Browse Items (86 total)
- Tags: Pregnancy
"The one thing you can never take away"
“have No Regrets:” Parents’ Experiences And Developmental Tasks In Pregnancy With A Lethal Fetal Diagnosis.
Lethal fetal diagnoses are made in 2% of all pregnancies. The pregnancy experience is certainly changed for the parents who choose to continue the pregnancy with a known fetal diagnosis but little is known about how the psychological…
Tags: 2016, Adult, Choice Behavior, Côté-Arsenault D, Denney-Koelsch E, Developmental Task, Emotions, Female, Fetal Diseases/diagnosis, Fetal Diseases/mortality, Humans, Infant, Lethal Fetal Diagnosis, Longitudinal, Longitudinal Studies, Male, March 2016 List, Middle Aged, Needs Assessment, Palliative Care, Parents/psychology, Perinatal Care, Perinatal Palliative Care, Phenomenology, Pregnancy, Prenatal Diagnosis, Prenatal Diagnosis/psychology, Qualitative Research, Social science & medicine, Usa, Young Adult
A grief ignored: Narratives of pregnancy loss from a male perspective
Addressing bias and disparities in periviable counseling and care
Addressing the continuum of maternal and newborn care in Ghana: implications for policy and practice
Tags: 2016, Aborigo R, Adongo PL, Community Health Services/organization & Administration, Continuity Of Patient Care/organization & Administration, Delivery, Developing Countries, Engmann CM, Female, Ghana, Health Policy And Planning, Hodgson A, Humans, Infant, Infant Health, Maternal Mortality, Maternal-child Health Services/organization & Administration, Moyer CA, Newborn, Obstetric/methods, Perinatal Mortality, Pregnancy
Advance Care Planning: Outpatient Antenatal Palliative Care Consultation
Tags: 2017, Adult, Advance Care Planning/organization & Administration, Archives of Disease in Childhood. Fetal and Neonatal Edition, Carter BS, Female, Humans, Infant Newborn, March 2017 List, Outpatients, Palliative Care/organization & Administration, Pregnancy, Prenatal Care/organization & Administration, Referral And Consultation
Age limits and transition of health care in pediatric emergency medicine
Tags: 2007, Adolescent, Adolescent Transitions, Adult, Age Factors, Backlog, Bryce L, Child, Cystic Fibrosis, Data Collection, Dobson JV, Emergency Medicine, Emergency Service, Female, General/statistics & numerical data, Glaeser PW, Hospital/statistics & numerical data, Hospitals, Humans, Journal Article, Losek JD, Male, Organizational Policy, Pediatric Emergency Care, Pediatric/statistics & Numerical Data, Pediatrics, Pregnancy, Pregnancy in Adolescence, United States
Antenatal Palliative Care Consultation: Implications For Decision-making And Perinatal Outcomes In A Single-centre Experience
Tags: 2017, Adult, Archives of Disease in Childhood. Fetal and Neonatal Edition, Decision Making, Female, Follow-up Studies, Gollehon N, Humans, Infant Newborn, Kukora S, Laventhal N, Male, March 2017 List, Palliative Care/methods, Pregnancy, Pregnancy Outcome, Prenatal Care/methods, Referral And Consultation/organization & Administration, Retrospective Studies, Young Adult
Basic neonatal resuscitation skills of midwives and nurses in Eastern Ethiopia are not well retained: An observational study
Tags: 2020, Adolescent, Adult, Asphyxia Neonatorum/*therapy, Checklist, Clinical Competence, Cross-sectional Studies, Desalew A, Developing World 2020 List, Education, Ethiopia, Female, Geda B, Humans, Infant, Male, Mezmur H, Middle Aged, Midwifery/*education, Mulatu T, Neonatal Nursing/*education, Newborn, Nursing/statistics & numerical data, PLoS One, Pregnancy, Resuscitation/*methods, Shiferaw K, Sintayehu Y, Tiruye G, Young Adult
Birth weight percentile and the risk of term perinatal death
Butterflies and Ribbons: Supporting Families Experiencing Perinatal Loss in Multiple Gestation
Tags: 2023, Barrington KJ, Bélanger S, Bigras-Mercier A, Boutillier B, Butterflies, Children (Basel), Communication, Embleton ND, Janvier A, Larone Juneau A, Medical Education, multiple pregnancy, Neonatology, Nursing, October List 2047, Palliative Care, Parental Perspectives, Perinatal Loss, Pregnancy, Prematurity, triplets, Twins
Clinical and MRI correlates of cerebral palsy: the European Cerebral Palsy Study
Tags: 2006, Backlog, Bax M, Brain/pathology, Cerebral Palsy/epidemiology/etiology/physiopathology, Child, Cross-sectional Studies, Delivery, Female, Flodmark O, Humans, Infant, Infectious, JAMA, Journal Article, Magnetic Resonance Imaging, Male, Multiple, Newborn, Obstetric, Pregnancy, Pregnancy Complications, Premature, Preschool, Risk Factors, Tydeman C
Clinical characteristics and survival of trisomy 18 in a medical center in Taipei, 1988-2004.
Tags: 2006, Abnormalities, Adult, American Journal Of Medical Genetics.Part A, Backlog, Birth Weight, Brain Diseases/ultrasonography, Chang JH, Chen MR, Chen YJ, Child, Child Health Services/economics/organization & administration/statistics & numerical data, Chromosomes, Congenital/ultrasonography, Female, Gestational Age, Heart Defects, Ho CS, Hospitals, Hsu CH, Huang FY, Human, Humans, Hung HY, Infant, Journal Article, Kao HA, Karyotyping, Lee HC, Lin DS, Lin HY, Lin SP, Longitudinal Studies, Male, Maternal Age, Middle Aged, Multiple/genetics/mortality/pathology, Newborn, Pair 18/genetics, Paternal Age, Pregnancy, Prenatal Diagnosis, Preschool, Retrospective Studies, Shyur SD, Survival Analysis, Survival Rate, Taiwan, Time Factors, Trisomy/diagnosis/genetics, Ultrasonography/methods
Creating a safe space': how perinatal palliative care coordinators navigate care and support for families
Tags: 2021, Care coordinator, Case Management, Côté-Arsenault D, Curriculum, December 2021 List, Delivery of Health Care, Denney-Koelsch E, Elliott G, Family, Fetal Diagnosis, Grief, International Journal of Palliative Nursing, Newborn Infant, Palliative Care, Perinatal Care, Perinatal Palliative Care, Pregnancy, Qualitative Research
Death of One Twin during the Perinatal Period: An Interpretative Phenomenological Analysis
Tags: 2017, April 2018 List, Bereavement, congenital abnormality, Corcoran P, Female, Humans, Infant, Interviews As Topic, Journal of Palliative Medicine, Male, Meaney S, Newborn, O'Donoghue K, Palliative Care, Parents, Parents/ Psychology, Perinatal Death, Pregnancy, Qualitative, Qualitative Research, Twins
Death Talk: Basic Linguistic Rules And Communication In Perinatal And Paediatric End-of-life Discussions.
This paper considers clinician/parent communication difficulties noted by parents involved in end-of-life decision-making in the light of linguistic theory.
METHODS:
Grice's Cooperative Principle and associated maxims, which enable…
Tags: 2016, Communication, Consumer Health Information, Death, Decision Making, Decision-making, End-of-life Care, Female, Health Communication, Humans, Linguistics, Male, May 2016 List, Parents/psychology, Patient Education and Counseling, Pediatrics, Perinatal Death, Pregnancy, Professional-family Relations, Terminal Care/methods, Terminally Ill, Watkins A, Wilkinson D, Xafis V
Decision-making at the limit of viability: The Austrian neonatal choice context
Tags: 2019, Article, August 2019 List, Austria, Bmc Pediatrics, Choice context, Communication strategies, Controlled Study, Decision-making, ethicist, framing bias, Hawlik K, head, high income country, Human, Limit of viability, Neonatologist, Neonatology, nervous system malformation, Newborn, Nicu, Palliative Therapy, Pregnancy, Prematurity, Semi Structured Interview, shared decision making, Stanak M, Statistics, Systematic Review
Decisions Parents Make When Faced With Potentially Life-Limiting Fetal Diagnoses and the Importance of Perinatal Palliative Care
Depressive symptoms in mothers after perinatal and early infant loss in rural Bangladesh: a population-based study
Tags: 2016, Adolescent, Adult, Ali H, Annals of Epidemiology, Bangladesh, Bangladesh/epidemiology, Christian P, Cohort Studies, Databases Factual, Depression/ epidemiology/etiology, Depressive symptoms, Developing Countries, Developing World 2018 List, Female, Humans, Incidence, Infant, Infant Newborn, Infant Mortality, Klemm R, Labrique A, Maternal Health, Mehra S, Mental Health, Mothers/ Psychology, Needs Assessment, Neonatal Death, Perinatal Mortality/trends, Postpartum Period, Pregnancy, Rashid M, Retrospective Studies, Risk Assessment, Rural Population, Sakyi K, Stillbirth, Stillbirth/ ethnology, Strobino DM, Surkan PJ, Ullah B, West KP, Wu L, Young Adult
Developing A Perinatal Memory-making Program At A Children's Hospital
Tags: 2014, American journal of maternal/child nursing, Child Health, Female, Fornehed ML, Hospice Care/methods, Hospice Care/psychology, Hospitals, Humans, Infant Newborn, Lindley LC, March 2016 List, Memory, Miller LH, Mixer SJ, Niederhauser VP., Perinatal Death, Postnatal Care/psychology, Pregnancy
Does episiotomy prevent perineal trauma and pelvic floor relaxation?
Tags: 1992, Adult, Backlog, Coitus, Corriveau M, Episiotomy/adverse effects/methods, Female, Gauthier RJ, Gelfand MM, Humans, Johnson B, Jorgensen SH, Journal Article, Kaczorowski J, Klein MC, Labor Stage, Muscle Hypotonia/prevention & control, Pain, Parity, Pelvic Floor, Perineum/injuries, Postoperative, Pregnancy, RDF Project, Rectum/injuries, Robbins JM, Second, The Online Journal Of Current Clinical Trials, Time Factors, Urinary Incontinence/prevention & control, Waghorn K, Westreich R, Wounds and Injuries/etiology/prevention & control
Dying At Lifes Beginning: Experiences Of Parents And Health Professionals In Switzerland When An ’in Utero' Diagnosis Incompatible With Life Is Made.
The disclosure of a diagnosis during pregnancy of a fetal malformation, which is incompatible with life, normally comes completely unexpectedly to the parents. Although a body of international literature has considered the topic, most of…
Tags: 2016, Attitude Of Health Personnel, Decision Making, Female, Fetal Congenital Malformation, Fetus/abnormalities, Fleming V, Gaps, Genetic Counseling/psychology, Humans, Iljuschin I, Interviews As Topic, Male, March 2016 List, Maurer F, Midwifery, Parents/psychology, Parpan F, Pehlke-Milde J, Pregnancy, Prenatal-diagnosis, Surveys And Questionnaires, Switzerland, Temporality, Thematic Analysis
Effectiveness of psychotherapeutic interventions on psychological distress in women who have experienced perinatal loss: a systematic review protocol
Tags: 2020, Animals, Bright K S, Charrois E M, Chordata, Eukaryotes, gestation, Hayden K A, Hominidae, Homo, Human Diseases, Kingston D, Mammals, Man, Mental Disorders, Mental Health, mental illness, Meta-Analysis, Mughal M K, October 2020 List, Perinatal Mortality, Pregnancy, Pregnancy Complications, Pregnant Women, Primates, Psychotherapy, Randomized Controlled Trials, Systematic reviews, Vertebrates, Wajid A, Women
Elective Ventilation To Facilitate Organ Donation In Infants With Anencephaly: Perinatal Professionals’ Views And An Ethical Analysis.
Following the elective ventilation and referral for organ donation of an infant with anencephaly, we sought local perinatal professionals' views of this practice.
METHODS:
Anonymous online survey: demographics, ethical viewpoints and potential…
Tags: 2016, Anencephaly/diagnosis, Anencephaly/therapy, Attitude Of Health Personnel, Brierley J, Ethical Analysis, Ethics, Female, Humans, International Journal of Paediatrics, Jivraj A, London, Major Congenital Anomaly, Male, May 2016 List, Neonates, Organ Donation, Palliative Care/ethics, Palliative Care/methods, Perinatal Care/ethics, Perinatal Care/methods, Pregnancy, Prenatal-diagnosis, Respiration Artificial/ethics, Scales A, Tissue And Organ Procurement/ethics
End-of-life decisions in perinatal care: A view from health-care providers in Mexico
Tags: 2015, Abortion, Adult, Aged, Alvarez-del-Rio A, Attitude Of Health Personnel, Attitude To Death, Decision Making, Euthanasia, Female, Fetal Diseases, Grether P, Humans, Induced/psychology, Infant, Lisker R, Loria A, Male, Mexico, Middle Aged, Newborn, Nurses/psychology, Palliative Care/psychology, Passive/psychology, Perinatal Care, Perinatal Death, Physicians/psychology, Pregnancy, Religion, Salud Publica De Mexico, Social Workers/psychology, Terminal Care/psychology, Young Adult
Endotoxin has acute and chronic effects on the cerebral circulation of fetal sheep.
Tags: 2009, American Journal Of Physiology. Regulatory, Integrative And Comparative Physiology, Animals, Backlog, Blood Pressure/ph [Physiology], Cerebrospinal Fluid/me [Metabolism], Cerebrovascular Circulation/de [Drug Effects], Cytokines/bi [Biosynthesis], Data Interpretation, Endothelial Cells/ph [Physiology], Endotoxins/bl [Blood], Endotoxins/pd [Pharmacology], Female, Feng Susan YS, Fetal Death, Fetus/bs [Blood Supply], Journal Article, Lipopolysaccharides/bl [Blood], Lipopolysaccharides/pd [Pharmacology], Nitrates/bl [Blood], Nitrites/bl [Blood], Oxygen Consumption/ph [Physiology], Phillips DJ, Pregnancy, Sheep, statistical, Stockx EM, Tumor Necrosis Factor-alpha/bl [Blood], Vasodilation/de [Drug Effects], Walker AM, Yu Victor YH
Ethical dilemmas encountered by a palliative care team at a Pediatric cancer center in guatemala
Tags: 2018, Adolescent, Adult, Bioethics, Blood Transfusion, Brain Death, Bustamante Tuchez LM, cancer center, Cancer Patient, cancer surgery, Cancer Therapy, Case Study, Child, Childhood Cancer, Close P, conference abstract, Developing World 2018 List, Drug Withdrawal, Female, Guatemala, Human, Intensive Care, Justice, Major Clinical Study, Medical Record Review, Multidisciplinary team, Palliative Therapy, Patient Autonomy, Patient Care, Paz G, Pediatric Blood and Cancer, Physician, Poverty, Pregnancy, Religion, Retrospective Study, Rivas S, Sound, substance abuse, Surgery, Treatment Refusal, Treatment Withdrawal, Valverde P, Zaidi A
Exploring perinatal death with midwifery students' using a collaborative art project
Tags: 2017, Affective Learning, Artist, Atkinson S, August 2017 List, Barry M, Bradshaw C, Brett M, Collaborative Artwork, Education Nursing, Female, Grief, Humans, Infant Newborn, Ireland, Midwifery Students, Midwifery/ Education, Mothers/psychology, New C, Noonan M, Nurse Education Today, Parents, Perinatal Death, Pregnancy, Quinn C, Students Nursing
Extending the Concept of Advance Care Planning to the Perinatal Period
Extremely Premature Birth And The Choice Of Neonatal Intensive Care Versus Palliative Comfort Care: An 18-year Single- Center Experience.
Review all live births 22 0/7 through 26 6/7 weeks gestation born 1996 through 2013 at our institution to describe the decision process and immediate outcomes of palliative comfort care (PCC) versus neonatal intensive care (NICU) and…
Tags: 2016, Adult, Counseling, Decision Making, Female, Gestational Age, Humans, Infant Extremely Premature, Infant Newborn, Intensive Care Units Neonatal/organization & Administration, Journal of perinatology : official journal of the California Perinatal Association, Kaempf JW, March 2016 List, Oregon, Palliative Care/organization & Administration, Perinatal Care/ethics, Perinatal Care/methods, Pregnancy, Premature Birth/nursing, Resuscitation, Retrospective Studies, Tomlinson MW, Tuohey J, Young Adult
Fatal fetal anomaly: Experiences of women and their partners
Fetal alcohol spectrum disorder: Canadian guidelines for diagnosis
Tags: 2005, Abnormalities, Adult, Alcohol Drinking/prevention & control, Alcoholism/diagnosis/prevention & control, Backlog, Canada/epidemiology, Canadian Medical Association Journal, Child, Chudley AE, Conry J, Cook JL, Diagnosis, Differential, Ethanol, Female, Fetal Alcohol Syndrome/diagnosis/epidemiology/prevention & control, Humans, Infant, Journal Article, LeBlanc N, Loock C, Mass Screening/standards, Medical History Taking/standards, Multiple/diagnosis, Nervous System Diseases/diagnosis, Newborn, Non-U.S. Gov't, Physical Examination/standards, Pregnancy, Pregnancy Complications/diagnosis/prevention & control, Prenatal Exposure Delayed Effects, Public Health Agency of Canada's National Advisory Committee on Fetal Alcohol Spectrum Disorder, Referral and Consultation/standards, Research Support, Risk Factors, Rosales T
Health care access and utilization among pregnant adolescents
Tags: 1997, Adolescent, Adolescent Health Services/utilization, Adolescent Transitions, Adolescents, Adult, Age Factors, Americas, Backlog, Delivery of Health Care, Demographic Factors, Developed Countries, Female, Galbraith AA, Health, Health Services Accessibility/statistics & numerical data, Humans, Journal Article, Klein JD, New York, North America, Northern America, Population, Population Characteristics, Pregnancy, Pregnancy in Adolescence, Pregnant Women, Prenatal Care/utilization, Primary Health Care/utilization, Reproductive Health, Research Report, Risk Factors, Stevens J, The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine, United States, Youth
Health-related, help-seeking behaviors in female Mexican-American adolescents
Tags: 1997, Adolescent, Adolescent Health Services, Backlog, Child, Female, Focus Groups, Health Behavior, Health Promotion, Health Services Needs And Demand, Hispanic Americans, Humans, Journal Article, Journal Of The Society Of Pediatric Nurses, Mexico/ethnology, Pregnancy, Rew L, Sex Education, United States
Healthcare professionals' experiences of perinatal loss: A systematic review
Tags: 2019, Abortion, Adult, April 2020 List, Bernaudo A, Di Fini G, Female, Gandino G, Health Personnel/*psychology, Healthcare Professionals, Humans, Infant, Journal Of Health Psychology, Maternal Health Services/*manpower, neonatal units, Newborn, Perinatal Death, Perinatal Loss, Pregnancy, psychological experiences, Spontaneous/*psychology, Stillbirth, Stillbirth/*psychology, Vanni I, Veglia F
Hospital care for parents after perinatal death
Tags: 2007, Adaptation, Adult, Autopsy, Backlog, Bereavement, Choice Behavior, Dalton VK, Female, Fetal Death, Funeral Rites, Gold KJ, Hospitalization, Humans, Infant, Infant Mortality, Journal Article, Male, Newborn, Obstetrics And Gynecology, Parent-child Relations, Parents/psychology, Patient Care Team, Photography, Pregnancy, Pregnancy Trimester, Psychological, Schwenk TL, Second, Stillbirth/psychology, Third
Impact of holding the baby following stillbirth on maternal mental health and well-being: findings from a national survey
Tags: 2016, Adolescent, Adult, Anxiety/epidemiology, Bereavement, Bmj Open, care practice, Cross-sectional Studies, Depression/epidemiology, England, Family Conflict/psychology, February 2018 List, Female, Gestational Age, Health Surveys, Henderson J, Hennegan JM, hold, Humans, Infant, infant contact, Mother-Child Relations/ psychology, Mothers/ Psychology, Newborn, Post-traumatic, Post-Traumatic/epidemiology, Postpartum Period/ psychology, Pregnancy, Qualitative Research, Redshaw M, Self Report, Self-Fertilization, Stillbirth, Stillbirth/ psychology, Stress Disorders, touch, Young Adult
Implementation of Pediatric Palliative Care (PPC) in a Neonatal Intensive Care Unit (NICU) in St.Gallen
Tags: 2017, brain hemorrhage, Child, conference abstract, Death, Decision Making, Drug Withdrawal, Female, Gudrun J, Human, June 2019 List, Major Clinical Study, Male, Neonatal Intensive Care Unit, Newborn, newborn period, Palliative Therapy, Pregnancy, Susanne A, Swiss Medical Weekly, Switzerland, Trisomy 18
Improving Prenatal Palliative Care Consultation Using Diagnostic Trigger Criteria: Improving Prenatal Palliative Care Consultation through Quality Improvement
Tags: 2023, Ackerman O, Andescavage N, Article, Child, Congenital Malformation, Consultation, Controlled Study, Diagnosis, eligibility, February List 2024, Female, Fisher D, Human, Journal of Pain and Symptom Management, Lanzel AF, Lin M, Mahmood LA, outcome assessment, Palliative Therapy, Patient Referral, Pregnancy, Rholl E, Total Quality Management
Lethal Fetal Abnormalities: How To Approach Perinatal Palliative Care?
Some of the antenatally diagnosed fetal pathologies are unlikely to get compatible with life. Still some women choose to continue with pregnancy. Subsequently, perinatal palliative care (PPC) has become a constructive demarche in such…