Browse Items (75 total)
- Tags: Prevalence
"you Don't Know Until You Get There": The Positive And Negative "lived" Experience Of Parenting An Adult Child With 22q11.2 Deletion Syndrome.
22q11.2 deletion syndrome (22q11DS), a complex genetic syndrome associated with more than 180 features, presents complex challenges for parents including gaining a diagnosis. This phenomenological study sought the "lived" interpretations…
Tags: 2016, 22q11.2 Deletion Syndrome, Campbell LE, Developmental-disabilities, Disorders, Families, Goodwin J, Health Psychology, Interpretative Phenomenological Analysis, Ipa, McCormack L, Mothers, Prevalence, Psychological Growth, Psychology, Psychology Clinical, September 2016 List, Stress, Symptoms, Trauma, Traumatic Distress, Velo-cardio-facial Syndrome
A cohort study of children and young people with progressive neuromuscular disorders: clinical and demographic profiles and changing patterns of referral for palliative care
Tags: 2012, Adolescent, Aldridge J, Backlog, Child, Childs AM, Cohort Studies, Disease Progression, Disease Specific, Duchenne/epidemiology/mortality, Female, Fraser LK, Great Britain/epidemiology, Humans, Infant, Journal Article, Male, Manning S, McKinney PA, Miller M, Multivariate Analysis, Muscular Dystrophy, Neuromuscular Diseases/epidemiology/mortality, Palliative Care/statistics & Numerical Data, Palliative Medicine, Parslow RC, Poverty Areas, Preschool, Prevalence, Referral and Consultation/trends, Retrospective Studies, Spinal Muscular Atrophies of Childhood/epidemiology/mortality
A cross-sectional study on prevalence of pain and breakthrough pain among an unselected group of outpatients in a tertiary cancer clinic
Tags: 2014, Adolescent, Adult, Aged, Ambulatory Care Facilities, Backlog, Breakthrough Pain, Brunelli C, Cohort Studies, Comorbidity, Cross-sectional Studies, Female, Hjermstad MJ, Humans, Journal Article, Kaasa S, Klepstad P, Male, Middle Aged, Neoplasms, Norway, Outpatients, Pain Measurement, Prevalence, Raj Sunil X, Supportive Care In Cancer : Official Journal Of The Multinational Association Of Supportive Care In Cancer, Thronaes M, Young Adult
A description of adaptive and maladaptive behaviour in children and adolescents with Cri-du-chat syndrome
Tags: 2011, Adolescent, adults, behavioral problems, behaviour, Chappaz I O, characteristics, Child, Cri-du-chat, cri-du-chat syndrome, development, Education & Educational Research, Emerich D R, Epidemiology, Gatto K R, Genetics & Heredity, INDIVIDUALS, Journal Of Intellectual Disability Research, Kim C A, maladaptive behaviors, Neurology, Neurosciences &, Orsati F T, Prevalence, Psychiatry, Rehabilitation, Rimerio R C, Teixeira Mctv, Trajectory
A Plateau in Pediatric Palliative Program Prevalence
A survey of the prevalence of stereotypy, self-injury and aggression in children and young adults with Cri du Chat syndrome
Tags: 2002, Adolescent, Adult, Aggression, Aggression/psychology, Behavior, characteristics, Child, Collins M S, Comorbidity, Cornish K, Cri-du-chat, Cri-du-Chat Syndrome/epidemiology, Female, Humans, Journal Of Intellectual Disability Research, Male, Prevalence, Self-Injurious Behavior/epidemiology, self-injury, Stereotypic Movement Disorder/epidemiology, stereotypy, Surveys And Questionnaires, tone and motor problems, Trajectory
Aggressiveness of care at the end of life in children with cancer: A nationwide cohort study
Tags: 2017, Aggression, aggressiveness, Annals of Oncology, Cancer Staging, Cardoso A, Cause Of Death, Child, Cohort Analysis, Cohort Studies, developmental stage, Female, Gomes B, Hospitalization, Human, Icd-9, immunotherapy, Intensive Care Unit, Lacerda A, Lopes S, Major Clinical Study, Male, Martins BD, Morbidity, Multicenter Study, Oncology 2018 List, Only Child, Palliative Care, Palliative Therapy, Portugal, Prevalence, Quality Of Life, Resuscitation, School Child, total parenteral nutrition, vascular access
Approaching the third decade of paediatric palliative oncology investigation: historical progress and future directions
Tags: 2017, Bereavement, Cancer Prognosis, Child, Childhood Cancer, Controlled Study, Ethnic Group, Human, Oncology 2017 List, Palliative Therapy, Personal Experience, Prevalence, Prognosis, Quality Of Life, Randomized Controlled Trial(topic), Rosenberg AR, Sibling, The Lancet Child And Adolescent Health, Voice, Wolfe J
Assessing the Need for Pediatric Palliative Care in the Six Arab Gulf Cooperation Council Countries
Attitudes on pain and opioid prescription practices in cystic fibrosis centers
Tags: 2017, 53663-61-9 (opiate), 8002-76-4 (opiate), 8008-60-4 (opiate), Adult, Analgesia, anxiety, Child, Chronic Pain, cyst, Cystic Fibrosis, drug combination, Female, Hollatz T, Human, January 2018 List, Laxova A, Life Expectancy, Male, Meyer KC, Mood, Mukadam Z, Nurse, Opiate, opiate addiction, Palliative Therapy, Pediatric Pulmonology, prescription, Prevalence, Quality Of Life, Questionnaire, sinus headache, thorax wall, Yang Y
Behavior Problems in Individuals with Cornelia de Lange Syndrome: Population-Specific Validation of the Behavior Problem Inventory-01
Tags: 2013, Abby L, Aggressive/destructive behavior, Barnard-Brak L, Behavior, behavioral problems, behaviors, characteristics, Cornelia de Lange syndrome, De Lange syndrome, delange-syndrome, Dotson W, Intellectual disabilities, Journal of Developmental and Physical Disabilities, Medeiros K, Phenomenology, Prevalence, Rehabilitation, Reliability, repetitive, Richman D, Rojahn J, Scale, Self-injurious, self-injurious-behavior, short form, Stereotyped Behavior, Trajectory, Validity, Wei T L
Behaviour in mucopolysaccharide disorders
Tags: 1995, Aggression, Archives of Disease in Childhood, Backlog, Bax MC, Child, Child Behavior Disorders/complications, Colville GA, Data Collection, Family Health, Female, Humans, Journal Article, Male, Mucopolysaccharidoses/complications, Mucopolysaccharidosis II/psychology, Mucopolysaccharidosis III/psychology, Parents, Preschool, Prevalence, Q3 Scoping Review Results, Self-Help Groups, Sleep Disorders/complications
Challenges in assessing the need for beds in palliative care-The example of inpatient hospice care for children, adolescents and young adults
Tags: 2018, Adult, Artificial Ventilation, August 2018 List, calculation, Child, conference abstract, Death, Diagnosis, disabled person, Female, Funding, Germany, Home Care, Hospice Care, Hospital Patient, Human, Jansky M, Jaspers B, Length Of Stay, Likert scale, Long Term Care, Major Clinical Study, Male, Mortality, Nauck F, occupation, Palliative Medicine, Palliative Therapy, Politics, Prevalence, psychosocial care, quantitative analysis, Resident, Semi Structured Interview, Statistics, Young Adult
Children with medical complexity and paediatric palliative care: a retrospective cross-sectional survey of prevalence and needs
Tags: 2021, Amarri S, Bertelli S, Bertolini P, Bianchi E, Caldarelli V, Campagna A, Children With Medical Complexity, Cortina I, De Panfilis L, Fornaro M, Gabriele C, Gulmini L, Hospices, Italian Journal of Pediatrics, Locatelli C, Magistà A, Mazzoni E, Melchionda F, Mondardini MC, Needs Assessment, Ottaviani A, Paediatrics, Palliative Care, Poggi G, Prevalence, Riva M, Sani E, September 2021 List, Serra L, Soffritti S
Chronic abdominal pain in children: an update
Tags: 2006, Abdominal Pain/diagnosis/epidemiology/therapy, Adolescent, Backlog, Child, Chronic Disease, Combined Modality Therapy, Continuing, Education, Female, Friesen CA, Gastrointestinal Diseases/diagnosis/epidemiology/therapy, Humans, Journal Article, Male, Medical, Missouri Medicine, Missouri/epidemiology, Pain Measurement, PedPal Lit, Preschool, Prevalence, Prognosis, Psychology, Risk Assessment, Schurman JV, Severity Of Illness Index, Socioeconomic Factors
Compassion fatigue, burnout, and compassion satisfaction in pediatric palliative care (PC) providers in the U.S
Tags: 2018, April 2020 List, Awareness, Burnout, Child, Compassion Fatigue, conference abstract, coworker, Distress Syndrome, Education, Exhaustion, friend, Health Care Personnel, Human, injury, Kase S M, Life Sustaining Treatment, linear regression analysis, Palliative Therapy, Pediatrics, Prevalence, Questionnaire, risk factor, satisfaction with care, Self Care, Social Isolation, Waldman E D, Weintraub A S, Wellbeing
Congenital heart disease in the general population: changing prevalence and age distribution
Tags: 2007, Adolescent, Adolescent Transitions, Adult, Age Distribution, Backlog, Child, Circulation, Cohort Studies, Congenital/epidemiology, Databases, Factual/trends, Female, Heart Defects, Humans, Ionescu-Ittu R, Journal Article, Mackie AS, Male, Marelli AJ, Middle Aged, Pilote L, Population, Preschool, Prevalence, Quebec, Rahme E
Demographic transition of the Swedish cystic fibrosis community--results of modern care
Tags: 2002, Adolescent, Adolescent Transitions, Adult, Backlog, Child, Cystic Fibrosis/epidemiology/mortality/therapy, Demography, Humans, Incidence, Infant, Journal Article, Lannefors L, Lindgren A, Linear Models, Middle Aged, Newborn, Preschool, Prevalence, Proportional Hazards Models, Residence Characteristics, Respiratory Medicine, Survival Rate, Sweden/epidemiology
Depression and anxiety in children at the end of life
Tags: 2007, Adjustment Disorders/epidemiology/psychology/therapy, Anxiety Disorders/epidemiology/psychology/therapy, Backlog, Child, Depressive Disorder, Drug Therapy, Humans, Journal Article, Kersun LS, Major/epidemiology/psychology/therapy, Pediatric Clinics of North America, Post-Traumatic/epidemiology/psychology/therapy, Prevalence, Psychotherapy, Shemesh E, Stress Disorders, Terminal Care
Depression and anxiety symptoms in children and adolescents with autism spectrum disorders without intellectual disability
Tags: 2012, Adolescents, anxiety, ASPERGER-SYNDROME, At Risk Persons, Autism, Backlog, Case L, Children, Comorbidity, Daniolos P, Depression, Depression/psychology, DEVELOPMENTAL, DIAGNOSTIC INTERVIEW, Education, FRIENDSHIP, Intelligence Quotient, Journal Article, Kenworthy L, Martin A, Parent, People, PERVASIVE DEVELOPMENTAL DISORDERS, Prevalence, PSYCHIATRIC-DISORDERS, Psychiatry, Psychology, Rehabilitation, Research In Autism Spectrum Disorders, Special, Strang JF, Symptoms (Individual Disorders), VERSION, Wallace GL, Wills MC
Early mortality in children with acute lymphoblastic leukemia in a developing country: the role of malnutrition at diagnosis. A multicenter cohort MIGICCL study
Tags: 2017, Adolescent, Age Factors, Alvarez-Rodriguez FJ, Amador-Sanchez R, Body Weights and Measures, Bolea-Murga V, Cardenas-Cardos R, Child, Child Preschool, Children, Comorbidity, de Diego Flores-Chapa J, Developing Countries, Developing World 2018 List, Dorantes-Acosta EM, Duarte-Rodriguez DA, Espinosa-Elizondo RM, Fajardo-Gutierrez A, Female, Flores-Lujano J, Flores-Villegas LV, Gil-Hernandez AE, Gonzalez-Bonilla CR, Humans, Infant, Infant Newborn, Jimenez-Hernandez E, Leukemia, Leukemia & Lymphoma, Male, malnutrition, Malnutrition/diagnosis/epidemiology, Martin-Trejo JA, Martinez-Avalos A, Medina-Sanson A, Mejia-Arangure JM, Mexico/epidemiology, Mortality, Nunez-Enriquez JC, Nunez-Villegas NN, Paredes-Aguilera R, Penaloza-Gonzalez JG, Perez-Saldivar ML, Population Surveillance, Precursor Cell Lymphoblastic Leukemia-Lymphoma/epidemiology/ mortality/therapy, Prevalence, Prognosis, Proportional Hazards Models, Rangel-Lopez A, Remission Induction, Reyes-Zepeda NC, Rivera-Luna R, Rodriguez-Zepeda MD, Socioeconomic Factors, Torres-Nava JR, Velazquez-Avina MM
Evaluation of heart murmurs in children: cost-effectiveness and practical implications
Tags: 2002, Adolescent, Backlog, Cardiology/economics, Child, Child welfare, Comparative Study, Cost-Benefit Analysis/economics, Decision Support Techniques, Echocardiography/economics, Electrocardiography/economics, Heart Murmurs/diagnosis/economics/epidemiology, Humans, Infant, Infant Welfare, Journal Article, Kimball TR, Kotagal UR, Mrus JM, Newborn, Non-U.S. Gov't, Pediatrics/economics, Preschool, Prevalence, Radiography, Referral and Consultation/economics, Research Support, Sensitivity and Specificity, The Journal Of Pediatrics, Thoracic/economics, Tsevat J, Yi MS
Feeding and nutritional characteristics in children with moderate or severe cerebral palsy
Tags: 1996, Acta Paediatrica, Activities of Daily Living, Age Distribution, Anthropometry, Backlog, Case-Control Studies, Cerebral Palsy/complications, Child, Child Nutrition Disorders/etiology, Dahl M, Disabled Persons, Eating Disorders/etiology, Female, Humans, Journal Article, Male, Non-U.S. Gov't, Nutrition Assessment, Nutritional Status, Prevalence, Questionnaires, Rasmussen M, Research Support, Risk Factors, Selberg T, Thommessen M
Flourishing, religion, and burnout among caregivers working in pediatric palliative care
Tags: 2024, Adolescent, April List 2024, Article, Burnout, Caregiver, Child, Controlled Study, Convenience Sample, Coping, Cross-sectional Study, Doolittle BR, Dying, Female, Human, International Journal of Psychiatry in Medicine, Job Satisfaction, job stress, life satisfaction, Male, Multidisciplinary team, Oberholzer AE, Palliative Care, Palliative Therapy, Prevalence, Qualitative Analysis, Religion, South Africa, terminally Ill Patient, work environment
Gastrointestinal and nutritional problems occur frequently throughout life in girls and women with Rett syndrome
Tags: 2012, Adolescent, Adult, Age Factors, Annese F, Barrish J O, Bone Diseases/complications/epidemiology, Caeg E, characteristics, Child, Child Preschool, Child Nutrition Disorders/epidemiology/etiology/genetics, Constipation, dysmotility, Dysphagia, feeding difficulties, Female, Gastrointestinal Diseases/epidemiology/etiology/genetics, gastrointestinal dysmotility, Geerts S, Glaze D G, Growth Disorders/epidemiology/etiology/genetics, Health Surveys, Humans, Infant, Infant Nutrition Disorders/epidemiology/etiology/genetics, Journal Of Pediatric Gastroenterology And Nutrition, Lane J B, Lee H S, Male, McNair L, Methyl-CpG-Binding Protein 2/genetics, Motil K J, Mutation, Neul J L, Nutrition Disorders/epidemiology/etiology/genetics, Parents, Percy A K, Prevalence, Rett syndrome, Rett Syndrome/complications/genetics, Skinner S A, Surveys And Questionnaires, Trajectory, Young Adult
Health and sleep problems in Cornelia de Lange Syndrome: a case control study
Tags: 2008, Adolescent, Arron K, behavioral problems, Case-Control Studies, characteristics, Comorbidity, De Lange syndrome, De Lange Syndrome/epidemiology/psychology, Ear Diseases/epidemiology/psychology, Eye Diseases/epidemiology/psychology, Female, Gastrointestinal Diseases/epidemiology/psychology, Hall S, Health Status, Hernia/epidemiology/psychology, Humans, Intellectual Disability/epidemiology/psychology, Journal Of Intellectual Disability Research, Male, Oliver C, Prevalence, Self-Injurious Behavior/epidemiology/psychology, self-injury, Severity Of Illness Index, Skin Diseases/epidemiology/psychology, sleep disturbance, Sleep Wake Disorders/epidemiology, Sloneem J, Stomatognathic Diseases/epidemiology/psychology, Surveys And Questionnaires, Trajectory
Health services use and health care expenditures for children with disabilities
Tags: 2004, Adolescent, Backlog, Child, Cost Sharing/statistics & numerical data, Disabled Children/statistics & numerical data, Financing, Health, Health Care Surveys, Health Expenditures/statistics & numerical data, Health Services/utilization, Home Care Services/economics/utilization, Hospitalization/economics/statistics & numerical data, Humans, Income, Infant, Inkelas M, Insurance, Journal Article, Kim SE, Multivariate Analysis, Newacheck P, Office Visits/utilization, P.H.S., Pediatrics, Personal/statistics & numerical data, Preschool, Prevalence, Research Support, U.S. Gov't, United States
Healthcare utilization among children and young people with life-limiting conditions: Exploring palliative care needs using National Health Insurance claims data
Tags: 2692, April 2020 List, Article, Child, Controlled Study, Female, Health Care Utilization, Human, Kim C H, Kim M S, Lee J Y, Length Of Stay, Lim N G, Male, Malignant Neoplasm, Mortality Rate, national health insurance, Palliative Therapy, Prevalence, Retrospective Study, Scientific reports, Shin H Y, Song I G
Healthcare Utilization and Spending for Constipation in Children With Versus Without Complex Chronic Conditions
Tags: 2017, Adolescent, Ambulatory Care/ economics/utilization, Berry JG, Child, Child Preschool, Chronic Disease, Constipation/economics/ therapy, DeJong N, Delivery of Health Care/ economics, Emergency Service Hospital/utilization, Female, Hall M, Health Care Costs, Hospitalization/economics, Humans, Infant, January 2018 List, Journal Of Pediatric Gastroenterology And Nutrition, Male, Medicaid, Multiple Chronic Conditions, Patient Acceptance of Health Care, Prevalence, Retrospective Studies, Richardson T, Rodean J, Steiner MJ, Stephens JR, United States
How Many Children And Young People With Life-limiting Conditions Are Clinically Unstable? A National Data Linkage Study
Design National cohort of CYP with LLCs using linked routinely…
Tags: 2016, Age, Archives of Disease in Childhood, Audits, Australian Casemix Classification, Bryony Beresford, Care And Treatment, College Admissions, Consortia, Councils, Datasets, Diseases, End-of-life Care, England, Ethnicity, Health Service, Hospice Care, Hospitals, Intensive Care Units, Life-limiting Conditions, Lorna K Fraser, Management, Medical Research, Minority & Ethnic Groups, Palliative Care, Pat Carragher, Patient Admissions, Patient Outcomes, Patterns, Pediatrics, Picanet, Prevalence, Quality, Registration, Roger C Parslow, Routine data, Scotland, September 2016 List, Stuart Jarvis, Studies
Hypoplastic left heart syndrome in US military family members: trends in intervention, survival, and prevalence.
Impact of child death on paediatric trainees
Tags: 2018, Acute/ epidemiology, Adult, Archives of Disease in Childhood, Attitude To Death, Child, Death, February 2018 List, Female, Finn GM, Griksaitis MJ, Hollingsworth CE, Huckridge J, Humans, Intensive Care, Internship And Residency, Male, Middle Aged, Occupational Health, Only Child, Palliative Care, Pediatrics, Physicians/ psychology, Post-traumatic, Post-Traumatic/ epidemiology, Prevalence, Psychology, Stress Disorders, Surveys And Questionnaires, Traumatic, United Kingdom, Wesley C
Influence of epilepsy on mortality in mental retardation: an epidemiologic study
Tags: 1996, Adult, Backlog, Blomquist HK, Cause Of Death, Cerebral Palsy/ep [Epidemiology], Cerebral Palsy/mo [Mortality], Cohort Studies, Comorbidity, Confidence Intervals, Edvinsson SO, Epilepsia, Epilepsy, Epilepsy/di [diagnosis], Epilepsy/ep [Epidemiology], Epilepsy/mo [Mortality], Follow-up Studies, Forsgren L, Generalized/di [Diagnosis], Generalized/ep [Epidemiology], Generalized/mo [Mortality], Human, Journal Article, Mental Retardation/di [Diagnosis], Mental Retardation/ep [Epidemiology], Mental Retardation/mo [Mortality], Middle Age, Mortality, Nystrom L, Pneumonia/ep [Epidemiology], Pneumonia/mo [Mortality], Prevalence, Severity Of Illness Index, Sweden/ep [Epidemiology]
Is It Taking Longer To Die In Paediatric Intensive Care In England And Wales?
INTRODUCTION:
All-cause infant and childhood mortality has decreased in the UK over the last 30 years. Advances in paediatric critical care have increased survival in paediatric intensive care units (PICUs) but may have affected how and when…
Tags: 2016, Archives of Disease in Childhood, Child, Childrens Hospitals, Complex Chronic Conditions, Death, Diseases, Health Aspects, Intensive Care, Intensive Care Units, Management, Mortality, October 2016 List, Outcomes Research, Parslow R, Pediatrics, Plunkett A, Prevalence, Risk Factors, Trends, Units
Local Paediatric Death Data for Barnet 2015- 2021: Which Children are Potentially Eligible for Hospice Care?
Tags: 2022, Awareness, BMJ Supportive and Palliative Care, Child, Child Death, Clinical Article, conference abstract, Data Analysis, England, Female, Hospice, Hospice Care, Hospital Admission, Hospital Mortality, Human, information center, Male, March List 2023, Medical History, Only Child, Opstad H, Palliative Therapy, Patient Referral, Prevalence, Retrospective Study, Social Care, time of death
Long term posttraumatic growth after breast cancer: prevalence, predictors and relationships with psychological health
Tags: 2010, Adaptation, Adult, Aged, Attitude To Health, Backlog, Bonnaud-Antignac A, Breast Neoplasms/epidemiology/psychology, Cross-sectional Studies, Disease-Free Survival, Female, Florin A, Follow-up Studies, Humans, Journal Article, Journal Of Clinical Psychology In Medical Settings, Lelorain S, Middle Aged, Post-Traumatic/diagnosis/epidemiology/psychology, Predictive Value of Tests, Prevalence, Psychological, Quality Of Life/psychology, Retrospective Studies, Stress Disorders
Low prevalence of palliative care and ethics consultations for children with chronic critical illness
Tags: 2018, Acta Paediatrica, International Journal of Paediatrics, Article, Artificial Ventilation, Boss RD, childhood disease th [Therapy], Chronic Disease, Consultation, Critical Illness, Donohue PK, Ethics, Falck A, Goloff N, Hospital Admission, Human, Hutton N, Intensive Care Unit, Length Of Stay, Miles A, November 2018 List, Palliative Therapy, Prevalence, Priority Journal, Shapiro M, Tracheostomy, Weiss EM
Neuropathic cancer pain: prevalence, severity, analgesics and impact from the European Palliative Care Research Collaborative-Computerised Symptom Assessment study
Tags: (EPCRC) European Palliative Care Research Collaborative, 2013, 80 And Over, Aass N, Adolescent, Adult, Aged, Analgesics, Backlog, Bennett MI, Caraceni A, Cross-sectional Studies, Fainsinger R, Female, Heitzer E, Hjermstad MJ, Humans, Journal Article, Kaasa S, Life Expectancy, Male, Middle Aged, Neoplasm Metastasis, Neoplasms, Neuralgia, Pain Measurement, Palliative Medicine, Prevalence, Quality Of Life, Rayment C, Strasser F, Symptom Assessment, Young Adult
Off-Label and Unlicensed Drugs in Pediatric Palliative Care: A Prospective Observational Study
Tags: 2020, Benedi Gonzalez J, Cuervas-Mons Vendrell M, de Noriega I, Drug Approval, drug compounding, Drug Prescriptions, Garcia-Lopez I, Journal Of Pain & Symptom Management, Martin Romero I, Martino-Alba R, October 2020 List, off-label use, Palliative Care, Palliative Medicine, Pediatrics, Prevalence
Pain in children with cerebral palsy: a cross-sectional multicentre European study.
Tags: 2010, Acta Paediatrica, Age Factors, Backlog, Cerebral Palsy/co [Complications], Child, Colver A, Cross-sectional Studies, Dickinson HO, Europe/epidemiology, Gibson L, Humans, Journal Article, Pain/ep [Epidemiology], Pain/et [Etiology], Parent-child Relations, Prevalence, Questionnaires, Regression Analysis, Severity Of Illness Index