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Dublin Core
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Title
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February 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February List 2023
URL Address
<a href="http://doi.org/10.1093/jamia/ocac252" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1093/jamia/ocac252</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Growth curve modeling of virtual events and online engagement in a palliative care peer support online health community for adolescents and young adults
Publisher
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Journal of the American Medical Informatics Association
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
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Adolescence; Engagement; Online; Palliative Care; Peer Support; Virtual Events
Creator
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Walker AL; Swygert A; Marchi E; Lebeau K; Haardörfer R; Livingston III MD
Description
An account of the resource
Online health communities (OHCs) have been identified as important outlets for social support and community connection for adolescents and young adults (AYAs) living with chronic illnesses. Despite evident benefits, there remains a gap in research on methods to maximize sustained patient engagement within OHCs. This study assessed per-patient daily commenting rates over time, as well as associations with program staff and volunteer-facilitated events and engagement.We utilized data from 662 daily patient, volunteer, and staff comment totals within a Discord server hosted through the Streetlight at UF Health Streetlight Gaming and Online Team, between January 2019 and January 2022. Multilevel models were used to assess per-patient daily commenting rates and examine associations with OHC-level predictors of staff and volunteer-facilitated daily and seasonal events, as well as the number of daily active users.Per-patient comment rates showed an overall negative slope with time in most models. Unadjusted and adjusted growth curve models showed that daily events (β = .21), seasonal events (β = .18), and total daily active users (β = .09) were all significantly associated with increases in per-patient daily comment rates.Results suggest that social event facilitation strategies can be applied to increase AYA patient engagement in OHCs. Seasonal events and staff and volunteer engagement may be the effective means of maintaining engagement among long-term patients.Our findings highlight the importance of staff and volunteer presence in OHCs in driving long-term patient engagement and in considering patient needs and perspectives in developing OHC features.
Identifier
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<a href="http://doi.org/10.1093/jamia/ocac252" target="_blank" rel="noreferrer noopener">10.1093/jamia/ocac252</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
Adolescence
engagement
February List 2023
Haardörfer R
Journal of the American Medical Informatics Association
Lebeau K
Livingston III MD
Marchi E
Online
Palliative Care
Peer Support
Swygert A
Virtual Events
Walker AL
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Special Edition #1 2022 List
Text
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Citation List Month
Special Edition #1 2022 List
URL Address
<a href="http://doi.org/10.1080/07481187.2020.1850548" target="_blank" rel="noreferrer noopener">http://doi.org/10.1080/07481187.2020.1850548</a>
Dublin Core
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Title
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Belonging to a Community of Care: Mothers' Experiences of Online Peer Support Groups for Parents Having Lost a Child with Congenital Heart Defects
Publisher
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Death Studies
Date
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2020
Subject
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Child death; mother grief; peer support; parent support
Creator
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Klarare A; Carlsson T; Mattsson E
Description
An account of the resource
The aim was to study mothers' experiences of online peer support groups after the death of a child. Participants (N = 8) were recruited through a newsletter for the Swedish association for families/children with heart defects, and two closed support groups on Facebook (900 and 100 members) and interviewed by telephone. Transcripts were analyzed with qualitative content analysis. The groups were available around the clock, regardless of support need, and mothers joined both to receive and provide support. Participation in online peer support groups may provide a sense of belonging to a caring community and serve as a valuable complement to healthcare.
Identifier
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<a href="http://doi.org/10.1080/07481187.2020.1850548" target="_blank" rel="noreferrer noopener">10.1080/07481187.2020.1850548</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
2022 Special Edition 1 - Parent Perspectives
Carlsson T
Child Death
Death studies
Klarare A
Mattsson E
Mother Grief
parent support
Peer Support
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2017 List
Notes
<p>1471-6712<br />Aho, Anna Liisa<br />Malmisuo, Jaana<br />Kaunonen, Marja<br />Journal Article<br />Sweden<br />Scand J Caring Sci. 2017 Aug 3. doi: 10.1111/scs.12465.</p>
Dublin Core
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Title
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The Effects Of Peer Support On Post-traumatic Stress Reactions In Bereaved Parents
Publisher
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Scandinavian Journal Of Caring Sciences
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Death Of A Child; Parent; Peer Support; Stress Reaction
Creator
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Aho A L; Malmisuo J; Kaunonen M
Description
An account of the resource
The purpose of this study was to describe the impact of peer support on post-traumatic stress disorder in parents who have experienced the death of a child, the factors associated with the parents' post-traumatic stress reactions and the parents' experiences of peer support. The research data comprise the responses of parents who participated in a family weekend organised by Child Death Families Finland (KAPY). The data were collected 2 weeks before (n = 110) and 2 weeks after (n = 73) the family weekend by a questionnaire consisting of items designed to identify the relevant background variables and the Impact of Event Scale-Revised (IES-R), a self-report measure for assessing post-traumatic stress disorder (PTSD). Statistical methods were applied in the data analysis. No statistically significant differences were observed in the parents' stress reactions 2 weeks before and 2 weeks after the family weekend. The stress reactions, on the other hand, had a statistically significant association with the self-perceived health of the parents, the age at which their child had died and the time that had elapsed since the death. Two-thirds of the parents regarded the peer support provided during the family weekend as supportive or very supportive. The parents also regarded the support provided during the weekend as important, although the support had no statistically significant impact on their stress reactions. One can draw the conclusion that the parents experienced the family weekend and the peer support provided during it as supportive.
Identifier
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10.1111/scs.12465
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Aho A L
Death Of A Child
Kaunonen M
Malmisuo J
October 2017 List
Parent
Peer Support
Scandinavian journal of caring sciences
Stress Reaction