Utilizing a collaborative learning activity to sensitize interprofessional students to palliative care scopes of practice with adolescent and young adults
adult; article; collaborative learning; education; graduate student; health care personnel; human; Interprofessional relations; interview; malignant neoplasm; oncology; palliative care; palliative therapy; professional; professional role; public relations; responsibility; scope of practice; vulnerable population; young adult
Adolescent and young adults diagnosed with cancer represent a vulnerable population needing careful collaborative care from interprofessional teams. Healthcare providers must understand and appreciate the respective scopes of practice of palliative care team members to maximize the quality of care provided to these patients. A team of graduate students engaged in a collaborative learning activity to explore professional roles and responsibilities of palliative care team members when caring for adolescent and young adult oncology patients. Following a literature review and community expert interviews, students identified shared responsibilities of all team members and unique contributions of various professions. Engaging in this process highlighted and clarified the full scope of practice for each specialized team member. Educators should consider utilizing a similar collaborative learning activity to enhance students' understanding of the roles and responsibilities of each member of the interprofessional healthcare team.
Lippe M; Linton B; Jones B
Journal of interprofessional care
2019
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1080/13561820.2018.1538108" target="_blank" rel="noreferrer noopener">10.1080/13561820.2018.1538108</a>
Parental Perspectives on Roles in End-of-Life Decision Making in the Pediatric Intensive Care Unit: An Integrative Review
Child; CINAHL Database; Decision Making; Health Personnel; Human; Medline; Parental Attitudes; Parental Role; Professional Role; Psycinfo; PubMed; Systematic Review; United States; Intensive Care Units; Pediatric – United States; Terminal Care – In Infancy and Childhood
Little is known about how parents perceive their role or the role of health care providers (HCPs) during end-of-life decision making (EOL DM) in the context of the pediatric intensive care unit (PICU). The authors searched CINAHL, PubMed, Ovid Medline, Web of Science, Social Science Database, PsycINFO, and Google scholar for English language studies performed in the United States related to parental perception of parental or HCP roles in EOL DM in the PICU since 2008. Eleven studies of parents and health care providers (HCPs) of critically ill children in the PICU and/or receiving inpatient pediatric palliative care, and bereaved parents of PICU patients. Most parents reported belief that EOL DM is within the domain of parental role, a minority felt it was a physician's responsibility. Parental EOL DM is rooted more firmly in emotion and perception and a desire to be a 'good parent' to a child at EOL in the way they see fit than HCP recommendations or 'medical facts'. Parents need HCPs to treat them as allies, communicate well, and be trustworthy. Role conflict may exist between parents and HCPs who are prioritizing different attributes of the parental role. The role of the nurse in support of parental role in the PICU is not well-elucidated in the extant literature. Future research should focus on what parents need from HCPs, especially nurses, to support their parental role, and factors that facilitate the development of trust and good communication. • Little is known about PICU parental role perception in end of life decision making. • Role alteration is a stressor with negative sequelae for parents in the PICU. • Majority of parents report decision making is a means of parental role fulfillment. • Health care professionals must be trustworthy allies who communicate well. • The role of the PICU nurse in supporting parental role is poorly explicated.
Bennett Rachel A; LeBaron V T
Journal of Pediatric Nursing
2019
<a href="http://doi.org/10.1016/j.pedn.2019.02.029" target="_blank" rel="noreferrer noopener">10.1016/j.pedn.2019.02.029</a>
Social workers advocate for a seat at palliative care table
Humans; United States; Palliative Care; Professional Role; Interprofessional Relations; Pain; Social Work; Models; Organizational
2008
Meier DE; Beresford L
Journal Of Palliative Medicine
2008
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1089/jpm.2008.9996" target="_blank" rel="noreferrer">10.1089/jpm.2008.9996</a>
Creating social work competencies for practice in hospice palliative care
Child; Humans; Palliative Care; Adult; Canada; Professional Role; Clinical Competence; Interprofessional Relations; Delphi Technique; Practice; PPC Book Chapter 2011 (Kim Widger); Attitudes; Health Knowledge; hospice care; Social Work/education; Educational Measurement/standards
Social workers play an important role in the delivery of Hospice Palliative Care in many diverse settings. The profession brings a unique perspective to end-of-life care that reflects and supports the holistic philosophy of Hospice Palliative Care. Despite the prominent and longstanding position of social work in this area, the role and functions of social workers had not been clearly defined. A Canadian task group of social work practitioners and educators utilized a modified Delphi process to consult front line clinicians nationally, and thereby achieved consensus regarding the identification and description of eleven core competencies in Hospice Palliative Care. These competencies are relevant for social workers at different experience levels across care settings. They can be used to inform social work practice, as well as professional development and educational curricula in this area.
2010
Bosma H; Johnston M; Cadell S; Wainwright W; Abernethy N; Feron A; Kelley ML; Nelson F
Palliative Medicine
2010
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1177/0269216309346596" target="_blank" rel="noreferrer">10.1177/0269216309346596</a>
Pediatric palliative and end-of-life care: the role of social work in pediatric oncology
Humans; Pediatrics; Professional Role; Interdisciplinary Communication; Communication; Medical Oncology; Palliative Care/organization & administration; Family/psychology; Pain/drug therapy; Terminal Care/organization & administration; Patient Care Team/organization & administration; Social Work/organization & administration
Pediatric oncology social workers are often engaged in the psychosocial care of dying children and their families. Despite their participation on the interdisciplinary team, the role for social work in pediatric palliative and end-of-life care has not been clearly defined. This survey of 131 pediatric oncology social workers identified current and best social work practices for care of children and their families at the end of life. Implications for practice, education, and research are discussed.
2005
Jones BL
Journal of Social Work in End-of-Life & Palliative Care
2005
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1300/j457v01n04_04" target="_blank" rel="noreferrer">10.1300/j457v01n04_04</a>