Browse Items (25 total)
- Tags: Personal Experience
End Of Life Care In Paediatric Neurodegenerative Disease: A Regional Experience
Tags: 2016, Case Study, Child, Clinical Article, Controlled Study, Degenerative Disease, Developmental Medicine and Child Neurology, Donald A, England, Family, Hospital, Human, Kauffmann L, May 2017 List, Myoclonus, Neurodegenerative Diseases, Neurology, Only Child, Palliative Care, Palliative Therapy, Personal Experience, Ram D, Rare Disease, Seizure, Social Welfare, Symptom, Terminal Care, Vassallo G
Aims And Tasks In Parental Caregiving For Children Receiving Palliative Care At Home: A Qualitative Study
Tags: 2017, Bosman DK, Child, Child Parent Relation, Clinical Article, Colenbrander DA, Controlled Study, European Journal of Pediatrics, Family Life, Grootenhuis MA, Home Care, Human, Interview, Kars MC, March 2017 List, Palliative Therapy, Personal Experience, Qualitative Research, Schouten-Van Meeteren AYN, Sound, Symptom, Thematic Analysis, van Delden JJ, Verberne LM
Approaching the third decade of paediatric palliative oncology investigation: historical progress and future directions
Tags: 2017, Bereavement, Cancer Prognosis, Child, Childhood Cancer, Controlled Study, Ethnic Group, Human, Oncology 2017 List, Palliative Therapy, Personal Experience, Prevalence, Prognosis, Quality Of Life, Randomized Controlled Trial(topic), Rosenberg AR, Sibling, The Lancet Child And Adolescent Health, Voice, Wolfe J
Parental perceptions of forgoing artificial nutrition and hydration during end-of-life care
Tags: 2013, Article, Artificial Feeding, Child Care, Child Death, Clinical Practice, Concept Formation, Controlled Study, Decision Making, Female, Human, Hydration, Male, March 2018 List, Newman C, Parental Attitude, Pediatrics, Personal Experience, Priority Journal, Qualitative Research, Quality Of Life, Rapoport A, Religion, Rugg M, Satisfaction, Shaheed J, Steele R, Terminal Care
Bringing social context into the conversation about pediatric long-term ventilation
Tags: 2018, April 2018 List, Article, Artificial Ventilation, Boss RD, Child, decision support system, Family Decision Making, Henderson CM, Home Care, home care services, home environment, Hospital Patient, Hospital Pediatrics, Human, Life Sustaining Treatment, Long Term Care, Long-Term Care, Mechanical, Medical Information, Only Child, Patient-centered Care, Pediatrics, Personal Experience, practice gap, Quality Of Life, Social Environment, Tracheostomy, Ventilators, Wilfond BS
Parents' needs for physician-parent communication in the face of life-threatening illness: Qualitative analysis
Tags: 2017, Adolescent, Article, Child, Child Death, child hospitalization, Childhood Disease, Clinical Article, Female, Health Care System, Hospice, Human, Infant, Interpersonal Communication, Janusz B, June 2018 List, Knowledge, law suit, Life Threatening illness, Male, malpractice, Palliative Medicine in Practice, Parent, Personal Experience, personal needs, physical disease, Physician, Preschool Child, Qualitative Analysis, School Child, Semi Structured Interview, Walkiewicz M
The experiences, attitudes and practices of nurses working in a paediatric intensive care unit caring for babies and children at the end of life: A qualitative study
Tags: 2018, Archives of Disease in Childhood, Brierley J, Child, Clinical Article, conference abstract, Documentation, Du Pre P, Female, genetic transcription, Hospice, Human, Human Experiment, Infant, June 2018 List, Koffman J, Male, Nurse, Pediatric Intensive Care Unit, Personal Experience, Qualitative Research, Sampling, Scientist, Semi Structured Interview, Terminal Care, Uncertainty
Opinions of Israeli neonatologists about life and death decisions in neonates
Tags: 2018, Adult, Age, Article, Bin-nun A, Demography, disabled person, Disease Severity, Dying, Ethnicity, Family Attitude, Female, Health Care Cost, Human, Israel, Israeli, Journal Of Perinatology, Kasirer MY, Male, Medical Decision Making, Medical Ethics, medicolegal aspect, Middle Aged, Mimouni FB, Neonatal Intensive Care Unit, Neonatologist, Normal Human, November 2018 List, Personal Experience, Physician Attitude, Prospective Study, psychological well being, Questionnaire, Religion, Schimmel MS, sex difference, Simulation, Terminal Care
A possibility for strengthening family life and health: Family members' lived experience when a sick child recieves home care in sweden
Tags: 2018, Attention, Castor C, Child, Childhood Cancer, Clinical Article, conference abstract, December 2018 List, Expectation, Family Life, Father, Female, genetic transcription, Hansson H, Home Care, Human, Interview, Kristensson HI, Landgren K, lion, Male, Mother, Nonhuman, Pediatric Blood and Cancer, Personal Experience, responsibility, Sibling, Sweden, welfare, Wellbeing
Exploring Resident Physicians' Experiences Practicing in Pediatric Palliative Care: A Hermeneutic Method of Inquiry
Tags: 2018, Charles G, Child, Chronic Patient, conference abstract, Controlled Study, Data Analysis, Death, February 2019 List, genetic transcription, Grief, Guilt, Human, Johnson A, Journal of Pain and Symptom Management, Medical Education, Palliative Therapy, Pediatrics, Perception, Personal Experience, Phenomenology, Qualitative Research, Resident, Rotation, Semi Structured Interview, Siden H, Student
Illness and end-of-life experiences of children with cancer who receive palliative care
Tags: 2018, Article, Artificial Ventilation, Baker JN, Blazin L, cancer center, cancer susceptibility, Child, Childhood Cancer, Cohort Analysis, Controlled Study, Cost Effectiveness Analysis, data extraction, Death, DeMarsh S, Experimental Therapy, Female, Gushue CA, Hospice, Hospital Patient, Hospitalization, Human, Intensive Care Unit, invasive procedure, Jerkins J, Johnson LM, Kaye EC, Levine DR, Life Change Events, Lu Z, Major Clinical Study, Male, Morrison RR, Oncology 2018 List, Only Child, Palliative Care, Palliative Therapy, Pediatric Blood and Cancer, Personal Experience, phase 1 clinical trial, Quality Of Life, Resuscitation, Retrospective Study, Snaman JM, Sykes A
Parents with a child throughout the end-of-course: A qualitative study
Physicians' attitudes when faced with life-threatening events in children with severe neurological disabilities
Tags: 2019, Adult, Article, childhood disease/ep [Epidemiology], Clinical Decision Making, Cross-sectional Study, Developmental Neurorehabilitation, Disability, Emergency Ward, Female, Follow Up, Health Care Access, Human, Intensive Care, Likert scale, Major Clinical Study, Male, May 2019 List, neurologic disease/ep [Epidemiology], Newman C J, Noninvasive Ventilation, Palliative Therapy, Patient Care, Patient Comfort, Pediatric Rehabilitation, Personal Experience, Physician Attitude, Priority Journal, profound intellectual and multiple disability, rehabilitation center, Resuscitation, Risk, risk factor, Spinal Muscular Atrophy, Swiss, Terminal Care, Tracheostomy, Wosinski B
The experiences of bereaved family caregivers with advance care planning for children with medical complexity
Tags: 2019, Advance Care Planning, Amin R, Caregiver, Child, Clinical Article, Cohen E, conference abstract, Consultation, Content Analysis, Conversation, Death, Female, genetic transcription, Health Care Personnel, Hellman J, Human, Human Tissue, Informed Consent, Lord S, Male, Moore C, Netten K, October 2019 List, Orkin J, Paediatrics and Child Health (Canada), Perception, Personal Experience, Rappaport A, Semi Structured Interview
Parent-Reported Experience Measures of Care for Children with Serious Illnesses: A Scoping Review
Tags: Child, Child Care, Chronic Disease, Systematic Review, Terminal Care, 2022, Ang FJL, Caregiver Support, Childhood Disease, Emergency Care, empowerment, Finkelstein EA, Gandhi M, Health Care Delivery, Health Care Quality, Hospice Care, Hospital care, Hospitalized Child, Human, Long Term Care, Neonatal Intensive Care Unit, November 2022 List, Palliative Therapy, Parental Attitude, patient-reported outcome, Pediatric Critical Care Medicine, Personal Experience, Review, shared decision making
Evaluating a novel hospital-based online health community to address palliative and psychosocial care factors for chronically ill adolescent and young adult patients
Tags: 2023, Adolescent, Adult, Article, Chronic Disease, Chronic Patient, Clinical Article, Collins S, Controlled Study, Data Analysis, Expectation, Female, Hart M, Human, Interview, Lebeau K, Male, Marchi E, May List 2023, Palliative And Supportive Care, Palliative Therapy, Personal Experience, Phenomenology, Pomeranz JL, psychosocial care, Qualitative Analysis, Questionnaire, solidarity, Walker D, Young Adult, Zori G
A pilot study on sports activities in pediatric palliative care: just do it
Tags: 2023, Agosto C, Article, Avagnina I, Benini F, BMC Palliative Care, Caregiver, Child, Controlled Study, Exercise, Female, Giacomelli L, Human, International Classification of Functioning Disability and Health, June 2022 List, juvenile, Maghini I, Male, mental deficiency, motor dysfunction, Palliative Care, Palliative Therapy, Papa S, Perilongo G, Personal Experience, physical activity, Pilot Projects, Pilot Study, Quality Of Life, Questionnaire, Salamon E, Santini A, Sports, Swimming
Redirecting Care: Compassionate Management of the Sick or Preterm Neonate at the End of Life
Tags: 2022, August List 2052, Children, compassionate care, Distress Syndrome, doctor patient relationship, emotionality, family relation, family support, Hain R, Health Care Personnel, Human, Infant, Newborn, intersectoral collaboration, Newborn Care, Newborn Death, Pain, Palliative Therapy, parent counseling, parental behavior, Patient Care, Personal Experience, Philosophy, Psychological care, Review, Terminal Care, Wyatt J
Nurses' effort for providing end-of-life care in paediatric oncology: a phenomenological study
Tags: 2023, 2023 SE3 - Oncology, Analgesia, Article, care behavior, Child, Childhood Cancer, Clinical Article, Female, Ghaljeh M, Honesty, Human, International Journal of Palliative Nursing, Male, Mardani-Hamooleh M, Nurse, oncology nurse, Palliative Therapy, Personal Experience, Phenomenology, psychotrauma, Rezaee N, Terminal Care
A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services, and treatments
Tags: 2023, abdominal pain, Adolescent, Analgesia, Analgesics Opioid, Anthropology Cultural, Caes L, Child, Child Parent Relation, Chronic Pain, Cochrane Database of Systematic Reviews, Complex Regional Pain Syndrome, cultural anthropology, Disease Severity, endometriosis, ethnography, Family, Family Life, February List 2024, Fibromyalgia, Forbat L, France E, Headache, Health Care Personnel, Health Service, Human, Humans, inflammatory bowel disease, Jordan A, juvenile rheumatoid arthritis, migraine, musculoskeletal pain, narcotic analgesic agent, Noyes J, outcome assessment, Pain Assessment, Pain Severity, patient-reported outcome, pediatric patient, Peer Group, Personal Experience, Prognosis, Quality Of Life, racism, Review, Sibling, Silveira Bianchim M, Social Care, Social Isolation, Social Support, Social Work, Systematic Review, Thomson K, Turley R, Uny I, Wellbeing
Balancing pandemic public health restrictions and family support at the end of life: palliative care and bereavement experiences of parents whose child died during the COVID-19 pandemic
Tags: 2023, Adolescent, Article, Bereavement Support, BMC Palliative Care, Canada, Child, Chronic Disease, Controlled Study, Coping Behavior, coronavirus disease 2019, family support, February List 2024, Female, Health Care Access, health care facility, Health Care Policy, Health Service, Health Status, Human, Infant, Infection Control, Interview, Male, Nicholas DB, Palliative Therapy, Pandemic, Parental Attitude, Personal Experience, physical activity, Public Health, Qualitative Research, Rapoport A, Risk Assessment, Social Support, Terminal Care, Zulla RT
The most painful estrangement: Death at birth
Tags: 2024, alienation, April List 2024, Article, avoidance behavior, Bereavement, Cacciatore J, Child Death, community care, complicated grief/dt [Drug Therapy], continuing education, Coping, Decision Making, Depression, Emotion, Emotional Stress, emotional support, family history, Family Stress, Fear, Guilt, Human, Identity, lactation, Loneliness, mourning, naltrexone/dt [Drug Therapy], Palliative Therapy, Personal Experience, PostTraumatic Stress Disorder, Prevalence, rage, regret, Sadness, Self Concept, Seminars in Perinatology, shame, social bonding, Social Support, sorrow, spontaneous abortion, Stigma, Stillbirth, Suicide, traffic accident
How Do Children With Medical Complexity Die? A Scoping Review
Tags: 2024, April List 2024, biological marker, Bourassa MH, Chan Ng GM, Child, Child Death, Chronic Disease, Chronic Patient, Clinical Practice, Cohort Analysis, Health Care Utilization, Human, Journal of Palliative Medicine, knowledge gap, North America, Only Child, Patel H, Personal Experience, Place Of Death, Qualitative Research, Quality Of Life, Review, Systematic Review
Serious news communication between clinicians and parents impacts parents' experiences, decision-making, and clinical care for critically ill neonates
Tags: 2024, Acta Paediatrica, April List 2024, Article, Clinical Outcome, Clinician, communication disorder, Conversation, Critical Illness, Critically Ill Patient, Decision Making, DeVries R, Health Care, Human, Infant Newborn, Interpersonal Communication, Krenz C, Kukora S, Neonatal Intensive Care Unit, Newborn, Palliative Therapy, Parent, Personal Experience, Prenatal Diagnosis, Purposive Sample, Quality Of Life, Semi Structured Interview, shared decision making, Spector-Bagdady K
Exploring spirituality, religion and life philosophy among parents of children receiving palliative care: a qualitative study
Tags: 2024, Adult, Aged, April List 2024, Article, BMC Palliative Care, Child, Ciccorossi M, Clemente I, Clinician, Coping, Decision Making, Female, Health Care Personnel, Human, Interview, Knowledge, Male, Miquel P, Palliative Care, Palliative Therapy, Parent, Pediatric Hospital, Personal Experience, Philosophy, Qualitative Research, Religion, religiosity, Southern European, Spain, terminal disease