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Tags: Preschool Chronic Disease Comparative Study Cost of IllnessDevelopmental DisabilitiesDisabled Children Family/psychology Humans Qualitative Research Research Support

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Normalization in families raising a child who is medically fragile/technology dependent and developmentally delayed

2005

Tags: 2005, Adaptation, Backlog, Bradley JF, but it has not been examined in families whose children have both complex physical and developmental disabilities. Developmental delays compounded the effects of the children's physical chronic conditions, Extramural Research Support, Journal Article, N.I.H., Non-U.S. Gov't Research Support, P.H.S. Schools, parents recognized normal and positive aspects of their lives while acknowledging the profound challenges that their families faced. Parents concluded that it was possible to have a good life that was not necessarily normal by usual standards ., PedPal Lit, Preschool Chronic Disease Comparative Study Cost of IllnessDevelopmental DisabilitiesDisabled Children Family/psychology Humans Qualitative Research Research Support, Psychological Caregivers/psychology ChildChild Rearing Child, Qualitative Health Research, Rehm RS, severely affecting how families organized and managed their daily lives, U.S. Gov't, with the result that families did not fit currently established attributes of normalization. Instead

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