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Text
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<a href="http://doi.org/10.1089/109662101300051960" target="_blank" rel="noreferrer">http://doi.org/10.1089/109662101300051960</a>
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Title
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Experience with neonatal palliative care consultation at the Medical College of Wisconsin-Children's Hospital of Wisconsin
Publisher
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Journal Of Palliative Medicine
Date
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2001
Subject
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Humans; infant; Intensive Care Units; Palliative Care; Hospitals; Wisconsin; Neonatology; Neonatal; Pediatric; referral and consultation; Newborn; retrospective studies
Creator
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Leuthner SR; Pierucci R
Description
An account of the resource
At Children's Hospital of Wisconsin there is a pediatric palliative care consultation service that serves a diverse patient population, including infants. However, the value of a palliative care consultation for infants has not been well evaluated. We performed a retrospective, case series, descriptive chart review of infants in our neonatal intensive care unit (NICU) who received palliative care consults between January 1996 and June 1998. We specifically looked at their diagnoses, the timing of consults, reasons that consultations were ordered, what recommendations were made, and the subsequent outcomes. During the series period there were 898 admissions to the NICU, 51 neonatal deaths, and 12 neonatal palliative care consultations. The diagnostic categories for those with a palliative care referral included prematurity, lethal anomalies, and catastrophic or overwhelming illness. Reasons for the consultations were organization of home hospice, facilitation of medical options, such as do-not-resuscitate (DNR) orders and treatment withdrawal, facilitation of comfort measures, and grief/loss issues. Recommendations that the palliative care staff made fell into four categories: advance directive planning, the optimal environment for supporting neonatal death, comfort and medical care, and psychosocial support. This series is a description of what a palliative care service can offer for terminally ill infants in an NICU. We speculate that such consults can more consistently and comprehensively provide appropriate end-of-life care for these patients and their families.
2001
Identifier
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<a href="http://doi.org/10.1089/109662101300051960" target="_blank" rel="noreferrer">10.1089/109662101300051960</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2001
Backlog
Hospitals
Humans
Infant
Intensive Care Units
Journal Article
Journal of Palliative Medicine
Leuthner SR
Neonatal
Neonatology
Newborn
Palliative Care
Pediatric
Pierucci R
Referral And Consultation
Retrospective Studies
Wisconsin
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
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<a href="http://doi.org/10.1542/peds.108.3.653" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.108.3.653</a>
<a href="http://pediatrics.aappublications.org/content/108/3/653" target="_blank" rel="noreferrer">http://pediatrics.aappublications.org/content/108/3/653</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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End-of-Life Care for Neonates and Infants: The Experience and Effects of a Palliative Care Consultation Service
Publisher
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Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2001
Subject
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Palliative Care; infant; Infants; Terminal Illness; end-of-life care; Death and Dying
Creator
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Pierucci R; Kirby RS; Leuthner SR
Description
An account of the resource
Objective. Neonates and infants have the highest death rate in the pediatric population, yet there is a paucity of data about their end-of-life care and whether a palliative care service can have an impact on that care. The objective of this study was to describe end-of-life care for infants, including analysis of palliative care consultations conducted in this population. We hypothesized that the palliative care consultations performed had an impact on the infants' end-of-life care. Design. A retrospective chart review using the “End of Life Chart Review” from the Center to Improve Care for the Dying was conducted. The participants were the patients at Children's Hospital of Wisconsin who died at <1 year of age during the 4-year period between January 1, 1994, and December 31, 1997. The patients' place of death, medical interventions performed, and emotionally supportive services provided to families were analyzed. Results. Among the 196 deaths during the study period, 25 (13%) of these infants and families had palliative care consultations. The rate of consultations increased from 5% of the infant deaths in 1994 to 38% of the infant deaths in 1997. Infants of families that received consultations had fewer days in intensive care units, blood draws, central lines, feeding tubes, vasopressor and paralytic drug use, mechanical ventilation, cardiopulmonary resuscitation, and x-rays, and the families had more frequent referrals for chaplains and social services than families that did not have palliative care consultations. Conclusions. This study describes the end-of-life care that infants and their families received. Fewer medical procedures were performed, and more supportive services were provided to infants and families that had a palliative care consultation. This suggests that palliative care consultation may enhance end-of-life care for newborns.
2001-09
Identifier
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<a href="http://doi.org/10.1542/peds.108.3.653" target="_blank" rel="noreferrer">10.1542/peds.108.3.653</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2001
Backlog
Death and Dying
End-of-life Care
Infant
Infants
Journal Article
Kirby RS
Leuthner SR
Palliative Care
Pediatrics
Pierucci R
Terminal Illness