Browse Items (148 total)
- Tags: Prospective Studies
Healthcare Satisfaction and Unmet Needs Among Bereaved Parents in the NICU
Tags: 2020, 2022 Special Edition 1 - Parent Perspectives, Advances in Neonatal Care, Baughcum AE, Bereavement, Delivery of Health Care, Dunnells ZDO, Fortney CA, Gerhardt CA, Humphrey LM, Infant, Needs Assessment, neonatal intensive care, Newborn Infant, Palliative Care, Parents, Personal Satisfaction, Prospective Studies, Terminal Care, Winning AM
Genome Sequencing as a Diagnostic Test in Children With Unexplained Medical Complexity
Tags: 2020, Arje D, Buera J, Canada, Child, Child Preschool, Chitayat D, Cohen E, Cohn RD, Costain G, Curtis M, Female, Genetic Testing/statistics & numerical data, Hayeems RZ, Humans, JAMA Network Open, Luca S, Male, Marano M, March 2021 List, Marshall CR, Mendoza-Londono R, Meyn MS, Orkin J, Predictive Value of Tests, Prospective Studies, Reproducibility of Results, Reuter MS, Scherer SW, Snell M, Somatoform Disorders/diagnosis, Stavropoulos DJ, Sung WWL, Thiruvahindrapuram B, Trost B, Veenma D, Walker S, Whole Genome Sequencing/statistics & numerical data, Yuen RKC
Prospective, phenotype-driven selection of critically ill neonates for rapid exome sequencing is associated with high diagnostic yield
Tags: 2020, Aged, Agrawal PB, Beggs AH, Bodamer O, Copenheaver D, Critical Illness, exome sequencing, Exome/genetics, Genetic Testing, Genetics in Medicine, Genetti CA, Gold NB, Gubbels CS, Humans, Infant, Infant Newborn, Intensive Care Unit, June 2021 List, Juusola J, Madden JA, Neonates, Parad RB, Phenotype, Prospective Studies, Roumiantsev S, Stoler J, VanNoy GE, Whole Exome Sequencing, Wojcik MH, Yang S, Yu TW
Prospective study of spinal muscular atrophy before age 6 years. DCN/SMA Group
Tags: 1993, Browne R H, Buncher C R, characteristics, Child, Child Preschool, facial weakness, Female, Humans, Iannaccone S T, Infant, Male, Motor Skills/physiology, Muscle Contraction/physiology, Neurologic Examination, Pediatric Neurology, Prospective Studies, Range of Motion Articular/physiology, Reflex Stretch/physiology, Samaha F J, SMA1, Spinal Muscular Atrophies of Childhood/diagnosis/physiopathology, Sucking Behavior/physiology, tone and motor problems, tongue fasciculation, Trajectory
Quantifying physical decline in juvenile neuronal ceroid lipofuscinosis (Batten disease)
Tags: 2011, Adams H, Adolescent, Adult, Analysis of Variance, Augustine E F, Beck C A, Child, Child Preschool, Cialone J, Cross-sectional Studies, Deblieck E A, Disabled Persons, Disease Progression, Dure L S, Genotype, Homozygote, Humans, Kwon J M, Levy E, Marshall F J, Membrane Glycoproteins, Mink J W, Molecular Chaperones, Mutation, NCL3, Neurology, Neuronal Ceroid-Lipofuscinoses, Neuropsychological Tests, Newhouse N J, Prospective Studies, Ramirez-Montealegre D, Regression Analysis, Reproducibility of Results, Rose K R, Rothberg P G, scale development, tone and motor problems, tool development, UBDRS, Vierhile A, Young Adult
Healthcare utilization and costs of pediatric home mechanical ventilation in Canada
Tags: 2020, Adult, Ambulatory Care/economics, Amin R, Canada, Caregivers/economics, Child, Child Preschool, Coyte PC, Female, Guerriere D, Health Care Costs, Health Expenditures, healthcare costs, healthcare utilization, Home Care Services/economics, home mechanical ventilation, Humans, Katz SL, long-term mechanical ventilation, Longitudinal Studies, Male, March 2021 List, McKim DA, Middle Aged, Nonoyama ML, Patient Acceptance of Health Care, Pediatric Pulmonology, Pediatrics, Prospective Studies, Quality Of Life, Respiration Artificial/economics, Rose L, Tracheostomy, ventilator assisted individual, Wasilewski M, Zagorski B
Parental assessment of comfort in newborns affected by life-limiting conditions treated by a standardized neonatal comfort care program
Tags: 2018, Adult, Byrne M, Daho M, Female, Foe G, Humans, Infant, Intensive Care, Journal Of Perinatology, Male, Neonatal/og [Organization & Administration], New York, Newborn, November 2019 List, Palliative Care/mt [methods], Parents/px [psychology], Parravicini E, Patient Care Team/og [Organization & Administration], Patient Comfort/st [Standards], Practice Guidelines As Topic, Prospective Studies, Qualitative Research, Steinwurtzel R, Surveys And Questionnaires, Young Adult
Responsiveness of the motor function measure in neuromuscular diseases
Tags: 2012, Adolescent, Adult, Aged, Archives Of Physical Medicine And Rehabilitation, Berard C, Child, Disability Evaluation, Ecochard R, Female, Fermanian J, Girardot F, Humans, Iwaz J, Male, MFM, Middle Aged, Mobility Limitation, motor function measure, Motor Skills, Muscular Dystrophy Duchenne/physiopathology/rehabilitation, Neuromuscular Diseases/physiopathology/rehabilitation, Payan C, Perception, Physical Therapy Modalities, Prospective Studies, Q3 conditions, scale development, SMA1, tone and motor problems, tool development, Vuillerot C, Young Adult
Changes in Siblings Over Time After the Death of a Brother or Sister From Cancer
Tags: 2019, Adolescence, Adult, Akard T F, Barrera M, Bereavement, Cancer Nursing, Child, Content Analysis, Davies B, Dietrich M S, Fathers -- Psychosocial Factors, Female, Fortney C A, Gerhardt C A, Gilmer M J, Human, Male, McNemar's Test, Middle Age, Mothers -- Psychosocial Factors, Multimethod Studies, Neoplasms -- Mortality, Oncology 2019 List, Prospective Studies, Semi-Structured Interview, Siblings -- Psychosocial Factors, Skeens M A, Vannatta K, Wray S
Half the family members of intensive care unit patients do not want to share in the decision-making process: a study in 78 French intensive care units
Tags: 2004, Adrie C, Adult, Aged, Annane D, anxiety, Attitude Of Health Personnel, Attitude To Health, Azoulay E, Backlog, Bleichner G, Bornstain C, Bouffard Y, Chevret S, Cohen Y, Consumer Satisfaction, Critical Care Medicine, Decision Making, Depression, Family/psychology, FAMIREA Study Group, Feissel M, Female, France, Goldgran-Toledano D, Guitton C, Hayon J, Humans, ICU Decision Making, Iglesias E, Intensive Care Units, Joly LM, Jourdain M, Journal Article, Laplace C, Lebert C, LeGall JR, Logistic Models, Male, Middle Aged, Multivariate Analysis, Pingat J, Pochard F, Poisson C, Prospective Studies, Renault A, Sanchez O, Schlemmer B, Selcer D, Timsit JF
Decisions to forgo life-sustaining therapy in ICU patients independently predict hospital death
Tags: 2003, 80 And Over, Adrie C, Aged, Analysis of Variance, APACHE, Azoulay E, Backlog, Cohen Y, Comorbidity, Critical Care/statistics & numerical data, Death and Euthanasia, Decision Making, deLassence A, Empirical Approach, Female, Garrouste-Orgeas M, Hospital Mortality, Hospitals, Humans, ICU Decision Making, Intensive Care Medicine, Intensive Care Units/statistics & numerical data, Journal Article, Life Support Care/statistics & numerical data, Male, Middle Aged, Montesino L, Moreau D, Outcomerea Study Group, Paris/epidemiology, Pochard F, Predictive Value of Tests, Proportional Hazards Models, Prospective Studies, Resuscitation Orders, Risk Factors, Severity Of Illness Index, Survival Analysis, Teaching, Timsit JF, Withholding Treatment/statistics & Numerical Data
Bereaved parents' intentions and suggestions about research autopsies in children with lethal brain tumors
Effectiveness of ketamine in decreasing intracranial pressure in children with intracranial hypertension
Tags: 2009, Adolescent, Analgesics/administration & dosage/pharmacology, Backlog, Bar-Joseph G, Blood Pressure/drug effects, Brain/blood supply/drug effects, Cerebrovascular Circulation/drug effects, Child, Guilburd JN, Guilburd Y, Humans, Infant, Intensive Care Units, Intracranial Hypertension/drug therapy/prevention & control, Intracranial Pressure/drug effects, Israel, Journal Article, Journal Of Neurosurgery. Pediatrics, Ketamine/administration & dosage/pharmacology, Male, Preschool, Prospective Studies, Respiratory Mechanics, Tamir A
Continuity of care: an approach to measurement
Tags: 1972, Ambulatory Care, Backlog, Bass RD, Communication, Community Mental Health Services, Community Psychiatry, Comprehensive Health Care, Day Care, Evaluation Studies as Topic, Follow-up Studies, Hospitalization, Humans, Journal Article, Medical Records, Mental Disorders/therapy, Models, Prospective Studies, Psychotherapy, Questionnaires, Referral And Consultation, The American Journal Of Psychiatry, Theoretical, Transfer Agreement, Windle C
Comparison of morphine and methadone for prevention of postoperative pain in 3- to 7-year-old children
Tags: 1991, algorithms, Analysis of Variance, Backlog, Berde CB, Beyer JE, Bournaki MC, Child, Comparative Study, Double-Blind Method, Drug Evaluation, Female, Human, Intraoperative Care, Journal Article, Journal of Pediatrics, Levin CR, Male, Methadone/adverse effects/pharmacokinetics/therapeutic use, Morphine/adverse effects/therapeutic use, Non-U.S. Gov't, Pain, Pain Measurement, Postoperative/prevention & control, Preschool, Prospective Studies, Sethna NF, Support
A prospective evaluation of opioid weaning in opioid-dependent pediatric critical care patients
Tags: 2006, Analgesics, Anesthesia & Analgesia, Backlog, Berens RJ, Child, Colpaert KD, Comparative Study, Critical Care/methods/statistics & numerical data, Czarnecki ML, Double-Blind Method, Female, Ghanayem NS, Hoffman GM, Humans, Infant, Journal Article, Male, Meyer MT, Mikhailov TA, Nelson TJ, Non-U.S. Gov't, Opioid-Related Disorders/epidemiology, Opioid/therapeutic use, Pain/drug therapy/epidemiology, PedPal Lit, Preschool, Prospective Studies, Research Support, Soetenga DJ, Substance Withdrawal Syndrome/epidemiology, Weisman SJ
Medication Order Errors at Hospital Admission Among Children With Medical Complexity
Tags: 2022, Akula V, April 2022 List, Berry JG, Blaine K, Child, Crofton C, Grodsky S, Hall D, Hospitalization, Hospitals Pediatric, Humans, Journal of Patient Safety, Khan A, Mauskar S, McBride S, Medication Errors, Medication Reconciliation, Mercer A, O'Neill M, Patient Admission, Pinkham A, Prospective Studies, Rogers J, Wilkerson S, Wright J
Understanding parents' approaches to care and treatment of children with cancer when standard therapy has failed
Tags: 2007, Adolescent, Adult, Backlog, Belasco C, Belasco JB, Bluebond-Langner M, Caregivers/psychology, Child, Decision Making, Goldman A, Great Britain, Humans, Infant, Journal Article, Journal Of Clinical Oncology, Neoplasms/therapy, Parents/psychology, Preschool, Prospective Studies, Terminally Ill, United States
A Pilot Study Of The Effectiveness Of Home Teleconsultations In Paediatric Palliative Care
Tags: 2012, Adult, Armfield NR, Bensink ME, Bradford N, Caregivers, Caregivers/px [psychology], Cohort Studies, Female, Health Services Accessibility, Herbert A, Humans, Journal of Telemedicine & Telecare, Male, May 2017 List, Middle Aged, Outcome And Process Assessment (health Care), Palliative Care, Palliative Care/mt [methods], Palliative Care/st [standards], Patient Satisfaction, Pedersen LA, Pediatrics/mt [methods], Pediatrics/st [standards], Pilot Projects, Prospective Studies, Quality Of Life, Referral And Consultation, Remote Consultation/ut [utilization], Rural Population, Smith AC, Young J
Measuring pain accurately in children with cognitive impairments: refinement of a caregiver scale
Tags: 2001, Backlog, Breau LM, Camfield C, Caregivers, Child, Cognition Disorders, Female, Finley G A, Humans, Journal Article, Logistic Models, Male, McGrath PJ, Non-U.S. Gov't, Odds Ratio, Pain Measurement/methods, Prospective Studies, RDF Project, Research Support, Rosmus C, Sensitivity and Specificity, The Journal Of Pediatrics
Acute and chronic paediatric intensive care patients: current trends and perspectives on resource utilization
Tags: 2004, Acute Disease/mortality/therapy, Adolescent, Analysis of Variance, Artificial/methods, Backlog, Briassoulis G, Child, Chronic Disease/mortality/therapy, Female, Filippou O, Greece, Hatzis T, Health Resources/trends/utilization, Hospital Mortality, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Length Of Stay, Male, Mavrikiou M, Monthly Journal Of The Association Of Physicians, Natsi L, Newborn, Pediatric/utilization, Preschool, Prospective Studies, Respiration, Severity Of Illness Index
Attitudes and beliefs of palliative care physicians regarding communication with terminally ill cancer patients.
Tags: 2000, Attitude Of Health Personnel, Backlog, Bruera E, Canada, Cross-cultural Comparison, DNAR, Europe, Family/px [psychology], Female, Humans, Journal Article, Male, Mazzocato C, Neoplasms/px [psychology], Neumann CM, Palliative Care/px [psychology], Palliative Medicine, Patient-centered Care, Physician-patient Relations, Prognosis, Prospective Studies, Resuscitation Orders, Sala R, South America, Stiefel F, Terminally Ill/px [Psychology], Truth Disclosure
End-of-life care in the pediatric intensive care unit after the forgoing of life-sustaining treatment
Tags: 2000, Analgesics/administration & dosage, Attitude Of Health Personnel, Backlog, Burns JP, Critical Care Medicine, Geller M, Griffith JL, Humans, Hypnotics and Sedatives/administration & dosage, ICU Decision Making, Infant, Intensive Care Units, Job Satisfaction, Journal Article, Life Support Care, Mitchell C, Outwater KM, Pediatric, Prospective Studies, Terminal Care/methods, Todres ID, Truog RD, Ventilator Weaning
Context of a neonatal death affects parental perception of end-of-life care, anxiety and depression in the first year of bereavement
Tags: 2023, anxiety, Bereavement, BMC Palliative Care, Cambonie G, Combes C, de Balanda KB, Depression, Desage C, Female, Gavotto A, Humans, Infant, Infant Newborn, July List 2023, Lemaitre A, Parents/px [psychology], Perception, Perinatal Death, Prospective Studies, Terminal Care, Terminal Care/px [psychology], Thaller P
Hormonal response to surgical stress in schoolchildren
Tags: 2001, Adolescent, Adrenocorticotropic Hormone/blood, Alaminos-Mingorance M, Backlog, beta-Endorphin/blood, Biomarkers of Pain, Biomarkers Reference List, Castejon-Casado J, Child, European Journal Of Pediatric Surgery, Humans, Hydrocortisone/blood, Journal Article, Lopez-Candel E, Moreno-Prieto M, Prospective Studies, Ramirez-Navarro A, Stress/blood, Time Factors, Valladares-Mendias JC
Extent and determinants of error in doctors' prognoses in terminally ill patients: prospective cohort study
Constructing a prospective model of psychosocial adaptation in young adolescents with spina bifida: an application of optimal data analysis
Tags: 2006, Adaptation, Adolescent, Adolescent Transitions, Backlog, Body Image, Bryant FB, Child, Coakley RM, Conflict (Psychology), Educational Status, Family/psychology, Female, Holmbeck GN, Humans, Individuation, Intelligence, Journal Article, Journal of Pediatric Psychology, Longitudinal Studies, Male, Models, Motivation, Parents/psychology, Prospective Studies, Psychological, Psychological/complications, Self Concept, Sick Role, Social Adjustment, Social Behavior, Spinal Dysraphism/psychology, statistical, Stress
Unlicensed and off label analgesic use in paediatric pain management
Medical, surgical, and health outcomes of gastrostomy feeding
Tags: 2006, Adolescent, Anthropometry, Backlog, Carr LJ, Cass H, Child, Cognition Disorders/epidemiology, Craig GM, Developmental Medicine and Child Neurology, Diet Records, Disabled Children, Female, Gastrostomy/statistics & numerical data, Hastings RP, Health Status, Humans, Infant, Journal Article, Lawson M, Male, Motor Skills Disorders/epidemiology, Nutritional Failure, Nutritional Status, Postoperative Complications/epidemiology, Preschool, Prospective Studies, Psychology, Reilly S, Ryan M, Spitz L, Townsend J
Acceptability Of Family-centered Advanced Care Planning For Adolescents With Hiv
Tags: 2016, Adolescent, Adolescent Health Services/sn [statistics & Numerical Data], Adolescent Palliative Care Consortium, Advance Care Planning, Cheng Y I, Dallas R H, Family Nursing, Family/px [psychology], Female, Garcia A, Hiv Infections/px [psychology], Hiv Infections/th [therapy], Humans, Kimmel A, Lyon M, Male, Patient Acceptance Of Health Care/sn [statistics & Numerical Data], Pediatrics, Prospective Studies, Rana S, September 2017 List, Surveys And Questionnaires, United States, Wang J, Wilkins M L, Young Adult
Children's outcomes at 2-year follow-up after 4 years of structured multi-professional medical-ethical decision-making in a neonatal intensive care unit
Tags: 2017, Child, Clinical Decision-Making/ethics, Critical Illness/mortality/therapy, de Boer JC, Female, Follow-up Studies, Gennissen L, Humans, Infant, Intensive Care Units, Journal Of Perinatology, July 2018 List, Male, Naghib S, Neonatal, Netherlands, Newborn, Palliative Care, Parents/psychology, Preschool, Prospective Studies, Reiss I, Sol J, Survival Analysis, Tibboel D, van Dijk M, Williams M, Withholding Treatment/ethics/standards
Talking with parents about end-of-life decisions for their children
Tags: 2015, Adolescent, Advance Directives, Backlog, Bos AP, Child, Communication, de Graaff Bert M, de Vos MA, Decision Making, DNAR, Female, Humans, Infant, Intensive Care Units, Journal Article, Life Support Care, Male, Netherlands, Newborn, Palliative Care, Pediatric, Pediatrics, Plötz FB, Preschool, Professional-family Relations, Prospective Studies, Qualitative Research, Tates K, Truog RD, van Heerde M, Willems DL, Withholding Treatment
Forgoing life support: how the decision is made in European pediatric intensive care units
Tags: 2011, Child Preschool, December 2017 List, Decision Making, Devictor DJ, Europe, Female, France, Health Care Surveys, Humans, Intensive Care Medicine, Intensive Care Units Pediatric, Latour JM, Life Support Care, Male, Prospective Studies, Surveys And Questionnaires, Terminal Care/td [trends], Withholding Treatment/sn [statistics & Numerical Data]
Forgoing life-sustaining treatments in children: a comparison between Northern and Southern European pediatric intensive care units
Tags: 2004, Adolescent, Adult, Backlog, Child, Death and Euthanasia, Decision Making, Devictor DJ, Empirical Approach, Europe, Euthanasia, Female, Hospital Mortality, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Male, Newborn, Nguyen DT, Organizational, Parents/psychology, Passive/psychology, Patient Participation, Pediatric, Pediatric Critical Care Medicine, Preschool, Prospective Studies
Forgoing life-sustaining treatments: how the decision is made in French pediatric intensive care units
Tags: 2001, Adolescent, Backlog, Child, Critical Care Medicine, Cross-sectional Studies, Death and Euthanasia, Decision Making, Devictor DJ, Empirical Approach, Female, France, Groupe Francophone de Reanimationet d'Urgences Pediatriques, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Life Support Care, Male, Newborn, Nguyen DT, Patient Care Team, Pediatric, Practice Guidelines, Preschool, Professional Patient Relationship, Professional-family Relations, Prospective Studies
Variations among Institutional Review Board reviews in a multisite health services research study
Tags: 2005, Adult, Anderson R, Backlog, Biomedical and Behavioral Research, Confidentiality/ethics, Dziak K, Empirical Approach, Ethics Committees, Female, Health Services Research, Health Services Research/ethics, Humans, Informed Consent/ethics, Journal Article, Levine DW, Multi-site Ethics, Patient Selection/ethics, Prospective Studies, Refusal To Participate, Research, Scholle SH, Sevick MA, United States, Weisman CS
Talking with terminally ill patients and their caregivers about death, dying, and bereavement: is it stressful? Is it helpful?
Tags: 2004, 80 And Over, Adolescent, Adult, Aged, Archives Of Internal Medicine, Attitude To Death, Backlog, Bereavement, Caregivers/psychology, Communication, Death, Death and Euthanasia, Emanuel EJ, Emanuel LL, Empirical Approach, Fairclough DL, Female, Humans, Interviews, Journal Article, Male, Middle Aged, Non-U.S. Gov't, Prospective Studies, Psychological/etiology/psychology, Research Support, Speech, Stress, Terminal Care, Terminally Ill/psychology, United States, Wolfe P
Use of a clinical pathway to improve the acute management of vaso-occlusive crisis pain in pediatric sickle cell disease
Tags: 2014, Adolescent, Adult, Analgesics, Anemia, Arterial Occlusive Diseases, Babineau J, Backlog, Child, Critical Pathways, Ender KL, Female, Follow-up Studies, Humans, Infant, Journal Article, Kharbanda A, Krajewski JA, Male, Pain, Pain Management, Pediatric Blood & Cancer, Preschool, Prognosis, Prospective Studies, Saroyan JM, Schechter W, Sickle Cell, Tertiary Care Centers, Tresgallo M, Young Adult
The sense of coherence in early pregnancy and crisis support and posttraumatic stress after pregnancy loss: a prospective study
Tags: 2003, Abortion, Adult, Backlog, Behavioral Medicine (washington, D.C.), Crisis Intervention, Engelhard IM, Female, First/psychology, Humans, Journal Article, Post-Traumatic/epidemiology/psychology/therapy, Pregnancy, Pregnancy Trimester, Prospective Studies, Social Support, Spontaneous/psychology, Stress Disorders, van den Hout MA, Vlaeyen JW
Satisfaction with palliative care: what should we be aware of?
Tags: 1998, Backlog, Fakhoury WK, Humans, International Journal Of Nursing Studies, Journal Article, Outcome Assessment (Health Care)/organization & administration, Palliative Care/psychology, Palliative Care/standards, Patient Satisfaction, Prospective Studies, Quality Of Health Care, Research Design, Retrospective Studies