1
40
30
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
August 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2020 List
URL Address
<a href="http://doi.org/10.1136/archdischild-2017-314525" target="_blank" rel="noreferrer noopener">http://doi.org/10.1136/archdischild-2017-314525</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Fifteen-minute consultation: Not the whole story-considering children's spirituality and advance care planning
Publisher
An entity responsible for making the resource available
Archives of Disease in Childhood - Education and Practice
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
Humans; Adolescent; Child; Female; Male; Middle Aged; palliative care; Attitude to Death; Preschool; Adult; Attitude to Health; Spirituality; Practice Guidelines as Topic; Pediatrics/*standards; Advance Care Planning/*standards; United Kingdom; Family/*psychology; paediatric practice; Palliative Care/*psychology/*standards
Creator
An entity primarily responsible for making the resource
Clayton M; Aldridge J
Description
An account of the resource
In a society of diverse views, faiths and beliefs, what can paediatric palliative care contribute to our understanding of children's spirituality? By failing to recognise and respond to their spirituality in this work, we risk missing something of profound importance to children and their families. We overlook their search for wholeness in the absence of cure and fall short of offering truly holistic care. This paper explores how developments in advance care planning and related documentation are addressing these issues. Since children's spirituality is elusive and rarely explored in practice, it aims to clarify our understanding of it with a variety of examples and contains suggestions for hearing the voice of the child amid the needs of parents and professionals.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/archdischild-2017-314525" target="_blank" rel="noreferrer noopener">10.1136/archdischild-2017-314525</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Adolescent
Adult
Advance Care Planning/*standards
Aldridge J
Archives of Disease in Childhood - Education and Practice
Attitude To Death
Attitude To Health
August 2020 List
Child
Clayton M
Family/*psychology
Female
Humans
Male
Middle Aged
Paediatric Practice
Palliative Care
Palliative Care/*psychology/*standards
Pediatrics/*standards
Practice Guidelines As Topic
Preschool
Spirituality
United Kingdom
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
November 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
November 2019 List
URL Address
<a href="http://doi.org/10.1038/jp.2017.160" target="_blank" rel="noreferrer noopener">http://doi.org/10.1038/jp.2017.160</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Parental assessment of comfort in newborns affected by life-limiting conditions treated by a standardized neonatal comfort care program
Publisher
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Journal of Perinatology
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
Palliative Care/mt [Methods]; Parents/px [Psychology]; Patient Comfort/st [Standards]; Adult; Female; Humans; Infant; Intensive Care; Male; Neonatal/og [Organization & Administration]; New York; Newborn; Patient Care Team/og [Organization & Administration]; Practice Guidelines as Topic; Prospective Studies; Qualitative Research; Surveys and Questionnaires; Young Adult
Creator
An entity primarily responsible for making the resource
Parravicini E; Daho M; Foe G; Steinwurtzel R; Byrne M
Description
An account of the resource
OBJECTIVE: To assess the perception of parents concerning the state of comfort maintained in their infants born with life-limiting conditions and treated by a standardized neonatal comfort care program. STUDY DESIGN: Participants were parents (n=35 families) who elected comfort care for their newborns diagnosed with life-limiting conditions. Standardized comfort measures including family/infant bonding, warmth, nutrition/hydration and pain/discomfort management were provided to all infants. Parents consented to receive a questionnaire with quantitative response options and open-ended questions. RESULTS: Forty-two questionnaires (26 from mothers and 16 from fathers) were collected and analyzed. Most parents reported that their child was treated with respect, in a caring, peaceful and non-invasive environment. To the question 'Do you think that overall your baby received comfort' mode response was 'always'. CONCLUSION: Parents of infants with life-limiting conditions perceive that their babies experience comfort as a result of the care provided by the standardized Neonatal Comfort Care Program.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1038/jp.2017.160" target="_blank" rel="noreferrer noopener">10.1038/jp.2017.160</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Adult
Byrne M
Daho M
Female
Foe G
Humans
Infant
Intensive Care
Journal Of Perinatology
Male
Neonatal/og [Organization & Administration]
New York
Newborn
November 2019 List
Palliative Care/mt [methods]
Parents/px [psychology]
Parravicini E
Patient Care Team/og [Organization & Administration]
Patient Comfort/st [Standards]
Practice Guidelines As Topic
Prospective Studies
Qualitative Research
Steinwurtzel R
Surveys And Questionnaires
Young Adult
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
April 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April 2019 List
URL Address
<a href="http://doi.org/10.1136/archdischild-2017-312731" target="_blank" rel="noreferrer noopener">http://doi.o rg/10.1136/archdischild-2017-312731</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Individualised advance care planning in children with life-limiting conditions
Publisher
An entity responsible for making the resource available
Archives of Disease in Childhood
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
Child Health Services/og [Organization & Administration]; Palliative Care/og [Organization & Administration]; Netherlands; Palliative Care/st [Standards]; Quality of Health Care; Male; Practice Guidelines as Topic; Advance Care Planning/og [Organization & Administration]; Parents/px [Psychology]; Child; Humans; Palliative Care/px [Psychology]; Female; Attitude to Health; Pilot Projects; Advance Care Planning/st [Standards]; Child Health Services/st [Standards]; Evidence-Based Medicine/mt [Methods]; Patient Satisfaction/sn [Statistics & Numerical Data]
Creator
An entity primarily responsible for making the resource
Loeffen EAH; Tissing WJE; Schuiling-Otten MA; de Kruiff CC; Kremer L C M; Verhagen AA; Pediatric Palliative Care-Individualized Care Plan Working Group
Description
An account of the resource
INTRODUCTION: In 2013, the Pediatric Association of the Netherlands launched an evidence-based guideline 'Palliative care for children'. To promote implementation in daily practice and hereby improve quality of paediatric palliative care, we aimed to develop a functional individualised paediatric palliative care plan (IPPCP) that covers physical, psychological, spiritual and social functioning, with great emphasis on the guideline's recommendations, advance care planning and patients' and parents' preferences and desires. METHODS: A Dutch working group (28 individuals) with a strong multidisciplinary character developed a draft IPPCP, which was piloted retrospectively and prospectively. In the pilots we completed, the IPPCPs for patients who were recently diagnosed with a life-threatening or life-limiting condition and evaluated completeness, usability and user-friendliness. RESULTS: The final IPPCP comprised five domains: (1) IPPCP data, (2) basics, (3) social, (4) psychosocial and spiritual and (5) physical care. Each domain covered various components. In both pilots, the IPPCP was considered a comprehensive document that covered all areas of paediatric palliative care and was experienced as an improvement to the present situation. However, the current form was regarded to lack user-friendliness. CONCLUSION: We propose a set of essential components of a comprehensive IPPCP for paediatric palliative care with extra attention for advance care planning and anticipatory action. Patients' and parents' preferences and desires are included next to the recommendations of the evidence-based guideline 'Palliative care for children'.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/archdischild-2017-312731" target="_blank" rel="noreferrer noopener">10.1136/archdischild-2017-312731</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Advance Care Planning/og [Organization & Administration]
Advance Care Planning/st [Standards]
April 2019 List
Archives of Disease in Childhood
Attitude To Health
Child
Child Health Services/og [organization & Administration]
Child Health Services/st [Standards]
de Kruiff CC
Evidence-Based Medicine/mt [Methods]
Female
Humans
Kremer L C M
Loeffen EAH
Male
Netherlands
Palliative Care/og [Organization & Administration]
Palliative Care/px [psychology]
Palliative Care/st [standards]
Parents/px [psychology]
Patient Satisfaction/sn [Statistics & Numerical Data]
Pediatric Palliative Care-Individualized Care Plan Working Group
Pilot Projects
Practice Guidelines As Topic
Quality Of Health Care
Schuiling-Otten MA
Tissing WJE
Verhagen AA
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
January 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January 2019 List
URL Address
<a href="http://doi.org/10.1177/1049909118760303" target="_blank" rel="noreferrer noopener"> http://doi.org/ 10.1177/1049909118760303</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Provider Tools for Advance Care Planning and Goals of Care Discussions: A Systematic Review
Publisher
An entity responsible for making the resource available
American Journal of Hospice and Palliatice Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
advance care planning; Age Factors; Physician-Patient Relations; Communication; Advance Care Planning/standards; Humans; Pediatrics; palliative care; decision-making; systematic review; serious illness; Practice Guidelines as Topic; Geriatrics; goals of care discussions; Patient Care Planning/standards; point-of-care clinical tools
Creator
An entity primarily responsible for making the resource
Myers J; Cosby R; Gzik D; Harle I; Harrold D; Incardona N; Walton T
Description
An account of the resource
BACKGROUND: Advance care planning and goals of care discussions involve the exploration of what is most important to a person, including their values and beliefs in preparation for health-care decision-making. Advance care planning conversations focus on planning for future health care, ensuring that an incapable person's wishes are known and can guide the person's substitute decision maker for future decision-making. Goals of care discussions focus on preparing for current decision-making by ensuring the person's goals guide this process. AIM: To provide evidence regarding tools and/or practices available for use by health-care providers to effectively facilitate advance care planning conversations and/or goals of care discussions. DATA SOURCES: A systematic review was conducted focusing on guidelines, randomized trials, comparative studies, and noncomparative studies. Databases searched included MEDLINE, EMBASE, and the proceedings of the International Advance Care Planning Conference and the American Society of Clinical Oncology Palliative Care Symposium. CONCLUSIONS: Although several studies report positive findings, there is a lack of consistent patient outcome evidence to support any one clinical tool for use in advance care planning or goals of care discussions. Effective advance care planning conversations at both the population and the individual level require provider education and communication skill development, standardized and accessible documentation, quality improvement initiatives, and system-wide coordination to impact the population level. There is a need for research focused on goals of care discussions, to clarify the purpose and expected outcomes of these discussions, and to clearly differentiate goals of care from advance care planning.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/1049909118760303" target="_blank" rel="noreferrer noopener">10.1177/1049909118760303</a>
2018
Advance Care Planning
Advance Care Planning/standards
Age Factors
American Journal of Hospice and Palliatice Care
Communication
Cosby R
Decision-making
Geriatrics
goals of care discussions
Gzik D
Harle I
Harrold D
Humans
Incardona N
January 2019 List
Myers J
Palliative Care
Patient Care Planning/standards
Pediatrics
Physician-patient Relations
point-of-care clinical tools
Practice Guidelines As Topic
Serious Illness
Systematic Review
Walton T
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/cch.12020" target="_blank" rel="noreferrer">http://doi.org/10.1111/cch.12020</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Was there a plan? End-of-life care for children with life-limiting conditions: a review of multi-service healthcare records
Publisher
An entity responsible for making the resource available
Child: Care, Health And Development
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
Child; Female; Humans; Male; Advance Directives; Physician-Patient Relations; Pediatrics; Practice Guidelines as Topic; Communication; Resuscitation Orders; Time Factors; quality of life; end of life; adolescent; Preschool; decision making; infant; retrospective studies; DNAR; Parents; documentation; Parents/px [Psychology]; Terminal Care; Patient Care Planning/og [Organization & Administration]; Terminal Care/og [Organization & Administration]; review; Medical Records; Neoplasms; advance planning; child and family wishes; Neoplasms/mo [Mortality]; Patient Care Planning/st [Standards]; Terminal Care/px [Psychology]
Creator
An entity primarily responsible for making the resource
Beringer AJ; Heckford EJ
Description
An account of the resource
BACKGROUND: Planning for care at the end of life (EoL) is an essential component of support and care for families of children with life-limiting conditions. The purpose of this review was to compare documented EoL planning with published children's palliative care standards, across a range of children's healthcare services and to assess the impact on practice of written guidelines to support EoL care planning. METHOD: A manual retrospective review of healthcare records using a purpose-built form. Inclusion criteria were the records of children with a diagnosed life-limiting or life-threatening condition, who had died before the age of 18 years, between October 2008 and March 2010, within a defined geographical area served by one or more of the participating services. The sample was 114 sets of notes relating to a cohort of 48 children: 24 girls and 24 boys, the majority of whose deaths were cancer related. RESULTS: Examples of good practice were found in the records of individual services. Services had each developed their own systems and documents to support EoL care planning rather than using a unified documentation system. Where documented practice fell short, this was related to a lack of evidence that choice in location of death had been offered, delays in sharing of information between services, and information being buried in the narrative of the notes, making it difficult to find. CONCLUSIONS: Current documented EoL planning varies between services. Those who are infrequently involved in the provision of EoL care may benefit from support by those for whom this is part of their daily working life. These professionals can help prepare staff to engage families in these difficult but important conversations - and encourage them to document them in a way that can be easily and readily accessed and shared.
2014-03
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/cch.12020" target="_blank" rel="noreferrer">10.1111/cch.12020</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Adolescent
Advance Directives
advance planning
Backlog
Beringer AJ
Child
child and family wishes
Child: Care, Health and Development
Communication
Decision Making
DNAR
Documentation
End Of Life
Female
Heckford EJ
Humans
Infant
Journal Article
Male
Medical Records
Neoplasms
Neoplasms/mo [mortality]
Parents
Parents/px [psychology]
Patient Care Planning/og [Organization & Administration]
Patient Care Planning/st [Standards]
Pediatrics
Physician-patient Relations
Practice Guidelines As Topic
Preschool
Quality Of Life
Resuscitation Orders
Retrospective Studies
Review
Terminal Care
Terminal Care/og [organization & Administration]
Terminal Care/px [psychology]
Time Factors
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1136/archdischild-2013-305492" target="_blank" rel="noreferrer">http://doi.org/10.1136/archdischild-2013-305492</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Withdrawal of ventilatory support outside the intensive care unit: guidance for practice
Publisher
An entity responsible for making the resource available
Archives Of Disease In Childhood
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
adolescent; Child; Female; Humans; infant; Male; retrospective studies; Intensive Care Units; Palliative Care; Practice Guidelines as Topic; Resuscitation Orders; Pediatric; Preschool; Newborn; Mechanical; Ventilators; Place of Death; Guildlines; Paediatric Intensive Care (PICU)
Creator
An entity primarily responsible for making the resource
Laddie J; Craig F; Brierley J; Kelly P; Bluebond-Langner M
Description
An account of the resource
OBJECTIVE: To review the work of one tertiary paediatric palliative care service in facilitating planned withdrawal of ventilatory support outside the intensive care setting, with the purpose of developing local guidance for practice. METHODS: Retrospective 10-year (2003-2012) case note review of intensive care patients whose parents elected to withdraw ventilation in another setting. Demographic and clinical data revealed common themes and specific incidents relevant to local guideline development. RESULTS: 18 children (aged 2 weeks to 16 years) were considered. Three died prior to transfer. Transfer locations included home (5), hospice (8) and other (2). Primary pathologies included malignant, neurological, renal and respiratory diseases. Collaborative working was evidenced in the review including multidisciplinary team meetings with the palliative care team prior to discharge. Planning included development of symptom management plans and emergency care plans in the event of longer than anticipated survival. Transfer of children and management of extubations demonstrated the benefits of planning and recognition that unexpected events occur despite detailed planning. We identified the need for local written guidance supporting healthcare professionals planning and undertaking extubation outside the intensive care setting, addressing the following phases: (i) introduction of withdrawal, (ii) preparation pretransfer, (iii) extubation, (iv) care postextubation and (v) care postdeath. CONCLUSIONS: Planned withdrawal of ventilatory support outside the intensive care setting is challenging and resource intensive. The development of local collaborations and guidance can enable parents of children dependent on intensive care to consider a preferred place of death for their child, which may be outside the intensive care unit.
2014-09
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/archdischild-2013-305492" target="_blank" rel="noreferrer">10.1136/archdischild-2013-305492</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Adolescent
Archives of Disease in Childhood
Backlog
Bluebond-Langner M
Brierley J
Child
Craig F
Female
Guildlines
Humans
Infant
Intensive Care Units
Journal Article
Kelly P
Laddie J
Male
Mechanical
Newborn
Paediatric Intensive Care (PICU)
Palliative Care
Pediatric
Place Of Death
Practice Guidelines As Topic
Preschool
Resuscitation Orders
Retrospective Studies
Ventilators
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2013-3608C" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2013-3608C</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The duty of the physician to care for the family in pediatric palliative care: context, communication, and caring
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
adolescent; Child; Female; Humans; Male; bereavement; hospice care; Pediatrics; Family; Practice Guidelines as Topic; Professional-Family Relations; Patient-Centered Care; Patient Participation; Ethics; Medical; Palliative Care
Creator
An entity primarily responsible for making the resource
Jones BL; Contro N; Koch KD
Description
An account of the resource
Pediatric palliative care physicians have an ethical duty to care for the families of children with life-threatening conditions through their illness and bereavement. This duty is predicated on 2 important factors: (1) best interest of the child and (2) nonabandonment. Children exist in the context of a family and therefore excellent care for the child must include attention to the needs of the family, including siblings. The principle of nonabandonment is an important one in pediatric palliative care, as many families report being well cared for during their child's treatment, but feel as if the physicians and team members suddenly disappear after the death of the child. Family-centered care requires frequent, kind, and accurate communication with parents that leads to shared decision-making during treatment, care of parents and siblings during end-of-life, and assistance to the family in bereavement after death. Despite the challenges to this comprehensive care, physicians can support and be supported by their transdisciplinary palliative care team members in providing compassionate, ethical, and holistic care to the entire family when a child is ill.
2014-02
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2013-3608C" target="_blank" rel="noreferrer">10.1542/peds.2013-3608C</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Adolescent
Backlog
Bereavement
Child
Contro N
Ethics
Family
Female
Hospice Care
Humans
Jones BL
Journal Article
Koch KD
Male
Medical
Palliative Care
Patient Participation
Patient-centered Care
Pediatrics
Practice Guidelines As Topic
Professional-family Relations
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.jclinepi.2013.02.003" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.jclinepi.2013.02.003</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
GRADE guidelines: 15. Going from evidence to recommendation-determinants of a recommendation's direction and strength
Publisher
An entity responsible for making the resource available
Journal Of Clinical Epidemiology
Date
A point or period of time associated with an event in the lifecycle of the resource
2013
Subject
The topic of the resource
Humans; United States; Canada; Practice Guidelines as Topic; Treatment Outcome; Research Design; Risk Assessment; Evidence-Based Medicine; Treatment Failure; Germany; Pulmonary Disease; Health Care; Quality Assurance; Chronic Obstructive
Creator
An entity primarily responsible for making the resource
Andrews JC; Schunemann HJ; Oxman A; Pottie K; Meerpohl Joerg J; Coello PA; Rind D; Montori VM; Brito JP; Norris S; Elbarbary M; Post P; Nasser M; Shukla V; Jaeschke R; Brozek J; Djulbegovic B; Guyatt G
Description
An account of the resource
In the GRADE approach, the strength of a recommendation reflects the extent to which we can be confident that the composite desirable effects of a management strategy outweigh the composite undesirable effects. This article addresses GRADE's approach to determining the direction and strength of a recommendation. The GRADE describes the balance of desirable and undesirable outcomes of interest among alternative management strategies depending on four domains, namely estimates of effect for desirable and undesirable outcomes of interest, confidence in the estimates of effect, estimates of values and preferences, and resource use. Ultimately, guideline panels must use judgment in integrating these factors to make a strong or weak recommendation for or against an intervention.
2013-07
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jclinepi.2013.02.003" target="_blank" rel="noreferrer">10.1016/j.jclinepi.2013.02.003</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2013
Andrews JC
Backlog
Brito JP
Brozek J
Canada
Chronic Obstructive
Coello PA
Djulbegovic B
Elbarbary M
Evidence-based Medicine
Germany
Guyatt G
Health Care
Humans
Jaeschke R
Journal Article
Journal Of Clinical Epidemiology
Meerpohl Joerg J
Montori VM
Nasser M
Norris S
Oxman A
Post P
Pottie K
Practice Guidelines As Topic
Pulmonary Disease
Quality Assurance
Research Design
Rind D
Risk Assessment
Schunemann HJ
Shukla V
Treatment Failure
Treatment Outcome
United States
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.jcf.2009.05.004" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.jcf.2009.05.004</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Implementation of European standards of care for cystic fibrosis - provision of care
Publisher
An entity responsible for making the resource available
Journal Of Cystic Fibrosis
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Humans; Practice Guidelines as Topic; Health Care Surveys; Questionnaires; Guideline Adherence; Europe; Adolescent Transitions; caregivers; Cystic Fibrosis/therapy; Patient Care/standards
Creator
An entity primarily responsible for making the resource
Elborn JS; Hodson M; Bertram C
Description
An account of the resource
BACKGROUND: Several guidelines for cystic fibrosis (CF) caregivers exist, but information about their implementation is lacking. METHODS: Adherence to European Consensus Guidelines for CF was studied by sending surveys to named healthcare professionals in 487 CF centres/units. Data were analysed qualitatively. RESULTS: Data were obtained from 177 CF clinics, providing care for 21,177 patients (33% response rate). Access to specialist healthcare professionals was good according to 80% of respondents, although only 59% reported access to specialist pharmacists. Of the respondents, 16% reported unlimited access to inpatient CF beds, however 22% reported a lack of availability of immediate care. Most respondents (84%) reviewed their patients quarterly as outpatients. Shared-care models were used by 84% of respondents. Availability and adequacy of funding presented an issue for many, although 8% of respondents indicated that key funding was derived from CF charities. CONCLUSIONS: The respondents demonstrated a high degree of implementation of European Consensus Guidelines. However, areas for improvement include shared care, access to care and funding inequalities.
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jcf.2009.05.004" target="_blank" rel="noreferrer">10.1016/j.jcf.2009.05.004</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Adolescent Transitions
Backlog
Bertram C
Caregivers
Cystic Fibrosis/therapy
Elborn JS
Europe
Guideline Adherence
Health Care Surveys
Hodson M
Humans
Journal Article
Journal of Cystic Fibrosis
Patient Care/standards
Practice Guidelines As Topic
Questionnaires
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/jpm.2008.0178" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2008.0178</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Center to Advance Palliative Care palliative care consultation service metrics: consensus recommendations
Publisher
An entity responsible for making the resource available
Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Humans; Palliative Care; referral and consultation; Consensus; Practice Guidelines as Topic; Length of Stay; Wisconsin; Demography; Palliative Care; Biometry; Community Health Centers; Essential Data Set
Creator
An entity primarily responsible for making the resource
Weissman DE; Meier DE; Spragens LH
Description
An account of the resource
The need to standardize the prospective collection and analysis of data has been a cornerstone of education and technical assistance provided by the Center to Advance Palliative Care (CAPC). Data analysis is vital for strategic planning, quality improvement, and demonstration of program impact to hospital administrators, private funders, and policymakers. To develop a set of core measures, CAPC convened a consensus panel in 2008 to focus on the topic of operational metrics for consultation services. Operational metrics, as distinct from clinical, customer and financial metrics, describe the characteristics of patients seen on the consultation service, such as age, disease, location, referring service and disposition. The panel arrived at 12 metric domains, all but one of which can be used for either internal programmatic use or for external comparisons of service characteristics/impact between different hospitals. In an effort to ensure access to reliably high-quality palliative care data throughout the nation, hospital palliative care consultation teams are encouraged to collect and report outcomes for each of the twelve metric domains described here.
2008-12
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jpm.2008.0178" target="_blank" rel="noreferrer">10.1089/jpm.2008.0178</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Backlog
Biometry
Community Health Centers
Consensus
Demography
Essential Data Set
Humans
Journal Article
Journal of Palliative Medicine
Length Of Stay
Meier DE
Palliative Care
Practice Guidelines As Topic
Referral And Consultation
Spragens LH
Weissman DE
Wisconsin
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/MOT.0b013e32833984a5" target="_blank" rel="noreferrer">http://doi.org/10.1097/MOT.0b013e32833984a5</a>
Dublin Core
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Title
A name given to the resource
Adherence to medical recommendations and transition to adult services in pediatric transplant recipients
Publisher
An entity responsible for making the resource available
Current Opinion In Organ Transplantation
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Humans; Young Adult; Adult; Practice Guidelines as Topic; Drug Monitoring; Treatment Outcome; Risk Assessment; Risk Factors; Continuity of Patient Care; Health Behavior; Patient Education as Topic; Practice; adolescent; Attitudes; Adolescent Transitions; Health Knowledge; Graft Survival; Immunosuppressive Agents/therapeutic use; Graft Rejection/etiology/prevention & control; Medication Adherence; Organ Transplantation/adverse effects
Creator
An entity primarily responsible for making the resource
Shemesh E; Annunziato RA; Arnon R; Miloh T; Kerkar N
Description
An account of the resource
PURPOSE OF REVIEW: Nonadherence to treatment recommendations, especially when associated with transition to adult care providers, account, by some estimates, for most organ rejections and death in long-term pediatric survivors of solid organ transplantations. It is therefore imperative that providers become familiar with the issues related to those major risks and ways to address them. RECENT FINDINGS: It is possible, and important, to routinely measure adherence to medications by using one of several available and proven methods of surveillance. There are numerous ways to improve adherence, and it is in fact possible to improve adherence and therefore outcomes in the transplant setting. The transition to adult services is a vulnerable period. The authors believe that it is possible to improve the transition process, and suggestions are presented in this review. However, solid research into interventions to improve transition is lacking. SUMMARY: Nonadherence to medical recommendations is prevalent and leads to poor outcomes following otherwise successful pediatric transplantation. An especially vulnerable period is the time when a recipient transitions to adult care. Routine monitoring of adherence, evaluating and addressing barriers to adherence, and collaborative, multidisciplinary care are all expected to substantially improve adherence and reduce the risks associated with transition.
2010
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/MOT.0b013e32833984a5" target="_blank" rel="noreferrer">10.1097/MOT.0b013e32833984a5</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Adolescent
Adolescent Transitions
Adult
Annunziato RA
Arnon R
Attitudes
Backlog
Continuity Of Patient Care
Current Opinion In Organ Transplantation
Drug Monitoring
Graft Rejection/etiology/prevention & control
Graft Survival
Health Behavior
Health Knowledge
Humans
Immunosuppressive Agents/therapeutic use
Journal Article
Kerkar N
Medication Adherence
Miloh T
Organ Transplantation/adverse effects
Patient Education as Topic
Practice
Practice Guidelines As Topic
Risk Assessment
Risk Factors
Shemesh E
Treatment Outcome
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1136/bmj.a3152" target="_blank" rel="noreferrer">http://doi.org/10.1136/bmj.a3152</a>
Dublin Core
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Title
A name given to the resource
Publication guidelines for quality improvement studies in health care: evolution of the SQUIRE project
Publisher
An entity responsible for making the resource available
Bmj (clinical Research Ed.)
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Consensus; Practice Guidelines as Topic; Interprofessional Relations; Quality of Health Care; Forecasting; RDF Project; Editorial Policies; Publishing/standards
Creator
An entity primarily responsible for making the resource
Davidoff F; Batalden PB; Stevens D; Ogrinc G; Mooney SE; SQUIRE development group
Description
An account of the resource
In 2005 we published draft guidelines for reporting studies of quality improvement, as the initial step in a consensus process for development of a more definitive version. The current article contains the revised version, which we refer to as standards for quality improvement reporting excellence (SQUIRE). This narrative progress report summarises the special features of improvement that are reflected in SQUIRE, and describes major differences between SQUIRE and the initial draft guidelines. It also briefly describes the guideline development process; considers the limitations of and unresolved questions about SQUIRE; describes ancillary supporting documents and alternative versions under development; and discusses plans for dissemination, testing, and further development of SQUIRE.
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/bmj.a3152" target="_blank" rel="noreferrer">10.1136/bmj.a3152</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Backlog
Batalden PB
Bmj (clinical Research Ed.)
Consensus
Davidoff F
Editorial Policies
Forecasting
Interprofessional Relations
Journal Article
Mooney SE
Ogrinc G
Practice Guidelines As Topic
Publishing/standards
Quality Of Health Care
RDF Project
SQUIRE development group
Stevens D
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1503/cmaj.080372" target="_blank" rel="noreferrer">http://doi.org/10.1503/cmaj.080372</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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A guide for the design and conduct of self-administered surveys of clinicians
Publisher
An entity responsible for making the resource available
Canadian Medical Association Journal
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Humans; Practice Guidelines as Topic; Physicians; Study Design; Questionnaires/standards
Creator
An entity primarily responsible for making the resource
Burns KE; Duffett M; Kho ME; Meade MO; Adhikari NK; Sinuff T; Cook DJ; Group ACCADEMY
Identifier
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<a href="http://doi.org/10.1503/cmaj.080372" target="_blank" rel="noreferrer">10.1503/cmaj.080372</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2008
2008
Adhikari NK
Backlog
Burns KE
Canadian Medical Association Journal
Cook DJ
Duffett M
Group ACCADEMY
Humans
Journal Article
Kho ME
Meade MO
Physicians
Practice Guidelines As Topic
Questionnaires/standards
Sinuff T
Study Design
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1503/cmaj.100187" target="_blank" rel="noreferrer">http://doi.org/10.1503/cmaj.100187</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Opioids for chronic noncancer pain: a new Canadian practice guideline
Publisher
An entity responsible for making the resource available
Canadian Medical Association Journal
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Humans; Canada; Practice Guidelines as Topic; Analgesics; Chronic disease; Pain/drug therapy; Opioid/administration & dosage/adverse effects/therapeutic use; Advisory Committees/organization & administration
Creator
An entity primarily responsible for making the resource
Furlan AD; Reardon R; Weppler C; National Opioid Use Guideline Group
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1503/cmaj.100187" target="_blank" rel="noreferrer">10.1503/cmaj.100187</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2010
2010
Advisory Committees/organization & administration
Analgesics
Backlog
Canada
Canadian Medical Association Journal
Chronic Disease
Furlan AD
Humans
Journal Article
National Opioid Use Guideline Group
Opioid/administration & dosage/adverse effects/therapeutic use
Pain/drug Therapy
Practice Guidelines As Topic
Reardon R
Weppler C
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1503/cmaj.100548" target="_blank" rel="noreferrer">http://doi.org/10.1503/cmaj.100548</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
What we still don't know about treating chronic noncancer pain with opioids
Publisher
An entity responsible for making the resource available
Canadian Medical Association Journal
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Humans; Practice Guidelines as Topic; Analgesics; Chronic disease; Pain/drug therapy; Opioid/therapeutic use
Creator
An entity primarily responsible for making the resource
Chou R
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1503/cmaj.100548" target="_blank" rel="noreferrer">10.1503/cmaj.100548</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2010
2010
Analgesics
Backlog
Canadian Medical Association Journal
Chou R
Chronic Disease
Humans
Journal Article
Opioid/therapeutic use
Pain/drug Therapy
Practice Guidelines As Topic
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.jcf.2004.12.002" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.jcf.2004.12.002</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Standards of care for patients with cystic fibrosis: a European consensus
Publisher
An entity responsible for making the resource available
Journal Of Cystic Fibrosis
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Humans; Practice Guidelines as Topic; Europe; Adolescent Transitions; Cystic Fibrosis/therapy; Delivery of Health Care/standards
Creator
An entity primarily responsible for making the resource
Kerem E; Conway S; Elborn S; Heijerman H; Consensus Committee
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jcf.2004.12.002" target="_blank" rel="noreferrer">10.1016/j.jcf.2004.12.002</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2005
2005
Adolescent Transitions
Backlog
Consensus Committee
Conway S
Cystic Fibrosis/therapy
Delivery of Health Care/standards
Elborn S
Europe
Heijerman H
Humans
Journal Article
Journal of Cystic Fibrosis
Kerem E
Practice Guidelines As Topic
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/1049909106292167" target="_blank" rel="noreferrer">http://doi.org/10.1177/1049909106292167</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Enteral and parenteral nutrition in terminally ill cancer patients: a review of the literature
Publisher
An entity responsible for making the resource available
The American Journal Of Hospice & Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Humans; Survival Rate; Terminally Ill; Practice Guidelines as Topic; Communication; Treatment Outcome; Decision Support Techniques; Research Design; Risk Factors; Patient Selection; Activities of Daily Living; Evidence-Based Medicine; Patient Education as Topic; quality of life; Nutritional Status; Nutrition Assessment; Enteral Nutrition/adverse effects/methods/utilization; Malnutrition/etiology/therapy; Neoplasms/complications/mortality/psychology; Parenteral Nutrition/adverse effects/methods/utilization; Terminal Care/methods/psychology/utilization
Creator
An entity primarily responsible for making the resource
Dy SM
Description
An account of the resource
Many terminally ill patients who are able to eat appear to be eating less than they should, losing weight, and becoming malnourished, and many others develop difficulties with eating. These symptoms and signs are usually a marker of advanced cancer, rather than the cause of decreasing functional status, and providing supplemental nutrition rarely changes the course of the disease. This article reviews evidence on issues relevant to enteral and parenteral nutrition in patients with advanced cancer, including benefits, risks, and discomforts; how these types of nutrition are used and perceived, and how decisions are made; and how decision-making might be improved.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/1049909106292167" target="_blank" rel="noreferrer">10.1177/1049909106292167</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Activities of Daily Living
Backlog
Communication
Decision Support Techniques
Dy SM
Enteral Nutrition/adverse effects/methods/utilization
Evidence-based Medicine
Humans
Journal Article
Malnutrition/etiology/therapy
Neoplasms/complications/mortality/psychology
Nutrition Assessment
Nutritional Status
Parenteral Nutrition/adverse effects/methods/utilization
Patient Education as Topic
Patient Selection
Practice Guidelines As Topic
Quality Of Life
Research Design
Risk Factors
Survival Rate
Terminal Care/methods/psychology/utilization
Terminally Ill
The American Journal of Hospice & Palliative Care
Treatment Outcome
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/ppul.10369" target="_blank" rel="noreferrer">http://doi.org/10.1002/ppul.10369</a>
Dublin Core
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Title
A name given to the resource
Developmentally appropriate healthcare for young people with chronic illness: questions of philosophy, policy, and practice
Publisher
An entity responsible for making the resource available
Pediatric Pulmonology
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Humans; United States; Adult; Practice Guidelines as Topic; adolescent; Adolescent Transitions; Continuity of Patient Care/organization & administration; Adolescent Development; Chronic Disease/therapy; Health Policy/trends; Health Promotion/trends; Preventive Health Services/trends; Quality of Health Care/trends
Creator
An entity primarily responsible for making the resource
Sawyer SM
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/ppul.10369" target="_blank" rel="noreferrer">10.1002/ppul.10369</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2003
2003
Adolescent
Adolescent Development
Adolescent Transitions
Adult
Backlog
Chronic Disease/therapy
Continuity Of Patient Care/organization & Administration
Health Policy/trends
Health Promotion/trends
Humans
Journal Article
Pediatric Pulmonology
Practice Guidelines As Topic
Preventive Health Services/trends
Quality of Health Care/trends
Sawyer SM
United States
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.jinf.2003.10.013" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.jinf.2003.10.013</a>
Dublin Core
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Title
A name given to the resource
Evidence based paediatrics: review of BTS guidelines for the management of community acquired pneumonia in children
Publisher
An entity responsible for making the resource available
The Journal Of Infection
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Child; Humans; Practice Guidelines as Topic; Preschool; Community-Acquired Infections/drug therapy/etiology; Evidence-Based Medicine/methods; Pediatrics/methods/standards; Pneumonia/drug therapy/etiology
Creator
An entity primarily responsible for making the resource
Kumar P; McKean MC
Description
An account of the resource
Community acquired pneumonia is a common illness with significant morbidity and mortality in children and a high cost to society. Guidelines for management in the UK were issued by the British Thoracic Society in 2002 [Thorax 57 (2002) 1]. This review summarises the guidelines with emphasis on aetiology, investigations and antibiotic treatment.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jinf.2003.10.013" target="_blank" rel="noreferrer">10.1016/j.jinf.2003.10.013</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Backlog
Child
Community-Acquired Infections/drug therapy/etiology
Evidence-Based Medicine/methods
Humans
Journal Article
Kumar P
McKean MC
Pediatrics/methods/standards
Pneumonia/drug therapy/etiology
Practice Guidelines As Topic
Preschool
The Journal Of Infection
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/00008480-200312000-00014" target="_blank" rel="noreferrer">http://doi.org/10.1097/00008480-200312000-00014</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Developmental surveillance of infants and young children in pediatric primary care
Publisher
An entity responsible for making the resource available
Current Opinion In Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Child; Humans; Practice Guidelines as Topic; Preschool; infant; Developmental Disabilities/diagnosis; Child Health Services/standards; Internet/utilization
Creator
An entity primarily responsible for making the resource
King TM; Glascoe FP
Description
An account of the resource
PURPOSE OF REVIEW: This article reviews the importance of appropriate developmental surveillance in early childhood, what is known about its effectiveness in current pediatric practice, and ways in which its delivery can be improved to optimize child outcomes. RECENT FINDINGS: Many infants and young children with developmental delays or risk factors for poor developmental outcomes are not identified by pediatric practitioners in a timely manner. When they are identified, they are often not referred to appropriate early intervention services or early childhood development programs. They are therefore denied the opportunity to benefit from programs documented to have long-lasting benefits for children. Structuring developmental screening around the use of validated parent questionnaires improves the rates at which children with developmental needs are appropriately identified. At the same time, lowering thresholds for referral improves the rates at which children with identified needs receive appropriate services. SUMMARY: Pediatric practitioners are uniquely positioned to improve children's developmental outcomes through early identification and referral of children with developmental delays or risk factors for poor developmental outcomes. Unfortunately, inappropriate screening practices, high thresholds for referral, misplaced concerns about causing parental anxiety, and unfamiliarity with local resources all diminish the effectiveness with which many practitioners conduct developmental surveillance. Recent studies show that small changes in screening and referral practices have the potential to greatly improve the effectiveness of developmental surveillance. This, in turn, has the potential to improve lifelong outcomes for children.
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/00008480-200312000-00014" target="_blank" rel="noreferrer">10.1097/00008480-200312000-00014</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
Backlog
Child
Child Health Services/standards
Current Opinion In Pediatrics
Developmental Disabilities/diagnosis
Glascoe FP
Humans
Infant
Internet/utilization
Journal Article
King TM
Practice Guidelines As Topic
Preschool
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/01445442-200201000-00006" target="_blank" rel="noreferrer">http://doi.org/10.1097/01445442-200201000-00006</a>
Dublin Core
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Title
A name given to the resource
Palliative care: rapid redesign to support systemwide quality improvement
Publisher
An entity responsible for making the resource available
Journal For Healthcare Quality
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Humans; Leadership; Length of Stay; Program Development; Outcome Assessment (Health Care); Patient Satisfaction; Hospitals; Catholicism; Palliative Care/organization & administration; Family/psychology; Midwestern United States; Hospice Care/standards; Hospital Restructuring; Institutional Management Teams; Multi-Institutional Systems/organization & administration; Multi-Institutional Systems/standards; Palliative Care/standards; Practice Guidelines as Topic; Religious/organization & administration; Religious/standards; Total Quality Management/organization & administration
Creator
An entity primarily responsible for making the resource
Thomas MB; Quinn C
Description
An account of the resource
Large-scale change techniques and rapid redesign methodologies were used to improve the quality of care delivered to patients at the end of life in a large, multihospital healthcare delivery system. By bringing key stakeholders from across the system together at a symposium to formulate the vision and critical criteria for palliative care programs, as well as to develop a flexible set of design tools, each region in the system could respond to the unique needs of its own community. Hospice length of stay for the system improved by 100% in the year after the systemwide symposium.
2002
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/01445442-200201000-00006" target="_blank" rel="noreferrer">10.1097/01445442-200201000-00006</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
Backlog
Catholicism
Family/psychology
Hospice Care/standards
Hospital Restructuring
Hospitals
Humans
Institutional Management Teams
Journal Article
Journal For Healthcare Quality
Leadership
Length Of Stay
Midwestern United States
Multi-Institutional Systems/organization & administration
Multi-Institutional Systems/standards
Outcome Assessment (health Care)
Palliative Care/organization & Administration
Palliative Care/standards
Patient Satisfaction
Practice Guidelines As Topic
Program Development
Quinn C
Religious/organization & administration
Religious/standards
Thomas MB
Total Quality Management/organization & administration
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1053/beog.2000.0171" target="_blank" rel="noreferrer">http://doi.org/10.1053/beog.2000.0171</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Guidelines for an acceptable euthanasia procedure
Publisher
An entity responsible for making the resource available
Best Practice & Research: Clinical Obstetrics & Gynaecology
Date
A point or period of time associated with an event in the lifecycle of the resource
2001
Subject
The topic of the resource
Female; Humans; Adult; Practice Guidelines as Topic; Aged; Middle Aged; Netherlands; Physician's Role; Right to Die; Suicide; Death and Euthanasia; Assisted/psychology; Euthanasia/legislation & jurisprudence/psychology; Female/psychology/therapy; Genital Neoplasms
Creator
An entity primarily responsible for making the resource
Swarte NB; Heintz AP
Description
An account of the resource
The Netherlands is one of the very few countries that has guidelines for the practice of euthanasia. Each year there are about 9700 explicit requests for euthanasia or physician-assisted suicide (EAS), of which approximately 3600 patients are agreed upon in The Netherlands. Other countries have criticized the Dutch policy concerning EAS. First of all, it has been suggested that palliative care in The Netherlands is not adequate and that euthanasia is often requested by patients with depression. Additionally, part of the criticism is based on the regulation of the euthanasia procedure in The Netherlands. This chapter describes the guidelines for the procedure for euthanasia in The Netherlands, and focuses on some of the practical problems and issues of euthanasia. Also, the current situation concerning euthanasia and physician-assisted suicide in The Netherlands is summarized and described.
2001
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1053/beog.2000.0171" target="_blank" rel="noreferrer">10.1053/beog.2000.0171</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2001
Adult
Aged
Assisted/psychology
Backlog
Best Practice & Research: Clinical Obstetrics & Gynaecology
Death and Euthanasia
Euthanasia/legislation & jurisprudence/psychology
Female
Female/psychology/therapy
Genital Neoplasms
Heintz AP
Humans
Journal Article
Middle Aged
Netherlands
Physician's Role
Practice Guidelines As Topic
Right to Die
Suicide
Swarte NB
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/00002820-200104000-00007" target="_blank" rel="noreferrer">http://doi.org/10.1097/00002820-200104000-00007</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
End-of-life decision making by adolescents, parents, and healthcare providers in pediatric oncology: research to evidence-based practice guidelines
Publisher
An entity responsible for making the resource available
Cancer Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2001
Subject
The topic of the resource
Female; Humans; Male; Terminal Care; Practice Guidelines as Topic; Professional-Family Relations; adolescent; Empirical Approach; Professional Patient Relationship; Death and Euthanasia; decision making; social support; Neoplasms/nursing/psychology/therapy
Creator
An entity primarily responsible for making the resource
Hinds PS; Oakes L; Furman W; Quargnenti A; Olson MS; Foppiano P; Srivastava DK
Description
An account of the resource
Participating in end-of-life decisions is life altering for adolescents with incurable cancer, their families, and their healthcare providers. However, no empirically developed and validated guidelines to assist patients, parents, and healthcare providers in making these decisions exist. The purpose of the work reported here was to use three sources (the findings of three studies on decision making in pediatric oncology, published literature, and recommendations from professional associations) to develop guidelines for end-of-life decision making in pediatric oncology. The study designs include a retrospective, descriptive design (Study 1); a prospective, descriptive design (Study 2); and a cross-sectional, descriptive design (Study 3). Settings for the pediatric oncology studies included a pediatric catastrophic illness research hospital located in the Midsouth (Studies 1 and 2); and that setting plus a children's hospital in Australia and one in Hong Kong (Study 3). Study samples included 39 guardians and 21 healthcare providers (Study 1); 52 parents, 10 adolescents, and 22 physicians (Study 2); and 43 parents (Study 3). All participants in the studies responded to six open-ended questions. A semantic content analysis technique was used to analyze all interview data. Four nurses independently coded each interview; interrater reliability per code ranged from 68% to 100% across studies. The most frequently reported influencing factors were "information on the health and disease status of the patient," "all curative options having been attempted," "trusting the healthcare team," and "feeling support from the healthcare provider." The agreement across studies regarding influencing factors provides the basis for the research-based guidelines for end-of-life decision making in pediatric oncology. The guidelines offer assistance with end-of-life decision making in a structured manner that can be formally evaluated and individualized to meet patient and family needs.
2001
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/00002820-200104000-00007" target="_blank" rel="noreferrer">10.1097/00002820-200104000-00007</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2001
Adolescent
Backlog
Cancer Nursing
Death and Euthanasia
Decision Making
Empirical Approach
Female
Foppiano P
Furman W
Hinds PS
Humans
Journal Article
Male
Neoplasms/nursing/psychology/therapy
Oakes L
Olson MS
Practice Guidelines As Topic
Professional Patient Relationship
Professional-family Relations
Quargnenti A
Social Support
Srivastava DK
Terminal Care
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.20968/rpm/2005/v3/i1/101038" target="_blank" rel="noreferrer">http://doi.org/10.20968/rpm/2005/v3/i1/101038</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The map of dying
Publisher
An entity responsible for making the resource available
Journal Of The Royal College Of Physicians Of London
Date
A point or period of time associated with an event in the lifecycle of the resource
2000
Subject
The topic of the resource
Humans; Palliative Care; Practice Guidelines as Topic; Quality of Health Care; Euthanasia; Terminal Care; Pain/drug therapy
Creator
An entity primarily responsible for making the resource
Watkins P
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.20968/rpm/2005/v3/i1/101038" target="_blank" rel="noreferrer">10.20968/rpm/2005/v3/i1/101038</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2000
2000
Backlog
Euthanasia
Humans
Journal Article
Journal Of The Royal College Of Physicians Of London
Pain/drug Therapy
Palliative Care
Practice Guidelines As Topic
Quality Of Health Care
Terminal Care
Watkins P
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.joms.2010.07.082" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.joms.2010.07.082</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Evidence-based oral and maxillofacial surgery: some pitfalls and limitations
Publisher
An entity responsible for making the resource available
Journal Of Oral And Maxillofacial Surgery
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Humans; Personal Autonomy; Practice Guidelines as Topic; Outcome Assessment (Health Care); Research Design; Total Quality Management; Review Literature as Topic; Research; Ethics; decision making; Oral; Surgery; Health Care; Quality Assurance; Databases as Topic; Dental; Diffusion of Innovation; Evidence-Based Dentistry; Meta-Analysis as Topic; Publication Bias; Randomized Controlled Trials as Topic/classification/standards
Creator
An entity primarily responsible for making the resource
Pitak-Arnnop P; Hemprich A; Pausch NC
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.joms.2010.07.082" target="_blank" rel="noreferrer">10.1016/j.joms.2010.07.082</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Databases as Topic
Decision Making
Dental
Diffusion of Innovation
Ethics
Evidence-Based Dentistry
Health Care
Hemprich A
Humans
Journal Article
Journal Of Oral And Maxillofacial Surgery
Meta-Analysis as Topic
Oral
Outcome Assessment (health Care)
Pausch NC
Personal Autonomy
Pitak-Arnnop P
Practice Guidelines As Topic
Publication Bias
Quality Assurance
Randomized Controlled Trials as Topic/classification/standards
Research
Research Design
Review Literature as Topic
Surgery
Total Quality Management
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
n/a
URL Address
<a href="http://scholars.wlu.ca/scwk_faculty/12/" target="_blank" rel="noreferrer">http://scholars.wlu.ca/scwk_faculty/12/</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Research priorities in pediatric palliative care: a delphi study
Publisher
An entity responsible for making the resource available
Journal Of Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Attitude of Health Personnel; Attitude to Health; Benchmarking; bereavement; Canada; Child; Consensus; Delphi Technique; Evidence-Based Practice; Family/psychology; Humans; Needs Assessment/organization & administration; Pain/prevention & control; Palliative Care/organization & administration; Pediatrics/organization & administration; Practice Guidelines as Topic; Psychological/prevention & control; Questionnaires; Research Design; Research/organization & administration; Stress
Creator
An entity primarily responsible for making the resource
Steele R; Fletcher JM; Bosma H; Siden H; Straatman L; Fleming C; Cadell S; Davies B
Description
An account of the resource
Pediatric palliative care is increasingly recognized to be a specialized type of care requiring specific skills and knowledge, yet, as found in several countries, there is little available research evidence on which to base care. Objectives: The goal of the project was to achieve consensus among palliative care practitioners and researchers regarding the identification of pertinents lines of research. Method: A Delphi technique was used with an interdisciplinary panel (n=14–16) of researchers and frontline clinicians in pediatric palliative care in Canada. Results: Four priority research questions were identified: What matters most for patients and parents receiving pediatric palliative services? What are the bereavement needs of families in pediatric palliative care? What are the best practice standards in pain and symptom management? What are effective strategies to alleviate suffering at the end of life? Conclusions: These identified priorities will provide guidance and direction for research efforts in Canada, and may prove useful in providing optimal care to patients and families in pediatric palliative care.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://scholars.wlu.ca/scwk_faculty/12/" target="_blank" rel="noreferrer">scwk_faculty/12</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2007
Attitude Of Health Personnel
Attitude To Health
Benchmarking
Bereavement
Bosma H
Cadell S
Canada
Child
Consensus
Davies B
Delphi Technique
Evidence-based Practice
Family/psychology
Fleming C
Fletcher JM
Humans
Journal Of Palliative Care
Needs Assessment/organization & administration
Pain/prevention & control
Palliative Care/organization & Administration
Pediatrics/organization & Administration
Practice Guidelines As Topic
Psychological/prevention & control
Questionnaires
Research Design
Research/organization & administration
Siden H
Steele R
Straatman L
Stress
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2017 List
URL Address
<a href="https://journals.rcni.com/nursing-children-and-young-people/consistency-in-end-of-life-care-ncyp.28.8.8.s8" target="_blank" rel="noreferrer">https://journals.rcni.com/nursing-children-and-young-people/consistency-in-end-of-life-care-ncyp.28.8.8.s8</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Consistency in end of life care
Publisher
An entity responsible for making the resource available
Nursing Children And Young People
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Adolescent; Child; Child Preschool; Communication; Decision Making; Hospice And Palliative Care Nursing/ Standards; Humans; Infant; Nurse-patient Relations; Patient Participation; Pediatric Nursing/ Standards; Practice Guidelines As Topic
Creator
An entity primarily responsible for making the resource
Allen D
Description
An account of the resource
Draft guidelines address regional variations, but there are worries over terminology, the needs of family members and implementation. The death of a child is a comparatively rare event in the UK. Even so, more than 3,000 infant and 2,000 children and young people age 1-19 years died in England and Wales in 2012.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://journals.rcni.com/doi/full/10.7748/ncyp.28.8.8.s8" target="_blank" rel="noreferrer">10.7748/ncyp.28.8.8.s8</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Adolescent
Allen D
August 2017 List
Child
Child Preschool
Communication
Decision Making
Hospice And Palliative Care Nursing/ Standards
Humans
Infant
Nurse-patient Relations
Nursing Children and Young People
Patient Participation
Pediatric Nursing/ Standards
Practice Guidelines As Topic
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2017 List
Notes
<p>Evans, Nick</p>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Updated Perinatal Palliative Standards Emphasise Choice And Bereavement Support
Publisher
An entity responsible for making the resource available
Nursing Children And Young People
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Bereavement; Palliative Care/st [standards]; Perinatal Death; Female; Humans; Infant Newborn; Neonatal Nursing; Palliative Care/ma [manpower]; Practice Guidelines As Topic; Pregnancy; United Kingdom
Creator
An entity primarily responsible for making the resource
Evans N
Description
An account of the resource
Ana Todorovic's baby, Nadia, died just before birth. Ana says she received excellent care and was told when 37 weeks pregnant that Nadia was not going to survive for long.
Identifier
An unambiguous reference to the resource within a given context
10.7748/ncyp.29.5.8.s8
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Bereavement
Evans N
Female
Humans
Infant Newborn
Neonatal Nursing
Nursing Children and Young People
Palliative Care/ma [manpower]
Palliative Care/st [standards]
Perinatal Death
Practice Guidelines As Topic
Pregnancy
September 2017 List
United Kingdom
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March 2016 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
An Order Protocol For Respiratory Distress/acute Pain Crisis In Pediatric Palliative Care Patients: Medical And Nursing Staff Perceptions
Publisher
An entity responsible for making the resource available
Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Acute Pain/therapy; Adolescent; Adult; Advance Directives; Aged; Attitude Of Health Personnel; Canada; Child; Child Preschool; Female; Humans; Infant; Infant Newborn; Male; Medical Staff Hospital/psychology; Middle Aged; Nursing Staff Hospital/psychology; Palliative Care/standards; Pediatric Nursing/standards; Practice Guidelines As Topic; Respiratory Distress Syndrome Adult/therapy; Surveys And Questionnaires; Young Adult
Creator
An entity primarily responsible for making the resource
Bidet G; Daoust L; Duval M; Ducruet T; Toledano B; Humbert N
Description
An account of the resource
BACKGROUND:
An order protocol for distress (OPD), including respiratory distress and acute pain crisis, has been established for pediatric palliative care patients at Sainte-Justine Hospital (SJH). After discussion with the patient/his or her family, the OPD is prescribed by the attending physician whenever judged appropriate. The OPD can then be initiated by the bedside nurse when necessary; the physician is notified after the first dose is administered.
OBJECTIVES:
The study objectives were to evaluate the perceptions and experience of the medical/nursing staff towards the use of the OPD.
METHODS:
A survey was distributed to all physicians/nurses working on wards with pediatric palliative care patients. Answers to the survey were anonymous, done on a voluntary basis, and after consent of the participant.
RESULTS:
Surveys (258/548) were answered corresponding to a response rate of 47%. According to the respondents, the most important motivations in using the OPD were the desire to relieve patient's distress and the speed of relief of distress by the OPD; the most important obstacles were going against the patient's/his or her family's wishes and fear of hastening death. The respondents reported that the OPD was frequently (56%) or always (36%) effective in relieving the patient's distress. The respondents felt sometimes (16%), frequently (34%), or always (41%) comfortable in giving the OPD. They thought the OPD could never (12%), rarely (32%), sometimes (46%), frequently (8%), or always (1%) hasten death. Physicians were less favorable than nurses with the autonomy of bedside nurses to initiate the OPD before notifying the physician (p = 0.04). Overall, 95% of respondents considered that they would use the OPD in the future.
CONCLUSIONS:
Data from this survey shows that respondents are in favor of using the OPD at SJH and find it effective. Further training as well as support for health care professionals are mandatory in such palliative care settings.
Identifier
An unambiguous reference to the resource within a given context
DOI: 10.1089/jpm.2015.0100
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Acute Pain/therapy
Adolescent
Adult
Advance Directives
Aged
Attitude Of Health Personnel
Bidet G
Canada
Child
Child Preschool
Daoust L
Ducruet T
Duval M
Female
Humans
Humbert N
Infant
Infant Newborn
Journal of Palliative Medicine
Male
March 2016 List
Medical Staff Hospital/psychology
Middle Aged
Nursing Staff Hospital/psychology
Palliative Care/standards
Pediatric Nursing/standards
Practice Guidelines As Topic
Respiratory Distress Syndrome Adult/therapy
Surveys And Questionnaires
Toledano B
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
December 2016 List
URL Address
<a href="https://doi.org/10.1136/bmj.i6385">https://doi.org/10.1136/bmj.i6385</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
End of Life Care for Infants, Children and Young People with Life Limiting Conditions: Summary of Nice Guidance
Publisher
An entity responsible for making the resource available
British Medical Journal
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Adolescent; Advance Care Planning; Child; Humans; Infant; Patient Care Team; Patient Participation; Practice Guidelines As Topic; State Medicine; Terminal Care; United Kingdom
Creator
An entity primarily responsible for making the resource
Villanueva G; Murphy; MS; Vickers D; Harrop E; Dworzynski K
Description
An account of the resource
Children and young people can have a wide range of life limiting conditions and may sometimes live with such conditions for many years. This guideline recommends that end of life care be managed as a long term process that begins at the time of diagnosis of a life limiting condition and entails planning for the future. Sometimes it may begin before the child’s birth. It is part of the overall care of the child or young person and runs in parallel with other active treatments for the underlying condition itself.1 Finally, it includes those aspects related to the care of the dying.
This guideline was commissioned with the aim to standardise end of life care for infants, children, and young people living with a life limiting condition, and thus promote equity and consistency. Important themes are to involve children and young people and their parents or carers in decisions about their care, facilitate their care in their preferred location (most likely home), and plan for day and night care.
This article summarises the most recent guidance from the recent National Institute for Health and Care Excellence (NICE) on the planning and management of end of life care in infants, children, and young people.2 For a visual summary, please see infographic.
Identifier
An unambiguous reference to the resource within a given context
<a href="https://doi.org/10.1136/bmj.i6385">10.1136/bmj.i6385</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Adolescent
Advance Care Planning
British Medical Journal
Child
December 2016 List
Dworzynski K
Harrop E
Humans
Infant
MS
Murphy
Patient Care Team
Patient Participation
Practice Guidelines As Topic
State Medicine
Terminal Care
United Kingdom
Vickers D
Villanueva G