS: The highest-ranked good-parent attribute was making sure that my child feels loved, followed by focusing on my child's health, making informed medical care decisions, and advocating for my child with medical staff. We identified 4 groups of parents with similar patterns of good-parent-attribute ratings, which we labeled as: child feels loved (n=68), child's health (n=56), advocacy and informed (n=55), and spiritual well-being (n=21). Compared with the other groups, the child's health group reported more financial difficulties, was less educated, and had a higher proportion of children with new complex, chronic conditions. CONCLUSIONS AND RELEVANCE: Parents endorse a broad range of beliefs that represent what they perceive they should do to be a good parent for their seriously ill child. Common patterns of how parents prioritize these attributes exist, suggesting future research to better understand the origins and development of good-parent beliefs among these parents. More important, engaging parents individually regarding what they perceive to be the core duties they must fulfill to be a good parent may enable more customized and effective decision support.
2015-01
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/jamapediatrics.2014.2341" target="_blank" rel="noreferrer">10.1001/jamapediatrics.2014.2341</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2015
Acute Disease
Adaptation
Adolescent
Attitudes
Backlog
Carroll KW
Child
Child welfare
Chronic Disease
Cross-sectional Studies
Faerber JA
Female
Feudtner C
Health Knowledge
Hill DL
Hinds PS
Humans
Infant
JAMA Pediatrics
Journal Article
Kang T
Male
Miller VA
Mollen CJ
Morrison WE
Munson DA
Newborn
Parent-child Relations
Parents
Philadelphia
Practice
Preschool
Psychological
Questionnaires
Stress
Walter JK
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1200/JCO.2014.59.0406" target="_blank" rel="noreferrer">http://doi.org/10.1200/JCO.2014.59.0406</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Mental Health Services for Parents Who Lost a Child to Cancer: If We Build Them, Will They Come?
Publisher
An entity responsible for making the resource available
Journal Of Clinical Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2015
Subject
The topic of the resource
adolescent; Child; Cross-Sectional Studies; Female; Humans; infant; Male; United States; Young Adult; Neoplasms; Adult; Parents; Middle Aged; Health Services Accessibility; cause of death; Age Factors; Psychotherapy; Patient Acceptance of Health Care; Time Factors; Self Report; Self-Help Groups; Preschool; Adaptation; Psychological; Grief; Mental Health Services; Minority Groups; Psychotropic Drugs
Creator
An entity primarily responsible for making the resource
Lichtenthal WG; Corner GW; Sweeney CR; Wiener L; Roberts KE; Baser RE; Li Y; Breitbart W; Kissane DW; Prigerson HG
Description
An account of the resource
PURPOSE: To examine bereavement mental health service use, barriers to use, and factors associated with use in parents bereaved by cancer. PATIENTS AND METHODS: A multicenter, cross-sectional study of 120 parents bereaved by cancer between 6 months and 6 years after their loss was performed. Parents completed self-report assessments of mental health service use and barriers, prolonged grief, depression, anxiety, attachment styles, and sense of meaning by phone, in person, or on their own. RESULTS: Forty-one percent of bereaved parents were currently using mental health services (talk therapy, psychotropic medication, and/or a support group), most commonly within the first 2 years after their loss. Talk therapy was the most frequently used service, although 36% of parents who discontinued therapy did so because it was not helpful. Forty percent of parents who wanted bereavement support reported they were not receiving services. The most common barriers to service use were that it was too painful to speak about the loss (64%) and too difficult to find help (60%). Factors associated with current mental health service use included more recent loss, prior mental health service use, subclinical/increased depression, insecure attachment styles, and a decreased sense of meaning. Minority parents were more likely to have unmet needs than nonminority parents. CONCLUSION: Parents appear to need, want, and often access bereavement mental health services, which could be offered in oncology settings. However, barriers to service use must be addressed, particularly for those with more debilitating grief symptoms and for minorities. High treatment dropout rates suggest the importance of improving retention, training providers, and developing effective grief interventions.
2015-07
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1200/JCO.2014.59.0406" target="_blank" rel="noreferrer">10.1200/JCO.2014.59.0406</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2015
Adaptation
Adolescent
Adult
Age Factors
Backlog
Baser RE
Breitbart W
Cause Of Death
Child
Corner GW
Cross-sectional Studies
Female
Grief
Health Services Accessibility
Humans
Infant
Journal Article
Journal Of Clinical Oncology
Kissane DW
Li Y
Lichtenthal WG
Male
Mental Health Services
Middle Aged
Minority Groups
Neoplasms
Parents
Patient Acceptance of Health Care
Preschool
Prigerson HG
Psychological
Psychotherapy
Psychotropic Drugs
Roberts KE
Self Report
Self-Help Groups
Sweeney CR
Time Factors
United States
Wiener L
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpediatrics.2009.284" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpediatrics.2009.284</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Palliative care of children with brain tumors: a parental perspective
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
adolescent; Child; Female; Humans; infant; Male; Young Adult; Palliative Care; home care services; Adult; Parents; Middle Aged; Attitude to Death; Qualitative Research; Focus Groups; Activities of Daily Living; Spirituality; Practice; Preschool; Adaptation; Psychological; Attitudes; Brain neoplasms; Health Knowledge; PEDI Study
Creator
An entity primarily responsible for making the resource
Zelcer S; Cataudella D; Cairney A; Elizabeth L; Bannister SL
Description
An account of the resource
OBJECTIVE: To explore the end-of-life experience of children with brain tumors and their families. DESIGN: Qualitative analysis of focus group interviews. SETTING: Children's Hospital, London Health Sciences Center. PARTICIPANTS: Twenty-five parents of 17 children who had died of brain tumors. INTERVENTION: Parents participated in 3 semistructured focus group interviews. MAIN OUTCOME MEASURES: Themes identified through thematic analysis of interview transcripts. RESULTS: Qualitative analysis identified 3 primary themes. (1) Parents described the dying trajectory of their child as characterized by progressive neurologic deterioration, with the loss of the ability to communicate as a turning point. Parental coping mechanisms included striving to maintain normality and finding spiritual strength through maintaining hope and in the resilience of their child. (2) Parental struggles during this phase included balancing competing responsibilities and speaking with their child about death. (3) Barriers to achieving a home death included suboptimal symptom management, financial and practical hardships, and inadequate community support. A fourth, secondary theme concerned the therapeutic benefits of the interview. CONCLUSION: The neurologic deterioration that characterizes the dying trajectory of children with brain tumors may create significant challenges for health care professionals and the children's parents, supporting the need for increased awareness of the distinct issues in the palliative care of children with brain tumors and for early anticipatory guidance provided for families.
2010-03
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpediatrics.2009.284" target="_blank" rel="noreferrer">10.1001/archpediatrics.2009.284</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Activities of Daily Living
Adaptation
Adolescent
Adult
Archives Of Pediatrics & Adolescent Medicine
Attitude To Death
Attitudes
Backlog
Bannister SL
Brain Neoplasms
Cairney A
Cataudella D
Child
Elizabeth L
Female
Focus Groups
Health Knowledge
home care services
Humans
Infant
Journal Article
Male
Middle Aged
Palliative Care
Parents
PEDI Study
Practice
Preschool
Psychological
Qualitative Research
Spirituality
Young Adult
Zelcer S
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/jama.2009.1198" target="_blank" rel="noreferrer">http://doi.org/10.1001/jama.2009.1198</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Effects of a palliative care intervention on clinical outcomes in patients with advanced cancer: the Project ENABLE II randomized controlled trial
Publisher
An entity responsible for making the resource available
Jama
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Female; Humans; Male; Aged; Middle Aged; Treatment Outcome; Length of Stay; Patient Participation; Affect; Sickness Impact Profile; Patient Education as Topic; Emergency Service; quality of life; Hospital/utilization; Adaptation; Psychological; patient care team; Terminally Ill/psychology; social support; Health Services/utilization; Hospitalization/statistics & numerical data; Intensive Care Units/utilization; Intervention; Interventions; Kaplan-Meiers Estimate; Neoplasms/mortality/nursing/psychology/therapy; Outcomes; Palliative Care/methods
Creator
An entity primarily responsible for making the resource
Bakitas M; Lyons KD; Hegel MT; Balan S; Brokaw FC; Seville J; Hull JG; Li Z; Tosteson TD; Byock IR; Ahles TA
Description
An account of the resource
CONTEXT: There are few randomized controlled trials on the effectiveness of palliative care interventions to improve the care of patients with advanced cancer. OBJECTIVE: To determine the effect of a nursing-led intervention on quality of life, symptom intensity, mood, and resource use in patients with advanced cancer. DESIGN, SETTING, AND PARTICIPANTS: Randomized controlled trial conducted from November 2003 through May 2008 of 322 patients with advanced cancer in a rural, National Cancer Institute-designated comprehensive cancer center in New Hampshire and affiliated outreach clinics and a VA medical center in Vermont. INTERVENTIONS: A multicomponent, psychoeducational intervention (Project ENABLE [Educate, Nurture, Advise, Before Life Ends]) conducted by advanced practice nurses consisting of 4 weekly educational sessions and monthly follow-up sessions until death or study completion (n = 161) vs usual care (n = 161). MAIN OUTCOME MEASURES: Quality of life was measured by the Functional Assessment of Chronic Illness Therapy for Palliative Care (score range, 0-184). Symptom intensity was measured by the Edmonton Symptom Assessment Scale (score range, 0-900). Mood was measured by the Center for Epidemiological Studies Depression Scale (range, 0-60). These measures were assessed at baseline, 1 month, and every 3 months until death or study completion. Intensity of service was measured as the number of days in the hospital and in the intensive care unit (ICU) and the number of emergency department visits recorded in the electronic medical record. RESULTS: A total of 322 participants with cancer of the gastrointestinal tract (41%; 67 in the usual care group vs 66 in the intervention group), lung (36%; 58 vs 59), genitourinary tract (12%; 20 vs 19), and breast (10%; 16 vs 17) were randomized. The estimated treatment effects (intervention minus usual care) for all participants were a mean (SE) of 4.6 (2) for quality of life (P = .02), -27.8 (15) for symptom intensity (P = .06), and -1.8 (0.81) for depressed mood (P = .02). The estimated treatment effects in participants who died during the study were a mean (SE) of 8.6 (3.6) for quality of life (P = .02), -24.2 (20.5) for symptom intensity (P = .24), and -2.7 (1.2) for depressed mood (P = .03). Intensity of service did not differ between the 2 groups. CONCLUSION: Compared with participants receiving usual oncology care, those receiving a nurse-led, palliative care-focused intervention addressing physical, psychosocial, and care coordination provided concurrently with oncology care had higher scores for quality of life and mood, but did not have improvements in symptom intensity scores or reduced days in the hospital or ICU or emergency department visits. TRIAL REGISTRATION: clinicaltrials.gov Identifier: NCT00253383.
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/jama.2009.1198" target="_blank" rel="noreferrer">10.1001/jama.2009.1198</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Adaptation
Affect
Aged
Ahles TA
Backlog
Bakitas M
Balan S
Brokaw FC
Byock IR
Emergency Service
Female
Health Services/utilization
Hegel MT
Hospital/utilization
Hospitalization/statistics & numerical data
Hull JG
Humans
Intensive Care Units/utilization
Intervention
Interventions
JAMA
Journal Article
Kaplan-Meiers Estimate
Length Of Stay
Li Z
Lyons KD
Male
Middle Aged
Neoplasms/mortality/nursing/psychology/therapy
Outcomes
Palliative Care/methods
Patient Care Team
Patient Education as Topic
Patient Participation
Psychological
Quality Of Life
Seville J
Sickness Impact Profile
Social Support
Terminally Ill/psychology
Tosteson TD
Treatment Outcome
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/cncr.24109" target="_blank" rel="noreferrer">http://doi.org/10.1002/cncr.24109</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Behavioral, social, and educational outcomes after pediatric stem cell transplantation and related factors
Publisher
An entity responsible for making the resource available
Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
adolescent; Child; Female; Humans; Male; mothers; Neoplasms; Adult; Parent-Child Relations; Treatment Outcome; Longitudinal Studies; Social Adjustment; Behavior; Mental Health; Depression; Internal-External Control; Survivors; Teaching; Adaptation; Psychological; Cranial Irradiation; Social Behavior; Stem Cell Transplantation
Creator
An entity primarily responsible for making the resource
Barrera M; Atenafu E; Pinto J
Description
An account of the resource
BACKGROUND: The purpose of the current study was to investigate longitudinally children's behavioral and social competence outcomes up to 2 years after pediatric stem cell transplantation (SCT) and related factors. METHODS: Ninety-nine mothers and 24 youths completed standardized questionnaires (Child Behavior Checklist [CBCL] and Youth Self-Report [YSR]) pre-SCT, and 12 and 24 months after SCT; 26 teachers completed Teacher Report Form (TRF) at 24 months. Information regarding clinical (eg, diagnosis, cranial radiation, graft vs host disease [GVHD]), child (eg, age, sex, physical health), and familial (eg, maternal age, education, distress) factors was also obtained. RESULTS: Linear mixed regression models with compound covariance structure followed by adjusted pairwise analyses yielded significant improvements from pre-SCT to 1 and 2 years after SCT in total scores; in externalizing and internalizing scores from pre-SCT to 2 years after SCT; and in total competence from pre-SCT to 1 year after SCT. Child's physical health, maternal age, and depression were found to be significantly associated with the total, internalizing, and externalizing CBCL scores, whereas GVHD, mother's age, and time since diagnosis were associated with CBCL competence scores. Diagnosis, cranial radiation, GVHD, child's physical health, and maternal age and education were associated with YSR total behavioral and competence scores. Finally, total TRF scores were associated with time since diagnosis; TRF educational and adaptability scores were associated with maternal education, age, and distress. CONCLUSIONS: Clinical, personal, and familial factors must be considered to understand the psychosocial outcomes of these survivors up to 2 years after SCT. This study has important implications for psychosocial interventions for this population.
2009-02
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/cncr.24109" target="_blank" rel="noreferrer">10.1002/cncr.24109</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Adaptation
Adolescent
Adult
Atenafu E
Backlog
Barrera M
Behavior
Cancer
Child
Cranial Irradiation
Depression
Female
Humans
Internal-External Control
Journal Article
Longitudinal Studies
Male
Mental Health
Mothers
Neoplasms
Parent-child Relations
Pinto J
Psychological
Social Adjustment
Social Behavior
Stem Cell Transplantation
Survivors
Teaching
Treatment Outcome
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/cncr.25415" target="_blank" rel="noreferrer">http://doi.org/10.1002/cncr.25415</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Complementary therapies for children undergoing stem cell transplantation: report of a multisite trial
Publisher
An entity responsible for making the resource available
Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
adolescent; Child; Female; Humans; Male; Parents; Length of Stay; Complementary Therapies; Stress; Psychological; Stem Cell Transplantation; Laughter Therapy; Massage
Creator
An entity primarily responsible for making the resource
Phipps S; Barrera M; Vannatta K; Xiong X; Doyle JJ; Alderfer MA
Description
An account of the resource
BACKGROUND: Children undergoing stem cell transplant (SCT) experience high levels of somatic distress and mood disturbance. This trial evaluated the efficacy of complementary therapies (massage, humor therapy, relaxation/imagery) for reducing distress associated with pediatric SCT. METHODS: Across 4 sites, 178 pediatric patients scheduled to undergo SCT were randomized to a child-targeted intervention involving massage and humor therapy, the identical child intervention plus a parent intervention involving massage and relaxation/imagery, or standard care. Randomization was stratified by site, age, and type of transplant. The interventions began at admission and continued through SCT Week +3. Primary outcomes included patient and parent reports of somatic distress and mood disturbance obtained weekly from admission through Week +6 using the Behavioral, Affective, and Somatic Experiences Scales. Secondary outcomes included length of hospitalization, time to engraftment, and usage of narcotic analgesic and antiemetic medications. RESULTS: A mixed model approach was used to assess longitudinal trends of patient and parent report outcomes and to test differences between groups on these measures. Significant changes across time were observed on all patient and parent report outcomes. However, no significant differences between treatment arms were found on the primary outcomes. Similarly, no significant between-group differences were noted on any of the medical variables as secondary outcomes. CONCLUSIONS: Results of this multisite trial failed to document significant benefits of complementary interventions in the pediatric SCT setting.
2010-08
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/cncr.25415" target="_blank" rel="noreferrer">10.1002/cncr.25415</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Adolescent
Alderfer MA
Backlog
Barrera M
Cancer
Child
Complementary Therapies
Doyle JJ
Female
Humans
Journal Article
Laughter Therapy
Length Of Stay
Male
Massage
Parents
Phipps S
Psychological
Stem Cell Transplantation
Stress
Vannatta K
Xiong X
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/pbc.21042" target="_blank" rel="noreferrer">http://doi.org/10.1002/pbc.21042</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Symptoms in the palliative phase of children with cancer
Publisher
An entity responsible for making the resource available
Pediatric Blood & Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
adolescent; Child; Female; Humans; infant; Male; retrospective studies; Palliative Care; Neoplasms; Pain; Pain Management; Terminal Care; Physician-Patient Relations; Parent-Child Relations; Parents; Emotions; Questionnaires; Attitude to Death; Professional-Family Relations; social support; Age Factors; caregivers; Fatigue; Fear; Anorexia; Leukemia; Treatment Failure; Gastrointestinal Diseases; Stress; Preschool; Psychological; Brain neoplasms; Mobility Limitation
Creator
An entity primarily responsible for making the resource
Theunissen JMJ; Hoogerbrugge PM; van Achterberg T; Prins JB; Vernooij-Dassen M; van den Ende CHM
Description
An account of the resource
BACKGROUND: The aim of the study was to make a comprehensive inventory of the physical, psychological, and social symptoms of children with cancer and their parents during the palliative phase and the extent to which health professionals address those symptoms. PROCEDURE: Forty parents of children who died 1-3 years prior to data collection (structured questionnaire) were invited to participate in the study. RESULTS: The response rate was 32 out of 40 parents (80%). Most frequently mentioned physical symptoms were pain, poor appetite, and fatigue. The children's most mentioned psychological symptoms were sadness, difficulty in talking to their parents about their feelings regarding illness and death and fear of being alone. The symptoms of fear of death of the child and fear of physical symptoms were most frequently mentioned parents' psychological symptoms. Health professionals addressed 82% of the children's physical symptoms, 43% of the children's psychological symptoms, and 56% of the parents' psychological symptoms. Parents indicated that after professional attention the proportion of children's physical symptoms that were completely or partially resolved was 18 and 26%, respectively. For children's psychological symptoms the figures were 9 and 25%, respectively, and for parents' psychological symptoms 2 and 23%, respectively. CONCLUSIONS: The burden of symptoms of the child with cancer during the palliative phase and their parents is high. Health professionals focus mainly on the physical symptoms of the child. Relief of symptoms could not be achieved for a large proportion of symptoms. Further prospective research is necessary to investigate the kind, frequency and intensity of symptoms in order to tailor optimal palliative care to the needs of both child and parent.
2007-08
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/pbc.21042" target="_blank" rel="noreferrer">10.1002/pbc.21042</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
Adolescent
Age Factors
Anorexia
Attitude To Death
Backlog
Brain Neoplasms
Caregivers
Child
Emotions
Fatigue
Fear
Female
Gastrointestinal Diseases
Hoogerbrugge PM
Humans
Infant
Journal Article
Leukemia
Male
Mobility Limitation
Neoplasms
Pain
Pain Management
Palliative Care
Parent-child Relations
Parents
Pediatric Blood & Cancer
Physician-patient Relations
Preschool
Prins JB
Professional-family Relations
Psychological
Questionnaires
Retrospective Studies
Social Support
Stress
Terminal Care
Theunissen JMJ
Treatment Failure
van Achterberg T
van den Ende CHM
Vernooij-Dassen M
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/pbc.22418" target="_blank" rel="noreferrer">http://doi.org/10.1002/pbc.22418</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Anxiety is contagious-symptoms of anxiety in the terminally ill child affect long-term psychological well-being in bereaved parents
Publisher
An entity responsible for making the resource available
Pediatric Blood & Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Child; Female; Humans; infant; Male; Young Adult; Adult; Parent-Child Relations; quality of life; adolescent; Preschool; Adaptation; Psychological; bereavement; Terminally Ill/psychology; infant; Charting the Territory; Newborn; Parents/psychology; Anxiety/epidemiology/etiology/psychology; Depression/epidemiology; Neoplasms/psychology; Sweden/epidemiology
Creator
An entity primarily responsible for making the resource
Jalmsell L; Kreicbergs U; Onelov E; Steineck G; Henter JI
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/pbc.22418" target="_blank" rel="noreferrer">10.1002/pbc.22418</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
BACKGROUND: We studied the relation between unrelieved symptoms in terminally ill children and the psychological well-being in the bereaved parents 4-9 years after their loss. PROCEDURE: We contacted parents in Sweden who had lost a child to a malignancy 1992-1997. The parents were asked to assess symptoms affecting their child's well-being during his or her last month of life, and their own current psychological well-being. RESULTS: Altogether 449/561 (80%) eligible parents supplied information on 19 specific symptoms that may occur in children with a malignancy and how each of these symptoms had affected their child's well-being during his or her last month of life (not applicable, none, low, moderate, or severe). These results were linked to questions concerning the parents' self-assessed mental health. Parents of children who were affected by disturbed sleep also had increased risk to develop these symptoms; RR 2.0 [1.4-2.9] for depression, 1.8 [1.3-2.5] for anxiety, 1.5 [1.2-1.8] for decreased psychological well-being, and 1.5 [1.3-1.9] for decreased quality of life. CONCLUSIONS: Bereaved parents whose children were affected by anxiety or disturbed sleep due to anxiety or pain had an increased risk of long-term psychological morbidity. Reducing psychological complications in seriously ill children may also improve the psychological well-being in bereaved parents.
2010
Adaptation
Adolescent
Adult
Anxiety/epidemiology/etiology/psychology
Backlog
Bereavement
Child
Depression/epidemiology
Female
Henter JI
Humans
Infant
Jalmsell L
Journal Article
Kreicbergs U
Male
Neoplasms/psychology
Newborn
Onelov E
Parent-child Relations
Parents/psychology
Pediatric Blood & Cancer
Preschool
Psychological
Quality Of Life
Steineck G
Sweden/epidemiology
Terminally Ill/psychology
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/pon.1836" target="_blank" rel="noreferrer">http://doi.org/10.1002/pon.1836</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Stress, coping, and hope
Publisher
An entity responsible for making the resource available
Psycho-oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Humans; Attitude to Health; Uncertainty; Stress; Adaptation; Psychological; Neoplasms/psychology; Psychological/psychology
Creator
An entity primarily responsible for making the resource
Folkman S
Description
An account of the resource
Hope is discussed in many literatures and from many perspectives. In this essay hope is discussed from the vantage of psychology and stress and coping theory. Hope and psychological stress share a number of formal properties: both are contextual, meaning-based, and dynamic, and both affect well-being in difficult circumstances. Two assumptions underlie this essay: (1) hope is essential for people who are coping with serious and prolonged psychological stress; and (2) hope is not a perpetually self-renewing resource; it has peaks and valleys and is at times absent altogether. The relationship between hope and coping is dynamic and reciprocal; each in turn supports and is supported by the other. This relationship is illustrated with two adaptive tasks common across situations that threaten physical or psychological well-being-managing uncertainty and coping with a changing reality. The essay describes ways in which coping fosters hope when it is at low ebb as well as ways in which hope fosters and sustains coping over the long term.
2010
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/pon.1836" target="_blank" rel="noreferrer">10.1002/pon.1836</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Adaptation
Attitude To Health
Backlog
Folkman S
Humans
Journal Article
Neoplasms/psychology
Psycho-Oncology
Psychological
Psychological/psychology
Stress
Uncertainty
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1007/s10880-009-9183-6" target="_blank" rel="noreferrer">http://doi.org/10.1007/s10880-009-9183-6</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Long term posttraumatic growth after breast cancer: prevalence, predictors and relationships with psychological health
Publisher
An entity responsible for making the resource available
Journal Of Clinical Psychology In Medical Settings
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Cross-Sectional Studies; Female; Humans; Adult; Prevalence; Attitude to Health; Follow-Up Studies; Aged; Middle Aged; Predictive Value of Tests; Adaptation; Psychological; retrospective studies; Post-Traumatic/diagnosis/epidemiology/psychology; Stress Disorders; Disease-Free Survival; Breast Neoplasms/epidemiology/psychology; Quality of Life/psychology
Creator
An entity primarily responsible for making the resource
Lelorain S; Bonnaud-Antignac A; Florin A
Description
An account of the resource
This study evaluated the prevalence and predictors of long term posttraumatic growth (PTG) after breast cancer, and relationships of PTG with psychological health in a random sample of 307 currently disease-free women 5-15 years after diagnosis. This cross-sectional study reveals long term posttraumatic growth scores comparable to those found in shorter term studies. Prevalence of a better appreciation of life is especially noteworthy. With the exception of perceived current sequelae of disease associated in a somewhat curvilinear fashion with PTG, demographic and medical variables are poor predictors of the issue. On the contrary, dispositional positive affectivity and adaptative coping of positive, active, relational, religious and to some extent denial coping have a strong effect on growth. Finally, PTG is slightly associated with mental quality of life and happiness. Findings are discussed in the light of posttraumatic growth theory.
2010
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1007/s10880-009-9183-6" target="_blank" rel="noreferrer">10.1007/s10880-009-9183-6</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Adaptation
Adult
Aged
Attitude To Health
Backlog
Bonnaud-Antignac A
Breast Neoplasms/epidemiology/psychology
Cross-sectional Studies
Disease-Free Survival
Female
Florin A
Follow-up Studies
Humans
Journal Article
Journal Of Clinical Psychology In Medical Settings
Lelorain S
Middle Aged
Post-Traumatic/diagnosis/epidemiology/psychology
Predictive Value of Tests
Prevalence
Psychological
Quality Of Life/psychology
Retrospective Studies
Stress Disorders
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1007/s11126-006-9034-7" target="_blank" rel="noreferrer">http://doi.org/10.1007/s11126-006-9034-7</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Posttraumatic growth in treatment-seeking female assault victims
Publisher
An entity responsible for making the resource available
The Psychiatric Quarterly
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Female; Humans; Adult; Health Status; Outcome Assessment (Health Care); Life Change Events; Reproducibility of Results; Personality Inventory; Diagnostic and Statistical Manual of Mental Disorders; Adaptation; Psychological; Models; Parent caregivers; Depressive Disorder/diagnosis/psychology; Psychiatric Status Rating Scales; Stress Disorders; Post-Traumatic/diagnosis/psychology; Educational Status; Patient Acceptance of Health Care/psychology; Rape/psychology; Violence/psychology
Creator
An entity primarily responsible for making the resource
Grubaugh AL; Resick PA
Description
An account of the resource
The importance of measuring growth outcomes following a traumatic event has been highlighted in recent literature (e.g., Linley, Joseph: Journal of Traumatic Stress 17:11-21, 2004). Although reports of growth are abundant, the relationship between growth outcomes and post-trauma distress remains unclear, with studies yielding conflicting results regarding this relationship. The purpose of the present study was to explore the interrelationships among growth outcomes and measures of depression and posttraumatic stress disorder (PTSD) among 100 female treatment-seeking physical and sexual assault victims. Although the majority of women reported some degree of growth in this study, and growth scores were comparable to those from other samples, measures of depression and PTSD were not significantly related to growth scores. The implication of these findings and future direction for research are discussed.
2007
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1007/s11126-006-9034-7" target="_blank" rel="noreferrer">10.1007/s11126-006-9034-7</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
Adaptation
Adult
Backlog
Depressive Disorder/diagnosis/psychology
Diagnostic and Statistical Manual of Mental Disorders
Educational Status
Female
Grubaugh AL
Health Status
Humans
Journal Article
Life Change Events
Models
Outcome Assessment (health Care)
Parent caregivers
Patient Acceptance of Health Care/psychology
Personality Inventory
Post-Traumatic/diagnosis/psychology
Psychiatric Status Rating Scales
Psychological
Rape/psychology
Reproducibility of Results
Resick PA
Stress Disorders
The Psychiatric Quarterly
Violence/psychology
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.cppeds.2010.05.001" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.cppeds.2010.05.001</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Pediatric palliative care.
Publisher
An entity responsible for making the resource available
Current Problems In Pediatric And Adolescent Health Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Child; Humans; Professional-Family Relations; Interdisciplinary Communication; Resuscitation Orders; Adaptation; Psychological; patient care team; Psychological; Stress; DNAR; Child welfare; hospice care; Analgesics/tu [Therapeutic Use]; Palliative Care/px [Psychology]; decision making; Pain/dt [Drug Therapy]; Pediatrics/td [Trends]; Quality of Life/px [Psychology]; Analgesics/ae [Adverse Effects]; Constipation/ci [Chemically Induced]; Nausea/ci [Chemically Induced]; Vomiting/ci [Chemically Induced]
Creator
An entity primarily responsible for making the resource
Klick JC; Hauer JM
Description
An account of the resource
Palliative care has always been a part of the care of children. It includes any intervention that focuses on relieving suffering, slowing the progression of disease, and improving quality of life at any stage of disease. In addition, for even the child with the most unpredictable disease, there are predictable times in this child's life when the child, family, and care team will be suffering in ways that can be mitigated by specific interventions. Rather than defining pediatric palliative care in terms of a patient base, severity of disease, or even a general philosophy of care, palliative care can best be understood as a specific set of tasks directed at mitigating suffering. By understanding these tasks; learning to identify predictable times and settings of suffering; and learning to collaborate with multidisciplinary specialists, use communication skills, and identify clinical resources, the pediatrician can more effectively support children with life-threatening illnesses and their families. In this article, we define palliative care as a focus of care integrated in all phases of life and as a set of interventions aimed at easing suffering associated with life-threatening conditions. We detail an approach to these interventions and discuss how they can be implemented by the pediatrician with the support of specialists in hospice and palliative medicine. We discuss common and predictable times of suffering when these interventions become effective ways to treat suffering and improve quality of life. Finally, we discuss those situations that pediatricians most commonly and intensely interface with palliative care-the care of the child with complex, chronic conditions and severe neurologic impairment (SNI).Copyright 2010 Mosby, Inc. All rights reserved.
2010
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.cppeds.2010.05.001" target="_blank" rel="noreferrer">10.1016/j.cppeds.2010.05.001</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Adaptation
Analgesics/ae [Adverse Effects]
Analgesics/tu [Therapeutic Use]
Backlog
Child
Child welfare
Constipation/ci [Chemically Induced]
Current Problems in Pediatric and Adolescent Health Care
Decision Making
DNAR
Hauer JM
Hospice Care
Humans
Interdisciplinary Communication
Journal Article
Klick JC
Nausea/ci [Chemically Induced]
Pain/dt [drug Therapy]
Palliative Care/px [psychology]
Patient Care Team
Pediatrics/td [trends]
Professional-family Relations
Psychological
Quality Of Life/px [psychology]
Resuscitation Orders
Stress
Vomiting/ci [Chemically Induced]
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.genhosppsych.2009.03.012" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.genhosppsych.2009.03.012</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Coping, self-efficacy and psychiatric history in patients with both chronic widespread pain and chronic fatigue
Publisher
An entity responsible for making the resource available
General Hospital Psychiatry
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
adolescent; Female; Humans; Male; Young Adult; Pain; Adult; Attitude to Health; Emotions; Questionnaires; Chronic disease; Aged; Middle Aged; Comorbidity; Self Efficacy; Fatigue; Problem Solving; Severity of Illness Index; Activities of Daily Living; Regression Analysis; Depressive Disorder; Adaptation; Psychological; Stress Disorders; Chronic; Fatigue Syndrome; Fibromyalgia; Major; Post-Traumatic
Creator
An entity primarily responsible for making the resource
Smith WR; Strachan ED; Buchwald D
Description
An account of the resource
OBJECTIVE: To investigate the relationship of coping style and self-efficacy to functional impairment in a group of patients with both chronic widespread pain (CWP) and chronic fatigue, as well as the possible mediating role of psychiatric diagnosis. METHODS: We identified 138 consecutive clinic patients who met criteria for CWP and chronic fatigue. We collected demographic and clinical characteristics, as well as measures of emotion-focused and problem-focused coping styles, fatigue-related self-efficacy and self-reported general health. Psychiatric diagnoses were determined with a structured interview. Short Form-36 subscales of pain-related and fatigue-related functioning were the dependent variables in ordinal multiple regression analyses to identify the best-fit model for each. RESULTS: In the final model for pain, increased functional impairment was associated with increased emotion-focused coping as well as less education, lower general health scores and higher body mass index. Conversely, in the final model for fatigue, increased functional impairment was significantly associated with less emotion-focused coping, lower general health scores and lower self-efficacy. CONCLUSIONS: The unexpected finding that emotion-focused coping was associated differently with chronic pain and fatigue among patients who experience both symptoms is discussed in the context of the research on the effects of self-efficacy and possible treatment approaches.
2009-08
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.genhosppsych.2009.03.012" target="_blank" rel="noreferrer">10.1016/j.genhosppsych.2009.03.012</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Activities of Daily Living
Adaptation
Adolescent
Adult
Aged
Attitude To Health
Backlog
Buchwald D
Chronic
Chronic Disease
Comorbidity
Depressive Disorder
Emotions
Fatigue
Fatigue Syndrome
Female
Fibromyalgia
General Hospital Psychiatry
Humans
Journal Article
Major
Male
Middle Aged
Pain
Post-traumatic
Problem Solving
Psychological
Questionnaires
Regression Analysis
Self Efficacy
Severity Of Illness Index
Smith WR
Strachan ED
Stress Disorders
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1017/S1478951509990289" target="_blank" rel="noreferrer">http://doi.org/10.1017/S1478951509990289</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
International comparison study on the primary concerns of terminally ill cancer patients in short-term life review interviews among Japanese, Koreans, and Americans
Publisher
An entity responsible for making the resource available
Palliative & Supportive Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Female; Humans; Male; United States; Aged; Middle Aged; Cross-Cultural Comparison; Life Change Events; Hospices; Spirituality; Religion and Psychology; Psychometrics; Japan; 80 and over; Psychological; Personality Inventory/statistics & numerical data; Republic of Korea; Interview; Terminal Care/psychology; Mental Recall; Neoplasms/ethnology/psychology; Social Values/ethnology
Creator
An entity primarily responsible for making the resource
Ando M; Morita T; Ahn SH; Marquez-Wong F; Ide S
Description
An account of the resource
OBJECTIVE: The aim of this study was to investigate the primary concerns of terminally ill cancer patients in a Short-Term Life Review among Japanese, Koreans, and Americans to develop intervention programs to be tailored to patients in other countries. METHOD: Twenty Japanese, 16 Korean, and 7 American terminally ill cancer patients who were in the hospice wards of general Christian hospitals in each country participated in this study. Medical staff members (nurses, social workers, clinical psychologists) performed Short-Term Life Review Interviews with each patient. Patients reviewed their lives in the first session, the interviewers made simple albums for each patient in the week following the first session, and patients and interviewers then confirmed the contents of the album. The treatment period was 1 week. Measurement instruments included the Functional Assessment Chronic Illness Therapy-Spiritual (FACIT-Sp) and the Hospital Anxiety and Depression Scale (HADS). The contents of each interview session were transcribed, and correspondence analysis and a significance test were conducted on these data to select characteristic words or phrases. RESULTS: Using the FACIT-Sp scores, the following concerns were chosen, in descending order of frequency. In Japan, primary concerns consisted of such ideas as "good human relationships and transcendence," "achievements and satisfaction," "good memories and important things," and "bitter memories." In Korea, "religious life," "right behavior for living," "strong consideration for children and will," and "life for living" were primary concerns. In the United States, "love, pride, will to children," "good, sweet memories," and "regret and a feeling of loss" were primary concerns. SIGNIFICANCE OF RESULTS: We clarify the differences among the primary concerns from the Short-Term Life Reviews, arguing that we can improve the spiritual well-being of terminally ill cancer patients by focusing on the primary concerns within each country.
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1017/S1478951509990289" target="_blank" rel="noreferrer">10.1017/S1478951509990289</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
80 And Over
Aged
Ahn SH
Ando M
Backlog
Cross-cultural Comparison
Female
Hospices
Humans
Ide S
Interview
Japan
Journal Article
Life Change Events
Male
Marquez-Wong F
Mental Recall
Middle Aged
Morita T
Neoplasms/ethnology/psychology
Palliative & Supportive Care
Personality Inventory/statistics & numerical data
Psychological
Psychometrics
Religion and Psychology
Republic of Korea
Social Values/ethnology
Spirituality
Terminal Care/psychology
United States
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1037/0893-3200.22.2.203" target="_blank" rel="noreferrer">http://doi.org/10.1037/0893-3200.22.2.203</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Long-term effects of the death of a child on parents' adjustment in midlife
Publisher
An entity responsible for making the resource available
Journal Of Family Psychology
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Female; Humans; Male; Grief; Adult; Follow-Up Studies; Middle Aged; Death; Health Status; Longitudinal Studies; Wisconsin; Time; Stress; adolescent; Adaptation; Psychological; bereavement; Parents/psychology; Psychiatric Status Rating Scales; Marriage/psychology; Bereavement Leave Policy Paper; Depressive Disorder/diagnosis/etiology/psychology; Family Conflict/psychology; Psychological/diagnosis/etiology/psychology
Creator
An entity primarily responsible for making the resource
Rogers CH; Floyd FJ; Seltzer MM; Greenberg J; Hong J
Description
An account of the resource
The death of a child is a traumatic event that can have long-term effects on the lives of parents. This study examined bereaved parents of deceased children (infancy to age 34) and comparison parents with similar backgrounds (n = 428 per group) identified in the Wisconsin Longitudinal Study. An average of 18.05 years following the death, when parents were age 53, bereaved parents reported more depressive symptoms, poorer well-being, and more health problems and were more likely to have experienced a depressive episode and marital disruption than were comparison parents. Recovery from grief was associated with having a sense of life purpose and having additional children but was unrelated to the cause of death or the amount of time since the death. The results point to the need for detection and intervention to help those parents who are experiencing lasting grief.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1037/0893-3200.22.2.203" target="_blank" rel="noreferrer">10.1037/0893-3200.22.2.203</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Adaptation
Adolescent
Adult
Backlog
Bereavement
Bereavement Leave Policy Paper
Death
Depressive Disorder/diagnosis/etiology/psychology
Family Conflict/psychology
Female
Floyd FJ
Follow-up Studies
Greenberg J
Grief
Health Status
Hong J
Humans
Journal Article
Journal Of Family Psychology
Longitudinal Studies
Male
Marriage/psychology
Middle Aged
Parents/psychology
Psychiatric Status Rating Scales
Psychological
Psychological/diagnosis/etiology/psychology
Rogers CH
Seltzer MM
Stress
Time
Wisconsin
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1038/sj.bjc.6604420" target="_blank" rel="noreferrer">http://doi.org/10.1038/sj.bjc.6604420</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Psychological distress in cancer patients assessed with an expert rating scale
Publisher
An entity responsible for making the resource available
British Journal Of Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Female; Humans; Male; Adult; Aged; Middle Aged; Health Status; Sex Factors; Psychometrics; adolescent; 80 and over; Psychological; Stress; Psychiatric Status Rating Scales; Neoplasms/psychology
Creator
An entity primarily responsible for making the resource
Herschbach P; Book K; Brandl T; Keller M; Lindena G; Neuwohner K; Marten-Mittag B
Description
An account of the resource
The purpose of this study was to investigate psychosocial stress in a large sample of cancer patients using an expert rating scale. Specific aims were to analyse the relevance of setting variables (type of clinic, contact initiative, therapy) and gender. A total of 6365 patients were assessed in 105 institutions. Univariate and multivariate statistical analysis of setting variables indicated that patients treated in palliative care settings showed highest distress scores compared to patients recruited from hospitals and outpatient clinics (P<0.001). Significant differences were also found for contact initiative (P<0.001); lowest distress was found in patients who were recruited by routine contact. Patients who asked for psychosocial support or who were recruited by the medical staff showed the highest distress scores. The analysis of therapy groups showed that patients receiving radiotherapy or surgery were not more distressed than patients without therapy. The most distressing treatment was chemotherapy. Gender had differential effects on clinic type (P<0.001) and contact initiative (P<0.001) but not on treatment and diagnosis. Expert rating scales are an important complement for self-assessment questionnaires to evaluate psychological distress of cancer patients in psychosocial studies as well as in routine medical care.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1038/sj.bjc.6604420" target="_blank" rel="noreferrer">10.1038/sj.bjc.6604420</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
80 And Over
Adolescent
Adult
Aged
Backlog
Book K
Brandl T
British Journal Of Cancer
Female
Health Status
Herschbach P
Humans
Journal Article
Keller M
Lindena G
Male
Marten-Mittag B
Middle Aged
Neoplasms/psychology
Neuwohner K
Psychiatric Status Rating Scales
Psychological
Psychometrics
Sex Factors
Stress
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1080/08836610701309724" target="_blank" rel="noreferrer">http://doi.org/10.1080/08836610701309724</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Adjustment to chronic pain: the role of pain acceptance, coping strategies, and pain-related cognitions
Publisher
An entity responsible for making the resource available
Annals Of Behavioral Medicine: A Publication Of The Society Of Behavioral Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Female; Humans; Male; Pain; Adult; Chronic disease; Aged; Middle Aged; Culture; Sick Role; Sex Factors; Activities of Daily Living; Depression; Internal-External Control; Psychometrics; Personality Inventory; Anxiety; Behavior Therapy; Adaptation; Psychological; Models; Statistical; Helplessness; Learned; Software; Mathematical Computing
Creator
An entity primarily responsible for making the resource
Esteve R; Ramírez-Maestre C; López-Marínez AE
Description
An account of the resource
BACKGROUND: Previous research has found that acceptance of pain is more successful than coping variables in predicting adjustment to pain. PURPOSE: To compare the influence of acceptance, pain-related cognitions and coping in adjustment to chronic pain. METHODS: One hundred seventeen chronic pain patients attending the Clinical Pain Unit were administered a battery of questionnaires assessing pain acceptance, active and passive coping, pain-related cognitions, and adjustment. RESULTS: The influence of acceptance, coping, and cognition on all the adjustment variables was considered simultaneously via Structural Equation Modeling using LISREL 8.30 software. A multigroup analysis showed that the male and female samples did not significantly differ regarding path coefficients. The final model showed that acceptance of pain determined functional status and functional impairment. However, coping measures had a significant influence on measures of emotional distress. Catastrophizing self-statements significantly influenced reported pain intensity and anxiety; resourcefulness beliefs had a negative and significant influence on depression. CONCLUSIONS: These findings suggest that acceptance may play a critical role in the maintenance of functioning and, with this aim, acceptance-based treatments are promising to avoid the development of disability. They also lend support to the role of control beliefs and of active coping to maintain a positive mood. Acceptance and coping are presented as complementary approaches.
2007-04
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/08836610701309724" target="_blank" rel="noreferrer">10.1080/08836610701309724</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
Activities of Daily Living
Adaptation
Adult
Aged
Annals Of Behavioral Medicine: A Publication Of The Society Of Behavioral Medicine
anxiety
Backlog
Behavior Therapy
Chronic Disease
Culture
Depression
Esteve R
Female
Helplessness
Humans
Internal-External Control
Journal Article
Learned
López-Marínez AE
Male
Mathematical Computing
Middle Aged
Models
Pain
Personality Inventory
Psychological
Psychometrics
Ramírez-Maestre C
Sex Factors
Sick Role
Software
statistical
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1080/10615800903094273" target="_blank" rel="noreferrer">http://doi.org/10.1080/10615800903094273</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
A short form of the Posttraumatic Growth Inventory
Publisher
An entity responsible for making the resource available
Anxiety, Stress, And Coping
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Female; Humans; Male; Young Adult; Adult; Aged; Middle Aged; Life Change Events; Reproducibility of Results; Psychometrics; adolescent; 80 and over; Adaptation; Psychological; bereavement; Statistical; Psychological Tests; Factor Analysis; Domestic Violence/psychology; Leukemia/psychology
Creator
An entity primarily responsible for making the resource
Cann A; Calhoun LG; Tedeschi RG; Taku K; Vishnevsky T; Triplett KN; Danhauer SC
Description
An account of the resource
A short form of the Posttraumatic Growth Inventory (PTGI-SF) is described. A sample of 1351 adults who had completed the Posttraumatic Growth Inventory (PTGI) in previous studies provided the basis for item selection. The resulting 10-item form includes two items from each of the five subscales of the original PTGI, selected on the basis of loadings on the original factors and breadth of item content. A separate sample of 186 completed the short form of the scale (PTGI-SF). Confirmatory factor analyses on both data sets demonstrated a five-factor structure for the PTGI-short form (PTGI-SF) equivalent to that of the PTGI. Three studies of homogenous clinical samples (bereaved parents, intimate partner violence victims, and acute leukemia patients) demonstrated that the PTGI-SF yields relationships with other variables of interest that are equivalent to those found using the original form of the PTGI. A final study demonstrated that administering the 10 short-form items in a random order, rather than in the fixed context of the original scale, did not impact the performance of the PTGI-SF. Overall, these results indicate that the PTGI-SF could be substituted for the PTGI with little loss of information.
2010
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/10615800903094273" target="_blank" rel="noreferrer">10.1080/10615800903094273</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
80 And Over
Adaptation
Adolescent
Adult
Aged
Anxiety, Stress, And Coping
Backlog
Bereavement
Calhoun LG
Cann A
Danhauer SC
Domestic Violence/psychology
Factor Analysis
Female
Humans
Journal Article
Leukemia/psychology
Life Change Events
Male
Middle Aged
Psychological
Psychological Tests
Psychometrics
Reproducibility of Results
statistical
Taku K
Tedeschi RG
Triplett KN
Vishnevsky T
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/jpm.2007.0283" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2007.0283</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Staff experiences with end-of-life care in the pediatric intensive care unit
Publisher
An entity responsible for making the resource available
Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Humans; Intensive Care Units; Grief; Medical Staff; Professional-Patient Relations; Medical; Pediatric; Psychological; Stress; Hospital/psychology; Interviews as Topic/methods; Technology; Terminal Care/ethics/methods
Creator
An entity primarily responsible for making the resource
Lee KJ; Dupree CY
Description
An account of the resource
The purposes of this study were to describe the experiences of pediatric intensive care unit (PICU) staff caring for a child who dies, and to determine whether responses included unprompted indications of moral distress as described in the literature. This qualitative, descriptive study consisted of semistructured interviews conducted with professional caregivers of a child who died in a large, multidisciplinary PICU. Interviews were audiotaped, transcribed and subjected to content analysis. Main results Interviews (n = 32) were conducted with 29 staff members regarding 8 patient deaths. Participants included nurses, physicians, and psychosocial support personnel. The overall tone of the interviews was positive, and participants expressed satisfaction with their work and the work of their colleagues. The major themes of staff members experiences were (1) importance of communication, (2) accommodating the wishes of others despite personal preferences, (3) ambiguity about the use of technology, (4) sadness, and (5) emotional support. Descriptions of moral distress were seen infrequently. Many welcomed the sadness they experienced as a sign of their humanity and emotional availability, but did not feel adequately supported in dealing with their grief. CONCLUSIONS: The experience of caring for a child who dies in the PICU is multifaceted. Grief, rather than moral distress, was the dominant psychological response of caregivers. Future research could focus on enhancing communication and emotional support.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jpm.2007.0283" target="_blank" rel="noreferrer">10.1089/jpm.2007.0283</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Backlog
Dupree CY
Grief
Hospital/psychology
Humans
Intensive Care Units
Interviews as Topic/methods
Journal Article
Journal of Palliative Medicine
Lee KJ
Medical
Medical Staff
Pediatric
Professional-patient Relations
Psychological
Stress
Technology
Terminal Care/ethics/methods
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/jpm.2009.0295" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2009.0295</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Family support in pediatric palliative care: how are families impacted by their children's illnesses?
Publisher
An entity responsible for making the resource available
Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Child; Cross-Sectional Studies; Female; Humans; Male; Young Adult; Adult; Health Care Surveys; Parent-Child Relations; Professional-Family Relations; Program Evaluation; Multivariate Analysis; Psychometrics; Florida; Regression Analysis; quality of life; adolescent; Preschool; Adaptation; Psychological; Palliative Care/organization & administration; infant; social support; Pediatrics/organization & administration; Telephone
Creator
An entity primarily responsible for making the resource
Knapp CA; Madden VL; Curtis CM; Sloyer P; Shenkman EA
Description
An account of the resource
CONTEXT: Palliative care programs have the opportunity to intercede and provide supportive care to parents whose families have been impacted by their children's illnesses. By understanding how families are impacted, programs can refine their service provision and investigate unmet needs. OBJECTIVE: To determine how families are impacted and what factors are associated with greater impact. DESIGN: 2008 cross-sectional telephone survey. SETTING: Florida. PATIENTS: Eighty-five parents whose children had life-limiting illnesses and were enrolled in Florida's publicly funded pediatric palliative care program. MAIN OUTCOME MEASURE: The Impact on Family (IOF) Scale. RESULTS: The majority of parents who responded to the survey are white non-Hispanic (56%), married (54%), had graduated from college (33%), and live in a two-parent household (60%). For 11 of the 15 IOF questions, the results showed that 50% or more of parents agreed with items on the IOF. For example, 71% of parents indicated that their family had to give things up as a result of their children's illnesses. Multivariate analysis showed that having depressive symptoms was associated with greater impact on the family. CONCLUSION: Our findings stress the importance of considering the needs of all family members when providing care to children and understanding and attempting to address family member's needs that may not be covered by pediatric palliative care services. Particular attention should be paid to parents with depressive symptoms, because they can receive supportive care in their children's pediatric palliative care programs.
2010
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jpm.2009.0295" target="_blank" rel="noreferrer">10.1089/jpm.2009.0295</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Adaptation
Adolescent
Adult
Backlog
Child
Cross-sectional Studies
Curtis CM
Female
Florida
Health Care Surveys
Humans
Infant
Journal Article
Journal of Palliative Medicine
Knapp CA
Madden VL
Male
Multivariate Analysis
Palliative Care/organization & Administration
Parent-child Relations
Pediatrics/organization & Administration
Preschool
Professional-family Relations
Program Evaluation
Psychological
Psychometrics
Quality Of Life
Regression Analysis
Shenkman EA
Sloyer P
Social Support
Telephone
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1093/geronb/gbn024" target="_blank" rel="noreferrer">http://doi.org/10.1093/geronb/gbn024</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Sibling death and death fear in relation to depressive symptomatology in older adults
Publisher
An entity responsible for making the resource available
The Journals Of Gerontology. Series B, Psychological Sciences And Social Sciences
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Female; Humans; Male; bereavement; Aged; Attitude to Death; Age Factors; Socioeconomic Factors; Adjustment Disorders; Fear; Sibling Relations; Psychometrics; Personality Inventory; Survivors; Family Characteristics; 80 and over; Psychological; Models; sibling bereavement; Object Attachment
Creator
An entity primarily responsible for making the resource
Cicirelli VG
Description
An account of the resource
Previously overlooked factors in elders' depressive symptomatology were examined, including death fear, sibling death, and sibling closeness. Participants were 150 elders (61 men, 89 women) aged 65-97 years with at least one sibling. Measures were proportion of deceased siblings, sibling closeness, the Death Fear Subscale of the Death Attitude Profile-Revised, and the Center for Epidemiological Studies-Depression scale (20-item adult form). Age and education were exogenous variables in a structural equation model. Death fear, sibling closeness, and proportion of dead siblings were directly related to depression, with path coefficients of .42, -.24, and .13, respectively. Proportion of dead siblings had indirect effects on depression, as did age and education. Depressive symptomatology in old age is influenced by death fear related to sibling death as well as by poor relationships with them; it must be understood within a situational context including death fear and sibling relationships.
2009-01
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1093/geronb/gbn024" target="_blank" rel="noreferrer">10.1093/geronb/gbn024</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
80 And Over
Adjustment Disorders
Age Factors
Aged
Attitude To Death
Backlog
Bereavement
Cicirelli VG
Family Characteristics
Fear
Female
Humans
Journal Article
Male
Models
Object Attachment
Personality Inventory
Psychological
Psychometrics
sibling bereavement
Sibling Relations
Socioeconomic Factors
Survivors
The Journals Of Gerontology. Series B, Psychological Sciences And Social Sciences
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1093/jpepsy/jsn017" target="_blank" rel="noreferrer">http://doi.org/10.1093/jpepsy/jsn017</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Psychosocial functioning in youth with glycogen storage disease type I
Publisher
An entity responsible for making the resource available
Journal of Pediatric Psychology
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Child; Female; Humans; Male; Adult; Florida; Family Health; Case-Control Studies; quality of life; adolescent; Preschool; Adaptation; Psychological; Adolescent Transitions; Parents/psychology; Diabetes Mellitus/psychology; Glycogen Storage Disease Type I/psychology; Loneliness
Creator
An entity primarily responsible for making the resource
Storch E; Keeley M; Merlo L; Jacob M; Correia C; Weinstein D
Description
An account of the resource
OBJECTIVE: To assess the quality of life and psychosocial functioning among pediatric patients with Glycogen Storage Disease (GSD) types Ia and Ib. METHODS: Thirty-one youth with GSD types Ia and Ib and 42 healthy controls participated. Quality of life ratings from the GSD types Ia and Ib sample were compared with a previously reported clinical comparison sample. Children completed measures of quality of life, loneliness, family functioning, and sibling relationship quality (e.g., warmth, conflict). Parents completed measures of parental distress, parenting stress, child adaptive behavior, and child emotional and behavioral functioning. RESULTS: Quality of life was generally lower in youth with GSD relative to healthy controls but similar to those with a chronic illness. Children with GSD were rated as having more internalizing symptoms, social problems, and lower independent functioning relative to healthy controls. Parents reported greater distress and parenting stress relative to healthy controls. CONCLUSIONS: The presence of GSD types Ia and Ib are associated with reduced quality of life and independent functioning, and elevated levels of internalizing distress and parental stress relative to healthy peers. Relative to their children, parents generally reported that their child was more impaired, which suggests the need for multiple informants during assessment and active parental involvement during psychological treatment. These points should be kept in mind when assessing and treating youth with this disease and their families as psychological interventions that target areas of concern (e.g., adherence, coping with having a chronic disease) may be helpful for improving child and family outcomes.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1093/jpepsy/jsn017" target="_blank" rel="noreferrer">10.1093/jpepsy/jsn017</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Adaptation
Adolescent
Adolescent Transitions
Adult
Backlog
Case-Control Studies
Child
Correia C
Diabetes Mellitus/psychology
Family Health
Female
Florida
Glycogen Storage Disease Type I/psychology
Humans
Jacob M
Journal Article
Journal of Pediatric Psychology
Keeley M
Loneliness
Male
Merlo L
Parents/psychology
Preschool
Psychological
Quality Of Life
Storch E
Weinstein D
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/01.AOG.0000259317.55726.df" target="_blank" rel="noreferrer">http://doi.org/10.1097/01.AOG.0000259317.55726.df</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Hospital care for parents after perinatal death
Publisher
An entity responsible for making the resource available
Obstetrics And Gynecology
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Female; Hospitalization; Humans; infant; Male; Fetal Death; Pregnancy; Adult; Parent-Child Relations; Infant Mortality; Autopsy; Choice Behavior; Funeral Rites; Adaptation; Psychological; patient care team; bereavement; Newborn; Parents/psychology; Photography; Pregnancy Trimester; Second; Stillbirth/psychology; Third
Creator
An entity primarily responsible for making the resource
Gold KJ; Dalton VK; Schwenk TL
Description
An account of the resource
OBJECTIVE: To systematically review parent experiences with hospital care after perinatal death. DATA SOURCES: An evaluation of more than 1,100 articles from 1966 to 2006 was performed to identify studies of fetal death in the second or third trimester and neonatal death in the first month of life. METHODS OF STUDY SELECTION: Studies were limited to those that were in English, evaluated care in U.S. hospitals, and contained direct parent data or opinions. TABULATION, INTEGRATION, AND RESULTS: Results were compiled on five aspects of recommended care: 1) obtaining photographs and memorabilia of the deceased infant, 2) seeing and holding the infant, 3) labor and delivery of the child, 4) autopsies, and 5) options for funerals or memorial services. Sixty eligible studies with over 6,200 patients were reviewed. In general, parents reported appreciating time and contact with their deceased infant, being given options about labor, delivery, and burial, receiving photographs and memorabilia, and having appropriate hospital follow-up after autopsy. CONCLUSION: Although care after perinatal death often adheres to published guidelines, substantial room for improvement is apparent. Parents with perinatal losses report few choices during labor and delivery and inadequate communication about burial options and autopsy results. Hospitals, nurses, and doctors should increase parental choice about timing and location of delivery and postpartum care, encourage parental contact with the deceased infant, and facilitate provision of photos and memorabilia.
2007
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/01.AOG.0000259317.55726.df" target="_blank" rel="noreferrer">10.1097/01.AOG.0000259317.55726.df</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
Adaptation
Adult
Autopsy
Backlog
Bereavement
Choice Behavior
Dalton VK
Female
Fetal Death
Funeral Rites
Gold KJ
Hospitalization
Humans
Infant
Infant Mortality
Journal Article
Male
Newborn
Obstetrics And Gynecology
Parent-child Relations
Parents/psychology
Patient Care Team
Photography
Pregnancy
Pregnancy Trimester
Psychological
Schwenk TL
Second
Stillbirth/psychology
Third
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/01.FCH.0000290542.10458.f8" target="_blank" rel="noreferrer">http://doi.org/10.1097/01.FCH.0000290542.10458.f8</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Family function in families of children with Duchenne muscular dystrophy
Publisher
An entity responsible for making the resource available
Family & Community Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Child; Cross-Sectional Studies; Female; Humans; Male; Adult; Questionnaires; Middle Aged; Family Relations; Age Factors; Socioeconomic Factors; Cost of Illness; Family Health; Sickness Impact Profile; Preschool; Adaptation; Psychological; Caregivers/psychology; Parents/psychology; Psychological; Stress; social support; Taiwan; disabled children; Muscular Dystrophy; Duchenne/economics/physiopathology
Creator
An entity primarily responsible for making the resource
Chen JY; Clark MJ
Description
An account of the resource
This article investigates the relationships of child- and family-related variables with family function in families with children who have Duchenne muscular dystrophy. Child-related variables included level of disability (indicator: Barthel Index) and age at diagnosis. Family-related variables included caregiver health status (indicator: Duke Health Profile), family income and employment, family support (indicator: Family APGAR), family hardiness (indicator: Family Hardiness Index), and family functioning (indicator: Family Assessment Device). Family function displayed a significant correlation with age at diagnosis, but not with disability level. It was also significantly correlated with family hardiness, caregiver health status, and levels of family support, but not with income or employment variables. These findings highlight the need to assist families to cope with the presence of serious illness in their children.
2007
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/01.FCH.0000290542.10458.f8" target="_blank" rel="noreferrer">10.1097/01.FCH.0000290542.10458.f8</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
Adaptation
Adult
Age Factors
Backlog
Caregivers/psychology
Chen JY
Child
Clark MJ
Cost Of Illness
Cross-sectional Studies
Disabled Children
Duchenne/economics/physiopathology
Family & Community Health
Family Health
Family Relations
Female
Humans
Journal Article
Male
Middle Aged
Muscular Dystrophy
Parents/psychology
Preschool
Psychological
Questionnaires
Sickness Impact Profile
Social Support
Socioeconomic Factors
Stress
Taiwan
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1365-2214.2009.00944.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2214.2009.00944.x</a>
Dublin Core
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Title
A name given to the resource
The use of the Impact on Sibling scale with families of children with chronic illness and developmental disability
Publisher
An entity responsible for making the resource available
Child: Care, Health And Development
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Child; Female; Humans; Male; Socioeconomic Factors; Sibling Relations; Psychometrics; adolescent; Preschool; Adaptation; Psychological; infant; Chronic disease; Parents/psychology; Child Development Disorders; Developmental Disabilities/psychology; Siblings/psychology; Pervasive/psychology
Creator
An entity primarily responsible for making the resource
Kao B; Plante W; Lobato D
Description
An account of the resource
OBJECTIVE: This study evaluated the Impact on Sibling scale, a six-item measure of parents' perception of the effects of a child's illness on healthy siblings. METHODS: Participants were 122 parents of a child with chronic illness, developmental disability, or autism spectrum disorder, and a well sibling aged 4-13 years. Parents completed the Impact on Sibling scale and the Child Behavior Checklist about the sibling, and completed the revised Impact on Family scale and the Brief Symptom Inventory about themselves. RESULTS: The Impact on Sibling score was correlated with measures of sibling, parent and family functioning. The internal consistency of the Impact on Sibling scale was higher for families with children with chronic illness compared with the other two diagnostic groups. CONCLUSION: The Impact on Sibling scale is a brief set of items that can help identify siblings who are negatively affected by a brother/sister's illness. Findings support further research on the Impact on Sibling scale, particularly with families of children with chronic illnesses.
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1365-2214.2009.00944.x" target="_blank" rel="noreferrer">10.1111/j.1365-2214.2009.00944.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Adaptation
Adolescent
Backlog
Child
Child Development Disorders
Child: Care, Health and Development
Chronic Disease
Developmental Disabilities/psychology
Female
Humans
Infant
Journal Article
Kao B
Lobato D
Male
Parents/psychology
Pervasive/psychology
Plante W
Preschool
Psychological
Psychometrics
Sibling Relations
Siblings/psychology
Socioeconomic Factors
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1365-2702.2007.01943.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2702.2007.01943.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The experiences of Chinese family members of terminally ill patients - a qualitative study
Publisher
An entity responsible for making the resource available
Journal Of Clinical Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Female; Humans; Male; Grief; Adult; Questionnaires; Aged; Middle Aged; Professional-Family Relations; Health Services Needs and Demand; Qualitative Research; Nursing Methodology Research; Health Education; Nursing Staff; Practice; adolescent; 80 and over; Adaptation; Psychological; Attitudes; Health Knowledge; social support; Anger; Attitude to Death/ethnology; Hong Kong; Hospital/psychology; Nurse's Role/psychology; Attitude to Health/ethnology; Family/ethnology; Palliative Care/organization & administration/psychology
Creator
An entity primarily responsible for making the resource
Wong MS; Chan SW
Description
An account of the resource
AIM: To describe and understand the experiences of Chinese family members of terminally ill patients during the end of life process in a palliative care unit. BACKGROUND: Palliative care aims to provide care to dying patients and their family members. Skillful interventions are necessary to help family members cope with the impending death of the patient and maintain their emotional equilibrium. Hence, it is important to understand the experiences of family members of palliative care. DESIGN: A phenomenological study was conducted. Data were collected by semi-structured interviews. We interviewed a purposive sample of 20 family members of terminally ill patients in a palliative care unit in Hong Kong. The data were analysed following Colaizzi's phenomenological methodology. RESULTS: Family members experienced anticipatory grief, with reactions that included anger, unease, sadness and helplessness. This was particularly acute when the patient was first admitted to the palliative care unit. However, the family members quickly accepted the reality and committed themselves to the care of the patient, seeking informational and emotional support from the nurses. The families wanted to be assured that the patient had been offered good care and suffered no pain. It was considered important to be with the patient during the dying process. CONCLUSION: This study demonstrated that Chinese family members were committed to the care of the patients in the palliative care unit. Cultural beliefs played a part in influencing family emotions and concerns. RELEVANCE TO CLINICAL PRACTICE: This study offers a direction for family interventions that acknowledge the reactions of family members to the admission of a patient to a palliative care unit. It highlights that families need active informational and emotional support from nurses.
2007
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1365-2702.2007.01943.x" target="_blank" rel="noreferrer">10.1111/j.1365-2702.2007.01943.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
80 And Over
Adaptation
Adolescent
Adult
Aged
Anger
Attitude To Death/ethnology
Attitude to Health/ethnology
Attitudes
Backlog
Chan SW
Family/ethnology
Female
Grief
Health Education
Health Knowledge
Health Services Needs And Demand
Hong Kong
Hospital/psychology
Humans
Journal Article
Journal of Clinical Nursing
Male
Middle Aged
Nurse's Role/psychology
Nursing Methodology Research
Nursing Staff
Palliative Care/organization & administration/psychology
Practice
Professional-family Relations
Psychological
Qualitative Research
Questionnaires
Social Support
Wong MS
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/0269216307082475" target="_blank" rel="noreferrer">http://doi.org/10.1177/0269216307082475</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Impact of euthanasia on primary care physicians in the Netherlands.
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Female; Humans; Male; decision making; Attitude of Health Personnel; Emotions; Euthanasia; Netherlands; Qualitative Research; Physician's Role; Professional-Patient Relations; Primary Health Care; Adaptation; Psychological; decision making; Active; Euthanasia; Physician Assisted Dying PAD; Attitude of Health Personnel; Emotions; Physician's Role/px [Psychology]; Primary Health Care; Active/px [Psychology]
Creator
An entity primarily responsible for making the resource
van Marwijk H; Haverkate I; van Royen P; The Anne-Mei
Description
An account of the resource
BACKGROUND: There is only limited knowledge about the emotional impact that performing euthanasia has on primary care physicians (PCPs) in the Netherlands., OBJECTIVE: To obtain more insight into the emotional impact on PCPs of performing euthanasia or assisted suicide, and to tailor the educational needs of vocational PCP trainees accordingly., METHODS: Qualitative research, consisting of four focus group studies. The setting was primary care in the Netherlands; 22 PCPs participated, in four groups (older males, older females, younger males and a group with interest with regard to euthanasia)., RESULTS: Various phases with different emotions were distinguished: before (tension), during (loss) and after (relief) the event. Although it is a very rare occurrence, euthanasia has a major impact on PCPs. Their relationship with the patient, their loneliness, the role of the family, and pressure from society are the main issues that emerged. Making sufficient emotional space and time available to take leave adequately from a patient is important for PCPs., CONCLUSIONS: Many PCPs stressed that young physicians should form their own opinions about euthanasia and other end-of-life decisions early on in their career. We recommend that these issues are officially included in the vocational training programme for general practice.
2007
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/0269216307082475" target="_blank" rel="noreferrer">10.1177/0269216307082475</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
Active
Active/px [Psychology]
Adaptation
Attitude Of Health Personnel
Backlog
Decision Making
Emotions
Euthanasia
Female
Haverkate I
Humans
Journal Article
Male
Netherlands
Palliative Medicine
Physician Assisted Dying PAD
Physician's Role
Physician's Role/px [Psychology]
Primary Health Care
Professional-patient Relations
Psychological
Qualitative Research
The Anne-Mei
van Marwijk H
van Royen P
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/1043454208315546" target="_blank" rel="noreferrer">http://doi.org/10.1177/1043454208315546</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Chemotherapy-related fatigue in childhood cancer: correlates, consequences, and coping strategies
Publisher
An entity responsible for making the resource available
Journal Of Pediatric Oncology Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Child; Humans; Parents; Questionnaires; Adaptation; Psychological; Antineoplastic Agents/adverse effects; Fatigue/chemically induced; Neoplasms/drug therapy/psychology
Creator
An entity primarily responsible for making the resource
Whitsett SF; Gudmundsdottir M; Davies B; McCarthy P; Friedman D
Description
An account of the resource
The aim of this research is to examine the experience and impact of chemotherapy-related fatigue in recently diagnosed pediatric oncology patients. A repeated-measures, within-subjects, mixed (quantitative plus qualitative) design was used to prospectively assess fatigue during early chemotherapy cycles and to compare fatigue to depressive symptoms. Parental interviews collected concurrently were analyzed for descriptions of the child's fatigue and mood states and for strategies to cope with fatigue. Results indicated a significant correlation between fatigue and depression, but qualitative analyses suggested that the 2 phenomena may be unique and distinguishable. Qualitative analyses of parent interviews also identified specific strategies that were frequently used in response to high levels of fatigue. The findings illustrate the significant impact of chemotherapy-related fatigue in children being treated for cancer. The study also provides guidance for the assessment of fatigue and related symptoms and identifies specific strategies for coping with fatigue.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/1043454208315546" target="_blank" rel="noreferrer">10.1177/1043454208315546</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Adaptation
Antineoplastic Agents/adverse effects
Backlog
Child
Davies B
Fatigue/chemically induced
Friedman D
Gudmundsdottir M
Humans
Journal Article
Journal Of Pediatric Oncology Nursing
McCarthy P
Neoplasms/drug therapy/psychology
Parents
Psychological
Questionnaires
Whitsett SF
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2017 List
URL Address
<a href="http://doi.org/10.1177/1359104507080981" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/1359104507080981</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
A Qualitative Investigation of Fathers' Experiences of Looking After a Child with a Life-Limiting Illness, In Process and In Retrospect
Publisher
An entity responsible for making the resource available
Clinical Child Psychology And Psychiatry
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Child; Female; Humans; Male; Grief; Adult; Attitude to Death; Professional-Family Relations; Life Change Events; Adaptation; Psychological; Caregivers/psychology; Palliative Care/psychology; social support; Gender Identity; Interview; Chronic Disease/psychology; Terminal Care/psychology; Marriage/psychology; Home Nursing/psychology; Fathers/psychology; father experience; Father-Child Relations
Creator
An entity primarily responsible for making the resource
Ware J; Raval H
Description
An account of the resource
Child life-limiting illnesses are those from which there is no reasonable hope of cure and from which children will die. Only recently have these illnesses been recognized as a discrete category and thus relatively little research has focused specifically upon this group of children and their families. This study utilized qualitative methods to investigate the experience of fathers, a group who are often under-represented in child illness research. The research aim was to gain an understanding of fathers' experiences of having a child with a life-limiting illness, its impact upon them, and their perceptions of service provision. The data from eight interviews was analysed using Interpretative Phenomenological Analysis. Four main themes emerged highlighting the fathers' feeling that their world had been turned upside down, how they lived with the knowledge their child would die, how men perceive themselves as different from women, and the fathers' wish to contribute to changing and improving how other fathers might cope with a child with a life-limiting illness. The results are discussed particularly in relation to gender issues. Various implications for clinical practice and service provision are considered. Suggestions are also made for future research.
2007
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/1359104507080981" target="_blank" rel="noreferrer noopener">10.1177/1359104507080981</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
Adaptation
Adult
Attitude To Death
Backlog
Caregivers/psychology
Child
Chronic Disease/psychology
Clinical Child Psychology And Psychiatry
father experience
Father-child Relations
Fathers/psychology
Female
Gender Identity
Grief
Home Nursing/psychology
Humans
Interview
Journal Article
Life Change Events
Male
Marriage/psychology
Palliative Care/psychology
Professional-family Relations
Psychological
Raval H
Social Support
Terminal Care/psychology
Ware J
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1186/1471-2474-10-107" target="_blank" rel="noreferrer">http://doi.org/10.1186/1471-2474-10-107</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Emotion regulation in patients with rheumatic diseases: validity and responsiveness of the Emotional Approach Coping Scale (EAC)
Publisher
An entity responsible for making the resource available
Bmc Musculoskeletal Disorders
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
adolescent; Cross-Sectional Studies; Female; Humans; Male; Young Adult; Pain Measurement; Adult; Emotions; Aged; Middle Aged; Activities of Daily Living; Stress; 80 and over; Adaptation; Psychological; Rheumatic Diseases
Creator
An entity primarily responsible for making the resource
Zangi HA; Garratt A; Hagen KB; Stanton AL; Mowinckel P; Finset A
Description
An account of the resource
BACKGROUND: Chronic rheumatic diseases are painful conditions which are not entirely controllable and can place high emotional demands on individuals. Increasing evidence has shown that emotion regulation in terms of actively processing and expressing disease-related emotions are likely to promote positive adjustment in patients with chronic diseases. The Emotional Approach Coping Scale (EAC) measures active attempts to acknowledge, understand, and express emotions. Although tested in other clinical samples, the EAC has not been validated for patients with rheumatic diseases. This study evaluated the data quality, internal consistency reliability, validity and responsiveness of the Norwegian version of the EAC for this group of patients. METHODS: 220 patients with different rheumatic diseases were included in a cross-sectional study in which data quality and internal consistency were assessed. Construct validity was assessed through comparisons with the Brief Approach/Avoidance Coping Questionnaire (BACQ) and the General Health Questionnaire (GHQ-20). Responsiveness was tested in a longitudinal pretest-posttest study of two different coping interventions, the Vitality Training Program (VTP) and a Self-Management Program (SMP). RESULTS: The EAC had low levels of missing data. Results from principal component analysis supported two subscales, Emotional Expression and Emotional Processing, which had high Cronbach's alphas of 0.90 and 0.92, respectively. The EAC had correlations with approach-oriented items in the BACQ in the range 0.17-0.50. The EAC Expression scale had a significant negative correlation with the GHQ-20 of -0.13. As hypothesized, participation in the VTP significantly improved EAC scores, indicating responsiveness to change. CONCLUSION: The EAC is an acceptable and valid instrument for measuring emotional processing and expression in patients with rheumatic diseases. The EAC scales were responsive to change in an intervention designed to promote emotion regulation. The instrument has not yet been tested for test-retest reliability, which is recommended in future studies.
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/1471-2474-10-107" target="_blank" rel="noreferrer">10.1186/1471-2474-10-107</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
80 And Over
Activities of Daily Living
Adaptation
Adolescent
Adult
Aged
Backlog
Bmc Musculoskeletal Disorders
Cross-sectional Studies
Emotions
Female
Finset A
Garratt A
Hagen KB
Humans
Journal Article
Male
Middle Aged
Mowinckel P
Pain Measurement
Psychological
Rheumatic Diseases
Stanton AL
Stress
Young Adult
Zangi HA
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1200/jco.2007.14.0277" target="_blank" rel="noreferrer">http://doi.org/10.1200/jco.2007.14.0277</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Easing of suffering in children with cancer at the end of life: is care changing?.
Publisher
An entity responsible for making the resource available
Journal Of Clinical Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Child; Humans; Cohort Studies; Resuscitation Orders; Psychological; Stress; DNAR; Oncology at EOL; Neoplasms/th [Therapy]; Palliative Care/mt [Methods]; Palliative Care/td [Trends]
Creator
An entity primarily responsible for making the resource
Wolfe J; Hammel JF; Edwards KE; Duncan J; Comeau M; Breyer J; Aldridge SA; Grier HE; Berde C; Dussel V; Weeks JC
Description
An account of the resource
PURPOSE: In the past decade studies have documented substantial suffering among children dying of cancer, prompting national attention on the quality of end-of-life care and the development of a palliative care service in our institutions. We sought to determine whether national and local efforts have led to changes in patterns of care, advanced care planning, and symptom control among children with cancer at the end of life., METHODS: Retrospective cohort study from a US tertiary level pediatric institution. Parent survey and chart review data from 119 children who died between 1997 and 2004 (follow-up cohort) were compared with 102 children who died between 1990 and 1997 (baseline cohort)., RESULTS: In the follow-up cohort, hospice discussions occurred more often (76% v 54%; adjusted risk difference [RD], 22%; P < .001) and earlier (adjusted geometric mean 52 days v 28 days before death; P = .002) compared with the baseline cohort. Do-not-resuscitate orders were also documented earlier (18 v 12 days; P = .031). Deaths in the intensive care unit or other hospitals decreased significantly (RD, 16%; P = .024). Parents reported less child suffering from pain (RD, 19%; P = .018) and dyspnea (RD, 21%; P = .020). A larger proportion of parents felt more prepared during the child's last month of life (RD, 29%; P < .001) and at the time of death (RD, 24%; P = .002)., CONCLUSION: Children dying of cancer are currently receiving care that is more consistent with optimal palliative care and according to parents, are experiencing less suffering. With ongoing growth of the field of hospice and palliative medicine, further advancements are likely.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1200/jco.2007.14.0277" target="_blank" rel="noreferrer">10.1200/jco.2007.14.0277</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Aldridge SA
Backlog
Berde C
Breyer J
Child
Cohort Studies
Comeau M
DNAR
Duncan J
Dussel V
Edwards KE
Grier HE
Hammel JF
Humans
Journal Article
Journal Of Clinical Oncology
Neoplasms/th [therapy]
Oncology at EOL
Palliative Care/mt [methods]
Palliative Care/td [trends]
Psychological
Resuscitation Orders
Stress
Weeks JC
Wolfe J
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.12968/ijpn.2007.13.2.23068" target="_blank" rel="noreferrer">http://doi.org/10.12968/ijpn.2007.13.2.23068</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The reflections you get': an exploration of body image and cachexia.
Publisher
An entity responsible for making the resource available
International Journal Of Palliative Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Female; Humans; Male; England; Attitude to Health; Interpersonal Relations; Prognosis; Questionnaires; Aged; Middle Aged; Health Services Needs and Demand; Qualitative Research; Social Isolation; Holistic Health; Spirituality; Nursing Methodology Research; Body Image; 80 and over; Adaptation; Psychological; social support; Social Behavior; Terminally Ill/px [Psychology]; Narration; Palliative Care/mt [Methods]; Cachexia/et [Etiology]; Neoplasms/co [Complications]; Quality of Life/px [Psychology]; Palliative Care/px [Psychology]; Cachexia/px [Psychology]; N
Creator
An entity primarily responsible for making the resource
Hinsley R; Hughes R
Description
An account of the resource
BACKGROUND: cachexia has a detrimental effect on quality of life and is an indicator of poor prognosis. The meanings people attach to their lived experiences of cachexia are unknown. AIMS: to explore the impact of cachexia on body image of people with advanced cancer, their emotions, relationships and social functioning. DESIGN: qualitative study using face-to-face in-depth interviews of a conversational style. Rich narrative data analysed by thematic content analysis. PARTICIPANTS: 12 participants recruited from two community palliative care teams in south east England. RESULTS: altered body image impacts on other aspects of embodiment: the emotions, spirituality, relationships and social functioning. Lives were restricted and isolated, which was compounded by emotional distancing by carers and health care professionals. Participants discussed their repeated attempts to re-adapt to disruptions of self caused by an altered body image. CONCLUSIONS: the key study implications focus on the need for (i) improved holistic care and support, and advice; (ii) training and awareness raising of care professionals; (iii) further research on the lived experiences of the condition and the development of effective measures of cachexia.
2007
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.12968/ijpn.2007.13.2.23068" target="_blank" rel="noreferrer">10.12968/ijpn.2007.13.2.23068</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
80 And Over
Adaptation
Aged
Attitude To Health
Backlog
Body Image
Cachexia/et [Etiology]
Cachexia/px [Psychology]
England
Female
Health Services Needs And Demand
Hinsley R
Holistic Health
Hughes R
Humans
International Journal of Palliative Nursing
Interpersonal Relations
Journal Article
Male
Middle Aged
N
Narration
Neoplasms/co [complications]
Nursing Methodology Research
Palliative Care/mt [methods]
Palliative Care/px [psychology]
Prognosis
Psychological
Qualitative Research
Quality Of Life/px [psychology]
Questionnaires
Social Behavior
Social Isolation
Social Support
Spirituality
Terminally Ill/px [Psychology]
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2009-0621" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2009-0621</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Attitudes of adolescent cancer survivors toward end-of-life decisions for minors.
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Child; Female; Humans; Male; Euthanasia; Netherlands; Truth Disclosure; Sick Role; Right to Die; adolescent; Psychological; DNAR; Attitude to Death; Suicide; Assisted/px [Psychology]; Interview; decision making; Advance Directives; Passive; Palliative Care/px [Psychology]; Terminal Care/px [Psychology]; Neoplasms/px [Psychology]; Minors/px [Psychology]; Survivors/px [Psychology]; Euthanasia/px [Psychology]; Informed Consent/px [Psychology]
Creator
An entity primarily responsible for making the resource
Pousset G; Bilsen J; De Wilde J; Benoit Y; Verlooy J; Bomans A; Deliens L; Mortier F
Description
An account of the resource
OBJECTIVES: The present study aimed to investigate the attitudes of adolescent cancer survivors toward end-of-life decisions with life-shortening effects, including nontreatment decisions (NTDs), intensified alleviation of pain and symptoms (APS), and euthanasia, and the influence of illness experience on these attitudes., METHODS: Adolescent cancer survivors were interviewed with a structured questionnaire using hypothetical case descriptions. The results were compared with a study of 1769 adolescents without experience of chronic illness., RESULTS: Eighty-three adolescents, 11 to 18 years of age, were interviewed. In terminal situations, 70% to 90% found requests for NTDs acceptable, 84% requests for APS, and 57% to 64% requests for euthanasia. Requests for end-of-life decisions were less acceptable in nonterminal situations, where 28% found requests for NTDs acceptable, 39% to 47% requests for APS, and 11% to 21% requests for euthanasia. Frequently cited reasons for holding back physicians from administering a lethal drug to a child were the child not being well informed about his or her condition (92%) and the parents' opinion not being asked (92%). Compared with adolescents without experience with chronic illness, cancer survivors were more accepting toward requests for NTDs and APS in terminal situations., CONCLUSIONS: Adolescent cancer survivors, like other adolescents, want to be involved in medical decision-making at the end of life. They value autonomous decision-making, without excluding parents from the process. The experience of living through a life-threatening illness can alter adolescents' attitudes toward requests for NTDs and APS.
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2009-0621" target="_blank" rel="noreferrer">10.1542/peds.2009-0621</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Adolescent
Advance Directives
Assisted/px [Psychology]
Attitude To Death
Backlog
Benoit Y
Bilsen J
Bomans A
Child
De Wilde J
Decision Making
Deliens L
DNAR
Euthanasia
Euthanasia/px [Psychology]
Female
Humans
Informed Consent/px [Psychology]
Interview
Journal Article
Male
Minors/px [Psychology]
Mortier F
Neoplasms/px [psychology]
Netherlands
Palliative Care/px [psychology]
Passive
Pediatrics
Pousset G
Psychological
Right to Die
Sick Role
Suicide
Survivors/px [psychology]
Terminal Care/px [psychology]
Truth Disclosure
Verlooy J
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.2190/om.60.1.a" target="_blank" rel="noreferrer">http://doi.org/10.2190/om.60.1.a</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The relationship between grief adjustment and continuing bonds for parents who have lost a child
Publisher
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Omega
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Female; Humans; infant; Male; Grief; Adult; Parent-Child Relations; Interpersonal Relations; Questionnaires; Attitude to Death; Life Change Events; quality of life; adolescent; Adaptation; Psychological; infant; Newborn; Parents/psychology; Object Attachment
Creator
An entity primarily responsible for making the resource
Ronen R; Packman W; Field NP; Davies B; Kramer R; Long JK
Description
An account of the resource
This article presents findings from a study on the impact of a child's death on parents. We explored the prominence and adaptiveness of parents' continuing bonds expressions, psychological adjustment, and grief reactions. A qualitative case study methodology was used to describe six cases. Participants were classified into two groups based on scores on the Inventory of Complicated Grief. Commonalities in themes on the Continuing Bonds Interview and projective drawings were assessed. Those in the Non-Complicated Grief Group reported internalization of positive qualities and identification with the deceased child as a role model, whereas participants in the Complicated Grief Group did not report these experiences. In addition, the drawings of those in the Non-Complicated Grief Group were evaluated as more adaptive than those in the Complicated Grief Group.
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.2190/om.60.1.a" target="_blank" rel="noreferrer">10.2190/om.60.1.a</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Adaptation
Adolescent
Adult
Attitude To Death
Backlog
Davies B
Female
Field NP
Grief
Humans
Infant
Interpersonal Relations
Journal Article
Kramer R
Life Change Events
Long JK
Male
Newborn
Object Attachment
Omega
Packman W
Parent-child Relations
Parents/psychology
Psychological
Quality Of Life
Questionnaires
Ronen R
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/1043454209340322" target="_blank" rel="noreferrer">http://doi.org/10.1177/1043454209340322</a>
<a href="http://jpo.sagepub.com.ezproxy.library.ubc.ca/content/26/6/369" target="_blank" rel="noreferrer">http://jpo.sagepub.com.ezproxy.library.ubc.ca/content/26/6/369</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Bereaved Parents’ and Siblings’ Reports of Legacies Created by Children With Cancer
Publisher
An entity responsible for making the resource available
Journal Of Pediatric Oncology Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Child; Female; Humans; Male; Adult; Parents; Family Relations; Siblings; Qualitative Research; Time Factors; childhood cancer; adolescent; Adaptation; Psychological; bereavement; Psychological; Stress; bereaved parent; Neoplasms/psychology; sibling bereavement; bereaved sibling; legacy; pediatric death
Creator
An entity primarily responsible for making the resource
Foster TL; Gilmer MJ; Davies B; Barrera M; Fairclough D; Vannatta K; Gerhardt CA
Description
An account of the resource
This qualitative study explored bereaved parents’ and siblings’ reports of legacies created by children with advanced cancer. Participants included 40 families of children who died from cancer, with 36 mothers, 27 fathers, and 40 siblings (ages 8-18 years). Individual interviews were completed at home approximately 10.68 months (SD = 3.48) after the child’s death. Content analysis of interviews indicated that many children living with cancer did specific things to be remembered, such as making crafts for others, willing away belongings, writing letters to loved ones, and giving special gifts. Some children, particularly those who were very ill or died unexpectedly, did not intentionally do or say anything to be remembered. Legacies included bereaved individuals remembering children’s qualities, concern for family, and beliefs about afterlife. Having advanced cancer appeared to motivate children to influence others’ lives and prepare for their own deaths. Children’s advice about how to live life inspired bereaved family members. Findings contribute to the current knowledge of legacy-making in children and offer implications for practice and future research.
2009-11
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/1043454209340322" target="_blank" rel="noreferrer">10.1177/1043454209340322</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Adaptation
Adolescent
Adult
Backlog
Barrera M
Bereaved Parent
bereaved sibling
Bereavement
Child
Childhood Cancer
Davies B
Fairclough D
Family Relations
Female
Foster TL
Gerhardt CA
Gilmer MJ
Humans
Journal Article
Journal Of Pediatric Oncology Nursing
legacy
Male
Neoplasms/psychology
Parents
Pediatric Death
Psychological
Qualitative Research
sibling bereavement
Siblings
Stress
Time Factors
Vannatta K
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/pon.1026" target="_blank" rel="noreferrer">http://doi.org/10.1002/pon.1026</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Psychometric properties of the Dutch version of the posttraumatic growth inventory among cancer patients
Publisher
An entity responsible for making the resource available
Psycho-oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Female; Humans; Male; Adult; Emotions; Aged; Middle Aged; Netherlands; Reproducibility of Results; 80 and over; Adaptation; Psychological; Statistical; Psychological Tests; Parent caregivers; Stress Disorders; Neoplasms/psychology; Factor Analysis; Human Development; Post-Traumatic/diagnosis/psychology
Creator
An entity primarily responsible for making the resource
Jaarsma TA; Pool G; Sanderman R; Ranchor AV
Description
An account of the resource
In the current study, we investigated the psychometric properties of a Dutch translation of the posttraumatic growth inventory in a heterogeneous group of cancer patients. Its original five-factor structure was maintained. The internal consistency of the total scale, as well as its subdimensions, was satisfactory. As expected, the experience of posttraumatic growth was positively related to: emotional expression about the illness, openness to experience, and feelings of innerness. Furthermore, the scale appeared to be sensitive for the demographics age and gender. The experience of posttraumatic growth was not related to negative feelings such as avoidance, anxiety, depression, and neuroticism. Our Dutch translation of the instrument appeared to be a sound measure for the experience of posttraumatic growth in cancer patients.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/pon.1026" target="_blank" rel="noreferrer">10.1002/pon.1026</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
80 And Over
Adaptation
Adult
Aged
Backlog
Emotions
Factor Analysis
Female
Human Development
Humans
Jaarsma TA
Journal Article
Male
Middle Aged
Neoplasms/psychology
Netherlands
Parent caregivers
Pool G
Post-Traumatic/diagnosis/psychology
Psycho-Oncology
Psychological
Psychological Tests
Ranchor AV
Reproducibility of Results
Sanderman R
statistical
Stress Disorders
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.ejon.2005.11.003" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.ejon.2005.11.003</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Parental decision making in pediatric cancer end-of-life care: Using focus group methodology as a prephase to seek participant design input
Publisher
An entity responsible for making the resource available
European Journal Of Oncology Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Humans; Terminal Care; Attitude to Health; Questionnaires; Professional-Family Relations; Patient-Centered Care; Qualitative Research; Nurse's Role; Pediatric Nursing; Program Development; Needs Assessment; Patient Selection; Helping Behavior; Adaptation; Psychological; PedPal Lit; decision making; Parents/psychology; Neoplasms; social support; Quality of Life/psychology; Focus Groups/methods; Focus Groups/utilization; Morale; Nursing Methodology; Oncologic Nursing
Creator
An entity primarily responsible for making the resource
Tomlinson D; Capra M; Gammon J; Volpe J; Barrera M; Hinds PS; Bouffet E; Geenberg ML; Baruchel S; Llewellyn-Thomas HA; Sung L
Description
An account of the resource
The ultimate aim of our research program is to provide strategies that facilitate parental decision-making for parents of children with cancer receiving end-of-life care. As a first step to develop this program, we needed insight into parents' reactions and opinions about the research methods planned for a larger study. In particular, we needed their opinions about the general experience of making the decision between palliative cytotoxic chemotherapy and supportive care alone and the factors that parents regard as important when making this decision. In addition, we wished to know whether the methodology proposed for the future study was easy to understand and whether it might cause unnecessary emotional trauma. Finally, we asked their opinions regarding the appropriate target sample of parents to include in the future study. Qualitative data about these issues were collected using focus group methodology involving seven participants. The comments made during the focus group discussions were content-analyzed for common themes. The results from the focus group discussion led to particular modifications in the proposed design and interview strategies planned for the future larger study. We found it was extremely beneficial to include a focus group pre-phase in a study that will interview parents in a high sensitivity area.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.ejon.2005.11.003" target="_blank" rel="noreferrer">10.1016/j.ejon.2005.11.003</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adaptation
Attitude To Health
Backlog
Barrera M
Baruchel S
Bouffet E
Capra M
Child
Decision Making
European Journal Of Oncology Nursing
Focus Groups/methods
Focus Groups/utilization
Gammon J
Geenberg ML
Helping Behavior
Hinds PS
Humans
Journal Article
Llewellyn-Thomas HA
Morale
Needs Assessment
Neoplasms
Nurse's Role
Nursing Methodology
Oncologic Nursing
Parents/psychology
Patient Selection
Patient-centered Care
Pediatric Nursing
PedPal Lit
Professional-family Relations
Program Development
Psychological
Qualitative Research
Quality Of Life/psychology
Questionnaires
Social Support
Sung L
Terminal Care
Tomlinson D
Volpe J
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.ijnurstu.2004.06.009" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.ijnurstu.2004.06.009</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Coping with chronic pain
Publisher
An entity responsible for making the resource available
International Journal Of Nursing Studies
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Female; Humans; Male; Pain; Adult; Attitude to Health; Emotions; Questionnaires; Chronic disease; Aged; Middle Aged; Self Concept; social support; Nurse's Role; Problem Solving; Multivariate Analysis; Depression; Nursing Methodology Research; Predictive Value of Tests; Regression Analysis; Stress; Adaptation; Psychological; Models; Psychiatric Status Rating Scales; Norway
Creator
An entity primarily responsible for making the resource
Dysvik Elin; Natvig GK; Eikeland Ole-Johan; Lindstrøm TC
Description
An account of the resource
Many models of pain give coping an important role in understanding adaptation to chronic pain. Among these, Lazarus and Folkman's cognitive-phenomenological model of stress and coping provides a theoretical framework to conceptualise stress phenomena and coping strategies related to chronic pain. Chronic pain often necessitates new coping skills. An understanding of the concept of coping and how the patients cope is therefore crucial for the success of rehabilitation. The current study examined how coping, as measured by the Ways of Coping Checklist, was related to medical variables, depression measured by the Short Zung depression rating scale, and Rosenberg's self-esteem scale. The study sample consisted of 88 people who were recruited for a multidisciplinary pain management programme. Data were collected as part of a routine pre-treatment evaluation. Results indicated that the most predominant stressors were related to family life and social activities. We also recognised on the one hand, appraising pain as a challenge was predictive of problem-focused coping, while on the other hand, appraising pain as a threat, experiencing depression, and reduced self-esteem were predictive of emotion-focused coping. Clinical implications of these results in nursing are discussed.
2005-03
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.ijnurstu.2004.06.009" target="_blank" rel="noreferrer">10.1016/j.ijnurstu.2004.06.009</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Adaptation
Adult
Aged
Attitude To Health
Backlog
Chronic Disease
Depression
Dysvik Elin
Eikeland Ole-Johan
Emotions
Female
Humans
International Journal Of Nursing Studies
Journal Article
Lindstrøm TC
Male
Middle Aged
Models
Multivariate Analysis
Natvig GK
Norway
Nurse's Role
Nursing Methodology Research
Pain
Predictive Value of Tests
Problem Solving
Psychiatric Status Rating Scales
Psychological
Questionnaires
Regression Analysis
Self Concept
Social Support
Stress
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.pedn.2006.01.090" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.pedn.2006.01.090</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Transition: a conceptual analysis in the context of siblings of children with cancer
Publisher
An entity responsible for making the resource available
Journal Of Pediatric Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
adolescent; Child; Female; Humans; bereavement; Neoplasms; Adolescent Psychology; Attitude to Health; Siblings; Oncology Nursing; Nurse's Role; Pediatric Nursing; Child Psychology; Life Change Events; Sibling Relations; Nursing Methodology Research; Nursing Evaluation Research; Family Health; Adaptation; Psychological; Models; Human Development; sibling bereavement; Nursing; health promotion
Creator
An entity primarily responsible for making the resource
Wilkins KL; Woodgate RL
Description
An account of the resource
Transition has been described by many disciplines. However, the concept of transition has yet to be applied to the sibling experience of childhood cancer. Understanding the transitions that siblings encounter is important because it will offer nurses new possibilities for enhancing siblings' outcomes. Accordingly, the purpose of this article is to provide a conceptual framework that will assist nurses in their efforts to promote healthy transitions in siblings of children with cancer. The method of concept analysis developed by Walker and Avant [Walker, L., & Avant, K. (1995). Concept analysis. In Strategies for theory construction in nursing (3rd ed.) (pp. 37-54). Norwalk, CT: Appleton and Lane.] is employed. The result is a definition of transition that is relevant and useful for research and clinical practice in pediatric oncology.
2006-08
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.pedn.2006.01.090" target="_blank" rel="noreferrer">10.1016/j.pedn.2006.01.090</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adaptation
Adolescent
Adolescent Psychology
Attitude To Health
Backlog
Bereavement
Child
Child Psychology
Family Health
Female
Health Promotion
Human Development
Humans
Journal Article
Journal of Pediatric Nursing
Life Change Events
Models
Neoplasms
Nurse's Role
Nursing
Nursing Evaluation Research
Nursing Methodology Research
Oncology Nursing
Pediatric Nursing
Psychological
sibling bereavement
Sibling Relations
Siblings
Wilkins KL
Woodgate RL