1 40 1 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource November 2023 List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month November List 2023 URL Address <a href="http://doi.org/10.1590/S0103-7331202333034.en" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1590/S0103-7331202333034.en</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Vulnerabilities experienced by family members/caregivers of children with chronic conditions Publisher An entity responsible for making the resource available Physis Date A point or period of time associated with an event in the lifecycle of the resource 2023 Subject The topic of the resource Child; article; human; palliative therapy; systematic review; interview; caregiver; Only Child; health care personnel; wellbeing; health service; thematic analysis; qualitative research; family; chronic disease; child health; vulnerability; locomotion Creator An entity primarily responsible for making the resource Milbrath VM; Gabatz RIB; Vaz JC; Hense TD Description An account of the resource The objective was to know the vulnerabilities experienced by family members/caregivers of children with a chronic. Qualitative research supported by the theoretical framework of the French philosopher Rosello Un which 15 family members/caregivers of children with chronic conditions participated in the study. The information was collected in the years 2018 and 2019 and submitted to thematic analysis. The results are presented in three themes: The disease as an expression of the vulnerability of being a child; The child's chronic illness as a condition of vulnerability of the family member/caregiver; The support of support networks: potentialities and vulnerabilities in the daily life of children with chronic conditions and family members/caregivers. Knowing the components of vulnerability experienced by the families of children with chronic conditions is complex, as it requires analyzing and reflecting on the situations these families face, considering their peculiarities, feelings, family organization and the accessibility they have to health services. Therefore, knowledge about the context in which these families are inserted is essential to establish an adequate planning of health actions aimed at promoting their well-being.Copyright © 2023, Institute de Medicina Social da UERJ. All rights reserved. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1590/S0103-7331202333034.en" target="_blank" rel="noreferrer noopener">10.1590/S0103-7331202333034.en</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2023 Article Caregiver Child Child Health Chronic Disease Family Gabatz RIB Health Care Personnel Health Service Hense TD Human Interview locomotion Milbrath VM November List 2033 Only Child Palliative Therapy Physis Qualitative Research Systematic Review Thematic Analysis Vaz JC VULNERABILITY Wellbeing