1
40
56
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Title
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March 2024 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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March List 2024
URL Address
<a href="http://doi.org/10.1017/S1478951523001852" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1017/S1478951523001852</a>
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Title
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Reiki intervention for supporting healthcare professional care behaviors in pediatric palliative care: A pilot study
Publisher
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Palliative and Supportive Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
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burnout; care behavior; health care personnel; palliative therapy; psychologist; Reiki; alternative medicine; article; child; child psychology; clinical practice; clinical psychology; controlled study; diastolic blood pressure; emotional stress; heart rate; human; Italy; nurse; oxygen saturation; Palliative Care; Pilot Projects; pilot study; self care; special situation for pharmacovigilance; systolic blood pressure; work environment; workplace
Creator
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Zucchetti G; Ciappina S; Bottigelli C; Campione G; Parrinello A; Piu P; Lijoi S; Quarello P; Fagioli F
Description
An account of the resource
OBJECTIVES: Pediatric healthcare professionals (HCPs) working in a palliative setting may experience challenges during their clinical practice in addressing the complex end-of-life phase of children and their families. Nurses, especially, have a frontline role in providing assistance, thereby becoming at risk of physical and psychological burden. Pediatric psychologists have an ethical responsibility to help colleagues by proposing self-care interventions that will improve their well-being and, indirectly, the work climate. This study investigated the impact of a complementary therapy, delivered by a pediatric psychologist and a nurse, on physical and psychological variables among nurses at the Paediatric Hospice of the Regina Margherita Children's Hospital in Italy. <br/>METHOD(S): Thirty-five nurses participated in 5 weeks of Reiki sessions for an overall total of 175 sessions. The effect of the sessions was analyzed through a paired t-test analysis comparing the values of heart rate, oxygen saturation, and systolic and diastolic pressure collected before and after each session. The same test was conducted comparing the values of the 3 burnout subscales for each of the 35 nurses collected before the beginning of the first session with those collected at the end of the last session 2 months later. <br/>RESULT(S): Results underlined a positive short-term effect with a significant decrease in heart rate before and after each session (t = 11.5, p < .001) and in systolic pressure (t = 2, p < .05). In addition, a decrease in emotional exhaustion symptoms was found (t = 2.3, p < .05) at the end of the intervention. SIGNIFICANCE OF RESULTS: Reiki could be a valid strategy to complement traditional pediatric psychology clinical practice designed to protect HCPs from emotional and physical demands and to create a more supportive workplace for staff and patients alike.
Identifier
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<a href="http://doi.org/10.1017/S1478951523001852" target="_blank" rel="noreferrer noopener">10.1017/S1478951523001852</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
alternative medicine
Article
Bottigelli C
Burnout
Campione G
care behavior
Child
Child Psychology
Ciappina S
Clinical Practice
clinical psychology
Controlled Study
diastolic blood pressure
Emotional Stress
Fagioli F
Health Care Personnel
Heart Rate
Human
Italy
Lijoi S
March List 2024
Nurse
oxygen saturation
Palliative And Supportive Care
Palliative Care
Palliative Therapy
Parrinello A
Pilot Projects
Pilot Study
Piu P
Psychologist
Quarello P
Reiki
Self Care
special situation for pharmacovigilance
systolic blood pressure
work environment
Workplace
Zucchetti G
-
Dublin Core
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Title
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September 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September List 2023
URL Address
<a href="http://doi.org/10.14475/jhpc.2023.26.2.51%5C"> http://doi.org/10.14475/jhpc.2023.26.2.51\</a>"
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Current Status of the Pediatric Palliative Care Pilot Project in South Korea Based on the Experience of a Single Center
Publisher
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Journal of Hospice and Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
Palliative Care; Pilot Projects
Creator
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Sun HC; Yeonhee L
Description
An account of the resource
Purpose: We evaluated the status of patients enrolled in South Korea’s pediatric palliative care pilot project based on the experience of a single center. This study examined factors related to end-of-life services and differences in medical costs. Methods: The medical records of 120 patients referred by a pediatric palliative care team were analyzed retrospectively. Data from July 1 to February 28, 2022 were collected and analyzed using the chisquare test and the Mann–Whitney U test. Results: Volunteer programs and psychological support (100%), family support and education (99.2%), and financial support through institutional linkage (62.5%) were provided to the participants. In the deceased group, there were no significant differences in general characteristics, which included age, gender, primary disease, religion, duration of hospitalization in an intensive care unit (ICU) and nonintensive care unit (non-ICU). However, the ICU group had fewer opportunities to access individual pain and physical symptom management than the non-ICU group and there were limitations in linking with external resources. Medical expenses were significantly different for the ICU group, with a 3-times higher average cost than the non-ICU group. Conclusion: Although an individualized approach is needed for each patient in pediatric palliative care, psychosocial care is essential. In addition, if early intervention for end-of-life pediatric patients is available from a palliative care team, the cost burden of medical care for patients and their families should be minimal.
Identifier
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<a href="http://doi.org/10.14475/jhpc.2023.26.2.51%5C">10.14475/jhpc.2023.26.2.51\</a>"
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2023
Journal of Hospice and Palliative Care
Palliative Care
Pilot Projects
September List 2055
Sun HC
Yeonhee L
-
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Title
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June 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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June 2022 List
URL Address
<a href="https://bmcpalliatcare.biomedcentral.com/articles/10.1186/s12904-023-01164-x">https://bmcpalliatcare.biomedcentral.com/articles/10.1186/s12904-023-01164-x</a>
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Title
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A pilot study on sports activities in pediatric palliative care: just do it
Publisher
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BMC Palliative Care
Date
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2023
Subject
The topic of the resource
Palliative Care; child; article; controlled study; female; human; male; caregiver; palliative therapy; quality of life; Pilot Projects; Sports; personal experience; pilot study; juvenile; motor dysfunction; questionnaire; exercise; physical activity; swimming; International Classification of Functioning Disability and Health; mental deficiency
Creator
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Avagnina I; Santini A; Maghini I; Salamon E; Papa S; Giacomelli L; Perilongo G; Agosto C; Benini F
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Identifier
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<a href="https://bmcpalliatcare.biomedcentral.com/articles/10.1186/s12904-023-01164-x">10.1186/s12904-023-01164-x</a>
2023
Agosto C
Article
Avagnina I
Benini F
BMC Palliative Care
Caregiver
Child
Controlled Study
Exercise
Female
Giacomelli L
Human
International Classification of Functioning Disability and Health
June 2022 List
juvenile
Maghini I
Male
mental deficiency
motor dysfunction
Palliative Care
Palliative Therapy
Papa S
Perilongo G
Personal Experience
physical activity
Pilot Projects
Pilot Study
Quality Of Life
Questionnaire
Salamon E
Santini A
Sports
Swimming
-
Dublin Core
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Title
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May 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May List 2023
URL Address
<a href="http://doi.org/10.1017/S1478951523000251" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1017/S1478951523000251</a>
Dublin Core
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Title
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Assessing well-being in pediatric palliative care: A pilot study about views of children, parents and health professionals
Publisher
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Palliative and Supportive Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
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emotional well-being; palliative therapy; pilot study; psychologic assessment; wellbeing; article; child; clinical article; controlled study; cross-sectional study; demography; emotion; female; health practitioner; human; male; Palliative Care; perception; Pilot Projects; school child; vision; visual analog scale
Creator
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Toro-Perez D; Camprodon-Rosanas E; Navarro Vilarrubi S; Bolance C; Guillen M; Limonero JT
Description
An account of the resource
OBJECTIVES: Our research aims to compare the perception that children in the pediatric palliative care setting have of their emotional well-being, or that expressed by the parents, with the perception held by the professionals involved in their care. <br/>METHOD(S): In this cross-sectional study, the emotional well-being of 30 children with a mean age of 10.8 years (standard deviation [SD] = 6.1) is evaluated. Children, or parents where necessary, evaluate their situation with a question about emotional well-being on a 0-10 visual analog scale. For each child, a health professional also rates the child's emotional status using the same scale. <br/>RESULT(S): The average child's emotional well-being score provided by children or parents was 7.1 (SD = 1.6), while the average score given by health professionals was 5.6 (SD = 1.2). Children or parents graded the children's emotional well-being significantly higher than professionals (t-test = 4.6, p-value < .001). Health professionals rated the children's emotional well-being significantly lower when the disease status was progressive than when the disease was not (t-test = 2.2, p-value = .037). SIGNIFICANCE OF RESULTS: Children themselves, or their parents, report more positive evaluations of emotional well-being than health professionals. Sociodemographic and disease variables do not seem to have a direct influence on this perception, rather it is more likely that children, parents, and professionals focus on different aspects and that children or parents need to hold on to a more optimistic vision. We must emphasize that when this difference is more pronounced, it can be a warning sign that further analysis is required of the situation.
Identifier
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<a href="http://doi.org/10.1017/S1478951523000251" target="_blank" rel="noreferrer noopener">10.1017/S1478951523000251</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Article
Bolance C
Camprodon-Rosanas E
Child
Clinical Article
Controlled Study
Cross-sectional Study
Demography
Emotion
emotional well-being
Female
Guillen M
health practitioner
Human
Limonero JT
Male
May List 2023
Navarro Vilarrubi S
Palliative And Supportive Care
Palliative Care
Palliative Therapy
Perception
Pilot Projects
Pilot Study
psychologic assessment
School Child
Toro-Perez D
vision
Visual Analog Scale
Wellbeing
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Dublin Core
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Title
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2021 Special Edition 2 - Oncology
Text
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Citation List Month
2021 Special Edition - Oncology
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2020.03.033" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1016/j.jpainsymman.2020.03.033</a>
Dublin Core
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Title
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A Pilot Study of the Effects of COMPLETE: A Communication Plan Early Through End of Life, on End-of-Life Outcomes in Children With Cancer
Publisher
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Journal of Pain and Symptom Management
Date
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2020
Subject
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child; hospice; Child; Humans; cancer; communication; palliative care; Communication; Terminal Care; Prospective Studies; hospice; Death; Pilot Projects; Hospice Care; goals-of-care; Neoplasms/therapy; cancer; palliative care; communication; Child; goals-of-care
Creator
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Moody KM; Hendricks-Ferguson VL; Baker R; Perkins S; Haase JE
Description
An account of the resource
Context: Most children with cancer die in hospital settings, without hospice, and many suffer from high-intensity medical interventions and pain at end of life (EOL). Objective(s): To examine the effects of COMPLETE: a communication plan early through EOL to increase hospice enrollment in children with cancer at EOL. Method(s): This is a two-phase, single-arm, two-center, and prospective pilot study of hospice enrollment in children with cancer whose parents received COMPLETE. COMPLETE is a series of medical doctor (MD)/registered nurse (RN)-guided discussions of goals of care using visual aids that begin at diagnosis. COMPLETE training for MD/RNs in Phase II was revised to increase their use of empathy. Preintervention/postintervention measurements for child include: time of hospice enrollment, pain, high-intensity medical interventions at EOL, and location of death; and for parent the following: uncertainty and hope. Result(s): Twenty-one parents of 18 children enrolled in the study, and 13 children were followed through EOL. At EOL, 11 (84.6%) died on home hospice or inpatient hospice, and only two (15%) received high-intensity medical interventions. Similar to published findings in the initial 13 parents enrolled in Phase I, parents in Phase II (n = 7) had improvement in hope and uncertainty, and child pain was decreased. Revised training resulted in significant improvement in MD/RN (N = 6) use of empathy (11% in Phase I vs. 100% in Phase II; P = 0.001). Conclusion(s): COMPLETE resulted in increased hospice enrollment in children with cancer at EOL compared with historical controls. In preanalysis/postanalysis, COMPLETE decreased child pain while supporting hope and reducing uncertainty in their parents. Copyright © 2020 American Academy of Hospice and Palliative Medicine
Identifier
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<a href="http://doi.org/10.1016/j.jpainsymman.2020.03.033" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2020.03.033</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
2021 Special Edition - Oncology
Baker R
Cancer
Child
Communication
Death
goals-of-care
Haase JE
Hendricks-Ferguson VL
Hospice
Hospice Care
Humans
Journal of Pain and Symptom Management
Moody KM
Neoplasms/therapy
Palliative Care
Perkins S
Pilot Projects
Prospective Studies
Terminal Care
-
Dublin Core
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Title
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February 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February List 2023
URL Address
<a href="http://doi.org/10.7748/nr.2022.e1849" target="_blank" rel="noreferrer noopener"> http://doi.org/10.7748/nr.2022.e1849</a>
Dublin Core
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Title
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Using mobile phones, WhatsApp and phone interviews to explore how children's hospice nurses manage long-term relationships with parents: a feasibility pilot
Publisher
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Nursing Research
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
Child; Humans; Pilot Projects; Covid-19; Parents; Cell Phone; data collection; interviews; methodology; research; research methods
Creator
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Jane BM; Anstey S; Davies J; Dunn C; Jones A
Description
An account of the resource
BACKGROUND: Mobile phones are familiar to most nurses, but the applications available for voice recording and transfer of audio files in research may not be. AIM: To provide an overview of a pilot study which trialled the use of mobile phones, WhatsApp and phone interviews as a safe and reliable means of collecting data. DISCUSSION: A pilot study was designed to test the use of: mobile phones as a safe and reliable way to record audio diaries as research data; WhatsApp to transmit the audio files; and phone interviews to explore them. Undertaking the pilot demonstrated that the tools proposed for collecting data were useable and acceptable to the target population and that the researcher's guidance for doing so was satisfactory. CONCLUSION: New technologies enable innovation but trialling them for useability is important. Confidentiality and consent need to be carefully managed when using WhatsApp to ensure a study is compliant with data protection regulations. IMPLICATIONS FOR PRACTICE: Collection of research data digitally and remotely has become increasingly mainstream and relied on during the COVID 19 pandemic. The methods discussed in this article provide solutions for timely data collection that are particularly useful when the researcher is geographically distant from participants. The 'in the moment' reflective nature of the audio diaries could also be applicable to non-research settings - for example, as a method of assisting ongoing professional development and/or collection of reflective accounts.
Identifier
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<a href="http://doi.org/10.7748/nr.2022.e1849" target="_blank" rel="noreferrer noopener">10.7748/nr.2022.e1849</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
Anstey S
Cell Phone
Child
COVID-19
Data Collection
Davies J
Dunn C
February List 2023
Humans
Interviews
Jane BM
Jones A
Methodology
Nursing Research
Parents
Pilot Projects
Research
Research Methods
-
Dublin Core
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Title
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February 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February List 2023
URL Address
<a href="http://doi.org/10.1089/jpm.2022.0181" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1089/jpm.2022.0181</a>
Dublin Core
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Title
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Training in Expression of Authentic Condolences in Healthcare: A Pilot Study
Publisher
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Journal of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
Humans;Child; Pilot Projects; Internship and Residency; Curriculum; Communication; Delivery of Health Care; Bereavement; condolence; Education; pediatrics; resident
Creator
An entity primarily responsible for making the resource
Aglio T; Porter A; Bien K; Clark L; Hashmi S; Kaye EC
Description
An account of the resource
Background: Bereaved parents value receiving support from their children's health care teams. Pediatric residents are important members of the teams that care for children at end of life and can play a meaningful role in communication with bereaved families. Yet formal training in expressing condolences is currently lacking. Methods: We applied Kern's six step approach to develop, implement, and evaluate an innovative curriculum aimed at increasing pediatric residents' comfort levels with and practice of condolence expression. Results: Twelve residents participated in the pilot study. Quantitative and qualitative data demonstrate that residents' comfort levels with expressing condolences increased after implementation of the curriculum and that residents appreciated and benefitted from receiving this education. Conclusion: We successfully developed and piloted a condolence expression curriculum that was well received by pediatric residents and led to increased comfort level with expressing condolences. Research is ongoing to determine the full impact of this curriculum.
Identifier
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<a href="http://doi.org/10.1089/jpm.2022.0181" target="_blank" rel="noreferrer noopener">10.1089/jpm.2022.0181</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
Aglio T
Bereavement
Bien K
Child
Clark L
Communication
condolence
Curriculum
Delivery of Health Care
Education
February List 2023
Hashmi S
Humans
Internship And Residency
Journal of Palliative Medicine
Kaye EC
Pediatrics
Pilot Projects
Porter A
Resident
-
Dublin Core
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Title
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October 2021 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2021 List
URL Address
<a href="http://doi.org/10.1111/ppe.12590" target="_blank" rel="noreferrer noopener">http://doi.org/10.1111/ppe.12590</a>
Dublin Core
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Title
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Values clarification: Eliciting the values that inform and influence parents' treatment decisions for periviable birth
Publisher
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Paediatric and Perinatal Epidemiology
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
Attitude to Health; Decision Making; Fetal Viability; Financial Stress; Parents; periviable delivery; Pilot Projects; Pregnancy; Premature Birth; Qualitative Research; Quality of Life; Religion; Resuscitation Orders; Second Trimester Pregnancy; shared decision making; Social Support; values clarification
Creator
An entity primarily responsible for making the resource
Tucker EB; Hoffman SM; Laitano T; Bhamidipalli SS; Jeffries E; Fadel W; Kavanaugh K
Description
An account of the resource
BACKGROUND: Values clarification can assist families facing the threat of periviable delivery in navigating the complexity of competing values related to death, disability, and quality of life (QOL). OBJECTIVE: We piloted values clarification exercises to inform resuscitation decision making and qualitatively assess perceptions of QOL. METHODS: We conducted a mixed-method study of women with threatened periviable delivery (22 0/7-24 6/7 weeks) and their important others (IOs). Participants engaged in three values clarification activities as part of a semi-structured interview-(a) Card sorting nine conditions as an acceptable/unacceptable QOL for a child; (b) Rating/ranking seven common concerns in periviable decision making (scale 0-10, not at all to extremely important); and (c) "Agreed/disagreed" with six statements regarding end-of-life treatment, disability, and QOL. Participants were also asked to define "QOL" and describe their perceptions of a good and poor QOL for their child. Analysis was conducted using SAS version 9.4 and NVivo 12. RESULTS: All mild disabilities were an acceptable QOL, while two-thirds of participants considered long-term mechanical ventilation unacceptable. Although pregnant women rated "Impact on Your Physical/Mental Health" (average 5.6) and IOs rated "Financial Concerns" the highest (average 6.6), both groups ranked "Financial Concerns" as the most important concern (median 5.0 and 6.0, respectively). Most participants agreed that "Any amount of life is better than no life at all" (pregnant women 62.1%; IOs 75.0%) and disagreed that resuscitation would cause "Too much suffering" for their child (pregnant women 71.4%; IOs 80.0%). Half were familiar with the phrase "QOL". Although the majority described a good QOL in terms of emotional well-being (eg "loved", "happy", "supported"), a poor QOL was described in terms of functionality (eg "dependent" and "confined"). Additionally, financial stability emerged as a distinctive theme when IOs discussed poor QOL. CONCLUSION: The study offers important insights on parental perspectives in periviable decision making and potential values clarification tools for decision support.
Identifier
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<a href="http://doi.org/10.1111/ppe.12590" target="_blank" rel="noreferrer noopener">10.1111/ppe.12590</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Attitude To Health
Bhamidipalli SS
Decision Making
Fadel W
fetal viability
Financial Stress
Hoffman SM
Jeffries E
Kavanaugh K
Laitano T
October 2021 List
Paediatric and Perinatal Epidemiology
Parents
periviable delivery
Pilot Projects
Pregnancy
premature birth
Qualitative Research
Quality Of Life
Religion
Resuscitation Orders
Second Trimester Pregnancy
shared decision making
Social Support
Tucker EB
values clarification
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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August 2021 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2021 List
URL Address
<a href="http://doi.org/10.4037/ajcc2020478" target="_blank" rel="noreferrer noopener">http://doi.org/10.4037/ajcc2020478</a>
Dublin Core
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Title
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Navigator-Based Intervention to Support Communication in the Pediatric Intensive Care Unit: A Pilot Study
Publisher
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American Journal of Critical Care
Date
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2020
Subject
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Infant; Adolescent; Child; Preschool Child; Parents/psychology; Emotions; Communication; Family/psychology; Attitude of Health Personnel; Professional-Family Relations; Socioeconomic Factors; Decision Making; Pilot Projects; Patient Discharge; Intensive Care Units Pediatric/organization & administration/standards
Creator
An entity primarily responsible for making the resource
Michelson KN; Charleston E; Aniciete DY; Sorce LR; Fragen P; Persell SD; Ciolino JD; Clayman ML; Rychlik K; Jones V A; Spadino P; Malakooti M; Brown M; White D
Description
An account of the resource
BACKGROUND: Communication in the pediatric intensive care unit (PICU) between families and the health care team affects the family experience, caregiver psychological morbidity, and patient outcomes. OBJECTIVE: To test the feasibility of studying and implementing a PICU communication intervention called PICU Supports, and to assess families' and health care teams' perceptions of the intervention. METHODS: This study involved patients requiring more than 24 hours of PICU care. An interventionist trained in PICU-focused health care navigation, a "navigator," met with parents and the health care team to discuss communication, decision-making, emotional, informational, and discharge or end-of-life care needs; offered weekly family meetings; and checked in with parents after PICU discharge. The feasibility of implementing the intervention was assessed by tracking navigator activities. Health care team and family perceptions were assessed using surveys, interviews, and focus groups. RESULTS: Of 53 families approached about the study, 35 (66%) agreed to participate. The navigator met with parents on 71% and the health care team on 85% of possible weekdays, and completed 86% of the postdischarge check-ins. Family meetings were offered to 95% of eligible patients. The intervention was rated as helpful by 97% of parents, and comments during interviews were positive. CONCLUSIONS: The PICU Supports intervention is feasible to implement and study and is viewed favorably by parents.
Identifier
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<a href="http://doi.org/10.4037/ajcc2020478" target="_blank" rel="noreferrer noopener">10.4037/ajcc2020478</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Adolescent
American Journal of Critical Care
Aniciete DY
Attitude Of Health Personnel
August 2021 List
Brown M
Charleston E
Child
Ciolino JD
Clayman ML
Communication
Decision Making
Emotions
Family/psychology
Fragen P
Infant
Intensive Care Units Pediatric/organization & administration/standards
Jones V A
Malakooti M
Michelson KN
Parents/psychology
Patient Discharge
Persell SD
Pilot Projects
Preschool Child
Professional-family Relations
Rychlik K
Socioeconomic Factors
Sorce LR
Spadino P
White D
-
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Title
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Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
Text
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URL Address
<a href="http://doi.org/10.1002/mds.27129" target="_blank" rel="noreferrer noopener">http://doi.org/10.1002/mds.27129</a>
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The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Clinical rating scale for pantothenate kinase-associated neurodegeneration: A pilot study
Publisher
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Movement Disorders
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Cross-Sectional Studies; Middle Aged; Aged; Young Adult; Child; Humans; Adult; Adolescent; Disabled Persons; Reproducibility of Results; Pilot Projects; Mental Disorders/et [Etiology]; Severity of Illness Index; Dystonia/di [Diagnosis]; Pantothenate Kinase-Associated Neurodegeneration/di [Diagnosis]; Parkinsonian Disorders/di [Diagnosis]; Cognitive Dysfunction/di [Diagnosis]; Cognitive Dysfunction/et [Etiology]; Dystonia/et [Etiology]; Mental Disorders/di [Diagnosis]; Ocular Motility Disorders/di [Diagnosis]; Ocular Motility Disorders/et [Etiology]; Pantothenate Kinase-Associated Neurodegeneration/co [Complications]; Pantothenate Kinase-Associated Neurodegeneration/ge [Genetics]; Parkinsonian Disorders/et [Etiology]; behavior; tone and motor problems; IND; tool development; scale development; PKANDRS;
Creator
An entity primarily responsible for making the resource
Darling A; Tello C; Marti M J; Garrido C; Aguilera-Albesa S; Tomas V M; Gaston I; Madruga M; Gonzalez G L; Ramos L J; Pujol M; Gavilan I T; Tustin K; Lin J P; Zorzi G; Nardocci N; Martorell L; Lorenzo S G; Gutierrez F; Garcia P J; Vela L; Hernandez L C; Ortigoza E J D; Marti S L; Moreira F; Coelho M; Correia G L; Castro C A; Ferreira J; Pires P; Costa C; Rego P; Magalhaes M; Stamelou M; Cuadras P D; Rodriguez-Blazquez C; Martinez-Martin P; Lupo V; Stefanis L; Pons R; Espinos C; Temudo T; Perez D B
Description
An account of the resource
BACKGROUND: Pantothenate kinase-associated neurodegeneration is a progressive neurological disorder occurring in both childhood and adulthood. The objective of this study was to design and pilot-test a disease-specific clinical rating scale for the assessment of patients with pantothenate kinase-associated neurodegeneration. METHODS: In this international cross-sectional study, patients were examined at the referral centers following a standardized protocol. The motor examination was filmed, allowing 3 independent specialists in movement disorders to analyze 28 patients for interrater reliability assessment. The scale included 34 items (maximal score, 135) encompassing 6 subscales for cognition, behavior, disability, parkinsonism, dystonia, and other neurological signs. RESULTS: Forty-seven genetically confirmed patients (30 +/- 17 years; range, 6-77 years) were examined with the scale (mean score, 62 +/- 21; range, 20-106). Dystonia with prominent cranial involvement and atypical parkinsonian features were present in all patients. Other common signs were cognitive impairment, psychiatric features, and slow and hypometric saccades. Dystonia, parkinsonism, and other neurological features had a moderate to strong correlation with disability. The scale showed good internal consistency for the total scale (Cronbach's alpha = 0.87). On interrater analysis, weighted kappa values (0.30-0.93) showed substantial or excellent agreement in 85% of the items. The scale also discriminated a subgroup of homozygous c.1583C>T patients with lower scores, supporting construct validity for the scale. CONCLUSIONS: The proposed scale seems to be a reliable and valid instrument for the assessment of pediatric and adult patients with pantothenate kinase-associated neurodegeneration. Additional validation studies with a larger sample size will be required to confirm the present results and to complete the scale validation testing. © 2017 International Parkinson and Movement Disorder Society.
Identifier
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<a href="http://doi.org/10.1002/mds.27129" target="_blank" rel="noreferrer noopener">10.1002/mds.27129</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Adolescent
Adult
Aged
Aguilera-Albesa S
Behavior
Castro C A
Child
Coelho M
Cognitive Dysfunction/di [Diagnosis]
Cognitive Dysfunction/et [Etiology]
Correia G L
Costa C
Cross-sectional Studies
Cuadras P D
Darling A
Disabled Persons
dystonia/di [Diagnosis]
Dystonia/et [Etiology]
Espinos C
Ferreira J
Garcia P J
Garrido C
Gaston I
Gavilan I T
Gonzalez G L
Gutierrez F
Hernandez L C
Humans
IND
Lin J P
Lorenzo S G
Lupo V
Madruga M
Magalhaes M
Marti M J
Marti S L
Martinez-Martin P
Martorell L
Mental Disorders/di [Diagnosis]
Mental Disorders/et [Etiology]
Middle Aged
Moreira F
Movement Disorders
Nardocci N
Ocular Motility Disorders/di [Diagnosis]
Ocular Motility Disorders/et [Etiology]
Ortigoza E J D
Pantothenate Kinase-Associated Neurodegeneration/co [Complications]
Pantothenate Kinase-Associated Neurodegeneration/di [Diagnosis]
Pantothenate Kinase-Associated Neurodegeneration/ge [Genetics]
Parkinsonian Disorders/di [Diagnosis]
Parkinsonian Disorders/et [Etiology]
Perez D B
Pilot Projects
Pires P
PKANDRS
Pons R
Pujol M
Ramos L J
Rego P
Reproducibility of Results
Rodriguez-Blazquez C
scale development
Severity Of Illness Index
Stamelou M
Stefanis L
Tello C
Temudo T
Tomas V M
tone and motor problems
tool development
Tustin K
Vela L
Young Adult
Zorzi G
-
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Title
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September 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2019 List
URL Address
<a href="http://doi.org/10.1177/1049909119844519" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/1049909119844519</a>
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Title
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Early Identification of Pediatric Neurology Patients With Palliative Care Needs: A Pilot Study
Publisher
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American Journal of Hospice and Palliative Medicine®
Date
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2019
Subject
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patient care; pediatrics; palliative care; pilot projects; neurology; interdisciplinary research
Creator
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Lyons-Warren AM; Stowe RC; Emrick L; Jarrell JA
Description
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Palliative care services are beneficial for pediatric neurology patients with chronic, life-limiting illnesses. However, timely referral to palliative care may be impeded due to an inability to identify appropriate patients. The aim of this pilot case–control study was to test a quantitative measure for identifying patients with unmet palliative care needs to facilitate appropriate referrals. First, a random subset of pediatric neurology patients were screened for number of hospital admissions, emergency center visits, and problems on the problem list. Screening results led to the hypothesis that having six or more hospital admissions in one year indicated unmet palliative care needs. Next, hospital admissions in the past year were counted for all patients admitted to the neurology service during a six-month period. Patients with six or more admissions as well as age- and gender-matched controls were assessed for unmet palliative care needs. In hospitalized pediatric neurology patients, having six or more admissions in the preceding year did not predict unmet palliative care needs. While this pilot study did not find a quantitative measure that identifies patients needing a palliative care consultation, the negative finding highlights an important distinction between unmet social needs that interfere with care and unmet palliative care needs. Further, the method of screening patients used in this study was simple to implement and provides a framework for future studies.
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<a href="http://doi.org/10.1177/1049909119844519" target="_blank" rel="noreferrer noopener">10.1177/1049909119844519</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
American Journal of Hospice and Palliative Medicine®
Emrick L
interdisciplinary research
Jarrell JA
Lyons-Warren AM
Neurology
Palliative Care
Patient Care
Pediatrics
Pilot Projects
September 2019 List
Stowe RC
-
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Title
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April 2019 List
Text
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Citation List Month
April 2019 List
URL Address
<a href="http://doi.org/10.1136/archdischild-2017-312731" target="_blank" rel="noreferrer noopener">http://doi.o rg/10.1136/archdischild-2017-312731</a>
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Title
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Individualised advance care planning in children with life-limiting conditions
Publisher
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Archives of Disease in Childhood
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
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Child Health Services/og [Organization & Administration]; Palliative Care/og [Organization & Administration]; Netherlands; Palliative Care/st [Standards]; Quality of Health Care; Male; Practice Guidelines as Topic; Advance Care Planning/og [Organization & Administration]; Parents/px [Psychology]; Child; Humans; Palliative Care/px [Psychology]; Female; Attitude to Health; Pilot Projects; Advance Care Planning/st [Standards]; Child Health Services/st [Standards]; Evidence-Based Medicine/mt [Methods]; Patient Satisfaction/sn [Statistics & Numerical Data]
Creator
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Loeffen EAH; Tissing WJE; Schuiling-Otten MA; de Kruiff CC; Kremer L C M; Verhagen AA; Pediatric Palliative Care-Individualized Care Plan Working Group
Description
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INTRODUCTION: In 2013, the Pediatric Association of the Netherlands launched an evidence-based guideline 'Palliative care for children'. To promote implementation in daily practice and hereby improve quality of paediatric palliative care, we aimed to develop a functional individualised paediatric palliative care plan (IPPCP) that covers physical, psychological, spiritual and social functioning, with great emphasis on the guideline's recommendations, advance care planning and patients' and parents' preferences and desires. METHODS: A Dutch working group (28 individuals) with a strong multidisciplinary character developed a draft IPPCP, which was piloted retrospectively and prospectively. In the pilots we completed, the IPPCPs for patients who were recently diagnosed with a life-threatening or life-limiting condition and evaluated completeness, usability and user-friendliness. RESULTS: The final IPPCP comprised five domains: (1) IPPCP data, (2) basics, (3) social, (4) psychosocial and spiritual and (5) physical care. Each domain covered various components. In both pilots, the IPPCP was considered a comprehensive document that covered all areas of paediatric palliative care and was experienced as an improvement to the present situation. However, the current form was regarded to lack user-friendliness. CONCLUSION: We propose a set of essential components of a comprehensive IPPCP for paediatric palliative care with extra attention for advance care planning and anticipatory action. Patients' and parents' preferences and desires are included next to the recommendations of the evidence-based guideline 'Palliative care for children'.
Identifier
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<a href="http://doi.org/10.1136/archdischild-2017-312731" target="_blank" rel="noreferrer noopener">10.1136/archdischild-2017-312731</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Advance Care Planning/og [Organization & Administration]
Advance Care Planning/st [Standards]
April 2019 List
Archives of Disease in Childhood
Attitude To Health
Child
Child Health Services/og [organization & Administration]
Child Health Services/st [Standards]
de Kruiff CC
Evidence-Based Medicine/mt [Methods]
Female
Humans
Kremer L C M
Loeffen EAH
Male
Netherlands
Palliative Care/og [Organization & Administration]
Palliative Care/px [psychology]
Palliative Care/st [standards]
Parents/px [psychology]
Patient Satisfaction/sn [Statistics & Numerical Data]
Pediatric Palliative Care-Individualized Care Plan Working Group
Pilot Projects
Practice Guidelines As Topic
Quality Of Health Care
Schuiling-Otten MA
Tissing WJE
Verhagen AA
-
Dublin Core
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Title
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April 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April 2018 List
URL Address
<a href="http://doi.org/10.1017/s1478951517001237" target="_blank" rel="noreferrer noopener">http://doi.org/10.1017/s1478951517001237</a>
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Title
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A cross-sectional pilot study of compassion fatigue (CF), burnout (BO), and compassion satisfaction (CS) in pediatric palliative care (PPC) providers in the United States
Publisher
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Palliative and Supportive Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
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Fatigue; Palliative Care; Pilot Projects; United States; burnout; pediatric palliative care; Cesarean Section; Compassion fatigue; compassion satisfaction
Creator
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Kase SM; Waldman ED; Weintraub AS
Description
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OBJECTIVE: Compassion fatigue (CF) is secondary traumatic distress experienced by providers from contact with patients' suffering. Burnout (BO) is job-related distress resulting from uncontrollable workplace factors that manifest in career dissatisfaction. Compassion satisfaction (CS) is emotional fulfillment derived from caring for others. The literature on BO in healthcare providers is extensive, whereas CF and CS have not been comprehensively studied. Because of ongoing exposure to patient and family distress, pediatric palliative care (PPC) providers may be at particular risk for CF. We conducted a cross-sectional pilot study of CF, BO, and CS among PPC providers across the United States. METHOD: The Compassion Fatigue and Satisfaction Self-Test for Helpers and a questionnaire of professional and personal characteristics were distributed electronically and anonymously to PPC physicians and nurses. Logistic and linear regression models for CF, BO, and CS as a function of potential risk factors were constructed. RESULTS: The survey response rate was 39%, primarily consisting of female, Caucasian providers. The prevalence of CF, BO, and CS was 18%, 12%, and 25%, respectively. Distress about a "clinical situation," physical exhaustion, and personal loss were identified as significant determinants of CF. Distress about "coworkers," emotional depletion, social isolation, and "recent involvement in a clinical situation in which life-prolonging activities were not introduced" were significant determinants of BO. Physical exhaustion, personal history of trauma, "recent involvement in a clinical situation in which life-prolonging activities were not introduced," and not discussing distressing issues were significant predictors of lower CS scores. Significance of results CF and BO directly influence the well-being and professional performance of PPC providers. To provide effective compassionate care to patients, PPC providers must be attentive to predictors of these phenomena. Further work is needed to explore additional causes of CF, BO, and CS in PPC providers as well as potential interventions.
Identifier
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<a href="http://doi.org/10.1017/s1478951517001237" target="_blank" rel="noreferrer noopener">10.1017/s1478951517001237</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
April 2018 List
Burnout
Cesarean Section
Compassion Fatigue
compassion satisfaction
Fatigue
Kase SM
Palliative And Supportive Care
Palliative Care
Pediatric Palliative Care
Pilot Projects
United States
Waldman ED
Weintraub AS
-
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Title
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April 2018 List
Text
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Citation List Month
April 2018 List
URL Address
<a href="http://doi.org/10.1002/pbc.26089" target="_blank" rel="noreferrer noopener">http://doi.org/10.1002/pbc.26089</a>
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Title
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Going Straight to the Source: A Pilot Study of Bereaved Parent-facilitated Communication Training for Pediatric Subspecialty Fellows
Publisher
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Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
Bereavement; Pilot Projects
Creator
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Snaman JM; Kaye E; Cunningham MJ; Sykes A; Levine DR; Mahoney D; Baker JN
Description
An account of the resource
BACKGROUND: Medical trainees consistently report suboptimal instruction and poor self-confidence in communication skills. Despite this deficit, few established training programs provide comprehensive, pediatric-specific communication education, particularly in the provision of "bad news." To our knowledge, no programs currently use bereaved parent educators to facilitate communication training for pediatric subspecialty trainees. PROCEDURE: The authors designed and implemented a pilot communication training seminar in which bereaved parent educators and faculty facilitators led small groups in interactive, role-play scenarios. Surveys incorporating a retrospective preprogram assessment item to account for response-shift bias were used to assess short- and long-term changes in trainee comfort with delivering "bad news." RESULTS: Fifteen pediatric fellowship trainees participated in the communication seminar; complete data were available for 12 participants. After accounting for response-shift bias, participants reported significant improvement in overall preparedness, breaking bad news to a patient and family, and including the adolescent or young adult patient in conversations. Additionally, participants reported a significant improvement in their ability to address a patient and family's need for information, emotional suffering at the end of life (EOL), if and when a patient should be included in the conversation, and EOL care decisions. The participant's self-perceived improvement in comfort and preparedness persisted over time. CONCLUSIONS: Communication training for pediatric subspecialty trainees using bereaved parent educators is feasible and effective. Both medical trainee and bereaved parent participants benefited from involvement in this pilot study. Further iterations of this training will be modified to assess objective measures of improvement in trainees' communication skills.
Identifier
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<a href="http://doi.org/10.1002/pbc.26089" target="_blank" rel="noreferrer noopener">10.1002/pbc.26089</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
April 2018 List
Baker JN
Bereavement
Cunningham MJ
Kaye E
Levine DR
Mahoney D
Pediatrics
Pilot Projects
Snaman JM
Sykes A
-
Dublin Core
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April 2018 List
Text
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Citation List Month
April 2018 List
URL Address
<a href="http://doi.org/10.1186/s12904-018-0274-8" target="_blank" rel="noreferrer noopener">http://doi.org/10.1186/s12904-018-0274-8</a>
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Title
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Barriers and facilitators to the implementation of a paediatric palliative care team
Publisher
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BMC Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
health care personnel; palliative therapy; Child; Only Child; Palliative Care; Pilot Projects; human experiment; major clinical study; pilot study; expectation; concrete; child; human; female; male; pediatrics; article; awareness; patient satisfaction; tertiary health care
Creator
An entity primarily responsible for making the resource
Verberne LM; Kars MC; Schepers SA; Schouten-Van Meeteren AYN; Grootenhuis MA; Van Delden JJM
Description
An account of the resource
Background: Over the last decade, paediatric palliative care teams (PPCTs) have been introduced to support children with life-limiting diseases and their families and to ensure continuity, coordination and quality of paediatric palliative care (PPC). However, implementing a PPCT into an organisation is a challenge. The objective of this study was to identify barriers and facilitators reported by healthcare professionals (HCPs) in primary, secondary or tertiary care for implementing a newly initiated multidisciplinary PPCT to bridge the gap between hospital and home. Methods: The Measurement Instrument for Determinants of Innovations (MIDI) was used to assess responses of 71 HCPs providing PPC to one or more of the 129 children included in a pilot study of a PPCT based at a university children's hospital. The MIDI (29 items) assessed barriers and facilitators to implementing the PPCT by using a 5-point scale (completely disagree to completely agree) and additional open-ended questions. Items to which >=20% of participants responded with 'totally disagree/disagree' and >=80% responded with 'agree/totally agree' were considered as barriers and facilitators, respectively. A general inductive approach was used for open-ended questions. Results: Reported barriers to implementing a PPCT were related to the HCP's own organisation (e.g., no working arrangements related to use of the intervention [PPCT] registered, other organisational changes such as merger going on). Reported facilitators were mainly related to the intervention (correctness, simplicity, observability and relevancy) and the user scale (positive outcome expectations, patient satisfaction) and only once to the organisation scale (information accessibility). Additionally, HCPs expressed the need for clarity about tasks of the PPCT and reported having made a transition from feeling threatened by the PPCT to satisfaction about the PPCT. Conclusion: Positive experiences with the PPCT are a major facilitator for implementing a PPCT. Tailored organisational strategies such as working arrangements by management, concrete information about the PPCT itself and the type of support provided by the PPCT should be clearly communicated to involved HCPs to increase awareness about benefits of the PPCT and ensure a successful implementation. New PPCTs need protection and resources in their initial year to develop into experienced and qualified PPCTs.
Identifier
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<a href="http://doi.org/10.1186/s12904-018-0274-8" target="_blank" rel="noreferrer noopener">10.1186/s12904-018-0274-8</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
April 2018 List
Article
Awareness
BMC Palliative Care
Child
concrete
Expectation
Female
Grootenhuis MA
Health Care Personnel
Human
Human Experiment
Kars MC
Major Clinical Study
Male
Only Child
Palliative Care
Palliative Therapy
Patient Satisfaction
Pediatrics
Pilot Projects
Pilot Study
Schepers SA
Schouten-Van Meeteren AYN
tertiary health care
van Delden JJM
Verberne LM
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1200/JCO.2013.51.5981" target="_blank" rel="noreferrer">http://doi.org/10.1200/JCO.2013.51.5981</a>
<a href="http://jco.ascopubs.org/content/early/2014/03/10/JCO.2013.51.5981" target="_blank" rel="noreferrer">http://jco.ascopubs.org/content/early/2014/03/10/JCO.2013.51.5981</a>
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Title
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Improving the Care of Children With Advanced Cancer by Using an Electronic Patient-Reported Feedback Intervention: Results From the PediQUEST Randomized Controlled Trial
Publisher
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Journal Of Clinical Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
Child; Female; Humans; Male; Palliative Care; Neoplasms; Treatment Outcome; Electronic Health Records; Pilot Projects; Symptom Assessment; Feedback; Intervention Studies; Sickness Impact Profile; quality of life; Preschool
Creator
An entity primarily responsible for making the resource
Wolfe J; Orellana L; Cook EF; Ullrich CK; Kang TI; Geyer JR; Feudtner C; Weeks Jane C; Dussel V
Description
An account of the resource
Purpose This study aimed to determine whether feeding back patient-reported outcomes (PROs) to providers and families of children with advanced cancer improves symptom distress and health-related quality of life (HRQoL). Patients and Methods This study was a parallel, multicentered pilot randomized controlled trial. At most once per week, children age ≥ 2 years old with advanced cancer or their parent completed the computer-based Pediatric Quality of Life and Evaluation of Symptoms Technology (PediQUEST) survey consisting of age- and respondent-adapted versions of the Memorial Symptom Assessment Scale (MSAS), Pediatric Quality of Life Inventory 4.0 Generic Core Scales (PedsQL4.0), and an overall Sickness question. In the intervention group (n = 51), oncologists and families received printed reports summarizing PROs; e-mails were sent to oncologists and subspecialists when predetermined scores were exceeded. No feedback was provided in the control group (n = 53). Primary outcomes included linear trends of MSAS, PedsQL4.0 total and subscale scores, and Sickness scores during 20 weeks of follow-up, along with child, parent, and provider satisfaction with PediQUEST feedback. Results Feedback did not significantly affect average MSAS, PedsQL4.0, or Sickness score trends. Post hoc subgroup analyses among children age ≥ 8 years who survived 20 weeks showed that feedback improved PedsQL4.0 emotional (+8.1; 95% CI, 1.8 to 14.4) and Sickness (−8.2; 95% CI, −14.2 to −2.2) scores. PediQUEST reports were valued by children, parents, and providers and contributed at least sometimes to physician initiation of a psychosocial consult (56%). Conclusion Although routine feedback of PROs did not significantly affect the child’s symptoms or HRQoL, changes were in expected directions and improvements observed in emotional HRQoL through exploratory analyses were encouraging. Importantly, children, parents, and providers value PRO feedback.
2014-03
Identifier
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<a href="http://doi.org/10.1200/JCO.2013.51.5981" target="_blank" rel="noreferrer">10.1200/JCO.2013.51.5981</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Backlog
Child
Cook EF
Dussel V
Electronic Health Records
Feedback
Female
Feudtner C
Geyer JR
Humans
Intervention Studies
Journal Article
Journal Of Clinical Oncology
Kang TI
Male
Neoplasms
Orellana L
Palliative Care
Pilot Projects
Preschool
Quality Of Life
Sickness Impact Profile
Symptom Assessment
Treatment Outcome
Ullrich CK
Weeks Jane C
Wolfe J
-
Text
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Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/1357633X13506513" target="_blank" rel="noreferrer">http://doi.org/10.1177/1357633X13506513</a>
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Title
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Case study: the Interact Home Telehealth Project
Publisher
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Journal Of Telemedicine And Telecare
Date
A point or period of time associated with an event in the lifecycle of the resource
2013
Subject
The topic of the resource
adolescent; Child; Female; Humans; infant; Male; Young Adult; home care services; Pediatrics; Adult; Attitude of Health Personnel; New South Wales; Aged; Middle Aged; Pilot Projects; Patient Satisfaction; Telemedicine; Computers; Palliative Care; Preschool; Brain Injuries; Monitoring; health promotion; Stroke; Ambulatory; Handheld
Creator
An entity primarily responsible for making the resource
Katalinic O; Young A; Doolan D
Description
An account of the resource
Two home telehealth technologies (the Intel Health Guide and the Apple iPad) were trialled by four clinical services of the Hunter New England Local Health District. The iPad was selected by the Paediatric Palliative Care Service, the Stroke Service and the Brain Injury Rehabilitation Service. The Intel Health Guide was selected by the Cardiac Coaching Service. The telehealth devices were loaned to a total of 102 patients for different lengths of time, depending on clinical needs, but typically for about 3 months. A total of 42 clinicians were involved. During the trial, 16 technical problems were recorded and resolved, most concerning problems with connectivity. Nonetheless, the use of home telehealth technologies was positively received by clinicians, management and patients alike. Telehealth is now being integrated into the standard practices of the health district.
2013-10
Identifier
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<a href="http://doi.org/10.1177/1357633X13506513" target="_blank" rel="noreferrer">10.1177/1357633X13506513</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2013
Adolescent
Adult
Aged
Ambulatory
Attitude Of Health Personnel
Backlog
Brain Injuries
Child
Computers
Doolan D
Female
Handheld
Health Promotion
home care services
Humans
Infant
Journal Article
Journal Of Telemedicine And Telecare
Katalinic O
Male
Middle Aged
Monitoring
New South Wales
Palliative Care
Patient Satisfaction
Pediatrics
Pilot Projects
Preschool
Stroke
Telemedicine
Young A
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1007/s10545-007-0426-0" target="_blank" rel="noreferrer">http://doi.org/10.1007/s10545-007-0426-0</a>
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Title
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Mitochondrial disease: needs and problems of children, their parents and family. A systematic review and pilot study into the need for information of parents during the diagnostic phase.
Publisher
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Journal Of Inherited Metabolic Disease
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Child; Humans; Adult; Parent-Child Relations; Interviews as Topic; Questionnaires; Pilot Projects; Research Design; Longitudinal Studies; Patient Selection; Reproducibility of Results; Mitochondrial Diseases/diagnosis/psychology; Parents/education
Creator
An entity primarily responsible for making the resource
Noorda G; Hermans-Peters M; Smeitink JA; van Achterberg T; Kemps H; Goverde W; Schoonhoven L
Description
An account of the resource
OBJECTIVE: Firstly, this paper aims to systematically review the mitochondrial disease literature to identify studies assessing the needs and problems in the daily life of children with a mitochondrial disease and of their parents and family. The second aim is to provide more insight into the need for information by the parents of these children during the diagnostic process while in hospital. DESIGN: A systematic review and a pilot study, using a qualitative (focus group interviews; n = 7) and a quantitative (questionnaire; n = 37) design. RESULTS: Mothers reported great socioeconomic and psychoaffective strain and showed psychopathological symptoms in the two studies published with respect to this topic. The pilot study showed that parents considered an honest and interested attitude of the person who is giving the information as most important. Furthermore they wanted oral and written information and a central point where they could go with their questions at any time they felt the need. The need for information increased during the four phases of the diagnostic process and was highest in the fourth phase. CONCLUSIONS: The few studies found in the review, combined with expectations that having a mitochondrial disease must have a great impact on these children and their parents and family, call for more research in their needs and problems. Furthermore, there are gaps in the current information provision to parents of these children. A better understanding of the needs and problems of these children and their family is essential for effective care planning and might result in an improved quality of life.
2007
Identifier
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<a href="http://doi.org/10.1007/s10545-007-0426-0" target="_blank" rel="noreferrer">10.1007/s10545-007-0426-0</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
Adult
Backlog
Child
Goverde W
Hermans-Peters M
Humans
Interviews As Topic
Journal Article
Journal Of Inherited Metabolic Disease
Kemps H
Longitudinal Studies
Mitochondrial Diseases/diagnosis/psychology
Noorda G
Parent-child Relations
Parents/education
Patient Selection
Pilot Projects
Questionnaires
Reproducibility of Results
Research Design
Schoonhoven L
Smeitink JA
van Achterberg T
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1186/1471-2288-10-1" target="_blank" rel="noreferrer">http://doi.org/10.1186/1471-2288-10-1</a>
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Title
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A tutorial on pilot studies: the what, why and how
Publisher
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Bmc Medical Research Methodology
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Humans; Pilot Projects; Randomized Controlled Trials as Topic; Clinical Trials; Research Design/standards; Phase III as Topic/methods
Creator
An entity primarily responsible for making the resource
Thabane L; Ma J; Chu R; Cheng J; Ismaila A; Rios LP; Robson R; Thabane M; Giangregorio L; Goldsmith CH
Description
An account of the resource
Pilot studies for phase III trials - which are comparative randomized trials designed to provide preliminary evidence on the clinical efficacy of a drug or intervention - are routinely performed in many clinical areas. Also commonly know as "feasibility" or "vanguard" studies, they are designed to assess the safety of treatment or interventions; to assess recruitment potential; to assess the feasibility of international collaboration or coordination for multicentre trials; to increase clinical experience with the study medication or intervention for the phase III trials. They are the best way to assess feasibility of a large, expensive full-scale study, and in fact are an almost essential pre-requisite. Conducting a pilot prior to the main study can enhance the likelihood of success of the main study and potentially help to avoid doomed main studies. The objective of this paper is to provide a detailed examination of the key aspects of pilot studies for phase III trials including: 1) the general reasons for conducting a pilot study; 2) the relationships between pilot studies, proof-of-concept studies, and adaptive designs; 3) the challenges of and misconceptions about pilot studies; 4) the criteria for evaluating the success of a pilot study; 5) frequently asked questions about pilot studies; 7) some ethical aspects related to pilot studies; and 8) some suggestions on how to report the results of pilot investigations using the CONSORT format.
2010
Identifier
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<a href="http://doi.org/10.1186/1471-2288-10-1" target="_blank" rel="noreferrer">10.1186/1471-2288-10-1</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Backlog
Bmc Medical Research Methodology
Cheng J
Chu R
Clinical Trials
Giangregorio L
Goldsmith CH
Humans
Ismaila A
Journal Article
Ma J
Phase III as Topic/methods
Pilot Projects
Randomized Controlled Trials as Topic
Research Design/standards
Rios LP
Robson R
Thabane L
Thabane M
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1186/1471-2288-10-67" target="_blank" rel="noreferrer">http://doi.org/10.1186/1471-2288-10-67</a>
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Title
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What is a pilot or feasibility study? A review of current practice and editorial policy
Publisher
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Bmc Medical Research Methodology
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Humans; Pilot Projects; Feasibility Studies; Statistical; methods; Data Interpretation; Editorial Policies
Creator
An entity primarily responsible for making the resource
Arain M; Campbell MJ; Cooper CL; Lancaster GA
Description
An account of the resource
BACKGROUND: In 2004, a review of pilot studies published in seven major medical journals during 2000-01 recommended that the statistical analysis of such studies should be either mainly descriptive or focus on sample size estimation, while results from hypothesis testing must be interpreted with caution. We revisited these journals to see whether the subsequent recommendations have changed the practice of reporting pilot studies. We also conducted a survey to identify the methodological components in registered research studies which are described as 'pilot' or 'feasibility' studies. We extended this survey to grant-awarding bodies and editors of medical journals to discover their policies regarding the function and reporting of pilot studies. METHODS: Papers from 2007-08 in seven medical journals were screened to retrieve published pilot studies. Reports of registered and completed studies on the UK Clinical Research Network (UKCRN) Portfolio database were retrieved and scrutinized. Guidance on the conduct and reporting of pilot studies was retrieved from the websites of three grant giving bodies and seven journal editors were canvassed. RESULTS: 54 pilot or feasibility studies published in 2007-8 were found, of which 26 (48%) were pilot studies of interventions and the remainder feasibility studies. The majority incorporated hypothesis-testing (81%), a control arm (69%) and a randomization procedure (62%). Most (81%) pointed towards the need for further research. Only 8 out of 90 pilot studies identified by the earlier review led to subsequent main studies. Twelve studies which were interventional pilot/feasibility studies and which included testing of some component of the research process were identified through the UKCRN Portfolio database. There was no clear distinction in use of the terms 'pilot' and 'feasibility'. Five journal editors replied to our entreaty. In general they were loathe to publish studies described as 'pilot'. CONCLUSION: Pilot studies are still poorly reported, with inappropriate emphasis on hypothesis-testing. Authors should be aware of the different requirements of pilot studies, feasibility studies and main studies and report them appropriately. Authors should be explicit as to the purpose of a pilot study. The definitions of feasibility and pilot studies vary and we make proposals here to clarify terminology.
2010
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/1471-2288-10-67" target="_blank" rel="noreferrer">10.1186/1471-2288-10-67</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Arain M
Backlog
Bmc Medical Research Methodology
Campbell MJ
Cooper CL
Data Interpretation
Editorial Policies
Feasibility Studies
Humans
Journal Article
Lancaster GA
Methods
Pilot Projects
statistical
-
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Title
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PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.12968/ijpn.2008.14.5.29492" target="_blank" rel="noreferrer">http://doi.org/10.12968/ijpn.2008.14.5.29492</a>
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Title
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Families' transition to a Canadian paediatric hospice. Part one: planning a pilot study
Publisher
An entity responsible for making the resource available
International Journal Of Palliative Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Child; Humans; Palliative Care; Pediatrics; Canada; Health Planning; Health Services Needs and Demand; Pilot Projects; NET CV; Hospices/organization & administration
Creator
An entity primarily responsible for making the resource
Steele R; Derman S; Cadell S; Davies B; Siden H; Straatman L
Description
An account of the resource
This article describes the rationale for planning and conducting a qualitative pilot study about families' transition to a Canadian paediatric hospice. Discussion includes: background information and a literature review pertinent to the study; debate around the term 'hospice' versus 'palliative care'; the different and unique needs of children requiring a palliative approach compared with adult hospice patients; and information about planning and beginning the study, including the rationale for a pilot, details about the study site, recruitment and procedures, and data collection and analysis. The results from the pilot study, as well as implications for practice and research are reported in part two.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.12968/ijpn.2008.14.5.29492" target="_blank" rel="noreferrer">10.12968/ijpn.2008.14.5.29492</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Backlog
Cadell S
Canada
Child
Davies B
Derman S
Health Planning
Health Services Needs And Demand
Hospices/organization & administration
Humans
International Journal of Palliative Nursing
Journal Article
NET CV
Palliative Care
Pediatrics
Pilot Projects
Siden H
Steele R
Straatman L
-
Dublin Core
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Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.12968/ijpn.2008.14.6.30024" target="_blank" rel="noreferrer">http://doi.org/10.12968/ijpn.2008.14.6.30024</a>
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The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Families' transition to a Canadian paediatric hospice. Part two: results of a pilot study
Publisher
An entity responsible for making the resource available
International Journal Of Palliative Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Child; Female; Humans; Male; Canada; Pilot Projects; Patient Acceptance of Health Care; Research Design; Feasibility Studies; Hospices; Hospitals; Respite Care; Pediatric; adolescent; Preschool; infant; Parents/psychology; NET CV; Health Services Research/methods; Catastrophic Illness
Creator
An entity primarily responsible for making the resource
Steele R; Derman S; Cadell S; Davies B; Siden H; Straatman L
Description
An account of the resource
The results from a pilot study are reported in this article, part two of a two-part paper. The experiences of parents (six mothers and two fathers) are described as their families transitioned to the Canuck Place Children's Hospice (CPHC) in Canada. The perspectives of non-hospice health care professionals (n=4) involved in the child's care are explored. Data were gathered through audio-taped, semi-structured interviews. Initially, parents and health professionals were unaware that the hospice provided more than just end-of-life services. Parents began to consider hospice care when something changed in their lives that forced them to see things differently. This became the impetus for recognizing that CPCH might be a resource for their family. The prospect of respite care was usually the deciding factor in applying to the hospice. Parents reported benefits of hospice respite for themselves and the whole family. Recommendations for practice and future research are offered, including discussion about the feasibility of the study procedures.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.12968/ijpn.2008.14.6.30024" target="_blank" rel="noreferrer">10.12968/ijpn.2008.14.6.30024</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Adolescent
Backlog
Cadell S
Canada
Catastrophic Illness
Child
Davies B
Derman S
Feasibility Studies
Female
Health Services Research/methods
Hospices
Hospitals
Humans
Infant
International Journal of Palliative Nursing
Journal Article
Male
NET CV
Parents/psychology
Patient Acceptance of Health Care
Pediatric
Pilot Projects
Preschool
Research Design
Respite Care
Siden H
Steele R
Straatman L
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1007/s00520-005-0815-6" target="_blank" rel="noreferrer">http://doi.org/10.1007/s00520-005-0815-6</a>
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Title
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Experience in the use of the palliative care outcome scale.
Publisher
An entity responsible for making the resource available
Supportive Care In Cancer : Official Journal Of The Multinational Association Of Supportive Care In Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Female; Humans; Male; Great Britain; Adult; Questionnaires; Aged; Middle Aged; Pilot Projects; Cancer Care Facilities; Medical Oncology; quality of life; 80 and over; DNAR; Palliative Care/px [Psychology]; Patient Satisfaction; Treatment Outcome
Creator
An entity primarily responsible for making the resource
Stevens A-M; Gwilliam B; A'hern R; Broadley K; Hardy J
Description
An account of the resource
GOALS OF WORK: The objective of the study is to assess the Palliative Care Outcome Scale (POS) as a potential audit tool within a specialist cancer centre. It also aims to answer the following questions: does the tool identify problem areas and demonstrate changes in quality of life over time? How well do staff and patient ratings correlate?, PATIENTS AND METHODS: The POS questionnaire was piloted at a specialist cancer centre. Thirty consecutive patients admitted to the palliative care wards and ward staff completed questionnaires on admission and twice weekly until discharge or death. A further questionnaire assessed staff attitudes., RESULTS: There was a significant improvement in overall patient POS score at 1 week (days 5-9). Four "symptoms" or issues were scored as being important for our patients: pain, other symptoms, anxiety and patient's perception of family anxiety. These all significantly improved within the first week. At the initial assessment, staff underestimated patients' pain and overestimated problems relating to information giving and patients' ability to share their feelings. There was no significant difference between staff and patient scores after 1 week. The other six areas covered by the tool were less important; this may reflect the patient population seen at our centre. Use of the tool identified areas for staff training and effectively demonstrated improvement in patient care., CONCLUSION: The POS is an outcome measure tool designed to assess physical, psychological, practical and existential aspects of quality of life. It may be useful in identifying problems in individual patients and directing care to address these needs.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1007/s00520-005-0815-6" target="_blank" rel="noreferrer">10.1007/s00520-005-0815-6</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
80 And Over
A'hern R
Adult
Aged
Backlog
Broadley K
Cancer Care Facilities
DNAR
Female
Great Britain
Gwilliam B
Hardy J
Humans
Journal Article
Male
Medical Oncology
Middle Aged
Palliative Care/px [psychology]
Patient Satisfaction
Pilot Projects
Quality Of Life
Questionnaires
Stevens A-M
Supportive Care In Cancer : Official Journal Of The Multinational Association Of Supportive Care In Cancer
Treatment Outcome
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/01.ijg.0000212260.04488.60" target="_blank" rel="noreferrer">http://doi.org/10.1097/01.ijg.0000212260.04488.60</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Effect of sublingual application of cannabinoids on intraocular pressure: a pilot study
Publisher
An entity responsible for making the resource available
Journal Of Glaucoma
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Humans; Male; Middle Aged; Pilot Projects; Double-Blind Method; Cross-Over Studies; Administration; Sublingual; Cannabidiol/administration & dosage; Glaucoma; Intraocular Pressure/drug effects; Ocular Hypertension/drug therapy; Open-Angle/drug therapy; Psychotropic Drugs/administration & dosage; Tetrahydrocannabinol/administration & dosage; Visual Acuity/drug effects
Creator
An entity primarily responsible for making the resource
Tomida I; Azuara-Blanco A; House H; Flint M; Pertwee RG; Robson PJ
Description
An account of the resource
PURPOSE: The purpose of this study was to assess the effect on intraocular pressure (IOP) and the safety and tolerability of oromucosal administration of a low dose of delta-9-tetrahydrocannabinol (Delta-9-THC) and cannabidiol (CBD). PATIENTS AND METHODS: A randomized, double-masked, placebo-controlled, 4 way crossover study was conducted at a single center, using cannabis-based medicinal extract of Delta-9-THC and CBD. Six patients with ocular hypertension or early primary open angle glaucoma received a single sublingual dose at 8 AM of 5 mg Delta-9-THC, 20 mg CBD, 40 mg CBD, or placebo. Main outcome measure was IOP. Secondary outcomes included visual acuity, vital signs, and psychotropic effects. RESULTS: Two hours after sublingual administration of 5 mg Delta-9-THC, the IOP was significantly lower than after placebo (23.5 mm Hg vs. 27.3 mm Hg, P=0.026). The IOP returned to baseline level after the 4-hour IOP measurement. CBD administration did not reduce the IOP at any time. However, the higher dose of CBD (40 mg) produced a transient elevation of IOP at 4 hours after administration, from 23.2 to 25.9 mm Hg (P=0.028). Vital signs and visual acuity were not significantly changed. One patient experienced a transient and mild paniclike reaction after Delta-9-THC administration. CONCLUSIONS: A single 5 mg sublingual dose of Delta-9-THC reduced the IOP temporarily and was well tolerated by most patients. Sublingual administration of 20 mg CBD did not reduce IOP, whereas 40 mg CBD produced a transient increase IOP rise.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/01.ijg.0000212260.04488.60" target="_blank" rel="noreferrer">10.1097/01.ijg.0000212260.04488.60</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Administration
Azuara-Blanco A
Backlog
Cannabidiol/administration & dosage
Cross-Over Studies
Double-Blind Method
Flint M
Glaucoma
House H
Humans
Intraocular Pressure/drug effects
Journal Article
Journal Of Glaucoma
Male
Middle Aged
Ocular Hypertension/drug therapy
Open-Angle/drug therapy
Pertwee RG
Pilot Projects
Psychotropic Drugs/administration & dosage
Robson PJ
Sublingual
Tetrahydrocannabinol/administration & dosage
Tomida I
Visual Acuity/drug effects
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/01.pcc.0000170616.28175.d9" target="_blank" rel="noreferrer">http://doi.org/10.1097/01.pcc.0000170616.28175.d9</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
What influences parents' decisions to limit or withdraw life support?
Publisher
An entity responsible for making the resource available
Pediatric Critical Care Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Child; Female; Humans; Male; Adult; Withholding Treatment; Emotions; Prospective Studies; Middle Aged; Attitude to Death; Pilot Projects; Life Change Events; adolescent; Preschool; decision making; infant; ICU Decision Making; Parents/psychology; Life Support Care/psychology
Creator
An entity primarily responsible for making the resource
Sharman M; Meert KL; Sarnaik AP
Description
An account of the resource
OBJECTIVE: Decisions to forgo life support from critically ill children are commonly faced by parents and physicians. Previous research regarding parents' perspectives on the decision-making process has been limited by retrospective methods and the use of closed-ended questionnaires. We prospectively identified and described parents' self-reported influences on decisions to forgo life support from their children. Deeper understanding of parents' views will allow physicians to focus end-of-life discussions on factors important to parents and help resolve conflicts. DESIGN: Prospective, qualitative pilot study. SETTING: Pediatric intensive care unit of a university-affiliated children's hospital. PARTICIPANTS: A total of 14 parents of ten children whose pediatric intensive care unit physician had made a recommendation to limit or withdraw life support. INTERVENTIONS:: In-depth, semistructured interviews were conducted with parents during their decision-making process. MEASUREMENTS AND MAIN RESULTS: Factors influencing the parents in this study in their decision to forgo life support included their previous experience with death and end-of-life decision making for others, their personal observations of their child's suffering, their perceptions of their child's will to survive, their need to protect and advocate for their child, and the family's financial resources and concerns regarding life-long care. Parents in this study expressed the desire to do what is best for their child but struggled with feelings of selfishness, guilt, and the need to avoid agony and sorrow. Physician recommendations, review of options, and joint formulation of a plan helped parents gain a sense of control over their situation. Parents of eight children agreed to forgo life support and parents of two did not. CONCLUSIONS: Prospective interviews with open-ended questions identified factors influencing parents' decision making not previously described in the critical care literature such as parents' past experiences with end-of-life decisions and their anticipated emotional adjustments and future resources. Inclusion of these factors into discussions is important to parents and may facilitate decisions regarding the limitation or withdrawal of life support.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/01.pcc.0000170616.28175.d9" target="_blank" rel="noreferrer">10.1097/01.pcc.0000170616.28175.d9</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Adolescent
Adult
Attitude To Death
Backlog
Child
Decision Making
Emotions
Female
Humans
ICU Decision Making
Infant
Journal Article
Life Change Events
Life Support Care/psychology
Male
Meert KL
Middle Aged
Parents/psychology
Pediatric Critical Care Medicine
Pilot Projects
Preschool
Prospective Studies
Sarnaik AP
Sharman M
Withholding Treatment
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1136/qshc.2005.017707" target="_blank" rel="noreferrer">http://doi.org/10.1136/qshc.2005.017707</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Improving comfort and communication in the ICU: a practical new tool for palliative care performance measurement and feedback
Publisher
An entity responsible for making the resource available
Quality & Safety in Health Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Humans; United States; Pain Measurement; Professional-Family Relations; Cooperative Behavior; Communication; Pilot Projects; Program Development; Patient Satisfaction; Spirituality; Hospitals; Proxy; Feedback; decision making; Health Care; Quality Assurance; Health Care/organization & administration; Quality Indicators; Palliative Care/psychology/standards; Intensive Care Units/standards; Critical Care/psychology/standards; Voluntary/organization & administration/standards
Creator
An entity primarily responsible for making the resource
Nelson JE; Mulkerin CM; Adams LL; Pronovost PJ
Description
An account of the resource
OBJECTIVE: To develop a practical set of measures for routine monitoring, performance feedback, and improvement in the quality of palliative care in the intensive care unit (ICU). DESIGN: Use of an interdisciplinary iterative process to create a prototype "bundle" of indicators within previously established domains of ICU palliative care quality; operationalization of indicators as specified measures; and pilot implementation to evaluate feasibility and baseline ICU performance. SETTING: The national Transformation of the Intensive Care Unit program developed in the United States by VHA Inc. PATIENTS: Critically ill patients in ICUs for 1, > 3, and > 5 days. MEASUREMENTS AND MAIN RESULTS: Palliative care processes including identification of patient preferences and decision making surrogates, communication between clinicians and patients/families, social and spiritual support, and pain assessment and management, as documented in medical records. Application is triggered by specified lengths of ICU stay. Pilot testing in 19 ICUs (review of > 100 patients' records) documented feasibility, while revealing opportunities for quality improvement in clinician-patient/family communication and other key components of ICU palliative care. CONCLUSIONS: The new bundle of measures is a prototype for routine measurement of the quality of palliative care in the ICU. Further investigation is needed to confirm associations between measured processes and outcomes of importance to patients and families, as well as other aspects of validity.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/qshc.2005.017707" target="_blank" rel="noreferrer">10.1136/qshc.2005.017707</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adams LL
Backlog
Communication
Cooperative Behavior
Critical Care/psychology/standards
Decision Making
Feedback
Health Care
Health Care/organization & administration
Hospitals
Humans
Intensive Care Units/standards
Journal Article
Mulkerin CM
Nelson JE
Pain Measurement
Palliative Care/psychology/standards
Patient Satisfaction
Pilot Projects
Professional-family Relations
Program Development
Pronovost PJ
Proxy
Quality & Safety in Health Care
Quality Assurance
Quality Indicators
Spirituality
United States
Voluntary/organization & administration/standards
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16518947" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16518947</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Developing the Liverpool Care Pathway for the dying child
Publisher
An entity responsible for making the resource available
Paediatric Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Humans; England; Health Services Needs and Demand; Pilot Projects; Nurse's Role; Evidence-Based Medicine; Nursing Assessment; Nursing Evaluation Research; Benchmarking; adolescent; Preschool; PedPal Lit; infant; Practice Guidelines; retrospective studies; Documentation/standards; Patient Care Team/organization & administration; Outcome and Process Assessment (Health Care)/organization & administration; Nursing Audit; Palliative Care/organization & administration; Pediatric Nursing/organization & administration; Critical Pathways/organization & administration; Nursing Records/standards; Total Quality Management/organization & administration
Creator
An entity primarily responsible for making the resource
Matthews K; Gambles M; Ellershaw JE; Brook L; Williams M; Hodgson A; Barber M
Description
An account of the resource
In most western societies the death of a child is a rare occurrence. When it does occur, it typically takes place after a period of intensive and often prolonged treatment. In light of the relative infrequency of these events in clinical practice, ensuring that all dying children and their families receive consistent and appropriate care remains a challenge. A retrospective audit of documentation of care for dying children in two paediatric units in the north-west of England illustrated that the care provided was not always documented consistently. This paper highlights work currently underway to develop an integrated care pathway for the care of the dying child based on the Liverpool Care Pathway (LCP). The aim of this work is to facilitate the delivery and recording of optimum care for all dying children and their families.
2006
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adolescent
Backlog
Barber M
Benchmarking
Brook L
Child
Critical Pathways/organization & administration
Documentation/standards
Ellershaw JE
England
Evidence-based Medicine
Gambles M
Health Services Needs And Demand
Hodgson A
Humans
Infant
Journal Article
Matthews K
Nurse's Role
Nursing Assessment
Nursing Audit
Nursing Evaluation Research
Nursing Records/standards
Outcome and Process Assessment (Health Care)/organization & administration
Paediatric Nursing
Palliative Care/organization & Administration
Patient Care Team/organization & administration
Pediatric Nursing/organization & administration
PedPal Lit
Pilot Projects
Practice Guidelines
Preschool
Retrospective Studies
Total Quality Management/organization & administration
Williams M
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/mpo.10057" target="_blank" rel="noreferrer">http://doi.org/10.1002/mpo.10057</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Osteopenia in children with acute lymphoblastic leukemia: a pilot study of amelioration with Pamidronate
Publisher
An entity responsible for making the resource available
Medical & Pediatric Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Child; Female; Humans; Male; Pilot Projects; Leukemia; Drug Administration Schedule; Bone Diseases; adolescent; Preschool; P.H.S.; Research Support; U.S. Gov't; Clodronate; Acute; Anti-Inflammatory Agents/administration & dosage/therapeutic use; Antineoplastic Agents/administration & dosage/therapeutic use; Antineoplastic Combined Chemotherapy Protocols/therapeutic use; Asparaginase/therapeutic use; Dexamethasone/therapeutic use; Diphosphonates/administration & dosage/therapeutic use; Doxorubicin/therapeutic use; L1/complications/drug therapy; Lymphocytic; Metabolic/drug therapy/etiology
Creator
An entity primarily responsible for making the resource
Barr RD; Guo CY; Wiernikowski J; Webber C; Wright M; Atkinson S
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/mpo.10057" target="_blank" rel="noreferrer">10.1002/mpo.10057</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2002
2002
Acute
Adolescent
Anti-Inflammatory Agents/administration & dosage/therapeutic use
Antineoplastic Agents/administration & dosage/therapeutic use
Antineoplastic Combined Chemotherapy Protocols/therapeutic use
Asparaginase/therapeutic use
Atkinson S
Backlog
Barr RD
Bone Diseases
Child
Clodronate
Dexamethasone/therapeutic use
Diphosphonates/administration & dosage/therapeutic use
Doxorubicin/therapeutic use
Drug Administration Schedule
Female
Guo CY
Humans
Journal Article
L1/complications/drug therapy
Leukemia
Lymphocytic
Male
Medical & Pediatric Oncology
Metabolic/drug therapy/etiology
P.H.S.
Pilot Projects
Preschool
Research Support
U.S. Gov't
Webber C
Wiernikowski J
Wright M
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/S0140-6736(04)16939-0" target="_blank" rel="noreferrer">http://doi.org/10.1016/S0140-6736(04)16939-0</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
A population-based nationwide study of parents' perceptions of a questionnaire on their child's death due to cancer.
Publisher
An entity responsible for making the resource available
Lancet
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Child; Female; Humans; Male; Data Collection; Questionnaires; Attitude to Death; Pilot Projects; Attitude; Longitudinal Studies; Sweden; Research; Ethics; Empirical Approach; bereavement; Death and Euthanasia; Interviews; Parents/psychology; Biomedical and Behavioral Research
Creator
An entity primarily responsible for making the resource
Kreicbergs U; Valdimarsdottir U; Steineck G; Henter JI
Description
An account of the resource
A proposed nationwide postal questionnaire to Swedish parents who had lost a child due to cancer between 1992 and 1997 was denied approval by the local ethics committee. However, a pilot study to assess the harm and benefit of the questionnaire was approved. 95% of parents found the pilot study valuable; thus, we were allowed to proceed with the main study, which consisted of 129 questions about the child's care and death and five about the parents' perceptions of the study. 423 (99%) parents found the investigation valuable, 285 (68%) were positively affected, and 123 (28%) were negatively affected (10 [2%] of whom, very much). Although the numerical data cannot be directly translated to ethical conclusions, they can provide guidance for future ethical decisions.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/S0140-6736(04)16939-0" target="_blank" rel="noreferrer">10.1016/S0140-6736(04)16939-0</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Attitude
Attitude To Death
Backlog
Bereavement
Biomedical and Behavioral Research
Child
Data Collection
Death and Euthanasia
Empirical Approach
Ethics
Female
Henter JI
Humans
Interviews
Journal Article
Kreicbergs U
Lancet
Longitudinal Studies
Male
Parents/psychology
Pilot Projects
Questionnaires
Research
Steineck G
Sweden
Valdimarsdottir U
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/s0163-8343(02)00200-1" target="_blank" rel="noreferrer">http://doi.org/10.1016/s0163-8343(02)00200-1</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The reactions to research participation questionnaires for children and for parents (RRPQ-C and RRPQ-P)
Publisher
An entity responsible for making the resource available
General Hospital Psychiatry
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Child; Female; Humans; Male; Adult; Parents; Pilot Projects; Attitude; Patient Participation; Risk Assessment; Research; Wounds and Injuries; Statistical; Stress Disorders; Acute; Factor Analysis; Traumatic; Surveys and Questionnaires; Patient Selection
Creator
An entity primarily responsible for making the resource
Kassam-Adams N; Newman E
Description
An account of the resource
Systematic assessment of the effect of clinical research studies on child and parent participants has been limited. Such assessment could provide an empirical basis for the ethical conduct of research, assisting investigators and institutional review boards in balancing the need for sound research with the need to protect study participants. The Reactions to Research Participation Questionnaire for Children (RRPQ-C) and the RRPQ for Parents (RRPQ-P) are brief measures designed to assess child or parent views of clinical research studies. Both measures were piloted and then administered as part of an interview-based study of traumatically injured children and their parents, to assess their psychometric properties and potential usefulness as addenda to future study protocols. The RRPQ-C and RRPQ-P each demonstrated acceptable internal consistency. Exploratory factor analyses provided general support for their conceptual basis. Both were easily administered and well-accepted by respondents. There is evidence that children and adults were willing to answer honestly, even about negative responses. Brief measures such as the RRPQ-C and RRPQ-P may provide a practical and empirically informed method for assessing children's and parents' responses to research participation. Investigators should consider including systematic standardized assessment of participant reactions in child clinical research studies.
2002-10
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/s0163-8343(02)00200-1" target="_blank" rel="noreferrer">10.1016/s0163-8343(02)00200-1</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
Acute
Adult
Attitude
Backlog
Child
Factor Analysis
Female
General Hospital Psychiatry
Humans
Journal Article
Kassam-Adams N
Male
Newman E
Parents
Patient Participation
Patient Selection
Pilot Projects
Research
Risk Assessment
statistical
Stress Disorders
Surveys And Questionnaires
Traumatic
Wounds and Injuries
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/109662102320135270" target="_blank" rel="noreferrer">http://doi.org/10.1089/109662102320135270</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Does a palliative care clinic have a role in improving end-of-life care? Results of a pilot program
Publisher
An entity responsible for making the resource available
Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Female; Humans; Male; United States; Adult; Aged; Middle Aged; Pilot Projects; Program Development; Program Evaluation; Survival Analysis; Hospitals; Proportional Hazards Models; 80 and over; Outpatient Clinics; Hospice Care/methods/trends; Hospital/organization & administration; Palliative Care/methods/organization & administration/trends; Veterans/organization & administration
Creator
An entity primarily responsible for making the resource
Casarett DJ; Hirschman KB; Coffey JF; Pierre L
Description
An account of the resource
OBJECTIVE: To assess the efficacy of a palliative care clinic (PCC), which provided some of the interdisciplinary services and expertise of an inpatient consult service to outpatients, in traditional clinic sessions. DESIGN: Chart review. SETTING: A large urban Veterans Administration Medical Center. PATIENTS: One hundred patients referred to clinic. INTERVENTIONS: Palliative care clinic. OUTCOME MEASURES: Patients' reported needs, Global Distress Index (GDI) subscale, hospice eligibility, and time to death. RESULTS: The most common diagnosis was cancer (n = 85). Most patients (n = 89) had at least one need for services that the team provided (median, 2; range, 0-4), the most common of which was a desire for information about prognosis (n = 84). In a Cox proportional hazards model, predictors of enrollment in hospice included white ethnicity (hazard ratio, 3.42; p < 0.001), a need for help around the home (hazard ratio, 3.26; p = 0.002), and insufficient money left at the end of the month (hazard ratio, 2.39; p = 0.014). CONCLUSIONS: The experience of the PCC described here offers a unique approach to improving end-of-life care for those outpatients who may not be well served by existing structures of care such as palliative care consult services and who have not yet enrolled in hospice.
2002
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/109662102320135270" target="_blank" rel="noreferrer">10.1089/109662102320135270</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
80 And Over
Adult
Aged
Backlog
Casarett DJ
Coffey JF
Female
Hirschman KB
Hospice Care/methods/trends
Hospital/organization & administration
Hospitals
Humans
Journal Article
Journal of Palliative Medicine
Male
Middle Aged
Outpatient Clinics
Palliative Care/methods/organization & administration/trends
Pierre L
Pilot Projects
Program Development
Program Evaluation
Proportional Hazards Models
Survival Analysis
United States
Veterans/organization & administration
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/016327870202500206" target="_blank" rel="noreferrer">http://doi.org/10.1177/016327870202500206</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Individualizing treatment decisions. The likelihood of being helped or harmed
Publisher
An entity responsible for making the resource available
Evaluation And The Health Professions
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Humans; Pilot Projects; Patient Participation; Risk Assessment; Evidence-Based Medicine; decision making; Anticoagulants/therapeutic use; Warfarin/therapeutic use; Stroke/prevention & control
Creator
An entity primarily responsible for making the resource
Straus SE
Description
An account of the resource
Clinical decision making cannot rely on evidence alone. Although significant advances have occurred in the development of high-quality evidence, similar efforts must be made to develop and evaluate tools that can be used at the bedside to individualize treatment decisions and to facilitate the incorporation of our patients' unique values and circumstances into the decision-making process. These tools should express the helpful and harmful effects of treatment, and it must be possible to modify these statements using patients' values. Finally, this process should be accomplished in real time in a busy clinical practice. In this article, the author outlines some of these decision support tools, describes an attempt to meet some of the challenges inherent in the goal of achieving effective shared decision making, and proposes a patient-centered measure of the likelihood of being helped and harmed by an intervention and discusses its derivation and an evaluation of its usefulness.
2002
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/016327870202500206" target="_blank" rel="noreferrer">10.1177/016327870202500206</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
Anticoagulants/therapeutic use
Backlog
Decision Making
Evaluation And The Health Professions
Evidence-based Medicine
Humans
Journal Article
Patient Participation
Pilot Projects
Risk Assessment
Straus SE
Stroke/prevention & control
Warfarin/therapeutic use
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1207/s15327914nc4402_05" target="_blank" rel="noreferrer">http://doi.org/10.1207/s15327914nc4402_05</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Nutritional status in childhood malignancies
Publisher
An entity responsible for making the resource available
Nutrition And Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Child; Female; Humans; Male; Neoplasms; Pilot Projects; Neoplasms/complications; Lymphoma/complications; Nutritional Status/physiology; Body Mass Index; Body Weight/physiology; Complex and Mixed/complications; Germinoma/complications; Histiocytosis/complications; Neuroepithelial/complications; Nutrition Disorders/complications/epidemiology; Sarcoma/complications
Creator
An entity primarily responsible for making the resource
Schiavetti A; Fornari C; Bonci E; Clerico A; Guidi R
Description
An account of the resource
In children affected by tumor, nutritional status is important to sustain aggressive chemotherapy and to support normal growth during and after therapy. The aim of this study was to investigate the prevalence of nutritional status disorders in a sample of pediatric oncology day-hospital patients. We measured weight and height in patients affected by solid tumors on or off therapy at short-term follow-up (1-24 mo). The study was performed at a pediatric oncology day-hospital over a period of 20 consecutive days. A suitable computer package was used to estimate relative body weight (%RBW) and body mass index (BMI) for each patient. Thereafter, the same sample was divided into four weight classes (underweight, normal weight, overweight, and obese) according to %RBW and BMI. Moreover, patients were divided into two groups: on and off therapy. In the off-therapy group, no patient was underweight; in the on-therapy group, 26.3% and 15.8% of patients were underweight (not significant) according to %RBW and BMI, respectively. The prevalence of overweight (overweight ++obese) according to %RBW was 36.9% in the on-therapy group and 52.9% in the off-therapy group (P < 0.05); whereas the prevalence of overweight according to BMI was 21% in the on-therapy group and 35.3% in the off-therapy group (P = 0.05). These preliminary data suggest that, in pediatric oncology, nutritional assessment is required to provide nutritional strategies in on-therapy patients whose underweight status prevalence is impressive or in off-therapy children in whom the causes of overweight should be explored.
2002
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1207/s15327914nc4402_05" target="_blank" rel="noreferrer">10.1207/s15327914nc4402_05</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
Backlog
Body Mass Index
Body Weight/physiology
Bonci E
Child
Clerico A
Complex and Mixed/complications
Female
Fornari C
Germinoma/complications
Guidi R
Histiocytosis/complications
Humans
Journal Article
Lymphoma/complications
Male
Neoplasms
Neoplasms/complications
Neuroepithelial/complications
Nutrition And Cancer
Nutrition Disorders/complications/epidemiology
Nutritional Status/physiology
Pilot Projects
Sarcoma/complications
Schiavetti A
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=12243689" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=12243689</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Raising the standard of care for imminently dying patients using quality improvement
Publisher
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Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Pilot Projects; Program Development; Program Evaluation; Critical Pathways; Non-U.S. Gov't; Human; Support; Terminal Care/standards; Total Quality Management
Creator
An entity primarily responsible for making the resource
Bookbinder M; Romer AL
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2002
2002
Backlog
Bookbinder M
Critical Pathways
Human
Journal Article
Journal of Palliative Medicine
Non-U.S. Gov't
Pilot Projects
Program Development
Program Evaluation
Romer AL
Support
Terminal Care/standards
Total Quality Management
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpedi.153.1.63" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpedi.153.1.63</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Computer-assisted health counselor visits: a low-cost model for comprehensive adolescent preventive services
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
1999
Subject
The topic of the resource
Female; Humans; Male; Pilot Projects; Feasibility Studies; Patient Satisfaction; Medical History Taking; Time Factors; Counseling; adolescent; Adolescent Health Services/economics; Adolescent Transitions; Costs and Cost Analysis; Medical Informatics Applications; Preventive Health Services/economics/methods; Risk-Taking
Creator
An entity primarily responsible for making the resource
Paperny DM; Hedberg VA
Description
An account of the resource
OBJECTIVE: To evaluate a low-cost strategy for providing preventive health services to adolescents using computerized health assessments with individualized educational videos, trained health counselors, and nurses. DESIGN: Feasibility study, cost analysis, and comparative evaluation of health problems identified, guidance delivered, and patient satisfaction. SETTING: Eleven sessions at nontraditional sites including schools, universities, shopping malls, and after-hours clinics on Oahu, Hawaii. PARTICIPANTS AND INTERVENTION: Adolescents (N=258, mean age 17 years) completed confidential computerized health assessments, received individualized feedback, and viewed automatically selected educational videos on a laptop computer. The computer additionally printed a prioritized problems list for the graduate student-level health counselor to review with the adolescent. The counselor subsequently reviewed each encounter with a nurse-educator who performed further counseling and physical examinations when indicated. RESULTS: Visit length averaged 44 minutes. Subjects spent an average of 21 minutes completing the automated health assessment and viewing interactive multimedia and 15 minutes with the health counselor. One third of subjects required further evaluation and counseling by the nurse (average, 8 minutes). A team of 2 counselors and 1 nurse provided comprehensive screening, health counseling, and physical examinations to 1 patient every 10 minutes at a salary cost of $7.46 per visit. This model identified risk behaviors at levels consistent with local behavioral data, and addressed and documented them significantly more often than do physicians in traditional settings. Subjects (71%) preferred the computer-assisted visits to standard office visits, and 92% felt the amount of time spent was acceptable. CONCLUSIONS: Computer-assisted delivery of adolescent preventive services using nonphysician health counselors is a feasible, economical, and acceptable alternative to traditional clinical practice for screening young people for health-compromising behaviors and providing individualized health education and routine physical examinations. This model would likely increase adolescents' access to needed preventive services at a very modest cost.
1999
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpedi.153.1.63" target="_blank" rel="noreferrer">10.1001/archpedi.153.1.63</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1999
Adolescent
Adolescent Health Services/economics
Adolescent Transitions
Archives Of Pediatrics & Adolescent Medicine
Backlog
Costs And Cost Analysis
Counseling
Feasibility Studies
Female
Hedberg VA
Humans
Journal Article
Male
Medical History Taking
Medical Informatics Applications
Paperny DM
Patient Satisfaction
Pilot Projects
Preventive Health Services/economics/methods
Risk-Taking
Time Factors
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/s1054-139x(98)00127-x" target="_blank" rel="noreferrer">http://doi.org/10.1016/s1054-139x(98)00127-x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Trends in transition from pediatric to adult health care services for young adults with chronic conditions
Publisher
An entity responsible for making the resource available
The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine Jid - 9102136
Date
A point or period of time associated with an event in the lifecycle of the resource
1999
Subject
The topic of the resource
Humans; United States; Adult; Questionnaires; Pilot Projects; Counseling; adolescent; Adolescent Transitions; PST - ppublish; Adolescent Health Services/classification; AID - S1054-139X(98)00127-X [pii]; Chronic Disease/therapy; Continuity of Patient Care/classification/economics/statistics & numerical data; CRDT- 1999/05/05 00:00; EDAT- 1999/05/05; Health Services/classification; MHDA- 1999/05/05 00:01
Creator
An entity primarily responsible for making the resource
Scal P; Evans T; Blozis S; Okinow N; Blum R
Description
An account of the resource
PURPOSE: The rationale underlying this study was the need to move the transition health services model from a theoretical framework to an empirically-based investigation. Thus, it was necessary to identify programs for youth with chronic or disabling conditions that assist in transitioning from child- to adult-focused health services by (a) discrete types, (b) functional categories, and (c) problems and issues faced by these programs. METHODS: Nominations for transition health services programs were solicited from 1025 organizational agencies at the local, state, regional, and national levels. Two solicitations yielded 277 nominees. After pilot testing, a survey of 163 forced responses and open-ended questions was mailed to each nominated transition health services program. A total of 122 programs returned completed surveys. RESULTS: Program services were categorized as adolescent-focused (38%), condition-focused (36%), and specialty-specific programs (26%). Few programs were primary care-based. Categories were subsequently collapsed into two types: adolescent-focused and condition-focused. No significant differences were noted between adolescent- and condition-focused programs regarding provision of mental health services, vocational counseling, self-efficacy training, or health education. The primary barriers to transition health services were identified as funding and access to key staff, rather than family and adolescent resistance. CONCLUSION: In general, self-identified transition health care programs do not achieve the goal of collaborative, coordinated, and integrative services to adolescents with chronic or disabling conditions. Furthermore, the barriers to attaining the goal are the limitations of the health care system itself.
1999
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/s1054-139x(98)00127-x" target="_blank" rel="noreferrer">10.1016/s1054-139x(98)00127-x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1999
Adolescent
Adolescent Health Services/classification
Adolescent Transitions
Adult
AID - S1054-139X(98)00127-X [pii]
Backlog
Blozis S
Blum R
Chronic Disease/therapy
Continuity of Patient Care/classification/economics/statistics & numerical data
Counseling
CRDT- 1999/05/05 00:00
EDAT- 1999/05/05
Evans T
Health Services/classification
Humans
Journal Article
MHDA- 1999/05/05 00:01
Okinow N
Pilot Projects
PST - ppublish
Questionnaires
Scal P
The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine Jid - 9102136
United States
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1046/j.1365-2648.1999.01116.x" target="_blank" rel="noreferrer">http://doi.org/10.1046/j.1365-2648.1999.01116.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Can the needs of the critically ill child be identified using scenarios? Experiences of a modified Delphi study
Publisher
An entity responsible for making the resource available
Journal Of Advanced Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
1999
Subject
The topic of the resource
Child; Humans; Questionnaires; Pilot Projects; Reproducibility of Results; Delphi Technique; Evaluation Studies; Intensive Care/statistics & numerical data; Critical Illness/nursing; Health Services Needs and Demand/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Endacott R; Clifford CM; Tripp JH
Description
An account of the resource
The Delphi technique enables the structuring of group opinion and discussion using a survey approach, maintaining the anonymity of panel members and preventing contamination of individual responses through peer pressure. The Delphi technique was used by the authors to form an expert opinion regarding the needs of a critically ill child. The abstract and evaluative nature of need was a key issue to arise during early pilot work and stimulated the first author to undertake a concept analysis of the term 'need'. The defining attributes arising from the concept analysis were used to construct two hypothetical case studies for the modified Delphi; these were used as part of the questionnaire for all three rounds. In the first round, the panel was asked to identify the needs of the child in the two case studies; in subsequent rounds the panel activity involved modifying these need statements and indicating the importance, frequency and maximum acceptable delay in meeting each need. Extensive pilot work was required for each round of the modified Delphi. This article evaluates the use of this technique to identify needs, discusses key features arising from the results and examines the difficulties experienced by the respondents in completing the time scales.
1999
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1046/j.1365-2648.1999.01116.x" target="_blank" rel="noreferrer">10.1046/j.1365-2648.1999.01116.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1999
Backlog
Child
Clifford CM
Critical Illness/nursing
Delphi Technique
Endacott R
Evaluation Studies
Health Services Needs and Demand/statistics & numerical data
Humans
Intensive Care/statistics & numerical data
Journal Article
Journal Of Advanced Nursing
Pilot Projects
Questionnaires
Reproducibility of Results
Tripp JH
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/jpm.2000.3.4.457" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2000.3.4.457</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Adult education program in palliative care for nursing facility physicians: design and pilot test
Publisher
An entity responsible for making the resource available
Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2000
Subject
The topic of the resource
Palliative Care; Terminal Care; Adult; Education; Physicians; Pilot Projects; Hospitals; Research; Skilled Nursing Facilities; Extended Care Facilities
Creator
An entity primarily responsible for making the resource
Keay TJ; Alexander C; McNally K; Crusse B; Eger RE; Hawtin C; Lowitt NR; Ross DD
Description
An account of the resource
Nursing facilities (NF) are important sites for the care of dying patients. Curricula likely to improve end-of-life care are needed for NF physicians. To this end, a model medical school palliative care curriculum was modified for experienced NF physicians. Adult learning techniques were emphasized, as well as interactions likely to change physician behavior. Inclusion of the opinion leader, audit with feedback, use of consensus guidelines, and other techniques for changing physician behavior were included. Written materials to supplement the course were identified. This new program was pilot tested and improved. An initial audit of physician practices and survey of the NF staff, a half-day adult educational session, and follow-up with the NF medical director is suggested. This intervention should be tested to determine if it improves patient end-of-life care outcomes in this setting.
2000
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jpm.2000.3.4.457" target="_blank" rel="noreferrer">10.1089/jpm.2000.3.4.457</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2000
Adult
Alexander C
Backlog
Crusse B
Education
Eger RE
Extended Care Facilities
Hawtin C
Hospitals
Journal Article
Journal of Palliative Medicine
Keay TJ
Lowitt NR
McNally K
Palliative Care
Physicians
Pilot Projects
Research
Ross DD
Skilled Nursing Facilities
Terminal Care
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/000992289403300708" target="_blank" rel="noreferrer">http://doi.org/10.1177/000992289403300708</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The Functional Independence Measure for Children (WeeFIM). Conceptual basis and pilot use in children with developmental disabilities.
Publisher
An entity responsible for making the resource available
Clinical Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
1994
Subject
The topic of the resource
Child; Female; Humans; Male; Pilot Projects; Longitudinal Studies; Disability Evaluation; adolescent; Preschool; Adaptation; Psychological; infant; Neuropsychological Tests; Developmental Disabilities/diagnosis
Creator
An entity primarily responsible for making the resource
Msall ME; DiGaudio K; Rogers BT; LaForest S; Catanzaro NL; Campbell J; Wilczenski F; Duffy LC
Description
An account of the resource
Few tools are available to pediatricians for tracking and monitoring disability status in children. We describe the conceptual basis and pilot use of the Functional Independence Measure for Children (WeeFIM). Our pilot use of this instrument in children with limb deficiency, Down's syndrome, spina bifida, cerebral palsy, and extreme prematurity demonstrates that the WeeFIM is a valid measure for tracking disability in preschool age and middle childhood. The WeeFIM measures the impact of developmental strengths and difficulties on independence at home, in school, and in the community. This allows the pediatrician to prioritize interventions for enhancing comprehensive functional outcomes and supporting families.
1994
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/000992289403300708" target="_blank" rel="noreferrer">10.1177/000992289403300708</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1994
Adaptation
Adolescent
Backlog
Campbell J
Catanzaro NL
Child
Clinical Pediatrics
Developmental Disabilities/diagnosis
DiGaudio K
Disability Evaluation
Duffy LC
Female
Humans
Infant
Journal Article
LaForest S
Longitudinal Studies
Male
Msall ME
Neuropsychological Tests
Pilot Projects
Preschool
Psychological
Rogers BT
Wilczenski F
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/14034948010290031601" target="_blank" rel="noreferrer">http://doi.org/10.1177/14034948010290031601</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The health-line--a method for collecting data on self-rated health over time: a pilot study
Publisher
An entity responsible for making the resource available
Scandinavian Journal Of Public Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2001
Subject
The topic of the resource
Female; Humans; Male; Adult; Attitude to Health; Questionnaires; Pilot Projects; Health Status; Self-Assessment; Chi-Square Distribution; Adolescent Transitions; Sweden/epidemiology; Sick Leave/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Ringsberg KC; Alexanderson KA; Borg KE; Hensing GK
Description
An account of the resource
BACKGROUND: There is a need for an instrument to record a life-course perspective of self-rated health. AIM: To test the "health-line", a simple, comprehensive method of collecting data on self-rated health over time. METHOD: In 1996, a questionnaire was mailed to people who in 1985 were aged between 25 and 34 years old and had a sick-leave spell >28 days with "back diagnoses". They were asked to rate their global health graphically with a "health-line" for the years 1985-95. Official data on sick leave and disability pension were obtained for the same period. In all, 37 out of 52 men and 60 out of 83 women answered; that is, they drew a health-line. RESULT: A statistically significant negative correlation between the mean number of absence days due to ill health and the health-line data was found for every year (r= -0.35 to -0.53; p<0.001) and for the whole period 1985-95 (r=-0.546; p<0.001) respectively. CONCLUSION: The method worked well and is well worth further development and testing.
2001
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/14034948010290031601" target="_blank" rel="noreferrer">10.1177/14034948010290031601</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2001
Adolescent Transitions
Adult
Alexanderson KA
Attitude To Health
Backlog
Borg KE
Chi-Square Distribution
Female
Health Status
Hensing GK
Humans
Journal Article
Male
Pilot Projects
Questionnaires
Ringsberg KC
Scandinavian Journal Of Public Health
Self-Assessment
Sick Leave/statistics & numerical data
Sweden/epidemiology