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Text
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<a href="http://doi.org/10.1542/peds.2013-4161" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2013-4161</a>
<a href="http://pediatrics.aappublications.org/content/early/2014/08/12/peds.2013-4161" target="_blank" rel="noreferrer">http://pediatrics.aappublications.org/content/early/2014/08/12/peds.2013-4161</a>
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Title
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Mechanical Ventilation for a Child With Quadriplegia
Publisher
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Pediatrics
Date
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2014
Subject
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quality of life; Ethics; decisional capacity; quadriplegia; right to refuse treatment; substituted judgment
Creator
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Novotny WE; Perkin RM; Mukherjee D; Lantos JD
Description
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Parents generally have the right to make medical decisions for their children. This right can be challenged when the parents’ decision seems to go against the child’s interests. The toughest such decisions are for a child who will survive with physical and neurocognitive impairments. We discuss a case of a 5-year-old boy who suffered a spinal injury as a result of a motor vehicle accident and whose father requests discontinuation of life support. Many experts recommend a “trial of therapy” to clarify both prognosis and quality of life. The key ethical question, then, is not whether to postpone a decision to forego mechanical ventilation. Instead, the key question is how long to wait. Parents should be allowed time to see what life will be like for themselves and for their child. Most of the time, life turns out better than they might have imagined. Comments are provided by 2 pediatric intensivists, Drs William Novotny and Ronald Perkin of East Carolina University, and by a specialist in rehabilitation, Dr Debjani Mukherjee of the Rehabilitation Institute of Chicago.
2014-08
Identifier
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<a href="http://doi.org/10.1542/peds.2013-4161" target="_blank" rel="noreferrer">10.1542/peds.2013-4161</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2014
Backlog
decisional capacity
Ethics
Journal Article
Lantos JD
Mukherjee D
Novotny WE
Pediatrics
Perkin RM
quadriplegia
Quality Of Life
right to refuse treatment
substituted judgment