1
40
3
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
July 2016 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
A Core Outcome Set For Children With Feeding Tubes And Neurologic Impairment: A Systematic Review
Publisher
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Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Brain-damaged Children; Home Enteral Nutrition; Quality Of Life; Video-assisted Gastrostomy; Percutaneous Endoscopic Gastrostomy; Randomized Controlled-trials; Severe Cerebral-palsy; Single-center Experience; Clinical-trials; Pediatrics; Gastroesophageal-reflux; Neurologic Manifestations Of General Diseases; Research; Child; Health Aspects
Creator
An entity primarily responsible for making the resource
Mufiza Z Kapadia; Kariym C Joachim; Chrinna Balasingham; Eyal Cohen; Mahant Sanjay; Katherine Nelson; Jonathon L Maguire; Astrid Guttmann; Martin Offringa
Description
An account of the resource
CONTEXT: Uncertainty exists about the impacts of feeding tubes on neurologically impaired children. Core outcome sets (COS) standardize outcome selection, definition, measurement, and reporting.
OBJECTIVE: To synthesize an evidence base of qualitative data on all outcomes selected and/or reported for neurologically impaired children 0 to 18 years living with gastrostomy/gastrojejunostomy tubes.
DATA SOURCES: Medline, Embase, and Cochrane Register databases searched from inception to March 2014.
STUDY SELECTION: Articles examining health outcomes of neurologically impaired children living with feeding tubes.
DATA EXTRACTION: Outcomes were extracted and assigned to modified Outcome Measures in Rheumatology 2.0 Filter core areas; death, life impact, resource use, pathophysiological manifestations, growth and development.
RESULTS: We identified 120 unique outcomes with substantial heterogeneity in definition, measurement, and frequency of selection and/or reporting: “pathophysiological manifestation” outcomes (n = 83) in 79% of articles; “growth and development” outcomes (n = 13) in 55% of articles; “death” outcomes (n = 3) and “life impact” outcomes (n = 17) in 39% and 37% of articles, respectively; “resource use” outcomes (n = 4) in 14%. Weight (50%), gastroesophageal reflux (35%), and site infection (25%) were the most frequently reported outcomes.
LIMITATIONS: We were unable to investigate effect size of outcomes because quantitative data were not collected.
CONCLUSIONS: The paucity of outcomes assessed for life impact, resource use and death hinders meaningful evidence synthesis. A COS could help overcome the current wide heterogeneity in selection and definition. These results will form the basis of a consensus process to produce a final COS.
Identifier
An unambiguous reference to the resource within a given context
10.1542/peds.2015-3967
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Astrid Guttmann
Brain-damaged Children
Child
Chrinna Balasingham
Clinical-trials
Eyal Cohen
Gastroesophageal-reflux
Health Aspects
Home Enteral Nutrition
Jonathon L Maguire
July 2016 List
Kariym C Joachim
Katherine Nelson
Mahant Sanjay
Martin Offringa
Mufiza Z Kapadia
Neurologic Manifestations Of General Diseases
Pediatrics
Percutaneous Endoscopic Gastrostomy
Quality Of Life
Randomized Controlled-trials
Research
Severe Cerebral-palsy
Single-center Experience
Video-assisted Gastrostomy
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="http://doi.org/10.1177/0148607102026005298" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/0148607102026005298</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Efficacy and tolerance of gastrostomy feeding in pediatric forms of neuromuscular diseases
Publisher
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Journal of Parenteral and Enteral Nutrition
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Male; Treatment Outcome; Infant Newborn; Follow-Up Studies; Child; Humans; Adult; Adolescent; Female; Child Preschool; Infant; Nutritional Status; Weight Gain; Gastrostomy; Gastroesophageal Reflux/complications; Enteral Nutrition; Neuromuscular Diseases/complications/therapy; feeding difficulties; SMA type I; surgical intervention; percutaneous endoscopic gastrostomy; gastroesophageal reflux; GERD
Creator
An entity primarily responsible for making the resource
Seguy D; Michaud L; Guimber D; Cuisset J; Devos P; Turck D; Gottrand F
Description
An account of the resource
BACKGROUND: Percutaneous endoscopic gastrostomy (PEG) is a simple and reliable method, but there are few data about its use in pediatric forms of neuromuscular diseases (NMD). The aim of this study was to evaluate the nutritional effects and tolerance of gastrostomy feeding in NMD patients. METHODS: Twelve patients with NMD, ranging in age from 1 month to 25.5 years, underwent a gastrostomy placement (PEG, n = 11; surgical gastrostomy, n = 1) between January 1990 and December 2000. Diseases were muscular dystrophies (n = 5), infantile spinal muscular atrophies (n = 3), congenital myopathies (n = 3), and polyradiculoneuritis (n = 1). Height-for-age (Z(H/A)), weight-for-age (Z(W/A)), and weight-for-height (Z(W/H)) z scores were assessed at birth, at the time of gastrostomy placement, after a 6-month and 1-year follow-up, and at the end of follow-up. Complications that occurred during the gastrostomy feeding period were recorded. Comparisons of z scores at the different times were performed with repeated-measures analyses of variance. RESULTS: Z(W/A) (p < .05) and Z(W/H) (p < .001) improved in the whole group after gastrostomy. For the 10 patients for whom follow-up was more than 1 year, Z(W/A) (p < .03) and Z(W/H) (p < .001) increased from the time of gastrostomy to the end of follow-up. Among 5 patients who had a gastroesophageal reflux diagnosed before gastrostomy placement, 3 had at least 1 episode of pneumonia and 2 died of respiratory distress caused by the worsening of NMD. No other major complication was encountered. CONCLUSIONS: Gastrostomy feeding is well tolerated and results in an improvement of nutritional indices in NMD patients. Special care should be taken in patients with preexisting gastroesophageal reflux.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/0148607102026005298" target="_blank" rel="noreferrer noopener">10.1177/0148607102026005298</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2002
Adolescent
Adult
Child
Child Preschool
Cuisset J
Devos P
Enteral Nutrition
feeding difficulties
Female
Follow-up Studies
Gastroesophageal Reflux
Gastroesophageal Reflux/complications
Gastrostomy
GERD
Gottrand F
Guimber D
Humans
Infant
Infant Newborn
Journal Of Parenteral And Enteral Nutrition
Male
Michaud L
Neuromuscular Diseases/complications/therapy
Nutritional Status
Percutaneous Endoscopic Gastrostomy
Seguy D
SMA type I
surgical intervention
Treatment Outcome
Turck D
Weight Gain
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="http://doi.org/10.1097/MPG.0000000000001543" target="_blank" rel="noreferrer noopener">http://doi.org/10.1097/MPG.0000000000001543</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Feed-induced Dystonias in Children with Severe Central Nervous System Disorders
Publisher
An entity responsible for making the resource available
Journal of Pediatric Gastroenterology and Nutrition
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
infant; adolescent; cerebral palsy; percutaneous endoscopic gastrostomy; retrospective study; priority journal; practice guideline; case study; school child; preschool child; intestine obstruction; human; article; child; female; male; clinical article; Rett syndrome; gastroesophageal reflux; infantile spasm; intestinal dysmotility; baclofen/dt [Drug Therapy]; dystonia/dt [Drug Therapy]; motor dysfunction; onset age; central nervous system disease; dystonia/dt [Drug Therapy]; feed induced dystonia; 1134-47-0 (baclofen); acquired brain injury; baclofen/tl [Intrathecal Drug Administration]; feed induced dystonia/dt [Drug Therapy]; gastroscopy; hydrocephalus; hyperglycinemia; intestine motility; microcephaly; peristalsis; reflux esophagitis; Sanfilippo syndrome; total parenteral nutrition; constipation; feeding difficulties; tone and motor problems; MPSIII; West syndrome; pharmacologic intervention; parenteral nutrition; dystonia; GERD; intestinal dysmotility
Creator
An entity primarily responsible for making the resource
Mordekar S R; Velayudhan M; Campbell D I
Description
An account of the resource
Dystonias can arise from any painful stimuli in neurologically disabled children. Classically, feed-induced dystonias from mediastinal pain due to severe gastroesophageal reflux disease are described as Sandifer spasm. We report a case series of 12 severely neurologically impaired children with enteral feed-induced dystonias. Intestinal dysmotility was demonstrated in several. Improvements are seen with jejunal feeds or gut rest with total parenteral nutrition. Use of parenteral nutrition in children with severe neurodisability requires thorough discussion with patient groups and commissioners to give clinicians guidelines to standardize care.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/MPG.0000000000001543" target="_blank" rel="noreferrer noopener">10.1097/MPG.0000000000001543</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
1134-47-0 (baclofen)
2017
acquired brain injury
Adolescent
Article
Baclofen/dt [drug Therapy]
baclofen/tl [Intrathecal Drug Administration]
Campbell D I
Case Study
central nervous system disease
Cerebral Palsy
Child
Clinical Article
Constipation
Dystonia
dystonia/dt [Drug Therapy]
feed induced dystonia
feed induced dystonia/dt [Drug Therapy]
feeding difficulties
Female
Gastroesophageal Reflux
Gastroscopy
GERD
Human
Hydrocephalus
Hyperglycinemia
Infant
infantile spasm
intestinal dysmotility
intestine motility
Intestine Obstruction
Journal Of Pediatric Gastroenterology And Nutrition
Male
microcephaly
Mordekar S R
motor dysfunction
MPSIII
onset age
Parenteral Nutrition
Percutaneous Endoscopic Gastrostomy
peristalsis
pharmacologic intervention
Practice Guideline
Preschool Child
Priority Journal
reflux esophagitis
Retrospective Study
Rett syndrome
Sanfilippo syndrome
School Child
tone and motor problems
total parenteral nutrition
Velayudhan M
West syndrome