Browse Items (117 total)
- Tags: Professional-family Relations
Family-centered care and the pediatrician's role
Hospital staff and family perspectives regarding quality of pediatric palliative care.
Tags: 2004, Attitude Of Health Personnel, Attitude To Health, Backlog, Bereavement, Child, Cohen HJ, Communication, Contro N, Data Collection, Family/psychology, Hospital/psychology, Humans, Journal Article, Larson J, Longitudinal Studies, Non-U.S. Gov't, Pain/therapy, Palliative Care/standards, Pediatrics, Pediatrics/education/standards, Personnel, Professional-family Relations, Quality Of Health Care, Research Support, Scofield S, Sourkes B
After the child dies
Life threatening illness and hospice care.
Tags: 1989, Adolescent, Archives of Disease in Childhood, Attitude To Health, Backlog, Baum JD, Bereavement, Child, Consumer Satisfaction, Employment, Family Health, Forrest GC, Hospices, Humans, Journal Article, Longitudinal Studies, Marriage, Mental Disorders/psychology, Non-U.S. Gov't, Parents, Preschool, Professional-family Relations, Research Support, Respite Care, Retrospective Studies, Social Support, Stein A, Terminal Care/psychology, Woolley H
Parent and health care provider communication and decision making in the intensive care nursery
Tags: 1989, Abel-Boone H, Attitude To Health, Backlog, Best Practices (Davies), Children's Health Care, Communication, Decision Making, Dokecki PR, Humans, ICU Decision Making, Infant, Intensive Care Units, Interviews, Journal Article, Life Support Care/psychology, Neonatal, Newborn, Parents, Professional-family Relations, Smith MS, Social Support, United States
"Safe passage": social work roles and functions in hospice care
Bereavement care in the critical care setting
End-of-life decision making by adolescents, parents, and healthcare providers in pediatric oncology: research to evidence-based practice guidelines
Tags: 2001, Adolescent, Backlog, Cancer Nursing, Death and Euthanasia, Decision Making, Empirical Approach, Female, Foppiano P, Furman W, Hinds PS, Humans, Journal Article, Male, Neoplasms/nursing/psychology/therapy, Oakes L, Olson MS, Practice Guidelines As Topic, Professional Patient Relationship, Professional-family Relations, Quargnenti A, Social Support, Srivastava DK, Terminal Care
Communication between physician, patient, and family in the pediatric intensive care unit
Tags: 1993, Adaptation, Anxiety/prevention & control/psychology, Attitude Of Health Personnel, Backlog, Child, Communication, Critical Care Medicine, Defense Mechanisms, Education, Empathy, Grief, Humanism, Humans, ICU Decision Making, Intensive Care Units, Internal-External Control, Journal Article, Kinesics, Medical/methods, Parents/education/psychology, Patient Care Team, Patient Satisfaction, Pediatric, Physician-patient Relations, Physician's Role, Power (psychology), Professional-family Relations, Psychological, Todres ID
Reasons for dissatisfaction: A survey of relatives of intensive care patients who died
Tags: 1998, Adult, Age Distribution, Aged, Backlog, Badia F, Bettelini CM, Cause Of Death, Communication, Consumer Satisfaction/statistics & numerical data, Critical Care Medicine, Cross-sectional Studies, Death, Degrate A, Family/psychology, Female, Hospital, Humans, Intensive Care Units/standards, Journal Article, Malacrida R, Male, Martinez M, Medical Staff, Middle Aged, Non-U.S. Gov't, Piazza J, Professional-family Relations, Questionnaires, Rapin CH, Research Support, Switzerland, Terminal Care/psychology/standards, Vizzardi N, Wullschleger R
Forgoing life-sustaining treatments: how the decision is made in French pediatric intensive care units
Tags: 2001, Adolescent, Backlog, Child, Critical Care Medicine, Cross-sectional Studies, Death and Euthanasia, Decision Making, Devictor DJ, Empirical Approach, Female, France, Groupe Francophone de Reanimationet d'Urgences Pediatriques, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Life Support Care, Male, Newborn, Nguyen DT, Patient Care Team, Pediatric, Practice Guidelines, Preschool, Professional Patient Relationship, Professional-family Relations, Prospective Studies
Cornerstone care for families of children with life-threatening illness.
Tags: 1991, Adaptation, Backlog, Baum JD, Brain Diseases/psychology/therapy, Child, Continuity Of Patient Care, Developmental Medicine and Child Neurology, Family/psychology, Forrest GC, Grief, Home Nursing/psychology, Hospices, Humans, Journal Article, Longitudinal Studies, Neuromuscular Diseases/psychology/therapy, Patient Care Team, Professional-family Relations, Psychological, Public Assistance, Sick Role, Social Support, Stein A, Terminal Care/psychology, Woolley H
Your child is dead
Tags: 1991, Attitude Of Health Personnel, Attitude To Death, Backlog, Bereavement, Bmj (clinical Research Ed.), Cause Of Death, Child, Communication, Dallimore D, Female, Finlay I, France, Great Britain, Humans, Infant, Interviews As Topic, Journal Article, Male, Newborn, Nurses, Parents/psychology, Physicians, Police, Preschool, Professional-family Relations, Questionnaires, Tissue and Organ Procurement, Tissue Donors
Perinatal loss. A critique of current hospital practices
Tags: 1992, Backlog, Bereavement, Caregivers/psychology, Clinical Pediatrics, Clinical Protocols, Female, Fetal Death, Grief, Hospital/psychology, Hospitals, Humans, Infant, Journal Article, Leon IG, Male, Newborn, Parent-child Relations, Parents/psychology, perinatology, Personnel, Professional-family Relations
Sources of stress for family caregivers of institutionalized dementia patients
Tags: 1991, Alzheimer Disease/psychology, Backlog, Caregivers/psychology, Female, Health Facility Environment, Home Nursing/psychology, Humans, Institutionalization, Interpersonal Relations, Journal Article, Journal Of Applied Gerontology, Kinney JM, Middle Aged, Non-U.S. Gov't, Nursing Homes, Ogrocki PK, Ohio, Professional-family Relations, Psychological/etiology, Research Support, Stephens MA, Stress
Crisis intervention strategies when caring for families of children with cancer
Tags: 2000, Adult, Backlog, Child, Crisis Intervention/methods, Family/psychology, Hendricks-Ferguson VL, Humans, Intervention, Interventions, Journal Article, Journal Of Pediatric Oncology Nursing, Neoplasms/nursing/psychology, Nursing Assessment/methods, Parent caregivers, Patient Care Planning, Professional-family Relations
Dimensions of the role of the social worker in palliative care
Tags: 2000, Anxiety/rehabilitation, Attitudes, Backlog, Great Britain, Health Knowledge, Humans, Journal Article, Judgment, Palliative Care/organization & Administration, Palliative Medicine, Practice, Professional Practice, Professional-family Relations, Questionnaires, Sheldon FM, Social Work/organization & administration
The WHO objectives for palliative care: to what extent are we achieving them?
Tags: 1995, Abraham C, Backlog, Health Priorities, Health Services Research, Holistic Health, Hospices/standards, Human, Johnston G, Journal Article, Non-U.S. Gov't, Organizational Objectives, Outcome Assessment (health Care), Palliative Care/standards, Palliative Medicine, Pastoral Care, Professional-family Relations, Social Support, Support, Terminal Care/methods, World Health Organization
Communication with parents of children with cancer
Tags: 1994, Adaptation, Adolescent, Adult, Backlog, Black I, Child, Communication, Defense Mechanisms, Eden OB, Emery AE, Female, Follow-up Studies, Grief, Human, Infant, Interview, Journal Article, Leukemia/psychology, MacKinlay GA, Male, Neoplasms/psychology, Palliative Medicine, Parent-child Relations, Parents/education/psychology, Patient Care Team, Preschool, Professional-family Relations, Psychological, Truth Disclosure
Guidelines for assistance to terminally ill children with cancer: a report of the SIOP Working Committee on psychosocial issues in pediatric oncology
Tags: 1999, Ablin AR, Anxiety/prevention & control, Attitude To Death, Backlog, Bereavement, Chesler MA, Child, Child Care, Counseling, D'Angio GJ, Eden T, Family Health, Fear/psychology, Female, Human, Jankovic M, Journal Article, Male, Martins AG, Masera G, Medical & Pediatric Oncology, Mulhern RK, Neoplasms/psychology/therapy, Oppenheim D, Pain/prevention & control, Palliative Care, Parent-child Relations, Preschool, Professional-family Relations, Professional-patient Relations, Quality Of Life, Social Support, Spinetta J, Terminal Care, Topf R, Van Dongen-Melman J
Palliative care and pediatric surgery
Tags: 2011, Backlog, Child, Critical Illness, Gastrostomy, Humans, Intratracheal, Intubation, Jackson GP, Journal Article, Palliative Care, Patient Care Team, Physician-patient Relations, Pleurodesis, Professional-family Relations, Prognosis, Quality Of Life, Resuscitation Orders, Shelton J, Terminal Care, The Surgical Clinics Of North America, Tracheostomy
Supporting the family after the death of a child.
Tags: 2012, Adolescent, AIM, Backlog, Child, Chronic Disease, Counseling, Death, Disabled Children, Grief, Guidelines As Topic, Guilt, HEALTH COMMITTEE ON PSYCHOSOCIAL ASPECTS OF CHILD AND FAMILY, Humans, IM, Infant, Journal Article, Mortality, Parenting, Parents, Pediatrics, Physician's Role, Premature, Preschool, Professional-family Relations, sibling bereavement, Siblings, Social Support, Substance-Related Disorders, Sudden, Sudden Infant Death, Suicide, Wender E
Digital Clinical Communication for Families and Caregivers of Children or Young People With Short- or Long-Term Conditions: Rapid Review
A gap between the intention of the Swedish law and interactions between nurses and children of patients in the field of palliative oncology - The perspective of nurses
Tags: 2016, Adolescent, Adult, Akesson H, Attitude Of Health Personnel, Child, Child Of Impaired Parents/lj [legislation & Jurisprudence], European Journal Of Oncology Nursing, Glasdam S, Hospice And Palliative Care Nursing, Humans, Intention, Karidar H, Neoplasms/nu [nursing], Oncology 2017 List, Oncology Nursing, Parents, Professional-family Relations, Sweden
Informing social work practice through research with parent caregivers of a child with a life-limiting illness
Tags: 2012, Adaptation, Adult, Attitude To Health, Cadell S, Caregivers, Child, Female, Focus Groups, Hemsworth D, Humans, Journal of Social Work in End-of-Life & Palliative Care, Kennedy K, Male, Middle Aged, Palliative Care, Parent-child Relations, Parents, Professional-family Relations, Psychological, Social Support, Social Work, Stress, Terminal Care
Parent Perspectives of Neonatal Intensive Care at the End-of-Life
Tags: 2016, Adaptation Psychological, Adult, Bereavement, Christian BJ, Currie ER, Day S, Decision Making, Female, Hinds PS, Humans, Infant Newborn, Intensive Care Neonatal/st [standards], Intensive Care Neonatal/td [trends], Intensive Care Units Neonatal, Interviews As Topic, Journal of Pediatric Nursing, Male, Meneses K, November 2017 List, Palliative Care/mt [methods], Palliative Care/px [psychology], Parents/px [psychology], Perception, Perna SJ, Professional-family Relations, Qualitative Research, Robinson C, Stress Psychological, Terminal Care/mt [methods], Terminal Care/px [psychology], United States
Caring Decisions: The Development Of A Written Resource For Parents Facing End-of-life Decisions
Tags: 2015, Adult, Advance Care Planning/ethics, Advance Care Planning/standards, Attitude Of Health Personnel, Australia, Child, Consumer Health Information/methods, Cossich M, Decision Making/ethics, Gillam L, Humans, Hynson J, Internet, Journal of Palliative Medicine, July 2017 List, Parents/education, Parents/psychology, Pilot Projects, Professional-family Relations, Publications, Sullivan J, Terminal Care/methods, Terminal Care/standards, Wilkinson D, Xafis V
Key Factors Affecting Dying Children And Their Families
Tags: 2005, Adolescent, Baker J, Bereavement, Child, Communication, Decision Making, Family/px [psychology], Hinds PS, Humans, Journal of Palliative Medicine, May 2017 List, Only Child, Palliative Care/st [standards], Professional-family Relations, Quality Of Health Care, Schum L, Stress Psychological/et [etiology], Terminal Care, Terminal Care/st [standards], Wolfe J
The Provision Of Spiritual And Pastoral Care Following Stillbirth In Ireland: A Mixed Methods Study
Tags: 2014, Attitude To Death, Bereavement, BMJ Supportive & Palliative Care, Chaplain, Chaplaincy Service Hospital/standards, Daniel Nuzum, Female, Hospitals Maternity/organization & Administration, Humans, Ireland, June 2016 List, Keelin O'Donoghue, Male, Pastoral Care, Pregnancy, Professional-family Relations, Sarah Meaney, Spiritual Care, Spirituality, Stillbirth, Stillbirth/psychology
Understanding Death With Limited Experience In Life: Dying Children's And Adolescents' Understanding Of Their Own Terminal Illness And Death
Tags: 2015, Adolescent, Attitude To Death, Bates Alan T, Child, Communication, Current Opinion in Supportive and Palliative Care, Fear, Humans, Kearney Julia A, May 2017 List, Palliative Care/organization & Administration, Palliative Care/psychology, Professional-family Relations, Prognosis, Terminal Care/organization & Administration, Terminal Care/psychology, Terminally Ill/legislation & jurisprudence, Terminally Ill/psychology, Time Factors
Exhaust All Measures: Ethical Issues In Pediatric End-of-life Care
Tags: 2016, Cimino AN, Decision Making, Family, Health Personnel/px [psychology], Humans, Interviews As Topic, Journal of Social Work in End-of-Life & Palliative Care, Parents/px [psychology], Pediatrics, Professional-family Relations, Rueda HA, September 2017 List, Social Workers/px [psychology], Terminal Care/es [ethics], Terminal Care/px [psychology], Terminal Care/st [standards], Thieleman KJ, Wallace C, Withholding Treatment/es [ethics]
How Parents And Physicians Experience End-of-life Decision-making For Children With Profound Intellectual And Multiple Disabilities.
End-of-life decisions (EoLD) often concern children with profound intellectual and multiple disabilities (PIMD). Yet, little is known about how parents and physicians discuss and make these decisions.
AIMS:
The objective of this research…
Tags: 2016, Adolescent, Adult, Attitude Of Health Personnel, Attitude To Health, Caregiver, Cerebral Palsy, Child, Child Preschool, de Vos MA, Decision Making, Disabled Children, Dissent And Disputes, End Of Life, Ewals FV, Female, Healthcare Professional, Humans, Infant, Infant Newborn, Intellectual Disability, Male, Middle Aged, Neurologists, Palliative Care, Parents, Pediatricians, Professional-family Relations, Qualitative Research, Research in Developmental Disabilities, Resuscitation Orders, Retrospective Studies, September 2016 List, Severity Of Illness Index, Shared Decision-making, Terminal Care, van Goudoever JB, Willems DL, Young Adult, Zaal-Schuller IH
More Than Medication: Perinatal Palliative Care
Tags: 2016, Archives of Disease in Childhood. Fetal and Neonatal Edition, Carter BS, Decision Making/ethics, Humans, Infant Extremely Premature, Infant Newborn, Intensive Care Units Neonatal, Maternal-fetal Relations/psychology, November 2016 List, Palliative Care/ethics, Palliative Care/legislation & Jurisprudence, Palliative Care/psychology, Parental Consent/ethics, Parental Consent/legislation & Jurisprudence, Parental Consent/psychology, Patient Rights/ethics, Patient Rights/legislation & Jurisprudence, Perinatal Care/ethics, Perinatal Care/legislation & Jurisprudence, Perinatal Care/standards, Personhood, Professional-family Relations, Resuscitation Orders/ethics, Resuscitation Orders/legislation & Jurisprudence, Resuscitation Orders/psychology
Death Talk: Basic Linguistic Rules And Communication In Perinatal And Paediatric End-of-life Discussions.
This paper considers clinician/parent communication difficulties noted by parents involved in end-of-life decision-making in the light of linguistic theory.
METHODS:
Grice's Cooperative Principle and associated maxims, which enable…
Tags: 2016, Communication, Consumer Health Information, Death, Decision Making, Decision-making, End-of-life Care, Female, Health Communication, Humans, Linguistics, Male, May 2016 List, Parents/psychology, Patient Education and Counseling, Pediatrics, Perinatal Death, Pregnancy, Professional-family Relations, Terminal Care/methods, Terminally Ill, Watkins A, Wilkinson D, Xafis V
Provision Of Services In Perinatal Palliative Care: A Multicenter Survey In The United States.
Congenital anomalies account for 20% of neonatal and infant deaths in the United States. Perinatal palliative care is a recent addition to palliative care and is meant to meet the needs of families who choose to continue a pregnancy…
Tags: 2016, Bereavement, Côté-Arsenault D, Critical Care/organization & Administration, Cross-sectional Studies, Denney-Koelsch E, Female, Fetal Mortality, Humans, Infant Newborn, Journal of Palliative Medicine, Kavanaugh K, Kim S, March 2016 List, Palliative Care/organization & Administration, Parents/psychology, Perinatal Care/organization & Administration, Perry Black B, Pregnancy, Professional-family Relations, Surveys And Questionnaires, United States, Wool C
Family Conferences In The Neonatal Icu: Observation Of Communication Dynamics And Contributions.
OBJECTIVES:
Clinicians in the neonatal ICU must engage in clear and compassionate communication with families. Empirical, observational studies of neonatal ICU family conferences are needed to develop counseling best practices and to train…
Tags: 2016, Arnold RM, Boss RD, Communication, Critical Illness/psychology, December 2016 List, Decision Making, Donohue PK, Empathy, Female, Humans, Infant Newborn, Intensive Care Units Neonatal, Larson SM, Male, Parents/psychology, Pediatric Critical Care Medicine, Professional-family Relations, Qualitative Research, Roter DL, Terminal Care/psychology
Exploring The Spiritual Needs Of Families With Seriously Ill Children
Tags: 2016, Adolescent, August 2016 List, Child, Cultural Characteristics, Family/psychology, Female, Ferrell B, Humans, International Journal of Palliative Nursing, Male, Needs Assessment, Nursing, Nursing Assessment, Palliative Care, Pediatrics, Professional-family Relations, Qualitative, Qualitative Research, Spirituality