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Text
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URL Address
<a href="http://doi.org/10.1111/j.1365-2214.2008.00843.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2214.2008.00843.x</a>
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Title
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Planning for the end of children's lives--the lifetime framework.
Publisher
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Child: Care, Health And Development
Date
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2008
Subject
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Child; Humans; Parent-Child Relations; Attitude to Death; Time Factors; Delphi Technique; adolescent; Preschool; decision making; infant; DNAR; Palliative Care/st [Standards]; Terminal Care/st [Standards]; Advance Care Planning/st [Standards]; Child Health Services/og [Organization & Administration]
Creator
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Finlay F; Lewis M; Lenton S; Poon M
Description
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AIM: This paper describes the development of 'a best practice framework', following review of a sample of notes of children known to the Lifetime Service, where the child has a non-malignant life limiting condition, to improve child and family engagement in the planning process at the end of life., BACKGROUND: There is very little literature about how to engage with families to decide end of life plans for children with life limiting conditions., METHOD: An audit of clinical case notes was followed by the development of 'a best practice framework' through a Delphi process involving clinical practitioners., RESULTS: The 3 x 3 framework is presented to aid communication with parents and children at this difficult time of decision-making., CONCLUSION: This new framework has been well received by both parents and practitioners, and its use will be audited in the future.
2008
Identifier
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<a href="http://doi.org/10.1111/j.1365-2214.2008.00843.x" target="_blank" rel="noreferrer">10.1111/j.1365-2214.2008.00843.x</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Adolescent
Advance Care Planning/st [Standards]
Attitude To Death
Backlog
Child
Child Health Services/og [organization & Administration]
Child: Care, Health and Development
Decision Making
Delphi Technique
DNAR
Finlay F
Humans
Infant
Journal Article
Lenton S
Lewis M
Palliative Care/st [standards]
Parent-child Relations
Poon M
Preschool
Terminal Care/st [standards]
Time Factors