Complementary therapies for children undergoing stem cell transplantation: report of a multisite trial
adolescent; Child; Female; Humans; Male; Parents; Length of Stay; Complementary Therapies; Stress; Psychological; Stem Cell Transplantation; Laughter Therapy; Massage
BACKGROUND: Children undergoing stem cell transplant (SCT) experience high levels of somatic distress and mood disturbance. This trial evaluated the efficacy of complementary therapies (massage, humor therapy, relaxation/imagery) for reducing distress associated with pediatric SCT. METHODS: Across 4 sites, 178 pediatric patients scheduled to undergo SCT were randomized to a child-targeted intervention involving massage and humor therapy, the identical child intervention plus a parent intervention involving massage and relaxation/imagery, or standard care. Randomization was stratified by site, age, and type of transplant. The interventions began at admission and continued through SCT Week +3. Primary outcomes included patient and parent reports of somatic distress and mood disturbance obtained weekly from admission through Week +6 using the Behavioral, Affective, and Somatic Experiences Scales. Secondary outcomes included length of hospitalization, time to engraftment, and usage of narcotic analgesic and antiemetic medications. RESULTS: A mixed model approach was used to assess longitudinal trends of patient and parent report outcomes and to test differences between groups on these measures. Significant changes across time were observed on all patient and parent report outcomes. However, no significant differences between treatment arms were found on the primary outcomes. Similarly, no significant between-group differences were noted on any of the medical variables as secondary outcomes. CONCLUSIONS: Results of this multisite trial failed to document significant benefits of complementary interventions in the pediatric SCT setting.
2010-08
Phipps S; Barrera M; Vannatta K; Xiong X; Doyle JJ; Alderfer MA
Cancer
2010
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1002/cncr.25415" target="_blank" rel="noreferrer">10.1002/cncr.25415</a>
Single parents of children with chronic illness: an understudied phenomenon
OBJECTIVE: To examine the chronic illness literature and evaluate the impact on single parenting and children and adolescents with chronic illness. METHODS: We conducted literature reviews of relevant research pertaining to single-parent families on PubMed, Medline, and PsychINFO and also surveyed pertinent book chapters and all of the articles from the Journal of Pediatric Psychology since 1987 for articles, specifically examining the potential associations of single (lone) parenting versus two-parent households on children's psychosocial functioning and the impact of the child's illness on caregiver functioning. RESULTS: While the literature has examined and discussed the stressors associated with parenting a child with an illness, including the impact of illness on finances, family roles, and caregiver burden, few studies have examined single parents of children and adolescents with chronic illnesses and related stressors stemming from being a lone caregiver. CONCLUSIONS: There is a dearth of studies examining the association between lone parenting and psychosocial functioning among children and adolescents with chronic illnesses. Specific questions necessitating future investigation are summarized and recommendations are made for future research in this important area of inquiry.
2008
Brown RT; Wiener L; Kupst MJ; Brennan T; Behrman R; Compas BE; David ET; Fairclough D; Friebert S; Katz E; Kazak AE; Madan-Swain A; Mansfield N; Mullins L; Noll R; Patenaude AF; Phipps S; Sahler OJ; Sourkes B; Zeltzer L
Journal of Pediatric Psychology
2008
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1093/jpepsy/jsm079" target="_blank" rel="noreferrer">10.1093/jpepsy/jsm079</a>
Children with disabilities and chronic conditions and longer-term parental health
Parents; Chronic disease; Child Disability; Chronic Condition; Disabilities; Disability; Gender Roles; identity; NET Grey Lit; Parental Health
This paper uses panel data from the Statistics Canada National Longitudinal Survey of Children and Youth (1994 through 2000) to study the implications of parenting a child with a disability or chronic condition for subjective assessments of parental health. We find mother's health to be negatively affected, particularly if the disability is longer-term. Within families, the wife's health deteriorates relative to her husband's when they are parenting a child with a disability. These results are consistent with Akerlof and Kranton's (2000) arguments that 'identity' is an important determinant of both behaviour and well-being. For parents of children with disabilities, the behaviour associated with a traditional 'good mother' identity (e.g., care-giving) appears to have more adverse health consequences than the behaviour associated with a 'good father' identity (e.g., bread-winning).
2006
Burton P; Lethbridge L; Phipps S
2006
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1016/j.socec.2007.01.032" target="_blank" rel="noreferrer">10.1016/j.socec.2007.01.032</a>
Adaptive style and symptoms of posttraumatic stress in children with cancer and their parents
PedPal Lit; Extramural Research Support; N.I.H.; Adaptation; Non-U.S. Gov't Stress Disorders; Post-Traumatic/epidemiology/psychology Survivors/psychology United States/epidemiology; Psychological Adolescent Adult Analysis of Variance Child Cross-Sectional Studies Defense Mechanisms Female Humans Male Neoplasms/psychology Parents/psychologyPersonality Research Support
OBJECTIVE: To examine symptom levels of posttraumatic stress (PTS) in children with cancer and their parents as a function of patient and parent adaptive style. METHOD: Participants included 162 pediatric cancer patients and their parents. Patients completed self-report measures of PTS and adaptive style. Parents reported on their own adaptive style and PTS, as well as levels of PTS in their child. RESULTS: Adaptive style was a significant correlate of PTS. Children identified as low anxious (LA) or repressors (REP) obtained lower levels of PTS than did high anxious (HA) children, both by self-report and parent report. Parents identified as LA or REP self-reported lower levels of PTS than HA and also reported lower levels of PTS in their children. CONCLUSIONS: Patient and parent adaptive style are significant determinants of PTS in the pediatric oncology setting. These findings, in combination with the generally low levels of PTS in the pediatric oncology population, raise questions about the utility of the posttraumatic stress model for understanding the experiences of children with cancer, although such a model may be more applicable to parental response.
2006
Phipps S; Larson S; Long A; Rai SN
Journal of Pediatric Psychology
2006
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1093/jpepsy/jsj033" target="_blank" rel="noreferrer">10.1093/jpepsy/jsj033</a>