Browse Items (117 total)
- Tags: Professional-family Relations
Your child is dead
Tags: 1991, Attitude Of Health Personnel, Attitude To Death, Backlog, Bereavement, Bmj (clinical Research Ed.), Cause Of Death, Child, Communication, Dallimore D, Female, Finlay I, France, Great Britain, Humans, Infant, Interviews As Topic, Journal Article, Male, Newborn, Nurses, Parents/psychology, Physicians, Police, Preschool, Professional-family Relations, Questionnaires, Tissue and Organ Procurement, Tissue Donors
Withdrawal of mechanical ventilation in pediatric and neonatal intensive care units
Tags: 2007, Artificial, Backlog, Child, Diseases, Empathy, Humans, Infant, Intensive Care Units, Journal Article, Munson D, Neonatal, Newborn, Pediatric Clinics of North America, Premature, Professional-family Relations, Respiration, Social Support, United States, Withholding Treatment/legislation & jurisprudence
Who are the children using hospice care?
Tags: 2014, Adolescent, April 2019 List, California, Child, Child Preschool, Female, Health Services Needs and Demand/og [Organization & Administration], Health Services Needs and Demand/sn [Statistics & Numerical Data], Hospice Care/mt [Methods], Hospice Care/sn [statistics & Numerical Data], Humans, Infant, Infant Newborn, Journal for Specialists in Pediatric Nursing, Lindley LC, Male, Neuromuscular Diseases/nu [Nursing], Nurse-patient Relations, Palliative Care/mt [methods], Palliative Care/sn [Statistics & Numerical Data], Pediatric Nursing/mt [methods], Pediatric Nursing/sn [Statistics & Numerical Data], Professional-family Relations, Shaw SL, Socioeconomic Factors, Young Adult
Welcoming expertise: Bereaved parents' perceptions of the parent-healthcare provider relationship when a critically ill child is admitted to the paediatric intensive care unit
Tags: 2019, Adult, Australian Critical Care, Bereavement, Butler A E, Child, child and family wishes, Copnell B, Critical Illness -- Singapore, Death, Female, Grounded Theory, Hall H, Health Personnel Attitude, Hospital Mortality, Hospitalized, Humans, Intensive care unit-paediatric, Intensive Care Units Pediatric, Interviews As Topic, June 2020 List, Male, Nurse, Parents, Parents/*psychology, Pediatric, Professional-family Relations, Victoria
Understanding uncertainty and minimizing families' anxiety at the time of transfer from intensive care
Tags: 2003, anxiety, Backlog, Communication, Courtney M, Coyer F, Critical Illness/psychology, Emotions, Family/psychology, Humans, ICU Decision Making, Intensive Care Units, Intensive Care/psychology, Journal Article, Mitchell ML, Nursing & Health Sciences, Patient Transfer, Professional-family Relations, Questionnaires, Stress (Psychology), Uncertainty
Understanding Death With Limited Experience In Life: Dying Children's And Adolescents' Understanding Of Their Own Terminal Illness And Death
Tags: 2015, Adolescent, Attitude To Death, Bates Alan T, Child, Communication, Current Opinion in Supportive and Palliative Care, Fear, Humans, Kearney Julia A, May 2017 List, Palliative Care/organization & Administration, Palliative Care/psychology, Professional-family Relations, Prognosis, Terminal Care/organization & Administration, Terminal Care/psychology, Terminally Ill/legislation & jurisprudence, Terminally Ill/psychology, Time Factors
The WHO objectives for palliative care: to what extent are we achieving them?
Tags: 1995, Abraham C, Backlog, Health Priorities, Health Services Research, Holistic Health, Hospices/standards, Human, Johnston G, Journal Article, Non-U.S. Gov't, Organizational Objectives, Outcome Assessment (health Care), Palliative Care/standards, Palliative Medicine, Pastoral Care, Professional-family Relations, Social Support, Support, Terminal Care/methods, World Health Organization
The Provision Of Spiritual And Pastoral Care Following Stillbirth In Ireland: A Mixed Methods Study
Tags: 2014, Attitude To Death, Bereavement, BMJ Supportive & Palliative Care, Chaplain, Chaplaincy Service Hospital/standards, Daniel Nuzum, Female, Hospitals Maternity/organization & Administration, Humans, Ireland, June 2016 List, Keelin O'Donoghue, Male, Pastoral Care, Pregnancy, Professional-family Relations, Sarah Meaney, Spiritual Care, Spirituality, Stillbirth, Stillbirth/psychology
The moral experience of parents regarding life-support decisions for their critically-ill children: a preliminary study in France
Tags: 2006, Adaptation, Attitude to Health/ethnology, Backlog, Canoui P, Carnevale FA, Child, Clinical Competence, Communication, Decision Making, Doussau A, Farrell C, Grief, Guilt, Health Services Needs And Demand, Hospitalized/psychology, Hospitals, Hubert P, Humans, ICU Decision Making, Infant, Intensive Care Units, Intensive Care/psychology, Journal Article, Journal Of Child Health Care, Lacroix J, Leclerc F, Life Support Care/psychology, Morals, Nursing Methodology Research, Parental Consent/psychology, Parents/education/psychology, Paris, Pediatric, Physician's Role/psychology, Professional-family Relations, Psychological, Qualitative Research, Questionnaires, Seguin MJ, Social Support
The experiences of Chinese family members of terminally ill patients - a qualitative study
Tags: 2007, 80 And Over, Adaptation, Adolescent, Adult, Aged, Anger, Attitude To Death/ethnology, Attitude to Health/ethnology, Attitudes, Backlog, Chan SW, Family/ethnology, Female, Grief, Health Education, Health Knowledge, Health Services Needs And Demand, Hong Kong, Hospital/psychology, Humans, Journal Article, Journal of Clinical Nursing, Male, Middle Aged, Nurse's Role/psychology, Nursing Methodology Research, Nursing Staff, Palliative Care/organization & administration/psychology, Practice, Professional-family Relations, Psychological, Qualitative Research, Questionnaires, Social Support, Wong MS
The duty of the physician to care for the family in pediatric palliative care: context, communication, and caring
Talking with parents about end-of-life decisions for their children
Tags: 2015, Adolescent, Advance Directives, Backlog, Bos AP, Child, Communication, de Graaff Bert M, de Vos MA, Decision Making, DNAR, Female, Humans, Infant, Intensive Care Units, Journal Article, Life Support Care, Male, Netherlands, Newborn, Palliative Care, Pediatric, Pediatrics, Plötz FB, Preschool, Professional-family Relations, Prospective Studies, Qualitative Research, Tates K, Truog RD, van Heerde M, Willems DL, Withholding Treatment
Symptoms in the palliative phase of children with cancer
Tags: 2007, Adolescent, Age Factors, Anorexia, Attitude To Death, Backlog, Brain Neoplasms, Caregivers, Child, Emotions, Fatigue, Fear, Female, Gastrointestinal Diseases, Hoogerbrugge PM, Humans, Infant, Journal Article, Leukemia, Male, Mobility Limitation, Neoplasms, Pain, Pain Management, Palliative Care, Parent-child Relations, Parents, Pediatric Blood & Cancer, Physician-patient Relations, Preschool, Prins JB, Professional-family Relations, Psychological, Questionnaires, Retrospective Studies, Social Support, Stress, Terminal Care, Theunissen JMJ, Treatment Failure, van Achterberg T, van den Ende CHM, Vernooij-Dassen M
Supporting the family after the death of a child.
Tags: 2012, Adolescent, AIM, Backlog, Child, Chronic Disease, Counseling, Death, Disabled Children, Grief, Guidelines As Topic, Guilt, HEALTH COMMITTEE ON PSYCHOSOCIAL ASPECTS OF CHILD AND FAMILY, Humans, IM, Infant, Journal Article, Mortality, Parenting, Parents, Pediatrics, Physician's Role, Premature, Preschool, Professional-family Relations, sibling bereavement, Siblings, Social Support, Substance-Related Disorders, Sudden, Sudden Infant Death, Suicide, Wender E
Supporting Pediatric Patients and Their Families at the End of Life: Perspectives From Bereaved Parents
Tags: 2020, 2022 Special Edition 1 - Parent Perspectives, Academic Medical Centers, American Journal of Hospice & Palliative Medicine, Anticipatory Guidance, Bereavement, Chi Square Test, Child, Childhood Neoplasms, Communication, Cousino MK, Data Analysis Software, Decision Making, Descriptive Statistics, Family, Funding Source, Health Resource Utilization, Hutchinson R, McCaffery H, Midwestern United States, Parental Attitudes – Evaluation, Patient Preference, Paul TK, Pituch K, Professional-family Relations, Professional-patient Relations, psychosocial, Quality Of Life, Questionnaires, Record Review, Retrospective Design, Sedig LK, Shared, Spruit JL, Support, Terminal Care – In Infancy and Childhood
Supporting Pediatric Patients and Their Families at the End of Life: Perspectives From Bereaved Parents
Tags: 2020, Academic Medical Centers, American Journal of Hospice & Palliative Medicine, Anticipatory Guidance, Bereavement, Chi Square Test, Child, Childhood Neoplasms, Communication, Cousino M K, Data Analysis Software, Decision Making, Descriptive Statistics, Family, Female, Funding Source, Health Resource Utilization, Human, Hutchinson R, Male, McCaffery H, Midwestern United States, November 2020 List, Parental Attitudes – Evaluation, Patient Preference, Paul T K, Pituch K, Professional-family Relations, Professional-patient Relations, psychosocial, Quality Of Life, Questionnaires, Record Review, Retrospective Design, Sedig L K, Shared, Spruit J L, Support, Terminal Care – In Infancy and Childhood
Sources of stress for family caregivers of institutionalized dementia patients
Tags: 1991, Alzheimer Disease/psychology, Backlog, Caregivers/psychology, Female, Health Facility Environment, Home Nursing/psychology, Humans, Institutionalization, Interpersonal Relations, Journal Article, Journal Of Applied Gerontology, Kinney JM, Middle Aged, Non-U.S. Gov't, Nursing Homes, Ogrocki PK, Ohio, Professional-family Relations, Psychological/etiology, Research Support, Stephens MA, Stress
Should religious beliefs be allowed to stonewall a secular approach to withdrawing and withholding treatment in children?
Tags: 2013, Backlog, Brierley J, Child, Conflict (Psychology), Culture, Humans, Intensive Care Units, Journal Article, Journal of Medical Ethics, Linthicum J, Medical Futility, Pediatric, Petros A, Professional-family Relations, Religion and Psychology, Retrospective Studies, Terminal Care, Withholding Treatment
Sharing the care: the key-working experiences of professionals and the parents of life-limited children
Tags: 2014, Adolescent, Adult, Backlog, Caregivers, Child, Child Health Services, Female, Focus Groups, Great Britain, Health Personnel, Health Services Needs And Demand, Humans, International Journal of Palliative Nursing, Journal Article, King N, Male, Middle Aged, Parents, Patient Care Planning, Professional-family Relations, Psychological, Questionnaires, Rodriguez A, Stress, Terminal Care
Seeking and using families' views to shape children's hospice services
Tags: 2005, Adolescent, Adult, Backlog, Child, Child Health Services/organization & administration, Consumer Satisfaction, Female, Focus Groups, Great Britain, Health Care, Hospice Care/organization & administration, Humans, Infant, International Journal of Palliative Nursing, Journal Article, Male, Maynard L, Needs Assessment, Newborn, Parents, Preschool, Professional-family Relations, Quality Assurance, Rennie T, Shirtliffe J, Vickers D
Resource utilization and outcome in gravely ill intensive care unit patients with predicted in-hospital mortality rates of 95% or higher by APACHE III scores: the relationship with physician and family expectations
Tags: 2005, 80 And Over, Adolescent, Adult, Aged, APACHE, Backlog, Bechtle PS, Berge KH, Cohort Studies, Critical Illness/mortality/therapy, Family/psychology, Female, Health Resources/utilization, Hospital Mortality, Humans, Intensive Care, Jewell SM, Journal Article, Lanier WL, Maiers DR, Male, Mayo Clinic Proceedings, Medical Records, Middle Aged, Minnesota, Outcome Assessment (health Care), Physicians/psychology, Professional-family Relations, Schreiner DP, Schroeder DR, Stevens SR
Relational autonomy: moving beyond the limits of isolated individualism
Tags: 2014, Adolescent, Adolescent Psychology, Backlog, Child, Child Psychology, Communication, Female, Humans, Journal Article, Male, Models, Palliative Care, Parents, Pediatrics, Personal Autonomy, Physician-patient Relations, Professional-family Relations, Psychological, Ross LF, Walter JK, Withholding Treatment
Reasons for dissatisfaction: A survey of relatives of intensive care patients who died
Tags: 1998, Adult, Age Distribution, Aged, Backlog, Badia F, Bettelini CM, Cause Of Death, Communication, Consumer Satisfaction/statistics & numerical data, Critical Care Medicine, Cross-sectional Studies, Death, Degrate A, Family/psychology, Female, Hospital, Humans, Intensive Care Units/standards, Journal Article, Malacrida R, Male, Martinez M, Medical Staff, Middle Aged, Non-U.S. Gov't, Piazza J, Professional-family Relations, Questionnaires, Rapin CH, Research Support, Switzerland, Terminal Care/psychology/standards, Vizzardi N, Wullschleger R
Provision Of Services In Perinatal Palliative Care: A Multicenter Survey In The United States.
Congenital anomalies account for 20% of neonatal and infant deaths in the United States. Perinatal palliative care is a recent addition to palliative care and is meant to meet the needs of families who choose to continue a pregnancy…
Tags: 2016, Bereavement, Côté-Arsenault D, Critical Care/organization & Administration, Cross-sectional Studies, Denney-Koelsch E, Female, Fetal Mortality, Humans, Infant Newborn, Journal of Palliative Medicine, Kavanaugh K, Kim S, March 2016 List, Palliative Care/organization & Administration, Parents/psychology, Perinatal Care/organization & Administration, Perry Black B, Pregnancy, Professional-family Relations, Surveys And Questionnaires, United States, Wool C
Providing care in chronic disease: the ever-changing balance of integrating palliative and restorative medicine
Prognostic categories and timing of negative prognostic communication from critical care physicians to family members at end-of-life in an intensive care unit
Primary care supports for children with chronic health conditions: identifying and predicting unmet family needs
Tags: 2004, Adolescent, Attitude To Health, Backlog, Child, Chronic Disease, Clark MJ, Family, Farmer JE, Health Services Needs And Demand, Health Services/standards, Humans, Infant, Journal Article, Journal of Pediatric Psychology, Marien WE, Newborn, Non-U.S. Gov't, Primary Health Care, Professional-family Relations, Questionnaires, Research Support, Selva TJ, Sherman A, Social Support
Perinatal loss. A critique of current hospital practices
Tags: 1992, Backlog, Bereavement, Caregivers/psychology, Clinical Pediatrics, Clinical Protocols, Female, Fetal Death, Grief, Hospital/psychology, Hospitals, Humans, Infant, Journal Article, Leon IG, Male, Newborn, Parent-child Relations, Parents/psychology, perinatology, Personnel, Professional-family Relations
Pediatric palliative care.
Tags: 2010, Adaptation, Analgesics/ae [Adverse Effects], Analgesics/tu [Therapeutic Use], Backlog, Child, Child welfare, Constipation/ci [Chemically Induced], Current Problems in Pediatric and Adolescent Health Care, Decision Making, DNAR, Hauer JM, Hospice Care, Humans, Interdisciplinary Communication, Journal Article, Klick JC, Nausea/ci [Chemically Induced], Pain/dt [drug Therapy], Palliative Care/px [psychology], Patient Care Team, Pediatrics/td [trends], Professional-family Relations, Psychological, Quality Of Life/px [psychology], Resuscitation Orders, Stress, Vomiting/ci [Chemically Induced]
Pediatric palliative care: the time has come.
Tags: 2002, Archives Of Pediatrics & Adolescent Medicine, Attitude To Health, Backlog, Child, Child Psychology, Chronic Disease, Communication, Family/psychology, Humans, Hutton N, Journal Article, Longitudinal Studies, Needs Assessment, Palliative Care/methods/psychology/trends, Pediatrics/methods/trends, Professional-family Relations, Quality Of Life, Terminal Care/methods/psychology/trends
Pediatric palliative care: feedback from the pediatric intensivist community
Tags: 2010, Attitude Of Health Personnel, Attitude To Death, Backlog, Carter BS, Child, Continuity Of Patient Care/organization & Administration, Humans, Intensive Care Units, Jones PM, Journal Article, Palliative Care/organization & Administration, Pediatric/organization & Administration, Pediatrics/organization & Administration, Professional Competence, Professional-family Relations, Questionnaires, Terminal Care/organization & Administration, The American Journal of Hospice & Palliative Care, United States
Parents' perspectives on the deaths of their children in two Brazilian paediatric intensive care units
Tags: 2013, Abib El Halal Gilda MC, Adult, Attitude Of Health Personnel, Attitude To Death, Backlog, Brazil, Cabral FC, Child, Communication, Decision Making, El Halal MGS, Female, Garcia Pedro CR, Humans, Infant, Intensive Care Units, International Journal of Palliative Nursing, Journal Article, Lago PM, Male, Nilson C, Parents, Pediatric, Piva JP, Preschool, Professional-family Relations, Quality Of Health Care, Terminal Care
Parents' perspectives on physician-parent communication near the time of a child's death in the pediatric intensive care unit
Tags: 2008, Adult, Anand KJ, Backlog, Bereavement, Carcillo J, Child, Communication, Dean JM, Death, Eggly S, Female, Hospital Mortality, Hospitals, Human Development Collaborative Pediatric Critical Care Research Network, Humans, Intensive Care Units, Interviews As Topic, Journal Article, Male, Meert KL, Middle Aged, National Institute of Child Health, Newth CJ, Nicholson C, Parents/psychology, Pediatric, Pediatric Critical Care Medicine, Physician's Role, Pollack M, Preschool, Professional-family Relations, Prognosis, Truth Disclosure, United States, Willson DF, Zimmerman J
Parental presence during invasive procedures and resuscitation: attitudes of health care professionals in Turkey
Tags: 2006, Adult, Age Factors, Analgesia/nursing, Attitude Of Health Personnel, Backlog, Child, Conscious Sedation/nursing, Cosar H, Decision Making, Egemen A, Emergency Medicine/methods/statistics & numerical data, Emergency Nursing/methods/statistics & numerical data, Female, Health Care Surveys, Humans, ICU Decision Making, Ikizoglu T, Journal Article, Karapnar B, Karapnar D, Logistic Models, Male, Parents, Pediatric Emergency Care, Pediatrics/statistics & numerical data, Professional-family Relations, Resuscitation/nursing, Socioeconomic Factors, Turkey
Parental perspectives on hospital staff members' acts of kindness and commemoration after a child's death
Tags: 2005, Backlog, Bereavement, Carnevale FA, Child, Cohen SR, Death, Hospital, Hospitals, Humans, Intensive Care Units, Journal Article, Liben S, Macdonald ME, Meloche D, Non-U.S. Gov't, Parents/psychology, Pediatric, Pediatrics, Personnel, Professional-family Relations, Rennick J, Research Support, Social Support, Wolf SL
Parental involvement in treatment decisions regarding their critically ill child: a comparative study of France and Quebec
Tags: 2007, Backlog, Canoui P, Carnevale FA, Child, Communication, Consumer Participation/px [Psychology], Consumer Satisfaction, Cremer R, Critical Illness/th [therapy], Cultural Characteristics, Doussau A, Farrell C, Female, France, Hubert P, Humans, ICU Decision Making, IM, Infant, Intensive Care Units, Journal Article, Lacroix J, Leclerc F, Male, Nurse's Role/px [Psychology], Parents/px [psychology], Paternalism, Pediatric Critical Care Medicine, Pediatric/og [Organization & Administration], Physician's Role/px [Psychology], Preschool, Professional-family Relations, Qualitative Research, Quebec, Seguin MJ
Parental explicit heuristics in decision-making for children with life-threatening illnesses
Tags: 2013, Adolescent, Aphorisms and Proverbs as Topic, Backlog, Carroll KW, Child, Choice Behavior, Chronic Disease/psychology/therapy, Cohort Studies, Communication, Critical Illness/psychology/therapy, Decision Making, Female, Feudtner C, Hospitals, Humans, Infant, Interview, Journal Article, Judgment, Kang T, Male, Palliative Care/psychology, Parent caregivers, Parents/psychology, Pediatric, Pediatrics, Philadelphia, Preschool, Problem Solving, Professional-family Relations, Prospective Studies, Psychological, Renjilian CB, Womer JW, Young Adult
Parental decision making in pediatric cancer end-of-life care: Using focus group methodology as a prephase to seek participant design input
Tags: 2006, Adaptation, Attitude To Health, Backlog, Barrera M, Baruchel S, Bouffet E, Capra M, Child, Decision Making, European Journal Of Oncology Nursing, Focus Groups/methods, Focus Groups/utilization, Gammon J, Geenberg ML, Helping Behavior, Hinds PS, Humans, Journal Article, Llewellyn-Thomas HA, Morale, Needs Assessment, Neoplasms, Nurse's Role, Nursing Methodology, Oncologic Nursing, Parents/psychology, Patient Selection, Patient-centered Care, Pediatric Nursing, PedPal Lit, Professional-family Relations, Program Development, Psychological, Qualitative Research, Quality Of Life/psychology, Questionnaires, Social Support, Sung L, Terminal Care, Tomlinson D, Volpe J
Parent Perspectives of Neonatal Intensive Care at the End-of-Life
Tags: 2016, Adaptation Psychological, Adult, Bereavement, Christian BJ, Currie ER, Day S, Decision Making, Female, Hinds PS, Humans, Infant Newborn, Intensive Care Neonatal/st [standards], Intensive Care Neonatal/td [trends], Intensive Care Units Neonatal, Interviews As Topic, Journal of Pediatric Nursing, Male, Meneses K, November 2017 List, Palliative Care/mt [methods], Palliative Care/px [psychology], Parents/px [psychology], Perception, Perna SJ, Professional-family Relations, Qualitative Research, Robinson C, Stress Psychological, Terminal Care/mt [methods], Terminal Care/px [psychology], United States