1
40
19
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
March 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March 2018 List
URL Address
<a href="http://doi.org/10.1053/j.semperi.2016.09.002" target="_blank" rel="noreferrer">http://doi.org/10.1053/j.semperi.2016.09.002</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Early neurodevelopmental outcomes of extremely preterm infants
Publisher
An entity responsible for making the resource available
Seminars In Perinatology
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Biomedical Research; Infant; neonatology; Adhd; Brain/embryology/ physiopathology; cerebral palsy; Developmental Disabilities/etiology/ physiopathology; Diseases/ physiopathology; Extremely Premature/growth & development/physiology/psychology; Fetal Organ Maturity; Humans; infant; intellectual impairment; intraventricular hemorrhage; Nervous System Diseases/etiology/ physiopathology; neurodevelopment; neurodevelopmental outcomes; Newborn; Premature; preterm birth; Risk Factors; sensory impairment; Survival Rate/trends; Very Low Birth Weight/growth & development/physiology/psychology; white matter injury
Creator
An entity primarily responsible for making the resource
Rogers EE; Hintz SR
Description
An account of the resource
Infants born at extreme preterm gestation are at risk for both death and disability. Although rates of survival have improved for this population, and some evidence suggests a trend toward decreased neuromotor impairment over the past decades, a significant improvement in overall early neurodevelopmental outcome has not yet been realized. This review will examine the rates and types of neurodevelopmental impairment seen after extremely preterm birth, including neurosensory, motor, cognitive, and behavioral outcomes. We focus on early outcomes in the first 18-36 months of life, as the majority of large neonatal studies examining neurodevelopmental outcomes stop at this age. However, this early age is clearly just a first glimpse into lifetime outcomes; the neurodevelopmental effects of extreme prematurity may last through school age, adolescence, and beyond. Importantly, prematurity appears to be an independent risk factor for adverse development, but this population demonstrates considerable variability in the types and severity of impairments. Understanding both the nature and prevalence of neurodevelopmental impairment among extremely preterm infants is important because it can lead to targeted interventions that in turn may lead to improved outcomes.
2016-12
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1053/j.semperi.2016.09.002" target="_blank" rel="noreferrer">10.1053/j.semperi.2016.09.002</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Adhd
Biomedical Research
Brain/embryology/ physiopathology
Cerebral Palsy
Developmental Disabilities/etiology/ physiopathology
Diseases/ physiopathology
Extremely Premature/growth & development/physiology/psychology
Fetal Organ Maturity
Hintz SR
Humans
Infant
Intellectual Impairment
intraventricular hemorrhage
March 2018 List
Neonatology
Nervous System Diseases/etiology/ physiopathology
neurodevelopment
Neurodevelopmental Outcomes
Newborn
Premature
preterm birth
Risk Factors
Rogers EE
Seminars in Perinatology
sensory impairment
Survival Rate/trends
Very Low Birth Weight/growth & development/physiology/psychology
white matter injury
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpediatrics.2009.155" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpediatrics.2009.155</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Neonatologist training to guide family decision making for critically ill infants
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Humans; infant; United States; Critical Illness; Attitude of Health Personnel; Education; Questionnaires; Professional-Family Relations; Communication; Clinical Competence; Linear Models; Fellowships and Scholarships; Internet; Medical; decision making; infant; Newborn; Premature; Neonatology/education; Graduate; Nonparametric; Statistics
Creator
An entity primarily responsible for making the resource
Boss RD; Hutton N; Donohue PK; Arnold RM
Description
An account of the resource
OBJECTIVES: To assess neonatology fellow training in guiding family decision making for high-risk newborns and in several critical communication skills for physicians in these scenarios. DESIGN: A Web-based national survey. SETTING: Neonatal-perinatal training programs in the United States. PARTICIPANTS: Graduating fellows in their final month of fellowship. MAIN OUTCOME MEASURES: Fellows' perceived training and preparedness to communicate with families about decision making. RESULTS: The response rate was 72%, representing 83% of accredited training programs. Fellows had a great deal of training in the medical management of extremely premature and dying infants. However, they reported much less training to communicate and make collaborative decisions with the families of these infants. More than 40% of fellows reported no communication training in the form of didactic sessions, role play, or simulated patient scenarios and no clinical communication skills training in the form of supervision and feedback of fellow-led family meetings. Fellows felt least trained to discuss palliative care, families' religious and spiritual needs, and managing conflicts of opinion between families and staff or among staff. Fellows perceived communication skills training to be of a higher priority to them than to faculty, and 93% of fellows feel that training in this area should be improved. CONCLUSIONS: Graduating neonatology fellows are highly trained in the technical skills necessary to care for critically ill and dying neonates but are inadequately trained in the communication skills that families identify as critically important when facing end-of-life decisions.
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpediatrics.2009.155" target="_blank" rel="noreferrer">10.1001/archpediatrics.2009.155</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Archives Of Pediatrics & Adolescent Medicine
Arnold RM
Attitude Of Health Personnel
Backlog
Boss RD
Clinical Competence
Communication
Critical Illness
Decision Making
Donohue PK
Education
Fellowships And Scholarships
Graduate
Humans
Hutton N
Infant
Internet
Journal Article
Linear Models
Medical
Neonatology/education
Newborn
Nonparametric
Premature
Professional-family Relations
Questionnaires
Statistics
United States
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.pcl.2007.08.001" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.pcl.2007.08.001</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Withdrawal of mechanical ventilation in pediatric and neonatal intensive care units
Publisher
An entity responsible for making the resource available
Pediatric Clinics Of North America
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Child; Humans; infant; United States; Intensive Care Units; Professional-Family Relations; Respiration; Neonatal; Newborn; Premature; empathy; social support; Artificial; Diseases; Withholding Treatment/legislation & jurisprudence
Creator
An entity primarily responsible for making the resource
Munson D
Description
An account of the resource
Withdrawing life-sustaining technologies requires all of the resources and concepts that the field of palliative care has to offer. By learning some fundamental principles of medical management at the time of withdrawal and by mastering a few communication techniques, pediatricians, neonatologists, and pediatric intensivists can dramatically improve the care provided to their patients at the end of life. Although we may argue in pediatrics if there is ever such a thing as a good death, we should all strive to ensure one that is free of suffering, and one that supports the family in moving down a path of healthy grief and recovery.
2007
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.pcl.2007.08.001" target="_blank" rel="noreferrer">10.1016/j.pcl.2007.08.001</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
Artificial
Backlog
Child
Diseases
Empathy
Humans
Infant
Intensive Care Units
Journal Article
Munson D
Neonatal
Newborn
Pediatric Clinics of North America
Premature
Professional-family Relations
Respiration
Social Support
United States
Withholding Treatment/legislation & jurisprudence
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2007-3313" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2007-3313</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Pediatric cardiopulmonary resuscitation: advances in science, techniques, and outcomes
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Child; Humans; infant; Prognosis; Extracorporeal Membrane Oxygenation; Life Support Care; Magnetic Resonance Imaging; Animals; Blood Pressure; Regional Blood Flow; Vascular Resistance; quality of life; Newborn; Premature; cardiopulmonary resuscitation; S100 Proteins/blood; Heart Arrest/epidemiology/mortality/physiopathology/therapy; Nerve Growth Factors/blood; No-Reflow Phenomenon/physiopathology; Ventricular Fibrillation/epidemiology/physiopathology
Creator
An entity primarily responsible for making the resource
Topjian AA; Berg RA; Nadkarni VM
Description
An account of the resource
More than 25% of children survive to hospital discharge after in-hospital cardiac arrests, and 5% to 10% survive after out-of-hospital cardiac arrests. This review of pediatric cardiopulmonary resuscitation addresses the epidemiology of pediatric cardiac arrests, mechanisms of coronary blood flow during cardiopulmonary resuscitation, the 4 phases of cardiac arrest resuscitation, appropriate interventions during each phase, special resuscitation circumstances, extracorporeal membrane oxygenation cardiopulmonary resuscitation, and quality of cardiopulmonary resuscitation. The key elements of pathophysiology that impact and match the timing, intensity, duration, and variability of the hypoxic-ischemic insult to evidence-based interventions are reviewed. Exciting discoveries in basic and applied-science laboratories are now relevant for specific subpopulations of pediatric cardiac arrest victims and circumstances (eg, ventricular fibrillation, neonates, congenital heart disease, extracorporeal cardiopulmonary resuscitation). Improving the quality of interventions is increasingly recognized as a key factor for improving outcomes. Evolving training strategies include simulation training, just-in-time and just-in-place training, and crisis-team training. The difficult issue of when to discontinue resuscitative efforts is addressed. Outcomes from pediatric cardiac arrests are improving. Advances in resuscitation science and state-of-the-art implementation techniques provide the opportunity for further improvement in outcomes among children after cardiac arrest.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2007-3313" target="_blank" rel="noreferrer">10.1542/peds.2007-3313</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Animals
Backlog
Berg RA
Blood Pressure
Cardiopulmonary Resuscitation
Child
Extracorporeal Membrane Oxygenation
Heart Arrest/epidemiology/mortality/physiopathology/therapy
Humans
Infant
Journal Article
Life Support Care
Magnetic Resonance Imaging
Nadkarni VM
Nerve Growth Factors/blood
Newborn
No-Reflow Phenomenon/physiopathology
Pediatrics
Premature
Prognosis
Quality Of Life
Regional Blood Flow
S100 Proteins/blood
Topjian AA
Vascular Resistance
Ventricular Fibrillation/epidemiology/physiopathology
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/jama.296.13.1602" target="_blank" rel="noreferrer">http://doi.org/10.1001/jama.296.13.1602</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Clinical and MRI correlates of cerebral palsy: the European Cerebral Palsy Study
Publisher
An entity responsible for making the resource available
Jama
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Cross-Sectional Studies; Female; Humans; infant; Male; Pregnancy; Pregnancy Complications; Risk Factors; Magnetic Resonance Imaging; Preschool; infant; Newborn; Premature; Brain/pathology; Cerebral Palsy/epidemiology/etiology/physiopathology; Delivery; Infectious; Multiple; Obstetric
Creator
An entity primarily responsible for making the resource
Bax M; Tydeman C; Flodmark O
Description
An account of the resource
CONTEXT: Magnetic resonance imaging (MRI) findings have been reported for specific clinical cerebral palsy (CP) subgroups or lesion types but not in a large population of children with all CP subtypes. Further information about the causes of CP could help identify preventive strategies. OBJECTIVE: To investigate the correlates of CP in a population sample and compare clinical findings with information available from MRI brain studies. DESIGN AND SETTING: Cross-sectional, population-based investigative study conducted in 8 European study centers (North West London and North East London, England; Edinburgh, Scotland; Lisbon, Portugal; Dublin, Ireland; Stockholm, Sweden; Tubingen, Germany; and Helsinki, Finland). PARTICIPANTS: Five hundred eighty-five children with CP were identified who had been born between 1996 and 1999; 431 children were clinically assessed and 351 had a brain MRI scan. MAIN OUTCOME MEASURES: Standardized clinical examination results, parental questionnaire responses, MRI results, and obstetric, genetic, and metabolic data from medical records. RESULTS: Important findings include the high rate of infections reported by mothers during pregnancy (n = 158 [39.5%]). In addition, 235 children (54%) were born at term while 47 children (10.9%) were very preterm (<28 weeks). A high rate of twins was found, with 51 children (12%) known to be from a multiple pregnancy. Clinically, 26.2% of children had hemiplegia, 34.4% had diplegia, 18.6% had quadriplegia, 14.4% had dyskinesia, 3.9% had ataxia, and 2.6% had other types of CP. Brain MRI scans showed that white-matter damage of immaturity, including periventricular leukomalacia (PVL), was the most common finding (42.5%), followed by basal ganglia lesions (12.8%), cortical/subcortical lesions (9.4%), malformations (9.1%), focal infarcts (7.4%), and miscellaneous lesions (7.1%). Only 11.7% of these children had normal MRI findings. There were good correlations between the MRI and clinical findings. CONCLUSIONS: These MRI findings suggest that obstetric mishaps might have occurred in a small proportion of children with CP. A systematic approach to identifying and treating maternal infections needs to be developed. Multiple pregnancies should be monitored closely, and the causes of infant stroke need to be investigated further so preventive strategies can be formulated. All children with CP should have an MRI scan to provide information on the timing and extent of the lesion.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/jama.296.13.1602" target="_blank" rel="noreferrer">10.1001/jama.296.13.1602</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Backlog
Bax M
Brain/pathology
Cerebral Palsy/epidemiology/etiology/physiopathology
Child
Cross-sectional Studies
Delivery
Female
Flodmark O
Humans
Infant
Infectious
JAMA
Journal Article
Magnetic Resonance Imaging
Male
Multiple
Newborn
Obstetric
Pregnancy
Pregnancy Complications
Premature
Preschool
Risk Factors
Tydeman C
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1136/adc.2005.074971" target="_blank" rel="noreferrer">http://doi.org/10.1136/adc.2005.074971</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Death in the neonatal intensive care unit: changing patterns of end of life care over two decades
Publisher
An entity responsible for making the resource available
Archives Of Disease In Childhood. Fetal And Neonatal Edition
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Humans; infant; Intensive Care Units; Prognosis; Medical Audit; Intensive Care; Newborn; Premature; Chromosome Aberrations; Diseases/mortality; Hospital Mortality/trends; Terminal Care/trends; Cause of Death/trends; Infant Mortality/trends; Neonatal/trends; Neural Tube Defects/mortality; Victoria/epidemiology; Withholding Treatment/trends
Creator
An entity primarily responsible for making the resource
Wilkinson DJ; Fitzsimons JJ; Dargaville PA; Campbell NT; Loughnan PM; McDougall PN; Mills JF
Description
An account of the resource
BACKGROUND: Death remains a common event in the neonatal intensive care unit, and often involves limitation or withdrawal of life sustaining treatment. OBJECTIVE: To document changes in the causes of death and its management over the last two decades. METHODS: An audit of infants dying in the neonatal intensive care unit was performed during two epochs (1985-1987 and 1999-2001). The principal diagnoses of infants who died were recorded, as well as their apparent prognoses, and any decisions to limit or withdraw medical treatment. RESULTS: In epoch 1, 132 infants died out of 1362 admissions (9.7%), and in epoch 2 there were 111 deaths out of 1776 admissions (6.2%; p<0.001). Approximately three quarters of infants died after withdrawal of life sustaining treatment in both epochs. There was a significant reduction in the proportion of deaths from chromosomal abnormalities, and from neural tube defects in epoch 2. CONCLUSIONS: There have been substantial changes in the illnesses leading to death in the neonatal intensive care unit. These may reflect the combined effects of prenatal diagnosis and changing community and medical attitudes.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/adc.2005.074971" target="_blank" rel="noreferrer">10.1136/adc.2005.074971</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Archives of Disease in Childhood. Fetal and Neonatal Edition
Backlog
Campbell NT
Cause of Death/trends
Chromosome Aberrations
Dargaville PA
Diseases/mortality
Fitzsimons JJ
Hospital Mortality/trends
Humans
Infant
Infant Mortality/trends
Intensive Care
Intensive Care Units
Journal Article
Loughnan PM
McDougall PN
Medical Audit
Mills JF
Neonatal/trends
Neural Tube Defects/mortality
Newborn
Premature
Prognosis
Terminal Care/trends
Victoria/epidemiology
Wilkinson DJ
Withholding Treatment/trends
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpedi.157.11.1071" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpedi.157.11.1071</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Beta-endorphin concentration after administration of sucrose in preterm infants
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Female; Humans; infant; Male; Pain Measurement; Prospective Studies; Intensive Care; Administration; beta-Endorphin/blood; Biomarkers of Pain; Newborn; Oral; Pain/drug therapy/etiology; Premature; Sucrose/administration & dosage
Creator
An entity primarily responsible for making the resource
Taddio A; Shah V; Shah P; Katz J
Description
An account of the resource
BACKGROUND: Sucrose is an effective analgesic for procedural pain in preterm infants. It has been hypothesized that its analgesic effects are mediated by the release of endogenous opioid neurotransmitters such as beta-endorphin. OBJECTIVE: To determine whether intraoral administration of sucrose was associated with an increase in serum beta-endorphin concentrations in preterm infants with a gestation period less than 29 weeks who were not exposed to a painful stimulus. METHODS: We performed a prospective open-label study in preterm infants admitted to 2 tertiary neonatal intensive care units. Each infant received a single dose of 30% sucrose intraorally during a 1- to 2-minute period. A blood sample was obtained using an indwelling arterial catheter to determine beta-endorphin concentration immediately before and 2 to 5 minutes after the commencement of sucrose administration. RESULTS: We enrolled 11 preterm infants with a mean +/- SD gestational age of 27.2 +/- 0.9 weeks and a mean +/- SD birth weight of 1018 +/- 238 g (1.02 +/- 0.24 kg) at a mean +/- SD postnatal age of 3.0 +/- 2.5 days. The mean +/- SD beta-endorphin concentration before and after sucrose administration was 60.4 +/- 30.5 pg/mL and 57.4 +/- 22.4 pg/mL, respectively (P =.45). No adverse events were observed during the study procedures. CONCLUSION: Intraoral administration of sucrose in preterm infants did not lead to an increase in serum beta-endorphin concentrations at a point in time when the analgesic effects of sucrose were presumed to be present.
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpedi.157.11.1071" target="_blank" rel="noreferrer">10.1001/archpedi.157.11.1071</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
Administration
Archives Of Pediatrics & Adolescent Medicine
Backlog
beta-Endorphin/blood
Biomarkers of Pain
Female
Humans
Infant
Intensive Care
Journal Article
Katz J
Male
Newborn
Oral
Pain Measurement
Pain/drug therapy/etiology
Premature
Prospective Studies
Shah P
Shah V
Sucrose/administration & dosage
Taddio A
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.adnc.2003.11.012" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.adnc.2003.11.012</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Use of the parenting stress index in mothers of preterm infants
Publisher
An entity responsible for making the resource available
Advances In Neonatal Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
U.S. Gov't; PedPal Lit; Adult Female Humans Infant; future research should examine missing items more closely.; however; Newborn Infant; Non-P.H.S. Stress; Premature; Psychological/diagnosis; psychology Male Mother-Child Relations Mothers/; psychology Parenting/; psychology Questionnaires/; standards Reproducibility of Results Research Support
Creator
An entity primarily responsible for making the resource
Thomas KA; Renaud MT; Depaul D
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.adnc.2003.11.012" target="_blank" rel="noreferrer">10.1016/j.adnc.2003.11.012</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2004
2004
Adult Female Humans Infant
Advances in Neonatal Care
Backlog
Depaul D
future research should examine missing items more closely.
however
Journal Article
Newborn Infant
Non-P.H.S. Stress
PedPal Lit
Premature
Psychological/diagnosis
psychology Male Mother-Child Relations Mothers/
psychology Parenting/
psychology Questionnaires/
Renaud MT
standards Reproducibility of Results Research Support
Thomas KA
U.S. Gov't
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.adnc.2004.05.006" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.adnc.2004.05.006</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Discerning differences: gastroesophageal reflux and gastroesophageal reflux disease in infants
Publisher
An entity responsible for making the resource available
Advances In Neonatal Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Nursing; PedPal Lit; Premature; Diagnosis; Newborn Infant; Diagnosis; Differential Directories Gastroesophageal Reflux; physiology Internet Nursing Assessment%X Gastroesophageal reflux (GER) is a frequently encountered problem in infancy; physiopathology; therapy Health Education Humans Infant Infant
Creator
An entity primarily responsible for making the resource
Henry SM
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.adnc.2004.05.006" target="_blank" rel="noreferrer">10.1016/j.adnc.2004.05.006</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2004
2004
Advances in Neonatal Care
Backlog
Diagnosis
Differential Directories Gastroesophageal Reflux
Henry SM
Journal Article
Newborn Infant
Nursing
PedPal Lit
physiology Internet Nursing Assessment%X Gastroesophageal reflux (GER) is a frequently encountered problem in infancy
physiopathology
Premature
therapy Health Education Humans Infant Infant
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1053/j.semperi.2003.10.007" target="_blank" rel="noreferrer">http://doi.org/10.1053/j.semperi.2003.10.007</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The ethics of withholding/withdrawing nutrition in the newborn
Publisher
An entity responsible for making the resource available
Seminars In Perinatology
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Humans; infant; Intensive Care Units; Emotions; Pediatric Assistants; Ethics; Medical; Neonatal; Non-U.S. Gov't; Research Support; Newborn; Premature; Multi-site Ethics; Diseases; Nutritional Support/ethics
Creator
An entity primarily responsible for making the resource
Carter BS; Leuthner SR
Description
An account of the resource
The provision of nutrition and hydration to newborn infants is considered fundamental care. For premature and critically ill newborns, similar considerations generally hold true. Nutrition may be provided for these infants using assisted measures such as parenteral nutrition or tube feedings. However, for some newborn infants the provision of medically assisted nutrition may be a more complicated issue. In particular, the goals of nutrition need to be clearly elaborated for newborns with lethal conditions or for whom appropriately administered intensive care is unsuccessful in sustaining life. These infants may benefit from palliative measures of care and a limitation or withdrawal of burdensome or nonbeneficial interventions. This article explores issues pertinent to deciding and communicating the appropriate withdrawal of medically assisted nutrition and implementing palliative comfort measures.
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1053/j.semperi.2003.10.007" target="_blank" rel="noreferrer">10.1053/j.semperi.2003.10.007</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
Backlog
Carter BS
Diseases
Emotions
Ethics
Humans
Infant
Intensive Care Units
Journal Article
Leuthner SR
Medical
Multi-site Ethics
Neonatal
Newborn
Non-U.S. Gov't
Nutritional Support/ethics
Pediatric Assistants
Premature
Research Support
Seminars in Perinatology
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/109662104773709396" target="_blank" rel="noreferrer">http://doi.org/10.1089/109662104773709396</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Where infants die: examination of place of death and hospice/home health care options in the state of Wisconsin
Publisher
An entity responsible for making the resource available
Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Humans; infant; Infant Mortality; Death Certificates; Non-U.S. Gov't; Research Support; infant; Newborn; Premature; cause of death; location of death; Terminal Care/methods; Hospice Care/utilization; Abnormalities/mortality; Brain/mortality; Home Care Services/utilization; Hypoxia-Ischemia; Infant Care/methods; Wisconsin/epidemiology
Creator
An entity primarily responsible for making the resource
Leuthner SR; Boldt AM; Kirby RS
Description
An account of the resource
Infants (less than 1 year of age) have the highest death rates in the pediatric population, yet there is little published on hospice utilization for infant home deaths. We sought to describe: (1) where infants with a predisposing life-threatening condition are dying, (2) agency services available to dying infants and their families, and (3) utilization of these services for infants within the state of Wisconsin. We collected information from death certificates for infants whose cause of death was either congenital anomaly or condition of the perinatal period, such as hypoxic ischemic encephalopathy or prematurity. In addition, we surveyed all hospice and home health agencies in Wisconsin to determine their ability to serve and whether they were utilized for this same population. During 1992-1996 in Wisconsin, state records indicate that 2591 infants died: congenital anomalies or conditions of the perinatal period resulted in 1538 (60%) of these deaths. Of the 508 infant deaths from congenital anomalies, 46 (9%) occurred at home. Of the 1030 deaths from conditions of the perinatal period, 16 (1.5%) occurred at home. Only 36 (40%) of the 91 hospice/home health agencies that responded to our survey provided services to the pediatric population between 1992-1996. During this time, only 11 agencies provided care for 20 infant home deaths, comprising 32% of infant home deaths reported to the state in that same time period. In comparison to adults and older children, we found a low home death rate for infants with a life-threatening condition. To clarify these findings, we discuss barriers to infant home death.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/109662104773709396" target="_blank" rel="noreferrer">10.1089/109662104773709396</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Abnormalities/mortality
Backlog
Boldt AM
Brain/mortality
Cause Of Death
Death Certificates
Home Care Services/utilization
Hospice Care/utilization
Humans
Hypoxia-ischemia
Infant
Infant Care/methods
Infant Mortality
Journal Article
Journal of Palliative Medicine
Kirby RS
Leuthner SR
Location Of Death
Newborn
Non-U.S. Gov't
Premature
Research Support
Terminal Care/methods
Wisconsin/epidemiology
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/01.inf.0000126273.27123.33" target="_blank" rel="noreferrer">http://doi.org/10.1097/01.inf.0000126273.27123.33</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Driscoll Children's Hospital respiratory syncytial virus database: risk factors, treatment and hospital course in 3308 infants and young children, 1991 to 2002
Publisher
An entity responsible for making the resource available
The Pediatric Infectious Disease Journal
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Hospitalization; Humans; infant; Intensive Care Units; Pediatrics; Length of Stay; Severity of Illness Index; Risk Factors; Medical Records; infant; Newborn; Premature; Human; Databases; Factual; Mechanical; Ventilators; Antiviral Agents/therapeutic use; Respiratory Syncytial Virus; Respiratory Syncytial Virus Infections/drug therapy/physiopathology/virology; Respiratory Tract Infections/drug therapy/physiopathology/virology; Ribavirin/therapeutic use
Creator
An entity primarily responsible for making the resource
Purcell K; Fergie J
Description
An account of the resource
BACKGROUND: Treatment of respiratory syncytial virus (RSV) lower respiratory tract infection has historically been one of the most frequent reasons for admission to Driscoll Children's Hospital. OBJECTIVE: The objective of this study was to examine the relationship of risk factors for a severe and complicated disease course to the treatment and hospital length of stay. METHODS: Subjects were identified through a retrospective review of the medical records of all patients discharged with a diagnosis of RSV lower respiratory tract infection during 9 of the 11 RSV seasons between July 1, 1991 and June 30, 2002. The RSV seasons from 1991-1992 to 1994-1995 were compared with the RSV seasons from 1995-1996 to 2001-2002 with regard to treatment and hospital course. RESULTS: There were a total of 3308 admissions. Compared with patients with no risk factors, higher percentages of patients with age <6 weeks, history of prematurity, congenital heart disease and neurologic disease were admitted to the pediatric intensive care unit (PICU) and required mechanical ventilation (P < 0.001). Also the hospital length of stay was longer for patients with each of these individual risk factors (P < 0.001). The hospital length of stay and the percentages of patients admitted to the PICU and requiring on mechanical ventilation increased as the number of risk factors increased from zero to 3 or more (P < 0.001). Of patients with 3 or more risk factors, the average hospital length of stay was 13.5 days; 67% were admitted to the PICU, and 47% required mechanical ventilation. Ribavirin use decreased in patients with each of the individual risk factors (P < 0.001) as well as in patients with one or more risk factors (P < 0.001). At the same time the PICU admission rate increased from 6.1% to 11.2% (P < 0.001). CONCLUSIONS: Patients with three or more risk factors were at very high risk for having a severe or complicated disease course associated with admission to the PICU, placement on mechanical ventilation and a longer hospital length of stay.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/01.inf.0000126273.27123.33" target="_blank" rel="noreferrer">10.1097/01.inf.0000126273.27123.33</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Antiviral Agents/therapeutic use
Backlog
Databases
Factual
Fergie J
Hospitalization
Human
Humans
Infant
Intensive Care Units
Journal Article
Length Of Stay
Mechanical
Medical Records
Newborn
Pediatrics
Premature
Purcell K
Respiratory Syncytial Virus
Respiratory Syncytial Virus Infections/drug therapy/physiopathology/virology
Respiratory Tract Infections/drug therapy/physiopathology/virology
Ribavirin/therapeutic use
Risk Factors
Severity Of Illness Index
The Pediatric Infectious Disease Journal
Ventilators
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.112.2.332" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.112.2.332</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The natural course of infantile Pompe's disease: 20 original cases compared with 133 cases from the literature
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Humans; infant; Disease Progression; Mutation; Survival Analysis; Child Development; infant; Premature; AIM; IM; Blood Chemical Analysis; alpha-Glucosidases/ge [Genetics]; alpha-Glucosidases/me [Metabolism]; Brain/pa [Pathology]; Cardiomegaly/di [Diagnosis]; Cardiomegaly/et [Etiology]; Glycogen Storage Disease Type II/co [Complications]; Glycogen Storage Disease Type II/mo [Mortality]; Glycogen Storage Disease Type II/pp [Physiopathology]; Netherlands/ep [Epidemiology]; Newborn/gd [Growth & Development]
Creator
An entity primarily responsible for making the resource
van den Hout HM; Hop W; van Diggelen OP; Smeitink JA; Smit GP; Poll-The BT; Bakker HD; Loonen MC; de Klerk JB; Reuser AJ; Van der Ploeg AT
Description
An account of the resource
OBJECTIVE: Infantile Pompe's disease is a lethal cardiac and muscular disorder. Current developments toward enzyme replacement therapy are promising. The aim of our study is to delineate the natural course of the disease to verify endpoints of clinical studies. METHODS: A total of 20 infantile patients diagnosed by the collaborative Dutch centers and 133 cases reported in literature were included in the study. Information on clinical history, physical examination, and diagnostic parameters was collected. RESULTS: The course of Pompe's disease is essentially the same in the Dutch and the general patient population. Symptoms start at a median age of 1.6 months in both groups. The median age of death is 7.7 and 6 months, respectively. Five percent of the Dutch patients and 8% of all reported patients survive beyond 1 year of age. Only 2 patients from literature became older than 18 months. A progressive cardiac hypertrophy is characteristic for infantile Pompe's disease. The diastolic thickness of the left ventricular posterior wall and cardiac weight at autopsy increase significantly with age. Motor development is severely delayed and major developmental milestones are generally not achieved. For the Dutch patient group, growth deviates significantly from normal despite start of nasogastric tube feeding. Levels of aspartate aminotransferase, alanine aminotransferase, lactate dehydrogenase, creatine kinase, or creatine kinase-myocardial band isoenzyme are typically elevated, although aspartate aminotransferase, alanine aminotransferase, and lactate dehydrogenase increase significantly with age. The patients have fully deleterious mutations. Acid alpha-glucosidase activity is severely deficient. CONCLUSIONS: Survival, decrease of the diastolic thickness of the left ventricular posterior wall, and achievement of major motor milestones are valid endpoints for therapeutic studies of infantile Pompe's disease. Mutation analysis and measurement of the alpha-glucosidase activity should be part of the enrollment program. [References: 111]
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.112.2.332" target="_blank" rel="noreferrer">10.1542/peds.112.2.332</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
AIM
alpha-Glucosidases/ge [Genetics]
alpha-Glucosidases/me [Metabolism]
Backlog
Bakker HD
Blood Chemical Analysis
Brain/pa [Pathology]
Cardiomegaly/di [Diagnosis]
Cardiomegaly/et [Etiology]
Child Development
de Klerk JB
Disease Progression
Glycogen Storage Disease Type II/co [Complications]
Glycogen Storage Disease Type II/mo [Mortality]
Glycogen Storage Disease Type II/pp [Physiopathology]
Hop W
Humans
IM
Infant
Journal Article
Loonen MC
Mutation
Netherlands/ep [Epidemiology]
Newborn/gd [Growth & Development]
Pediatrics
Poll-The BT
Premature
Reuser AJ
Smeitink JA
Smit GP
Survival Analysis
van den Hout HM
Van der Ploeg AT
van Diggelen OP
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.2307/3528691" target="_blank" rel="noreferrer">http://doi.org/10.2307/3528691</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Extreme prematurity and parental rights after Baby Doe
Publisher
An entity responsible for making the resource available
The Hastings Center Report
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Humans; infant; Parents; Euthanasia; Newborn; Premature; Passive/legislation & jurisprudence; ICU Decision Making; Multiple; Abnormalities; Texas; Prejudice; Child Advocacy/legislation & jurisprudence; Civil Rights/legislation & jurisprudence; Disabled Persons/legislation & jurisprudence; Neonatology/legislation & jurisprudence
Creator
An entity primarily responsible for making the resource
Robertson JA
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.2307/3528691" target="_blank" rel="noreferrer">10.2307/3528691</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2004
2004
Abnormalities
Backlog
Child Advocacy/legislation & jurisprudence
Civil Rights/legislation & jurisprudence
Disabled Persons/legislation & jurisprudence
Euthanasia
Humans
ICU Decision Making
Infant
Journal Article
Multiple
Neonatology/legislation & jurisprudence
Newborn
Parents
Passive/legislation & jurisprudence
Prejudice
Premature
Robertson JA
Texas
The Hastings Center Report
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/00003246-200003000-00058" target="_blank" rel="noreferrer">http://doi.org/10.1097/00003246-200003000-00058</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Has the increased survival of premature infants affected resource utilization in pediatric intensive care units?
Publisher
An entity responsible for making the resource available
Critical Care Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2000
Subject
The topic of the resource
Humans; infant; Survival Rate; Health Policy; Newborn; Premature; ICU Decision Making; Intensive Care Units/utilization; Diseases/mortality/therapy; Patient Readmission/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Anand KJ; Tilford JM
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/00003246-200003000-00058" target="_blank" rel="noreferrer">10.1097/00003246-200003000-00058</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2000
2000
Anand KJ
Backlog
Critical Care Medicine
Diseases/mortality/therapy
Health Policy
Humans
ICU Decision Making
Infant
Intensive Care Units/utilization
Journal Article
Newborn
Patient Readmission/statistics & numerical data
Premature
Survival Rate
Tilford JM
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/ana.22614" target="_blank" rel="noreferrer">http://doi.org/10.1002/ana.22614</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Physiological stress and brain vulnerability: understanding the neurobiology of connectivity in preterm infants
Publisher
An entity responsible for making the resource available
Annals Of Neurology
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Female; Humans; infant; Male; Intensive Care Units; Pregnancy; Developmental Disabilities; Magnetic Resonance Imaging; Brain; Infant Behavior; Neonatal; Premature
Creator
An entity primarily responsible for making the resource
Msall ME
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/ana.22614" target="_blank" rel="noreferrer">10.1002/ana.22614</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Annals Of Neurology
Backlog
Brain
Developmental Disabilities
Female
Humans
Infant
Infant Behavior
Intensive Care Units
Journal Article
Magnetic Resonance Imaging
Male
Msall ME
Neonatal
Pregnancy
Premature
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/jama.2011.2024" target="_blank" rel="noreferrer">http://doi.org/10.1001/jama.2011.2024</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Survival without disability to age 5 years after neonatal caffeine therapy for apnea of prematurity
Publisher
An entity responsible for making the resource available
Jama
Date
A point or period of time associated with an event in the lifecycle of the resource
2012
Subject
The topic of the resource
Child; Female; Humans; infant; Male; Follow-Up Studies; Treatment Outcome; Survival Analysis; Odds Ratio; Child Development; Incidence; Preschool; infant; Newborn; Premature; Apnea/drug therapy; Blindness/epidemiology/etiology/prevention & control; Caffeine/adverse effects/therapeutic use; Central Nervous System Stimulants/adverse effects/therapeutic use; Cerebral Palsy/epidemiology; Cognition Disorders/epidemiology/etiology/prevention & control; Deafness/epidemiology/etiology/prevention & control; Developmental Disabilities/epidemiology/etiology/prevention & control; N2N; Very Low Birth Weight
Creator
An entity primarily responsible for making the resource
Schmidt B; Anderson PJ; Doyle LW; Dewey D; Grunau RE; Asztalos EV; Davis PG; Tin W; Moddemann D; Solimano A; Ohlsson A; Barrington KJ; Roberts RS; Trial Investigators Caffeine for Apnea of Prematurity (CAP)
Description
An account of the resource
CONTEXT: Very preterm infants are prone to apnea and have an increased risk of death or disability. Caffeine therapy for apnea of prematurity reduces the rates of cerebral palsy and cognitive delay at 18 months of age. OBJECTIVE: To determine whether neonatal caffeine therapy has lasting benefits or newly apparent risks at early school age. DESIGN, SETTING, AND PARTICIPANTS: Five-year follow-up from 2005 to 2011 in 31 of 35 academic hospitals in Canada, Australia, Europe, and Israel, where 1932 of 2006 participants (96.3%) had been enrolled in the randomized, placebo-controlled Caffeine for Apnea of Prematurity trial between 1999 and 2004. A total of 1640 children (84.9%) with birth weights of 500 to 1250 g had adequate data for the main outcome at 5 years. MAIN OUTCOME MEASURES: Combined outcome of death or survival to 5 years with 1 or more of motor impairment (defined as a Gross Motor Function Classification System level of 3 to 5), cognitive impairment (defined as a Full Scale IQ<70), behavior problems, poor general health, deafness, and blindness. RESULTS: The combined outcome of death or disability was not significantly different for the 833 children assigned to caffeine from that for the 807 children assigned to placebo (21.1% vs 24.8%; odds ratio adjusted for center, 0.82; 95% CI, 0.65-1.03; P = .09). The rates of death, motor impairment, behavior problems, poor general health, deafness, and blindness did not differ significantly between the 2 groups. The incidence of cognitive impairment was lower at 5 years than at 18 months and similar in the 2 groups (4.9% vs 5.1%; odds ratio adjusted for center, 0.97; 95% CI, 0.61-1.55; P = .89). CONCLUSION: Neonatal caffeine therapy was no longer associated with a significantly improved rate of survival without disability in children with very low birth weights who were assessed at 5 years.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/jama.2011.2024" target="_blank" rel="noreferrer">10.1001/jama.2011.2024</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2012
Anderson PJ
Apnea/drug therapy
Asztalos EV
Backlog
Barrington KJ
Blindness/epidemiology/etiology/prevention & control
Caffeine/adverse effects/therapeutic use
Central Nervous System Stimulants/adverse effects/therapeutic use
Cerebral Palsy/epidemiology
Child
Child Development
Cognition Disorders/epidemiology/etiology/prevention & control
Davis PG
Deafness/epidemiology/etiology/prevention & control
Developmental Disabilities/epidemiology/etiology/prevention & control
Dewey D
Doyle LW
Female
Follow-up Studies
Grunau RE
Humans
Incidence
Infant
JAMA
Journal Article
Male
Moddemann D
N2N
Newborn
Odds Ratio
Ohlsson A
Premature
Preschool
Roberts RS
Schmidt B
Solimano A
Survival Analysis
Tin W
Treatment Outcome
Trial Investigators Caffeine for Apnea of Prematurity (CAP)
Very Low Birth Weight
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2012-2772" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2012-2772</a>
<a href="http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=medl&AN=23184104" target="_blank" rel="noreferrer">http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=medl&AN=23184104</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Supporting the family after the death of a child.
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2012
Subject
The topic of the resource
adolescent; Child; Humans; infant; Pediatrics; Parents; mortality; Chronic disease; Siblings; Professional-Family Relations; disabled children; Death; social support; Guidelines as Topic; Physician's Role; Counseling; Suicide; Preschool; Premature; AIM; IM; Grief; sibling bereavement; Sudden; Sudden Infant Death; parenting; Substance-Related Disorders; Guilt
Creator
An entity primarily responsible for making the resource
Wender E; HEALTH COMMITTEE ON PSYCHOSOCIAL ASPECTS OF CHILD AND FAMILY
Description
An account of the resource
The death of a child can have a devastating effect on the family. The pediatrician has an important role to play in supporting the parents and any siblings still in his or her practice after such a death. Pediatricians may be poorly prepared to provide this support. Also, because of the pain of confronting the grief of family members, they may be reluctant to become involved. This statement gives guidelines to help the pediatrician provide such support. It describes the grief reactions that can be expected in family members after the death of a child. Ways of supporting family members are suggested, and other helpful resources in the community are described. The goal of this guidance is to prevent outcomes that may impair the health and development of affected parents and children.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2012-2772" target="_blank" rel="noreferrer">10.1542/peds.2012-2772</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2012
Adolescent
AIM
Backlog
Child
Chronic Disease
Counseling
Death
Disabled Children
Grief
Guidelines As Topic
Guilt
HEALTH COMMITTEE ON PSYCHOSOCIAL ASPECTS OF CHILD AND FAMILY
Humans
IM
Infant
Journal Article
Mortality
Parenting
Parents
Pediatrics
Physician's Role
Premature
Preschool
Professional-family Relations
sibling bereavement
Siblings
Social Support
Substance-Related Disorders
Sudden
Sudden Infant Death
Suicide
Wender E
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April 2016 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Perinatal Decision Making For Preterm Infants With Congenital Heart Disease: Determinable Risk Factors For Mortality.
Publisher
An entity responsible for making the resource available
Pediatric Cardiology.
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Cardiac & Cardiovascular Systems; Birth-weight Infants; Necrotizing Enterocolitis; Defects; Pediatrics; Vascular Surgery
Antenatal Counseling; Congenital Heart Disease; Premature; Trial Of Therapy
Creator
An entity primarily responsible for making the resource
Lynema S; Fifer C; Laventhal N
Description
An account of the resource
For premature infants with congenital heart disease (CHD), it may be unclear when the burdens of treatment outweigh potential benefits. Parents may thus have to choose between comfort care at birth and medical stabilization until surgical repair is feasible. Better defined outcome data, including risk factors for mortality, are needed to counsel expectant parents who are considering intensive care for premature infants with CHD. We sought to evaluate outcomes in this population to inform expectant parents considering intensive versus palliative care at birth. We performed a retrospective cohort study of infants born <34 weeks who received intensive care with critical or moderately severe CHD predicted to require surgery in the neonatal period or the first 6 months of life. 46 % of 54 infants survived. Among non-survivors, 74 % died prior to surgery (median age 24 days). Of the infants that underwent surgery, 75 % survived. Survival was lower among infants <32 weeks gestational age (GA) (p = 0.013), with birth weight (BW) <1500 g (p = 0.011), or with extra-cardiac anomalies (ECA) (p = 0.015). GA and ECA remained significant risk factors for mortality in multiple logistic regression analysis. In summary, GA < 32 weeks, BW < 1500 g, and ECA are determinable prenatally and were significant risk factors for mortality. The majority of infants who survived to cardiac intervention survived neonatal hospitalization, whereas most of the infants who died did so prior to surgery. For some expectant parents, this early declaration of mortality may support a trial of intensive care while avoiding burdensome interventions.
Identifier
An unambiguous reference to the resource within a given context
DOI: 10.1007/s00246-016-1374-y
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Antenatal Counseling
April 2016 List
Birth-weight Infants
Cardiac & Cardiovascular Systems
Congenital Heart Disease
Defects
Fifer C
Laventhal N
Lynema S
Necrotizing Enterocolitis
Pediatric cardiology.
Pediatrics
Premature
Trial Of Therapy
Vascular Surgery