Browse Items (86 total)
- Tags: Pregnancy
“have No Regrets:” Parents’ Experiences And Developmental Tasks In Pregnancy With A Lethal Fetal Diagnosis.
Lethal fetal diagnoses are made in 2% of all pregnancies. The pregnancy experience is certainly changed for the parents who choose to continue the pregnancy with a known fetal diagnosis but little is known about how the psychological…
Tags: 2016, Adult, Choice Behavior, Côté-Arsenault D, Denney-Koelsch E, Developmental Task, Emotions, Female, Fetal Diseases/diagnosis, Fetal Diseases/mortality, Humans, Infant, Lethal Fetal Diagnosis, Longitudinal, Longitudinal Studies, Male, March 2016 List, Middle Aged, Needs Assessment, Palliative Care, Parents/psychology, Perinatal Care, Perinatal Palliative Care, Phenomenology, Pregnancy, Prenatal Diagnosis, Prenatal Diagnosis/psychology, Qualitative Research, Social science & medicine, Usa, Young Adult
Dying At Lifes Beginning: Experiences Of Parents And Health Professionals In Switzerland When An ’in Utero' Diagnosis Incompatible With Life Is Made.
The disclosure of a diagnosis during pregnancy of a fetal malformation, which is incompatible with life, normally comes completely unexpectedly to the parents. Although a body of international literature has considered the topic, most of…
Tags: 2016, Attitude Of Health Personnel, Decision Making, Female, Fetal Congenital Malformation, Fetus/abnormalities, Fleming V, Gaps, Genetic Counseling/psychology, Humans, Iljuschin I, Interviews As Topic, Male, March 2016 List, Maurer F, Midwifery, Parents/psychology, Parpan F, Pehlke-Milde J, Pregnancy, Prenatal-diagnosis, Surveys And Questionnaires, Switzerland, Temporality, Thematic Analysis
Extremely Premature Birth And The Choice Of Neonatal Intensive Care Versus Palliative Comfort Care: An 18-year Single- Center Experience.
Review all live births 22 0/7 through 26 6/7 weeks gestation born 1996 through 2013 at our institution to describe the decision process and immediate outcomes of palliative comfort care (PCC) versus neonatal intensive care (NICU) and…
Tags: 2016, Adult, Counseling, Decision Making, Female, Gestational Age, Humans, Infant Extremely Premature, Infant Newborn, Intensive Care Units Neonatal/organization & Administration, Journal of perinatology : official journal of the California Perinatal Association, Kaempf JW, March 2016 List, Oregon, Palliative Care/organization & Administration, Perinatal Care/ethics, Perinatal Care/methods, Pregnancy, Premature Birth/nursing, Resuscitation, Retrospective Studies, Tomlinson MW, Tuohey J, Young Adult
Provision Of Services In Perinatal Palliative Care: A Multicenter Survey In The United States.
Congenital anomalies account for 20% of neonatal and infant deaths in the United States. Perinatal palliative care is a recent addition to palliative care and is meant to meet the needs of families who choose to continue a pregnancy…
Tags: 2016, Bereavement, Côté-Arsenault D, Critical Care/organization & Administration, Cross-sectional Studies, Denney-Koelsch E, Female, Fetal Mortality, Humans, Infant Newborn, Journal of Palliative Medicine, Kavanaugh K, Kim S, March 2016 List, Palliative Care/organization & Administration, Parents/psychology, Perinatal Care/organization & Administration, Perry Black B, Pregnancy, Professional-family Relations, Surveys And Questionnaires, United States, Wool C
Death Talk: Basic Linguistic Rules And Communication In Perinatal And Paediatric End-of-life Discussions.
This paper considers clinician/parent communication difficulties noted by parents involved in end-of-life decision-making in the light of linguistic theory.
METHODS:
Grice's Cooperative Principle and associated maxims, which enable…
Tags: 2016, Communication, Consumer Health Information, Death, Decision Making, Decision-making, End-of-life Care, Female, Health Communication, Humans, Linguistics, Male, May 2016 List, Parents/psychology, Patient Education and Counseling, Pediatrics, Perinatal Death, Pregnancy, Professional-family Relations, Terminal Care/methods, Terminally Ill, Watkins A, Wilkinson D, Xafis V
Elective Ventilation To Facilitate Organ Donation In Infants With Anencephaly: Perinatal Professionals’ Views And An Ethical Analysis.
Following the elective ventilation and referral for organ donation of an infant with anencephaly, we sought local perinatal professionals' views of this practice.
METHODS:
Anonymous online survey: demographics, ethical viewpoints and potential…
Tags: 2016, Anencephaly/diagnosis, Anencephaly/therapy, Attitude Of Health Personnel, Brierley J, Ethical Analysis, Ethics, Female, Humans, International Journal of Paediatrics, Jivraj A, London, Major Congenital Anomaly, Male, May 2016 List, Neonates, Organ Donation, Palliative Care/ethics, Palliative Care/methods, Perinatal Care/ethics, Perinatal Care/methods, Pregnancy, Prenatal-diagnosis, Respiration Artificial/ethics, Scales A, Tissue And Organ Procurement/ethics
Lethal Fetal Abnormalities: How To Approach Perinatal Palliative Care?
Some of the antenatally diagnosed fetal pathologies are unlikely to get compatible with life. Still some women choose to continue with pregnancy. Subsequently, perinatal palliative care (PPC) has become a constructive demarche in such…
Quality Indicators And Parental Satisfaction With Perinatal Palliative Care In The Intrapartum Setting After Diagnosis Of A Life-limiting Fetal Condition
Tags: 2016, Advances in Nursing Science, Analysis, Black BP, Decisions, Diagnosis, Experiences, Fetal Diagnosis, Fetal Diseases, Health Aspects, Measurement, Medical Care, Medical Diagnosis, Model, Nursing, Palliative Care, Palliative Treatment, Parents & Parenting, Perception, Perinatal, Pregnancy, Prenatal-diagnosis, Program, Quality Indicators, Quality Management, Quality Of Care, September 2016 List, State, Woods AB, Wool C
Updated Perinatal Palliative Standards Emphasise Choice And Bereavement Support
Surgical Intervention In Trisomy 18-supporting Pallative Care
Tags: 2017, Archives of Disease in Childhood, Birth Weight, Clinical Article, Cragie R, Diagnosis, Edi-Osagie N, Female, Gastrointestinal Symptom, Heart, Hospital, Human, Infant, Intestine Obstruction, Male, Masood Y, Meningomyelocele, Palliative Therapy, Pathology, Pregnancy, Prognosis, September 2017 List, Spiers H, Surgery, Tracheoesophageal Fistula, Trisomy 18
Antenatal Palliative Care Consultation: Implications For Decision-making And Perinatal Outcomes In A Single-centre Experience
Tags: 2017, Adult, Archives of Disease in Childhood. Fetal and Neonatal Edition, Decision Making, Female, Follow-up Studies, Gollehon N, Humans, Infant Newborn, Kukora S, Laventhal N, Male, March 2017 List, Palliative Care/methods, Pregnancy, Pregnancy Outcome, Prenatal Care/methods, Referral And Consultation/organization & Administration, Retrospective Studies, Young Adult
Advance Care Planning: Outpatient Antenatal Palliative Care Consultation
Tags: 2017, Adult, Advance Care Planning/organization & Administration, Archives of Disease in Childhood. Fetal and Neonatal Edition, Carter BS, Female, Humans, Infant Newborn, March 2017 List, Outpatients, Palliative Care/organization & Administration, Pregnancy, Prenatal Care/organization & Administration, Referral And Consultation
The Relationship Between The Nursing Environment And Delivering Culturally Sensitive Perinatal Hospice Care
Tags: 2015, Delivery of Health Care, End-of-life Care, Female, Fetal Death, Fornehed Mary Lou, Hospice And Palliative Care Nursing, Hospice Organisation, Hospices/statistics & Numerical Data, Humans, Infant, International Journal of Palliative Nursing, Lindley L, May 2017 List, Mixer Sandra J, Nursing Administration, Nursing Leadership, Nursing Staff, Perinatal Care, Perinatal Death, Pregnancy, Retrospective Studies, Surveys And Questionnaires, Transcultural Nursing, United States, Wallace Heather, Wool Charlotte, Workplace
The Provision Of Spiritual And Pastoral Care Following Stillbirth In Ireland: A Mixed Methods Study
Tags: 2014, Attitude To Death, Bereavement, BMJ Supportive & Palliative Care, Chaplain, Chaplaincy Service Hospital/standards, Daniel Nuzum, Female, Hospitals Maternity/organization & Administration, Humans, Ireland, June 2016 List, Keelin O'Donoghue, Male, Pastoral Care, Pregnancy, Professional-family Relations, Sarah Meaney, Spiritual Care, Spirituality, Stillbirth, Stillbirth/psychology
Developing A Perinatal Memory-making Program At A Children's Hospital
Tags: 2014, American journal of maternal/child nursing, Child Health, Female, Fornehed ML, Hospice Care/methods, Hospice Care/psychology, Hospitals, Humans, Infant Newborn, Lindley LC, March 2016 List, Memory, Miller LH, Mixer SJ, Niederhauser VP., Perinatal Death, Postnatal Care/psychology, Pregnancy
Exploring perinatal death with midwifery students' using a collaborative art project
Tags: 2017, Affective Learning, Artist, Atkinson S, August 2017 List, Barry M, Bradshaw C, Brett M, Collaborative Artwork, Education Nursing, Female, Grief, Humans, Infant Newborn, Ireland, Midwifery Students, Midwifery/ Education, Mothers/psychology, New C, Noonan M, Nurse Education Today, Parents, Perinatal Death, Pregnancy, Quinn C, Students Nursing
Seeking the best training model for difficult conversations in neonatology
Tags: 2016, August 2017 List, Bender GJ, Communication, Computer Simulation, Curriculum, Fellowships And Scholarships, Female, Humans, Infant Newborn, Journal Of Perinatal Medicine, Lechner BE, Male, Models Educational, Neonatology/education, Parents, Pregnancy, Professional-patient Relations, Shields R, Terminal Care, Tucker R
Reframing US Maternity Care: Lessons Learned From End-of-Life Care
Tags: 2017, Caughey AB, Death, Decision Making, Delivery Obstetric, Female, Guidelines As Topic, Humans, Infant Newborn, Journal of Midwifery & Women's Health, Lowe NK, Maternal Health Services, Midwifery, November 2017 List, Palliative Care, Parturition, Patient Participation, Patient Safety, Patient-centered Care, Pregnancy, Snowden JM, Terminal Care, Tilden EL, United States
Addressing the continuum of maternal and newborn care in Ghana: implications for policy and practice
Tags: 2016, Aborigo R, Adongo PL, Community Health Services/organization & Administration, Continuity Of Patient Care/organization & Administration, Delivery, Developing Countries, Engmann CM, Female, Ghana, Health Policy And Planning, Hodgson A, Humans, Infant, Infant Health, Maternal Mortality, Maternal-child Health Services/organization & Administration, Moyer CA, Newborn, Obstetric/methods, Perinatal Mortality, Pregnancy
Reducing Perinatal Mortality in Nepal Using Helping Babies Breathe
Tags: 2016, Chaudhary P, Clark RB, Ewald U, Female, Guideline Adherence, Humans, Infant, Kc A, Malqvist M, Nepal/epidemiology, Newborn, Pediatrics, Perinatal Death/prevention & Control, Perinatal Mortality/trends, Pregnancy, Pun A, Quality Improvement, Raaijmakers H, Resuscitation/education/standards/utilization, Stillbirth/epidemiology, Vitrakoti R, Wrammert J
End-of-life decisions in perinatal care: A view from health-care providers in Mexico
Tags: 2015, Abortion, Adult, Aged, Alvarez-del-Rio A, Attitude Of Health Personnel, Attitude To Death, Decision Making, Euthanasia, Female, Fetal Diseases, Grether P, Humans, Induced/psychology, Infant, Lisker R, Loria A, Male, Mexico, Middle Aged, Newborn, Nurses/psychology, Palliative Care/psychology, Passive/psychology, Perinatal Care, Perinatal Death, Physicians/psychology, Pregnancy, Religion, Salud Publica De Mexico, Social Workers/psychology, Terminal Care/psychology, Young Adult
The experiences and needs of healthcare professionals facing perinatal death: A scoping review
Tags: 2017, Andre B, Experiences, February 2018 List, Female, Health Personnel/ psychology, Health Services Needs And Demand, Healthcare Professionals, Humans, International Journal Of Nursing Studies, Lopez V, Maternal Health Services/ manpower, Maternity care, Needs, Perinatal Death, Pregnancy, Scoping review, Shorey S, Stillbirth
Impact of holding the baby following stillbirth on maternal mental health and well-being: findings from a national survey
Tags: 2016, Adolescent, Adult, Anxiety/epidemiology, Bereavement, Bmj Open, care practice, Cross-sectional Studies, Depression/epidemiology, England, Family Conflict/psychology, February 2018 List, Female, Gestational Age, Health Surveys, Henderson J, Hennegan JM, hold, Humans, Infant, infant contact, Mother-Child Relations/ psychology, Mothers/ Psychology, Newborn, Post-traumatic, Post-Traumatic/epidemiology, Postpartum Period/ psychology, Pregnancy, Qualitative Research, Redshaw M, Self Report, Self-Fertilization, Stillbirth, Stillbirth/ psychology, Stress Disorders, touch, Young Adult
X-linked adrenoleukodystrophy: clinical, metabolic, genetic and pathophysiological aspects
Neonatal end-of-life spiritual support care
Tags: 2011, Attitude To Death, Backlog, Bereavement, Female, Humans, Infant, Journal Article, Neonatal Nursing/methods, Newborn, Nurse's Role, Nursing Assessment/methods, Palliative Care/methods/psychology, Parent-child Relations, Parents/psychology, Pregnancy, Pregnancy Outcome/psychology, Rosenbaum JL, Smith JR, Spirituality, The Journal Of Perinatal & Neonatal Nursing, Zollfrank R
Natural history of trisomy 13
Tags: 1994, Adult, Archives of Disease in Childhood, Backlog, Burn J, Chromosomes, Congenital/diagnosis/genetics/mortality, England/epidemiology, Female, Fetal Diseases/diagnosis, Heart Defects, Human, Humans, Hunter S, Incidence, Infant, Journal Article, Longitudinal Studies, Male, Neural Tube Defects/diagnosis/genetics/mortality, Newborn, Pair 13, Pregnancy, Prenatal Diagnosis, Syndrome, Trisomy, Wright MJ, Wyllie JP
Health-related, help-seeking behaviors in female Mexican-American adolescents
Tags: 1997, Adolescent, Adolescent Health Services, Backlog, Child, Female, Focus Groups, Health Behavior, Health Promotion, Health Services Needs And Demand, Hispanic Americans, Humans, Journal Article, Journal Of The Society Of Pediatric Nurses, Mexico/ethnology, Pregnancy, Rew L, Sex Education, United States
Does episiotomy prevent perineal trauma and pelvic floor relaxation?
Tags: 1992, Adult, Backlog, Coitus, Corriveau M, Episiotomy/adverse effects/methods, Female, Gauthier RJ, Gelfand MM, Humans, Johnson B, Jorgensen SH, Journal Article, Kaczorowski J, Klein MC, Labor Stage, Muscle Hypotonia/prevention & control, Pain, Parity, Pelvic Floor, Perineum/injuries, Postoperative, Pregnancy, RDF Project, Rectum/injuries, Robbins JM, Second, The Online Journal Of Current Clinical Trials, Time Factors, Urinary Incontinence/prevention & control, Waghorn K, Westreich R, Wounds and Injuries/etiology/prevention & control
"The one thing you can never take away"
Health care access and utilization among pregnant adolescents
Tags: 1997, Adolescent, Adolescent Health Services/utilization, Adolescent Transitions, Adolescents, Adult, Age Factors, Americas, Backlog, Delivery of Health Care, Demographic Factors, Developed Countries, Female, Galbraith AA, Health, Health Services Accessibility/statistics & numerical data, Humans, Journal Article, Klein JD, New York, North America, Northern America, Population, Population Characteristics, Pregnancy, Pregnancy in Adolescence, Pregnant Women, Prenatal Care/utilization, Primary Health Care/utilization, Reproductive Health, Research Report, Risk Factors, Stevens J, The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine, United States, Youth
Outcome at age 4 years in offspring of women with maternal phenylketonuria: the Maternal PKU Collaborative Study
Tags: 2000, AIM, Allred E, Azen C, Backlog, Chang PN, Child, Child Behavior, Cipcic-Schmidt S, Cognition, de la Cruz F, Developmental Disabilities, Developmental Disabilities/di [Diagnosis], Developmental Disabilities/et [Etiology], Female, Hall R, Hanley W, Humans, IM, JAMA, Journal Article, Koch R, Levy HL, Logistic Models, Longitudinal Studies, Male, Matalon R, Nanson J, Phenylketonurias/dh [Diet Therapy], Phenylketonurias/pp [Physiopathology], Pregnancy, Pregnancy Complications/dh [Diet Therapy], Pregnancy Outcome, Preschool, Psychological Tests, Rouse B, Shifrin H, Trefz F, Waisbren SE
Protecting adolescents from harm. Findings from the National Longitudinal Study on Adolescent Health
Tags: 1997, Adolescent, Adolescent Behavior, Adolescent Transitions, Backlog, Bauman KE, Bearinger LH, Bearman PS, Beuhring T, Blum RW, Cross-sectional Studies, Female, Harris KM, Health Behavior, Health Surveys, Humans, Ireland M, JAMA, Jones J, Journal Article, Longitudinal Studies, Male, Mental Health, Multivariate Analysis, Pregnancy, Pregnancy in Adolescence, Regression Analysis, Resnick MD, Risk-Taking, Sexuality, Shew M, Sieving RE, Substance-Related Disorders/epidemiology, Tabor J, Udry JR, United States/epidemiology, Violence/statistics & numerical data
Perinatal mortality: assisting parental affirmation
The nature of opioid responsiveness and its implications for neuropathic pain: new hypotheses derived from studies of opioid infusions
Tags: 1990, Backlog, Dose-Response Relationship, Drug, Female, Foley KM, Humans, Hydromorphone/therapeutic use, Inturrisi CE, Journal Article, Male, Models, Narcotics/therapeutic use, Nervous System Diseases/physiopathology, Neurological, Non-U.S. Gov't, Pain, Pain/physiopathology, Portenoy RK, Pregnancy, Research Support
Proopiomelanocortin, a polypeptide precursor with multiple functions: from physiology to pathological conditions
Natural history of nonketotic hyperglycinemia in 65 patients
Tags: 2004, Adolescent, Age of Onset, AIM, Anticonvulsants/tu [Therapeutic Use], Apnea/et [Etiology], Apnea/th [Therapy], Applegarth D, Artificial, Backlog, Child, Corpus Callosum/ab [Abnormalities], Disease Progression, Female, Glycine/bl [Blood], Glycine/cf [Cerebrospinal Fluid], Hamosh A, Health Surveys, Hoover-Fong JE, Humans, Hydrocephalus/ep [Epidemiology], Hydrocephalus/et [Etiology], Hyperglycinemia, IM, Infant, Journal Article, Juvenile/dt [Drug Therapy], Juvenile/ep [Epidemiology], Juvenile/et [Etiology], Male, Myoclonic Epilepsy, Neurology, Newborn, Nonketotic/co [Complications], Nonketotic/ep [Epidemiology], Nonketotic/me [Metabolism], Nonketotic/mo [Mortality], Nystagmus, Pathologic/ep [Epidemiology], Pathologic/et [Etiology], Pregnancy, Pregnancy Complications/ep [Epidemiology], Preschool, Psychomotor Disorders/ep [Epidemiology], Psychomotor Disorders/et [Etiology], Questionnaires, Registries, Respiration, Retrospective Studies, Seizures/dt [Drug Therapy], Seizures/ep [Epidemiology], Seizures/et [Etiology], Sex Factors, Shah S, Survival Analysis, Toone J, Van Hove JL
A grief ignored: Narratives of pregnancy loss from a male perspective
The sense of coherence in early pregnancy and crisis support and posttraumatic stress after pregnancy loss: a prospective study
Tags: 2003, Abortion, Adult, Backlog, Behavioral Medicine (washington, D.C.), Crisis Intervention, Engelhard IM, Female, First/psychology, Humans, Journal Article, Post-Traumatic/epidemiology/psychology/therapy, Pregnancy, Pregnancy Trimester, Prospective Studies, Social Support, Spontaneous/psychology, Stress Disorders, van den Hout MA, Vlaeyen JW
Silhouette of pain
Tags: 2006, Academic Medicine, Adult, Backlog, Benzocaine, Chickenpox/complications, Child, Child welfare, Chronic Disease, Cora-Bramble D, Family Health, Female, Hepatitis/complications, Humans, Infectious, Journal Article, Mississippi, PedPal Lit, Poverty, Pregnancy, Pregnancy Complications, Relief Work, Vulnerable Populations