1 40 1 Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month Backlog URL Address <a href="http://doi.org/10.1007/s11136-004-5328-0" target="_blank" rel="noreferrer">http://doi.org/10.1007/s11136-004-5328-0</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Is treatment adherence associated with better quality of life in children with sickle cell disease? Publisher An entity responsible for making the resource available Quality of Life Research Date A point or period of time associated with an event in the lifecycle of the resource 2005 Subject The topic of the resource Anemia; PedPal Lit; Preschool HumansPatient ComplianceQuality of Life United States; Sickle Cell/physiopathology/therapy Child Child Creator An entity primarily responsible for making the resource Barakat LP; Lutz M; Smith-Whitley K; Ohene-Frempong K Description An account of the resource The association of treatment adherence with quality of life (QOL) and the role of sickle cell disease complications were explored in children with sickle cell disease. Primary caregivers of 43 children, ages 5 years and older, and 21 children, ages 8 years and older, completed a standardized measure of QOL during an admission for pain or fever to the hematology acute care unit. Adherence was measured through medical staff ratings, caregiver-report of sickle cell disease-related care activities, and matching of medical staff standard recommendations for treatment of pain and fever with sickle cell disease-related care activities. Sickle cell disease complications were assessed via medical file review. Pearson correlation coefficients indicated that better adherence was associated with poorer overall QOL. In follow-up analyses, although sickle cell disease complications were associated with adherence, it did not explain the negative correlation of adherence with QOL. Higher treatment adherence may interfere with activities that contribute to QOL for some children. Further research to investigate the role of sickle cell disease complications, as well as psychosocial factors, in determining both treatment adherence and QOL is suggested. 2005 Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1007/s11136-004-5328-0" target="_blank" rel="noreferrer">10.1007/s11136-004-5328-0</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). Type The nature or genre of the resource Journal Article 2005 Anemia Backlog Barakat LP Journal Article Lutz M Ohene-Frempong K PedPal Lit Preschool HumansPatient ComplianceQuality of Life United States Quality of Life Research Sickle Cell/physiopathology/therapy Child Child Smith-Whitley K